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skeye
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Date Joined Mar 2008
Total Posts : 2976
   Posted 1/12/2009 3:45 PM (GMT -7)   
I shouldn't have gotten my hopes up, but I did. I saw neuroophthalmologist #3 today. It has been over a year since I saw the last neurophth & I didn't care for either of the ones that I saw previously, so I figured I would wait the several months to get in to see this guy in case things have changed, or the others missed something. This guy was supposed to be really really good & came highly recommended from multiple people (physicians & patients alike). My ophthalmologist was optimistic that he would have something to say, in terms of a diagnosis for my severe eye pain, especially since he is supposed to be awesome at diagnosing abstract & rare cases like myself.

Well, I wasn't crazy about his personality (I was surprised since he got such rave reviews), but I could live with him if that was all. They guy was dictating his note to my ophthalmologist & other docs with me in the room, as he examined me! It was really creepy (although he didn't say anything bad, it was just strange to have someone talking about you into a tape recorder).

After 4hrs of testing, this was his diagnosis: "there is no medical explanation for your pain." Lovely. I half expected to hear this, since my eye looks pretty benign on exam (unless you take into account my history & all the major inflammatory changes that have developed in & around my eye after the injury over 2yrs ago now. I even showed him photographs, since some of these symptoms come & go periodically). But for him to have phrased it to way he did... I half wonder if he didn't believe me. I asked him if he could just take a guess as to what he thinks it could possibly be & he said that he "could not even begin to speculate." He is sending me for another MRI at a really good teaching hospital, as my old one is over a year & a half old and wasn't done on the best machine, but he doesn't believe that it is going to show anything, not even inflammation which we had previously believed to be at the heart of this matter.

I have no idea what I am going to do now. Nothing is working well for me and no one can tell me what is wrong. I'm just so frustrated & devastated. I don't know why I got my hopes up in the first place. I should have learned not to by now, but a part of me still wants to have faith in medicine. I was thinking about flying across the country to see this guy that specializes in orbital inflammatory conditions, but now I'm not sure it would be worth it. I'm just so tired & sick of this -- of being exhausted from getting no sleep because of pain, of constantly feeling sick from pain & losing weight from not eating, not being able to do my school work effectively, and most of all, being in pain ALL THE TIME. Sorry for all the ranting. It's just been an extraordinarily bad day for me. I guess I really need to try to get in with a psychiatrist. Stupid chronic pain induced depression.

Skeye

hep93
Elite Member


Date Joined Jul 2005
Total Posts : 12014
   Posted 1/12/2009 3:55 PM (GMT -7)   

{{{{{{{Skeye}}}}}  I am so sorry that this doctor couldn't find a cause for your pain.  How long has this been going on?  I know that certain conditions can progress for years before finally showing up on x-ray or MRI.  I'm not very familiar with the eye, so don't know if this is true in that case.

As for the doc dictating in your presence, I actually like that.  I am right there to correct any mistakes made--and they do make them.  But I was a medical transcriptionist for 15 years, prior to my disability, so I see it from a different perspective. 

Chronic pain, particularly undiagnosed pain, does cause depression, so I hope you will follow through on seeing a psychiatrist.  Actually, some antidepressants are useful for pain control.

Hugs,


hep93
Forum moderator - Hepatitis


connieque
New Member


Date Joined Jan 2009
Total Posts : 2
   Posted 1/12/2009 5:37 PM (GMT -7)   
Hi there my name is Connie i'm new to this web site sorry to hear about all the pain you go though. I know what that feels like i've been in alot of pain for over 15 years and i can say that in the last 7 months i have found a way to feel better.All my doctors thought i was crazy too and i was on every medication in the book for PAIN and DEPRESSION.... sad hu but true.. i can feel your pain... regarding seeing a psychiatrist be my guest it did not work for me it only made me feel worse.... if you want to hear my story and how i feel better email me you will be surprised... i was so bad i even tryed to kill myself i too many times because i couldnt take the pain any longer...

i hope your doing better and please email me so we can chat.

Connie

jenpen400
Regular Member


Date Joined Apr 2007
Total Posts : 117
   Posted 1/12/2009 6:16 PM (GMT -7)   
Big hug. Sorry you have no answers. My neck problems went on for 20 years before the problem was severe enough to be diagnosed. On a side note I worked as a PA for an Optomitrist nearly 20 years ago when I mysteriously had a pain in my eye so severe that both eyes slammed shut. We never found the cause but on a scale of 1-10 it was an 11 thankfully it only lasted a few days. God does not close one door without opening a window. Hang in there.

jennifer

skeye
Veteran Member


Date Joined Mar 2008
Total Posts : 2976
   Posted 1/12/2009 6:19 PM (GMT -7)   
Thanks hep,

It's been just over two years. My pain is related to a traumatic eye injury that I had. The biggest problem is that everything going on w/ it is behind the eyeball which is next to impossible to see & even MRI's aren't always great at visualizing that region. I haven't had a firm diagnosis since the beginning (other than the immediate damage I did at the time), but we at least thought that we had a good idea of what was going on. Now I just don't know any more, esp since the doc I saw today kind of refuted what we had been thinking the problem was for the last 2yrs. Now I'm just kind of lost, confused, and frustrated even more than I was before.

I've been on antidepressants for a long time (on & off since before my chronic pain problems started, but it's definitely become much worse with the pain. I've been on antidepressants for pain as well as depression, but they never helped the pain & I've yet to find one that works really well for depression. That's why my doc wants me to see a psychiatrist. He has been taking care of both the pain & depression, but it is starting to get kind of complex, so he wants me to get another opinion on the depression issue.

Hi Connie,

Welcome to HW, I'm sorry you have to be here because of pain, but I'm glad you joined our HW family. As you can see, this is a great place to vent your frustrations when you're having a bad day, etc, like I am today & it's also a wonderful place to come for support (again, like I'm doing today). Keep posting.

Skeye

hep93
Elite Member


Date Joined Jul 2005
Total Posts : 12014
   Posted 1/12/2009 6:35 PM (GMT -7)   
Skeye, I was just wondering if you have had problems with your neck...thinking that the eye pain could be referred pain from the neck.  I have occasionally have that, in fact right at the moment.  However, if you had an eye injury, it would seem that your pain is directly related to that.  Have you had a CT of your head and neck?
 
There are constantly new antidepressants coming out and it is often a process of elimination to find one that works for you.  I'd still give it a try, eliminating ones you've tried that haven't worked for you.  My b.f. was diagnosed with clinical depression and it took months to find a med that worked for him that he could tolerate.  I believe he ended up on Seroquel.
hep93
Forum moderator - Hepatitis


ryand
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Date Joined Dec 2007
Total Posts : 639
   Posted 1/12/2009 6:43 PM (GMT -7)   
(((((((((((((((Skeye)))))))))))))))

Skeye, I can completely understand where you are. I know too well the devastation of getting your hopes up and having them crash down around you. My condition has been elusive too, and it is so maddening, isn't it? I try to remind myself that those new doctors aren't treating ME, the PERSON yet. They are evaluating a CASE still. It doesn't help a lot, I know, because we cannot separate ourselves from the pain and whatever it is that causes it, but it helps me get a little perspective back sometimes.

I know it is hard to keep hoping right now, but it is a good sign that he has ordered this MRI even though he thinks it won't show much. That means he is ruling things out. It means he hasn't given up trying to figure out how to help you.

I hope tomorrow is a better day. I'll be thinking of you.
Ry

straydog
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Date Joined Feb 2003
Total Posts : 13455
   Posted 1/12/2009 7:48 PM (GMT -7)   
Skeye alot of drs do the dictation that way now a days and I feel it is much better, less mistakes when done in your presence, you have the opportunity to correct him, so do not feel offended by it. As much as you are disappointed as to how the exam went today, he is giving you a benefit of a doubt by ordering an MRI, and not all MRI machines are created equal, so there may be a chance if there is something going on it will show up. Even tho he made the comment he did about finding nothing wrong, he could have just looked at you and said see ya, so don't throw the towel in yet. Its so frustrating for sure. If you are not comfortable seeing a physchiatrist, consider a physchologist. I had a wonderful one. Although we know CP can cause depression and such, its good that you are on a med for the depression. Keep us posted. Susie


ryand
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Date Joined Dec 2007
Total Posts : 639
   Posted 1/12/2009 8:39 PM (GMT -7)   
Skeye:

Susie's post made me think about something else too... You might consider asking your doctor for a referral to a neuropsychiatrist. Those doctors are specially trained to work with patients who suffer from chronic illnesses and pain. They have particular training in treatments like cognitive behavior therapy, so they can help you learn how better to physically cope with your pain. You can learn relaxation techniques and ways to "read" your body's subtle signals so you can start to catch flares earlier in the cycle and take action to prevent or intervene.

Ry

PAlady
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Date Joined Nov 2007
Total Posts : 6795
   Posted 1/12/2009 9:22 PM (GMT -7)   
Skeye,
I just signed on and am catching up with reading but wanted to say I'm so sad to learn you're not getting a quicker answer. But like straydog said, at least he's continuing to look. And the next time you go in to talk with him - after your MRI - you can have a host of questions to ask, and maybe also ask if he would clarify even if he can't locate a precise cause for your pain, your history of trauma could certianly indicate there's a cause that's not visible - or something along those lines. So you don't have trouble getting pain management in the future.

But it sounds like tonight is a night to curl up and lick your wounds a bit. And play a little with that puppy. And I'm sure some of us will be up late tonight!

(((((Skeye))))))))

Don't give up!

PaLady

skeye
Veteran Member


Date Joined Mar 2008
Total Posts : 2976
   Posted 1/12/2009 10:24 PM (GMT -7)   
Thanks so much for all your hugs & support Ry, Susie, Jen, & Palady! I really can't put into words how much I appreciate it.

I'm feeling a little better now after getting a good cry out for a bit & then snuggling with the puppy. I'm still pretty upset, but I'm calming down. I was just hoping, praying, so badly that I would get at least some sort of partial answer or that he would have said, "well I don't see anything, but maybe...." Everything really just hit me hard today, especially since I'm still struggling about what to do with this coming semester & I was hoping that seeing this doc might help. I had been looking forward to seeing him for months. The way he worded his answer didn't help either -- saying that there is "no medical explanation," instead of saying, that he didn't have an explanation. It just made me feel like he thought it was all in my head, although I don't think he meant it to sound that way.

This guy is supposedly one of the best neurophthalmologists in my state. I'm not sure I will see him again after the MRI, I think we will talk via phone, but I will only go back if they find something. Maybe they will. I'm going to an excellent university hospital for this one, and my last one was done at a small local hospital & I know that their MRI machine is pretty old & not the best. I probably should have gone to one of the big hospitals near my school the first time around, but it was more convenient at the time for me to go to the one nearer to my house. It also helped to talk to my father, who is a general practitioner & he basically reinforced the fact that just because he didn't see anything obvious (which we didn't expect him to anyway, since I have had sooo many tests done & seen sooo many different types of doctors over the last couple of years) doesn't mean that there isn't something wrong & something that is causing the pain. We just don't know enough about the body or have good enough diagnostics yet.

hep,
My eye pain is directly linked to the damage caused by the injury, so I've never had at CT before, although the last MRI was of my entire brain, including the eyes & I think this one will be the same. I do know that neck & eye problems can go together. I think I actually have some neck problems created by my eye problems. I've never had a doctor look at it, but it bothers me a lot right over the occipital region (which is the region associated with vision. When I go to acupuncture, they always work on my neck too because it is a mess, at least muscle-wise on the same side as my eye pain & it is always tight and cracking. I wouldn't really call it painful though, it just aches like the muscles are sore and knotted. Supposedly my neck & spine are crooked and my hips are rotated, all from my body compensating from my eye pain & they always have to straighten me out!

Ry,
Not having an answer is the worst! Obviously the pain is horrible, but the frustration associated with not knowing WHY you are in so much pain makes it just that much worse! It really makes you realize how limited medicine still is. It's definitely made me lose a lot of faith in healthcare. Thanks for the suggestion of the neuropsychiatrist! I've never heard of them before. I have been to a psychologist that specializes in pain before. Is it at all like that? He taught me biofeedback, but I haven't had much luck with it, but then again, I haven't practiced it as much as I should, because when I'm in so much pain, I don't always remember things like that.

Susie,
Do a lot of doctors really dictate in front of their patients?! I had never heard of anyone doing that before experiencing it today. It was just a strange experience. I felt kind of like I was eavesdropping or something, and I felt a bit like he talked more the that machine than to me! I'm trying not to give up hope about this MRI, but I think it would be easier to be more optimistic if the doc hadn't have said that he didn't expect to see anything on it. I think I'll do okay with the psychiatrist. I'm really only going to be seeing him a couple of times for a med eval, not psychotherapy, as I have a wonderful psychologist that I have been working with for a couple of years. He recommended some psychiatrists to me, so I'm going to give one of them a call tomorrow & try to set up an appointment. I do hear psychiatrists are really hard to get appointments with though. I guess you usually have to wait quite a while to get in for the initial visit.

Palady,
I know he based his answer off of not seeing any visible abnormality that could explain the pain & my test results from today being relatively normal (although my eye has been pretty "quiet" looking since the initial injuries healed, all my remaining abnormalities are external or functional). However, I did ask him something along the lines, of "do you have any possible thoughts about what could be causing all my pain & other associated symptoms," thinking that he might have some sort of a theory or say something along the lines of what you just mentioned about a cause that isn't visible. Instead, however, he he said that he "could not even begin to speculate" about a cause & that kind of took me aback. Even though I have been to many other different doctors & they too have not turned up anything significant enough to cause all the pain, etc, at the very least, they all had their theories, so I was kind of shocked that his guy had literally nothing to say. I will ask him again after the MRI, but at least I have other doctors who can verify my history & that I am in a lot of pain & do have other symptoms associated with (although not causing) the pain/whatever process is causing the pain. And hopefully most doctors realize that we don't know everything in medicine yet. So far I haven't had a problem with not having a solid, well supported diagnosis, as quite a few chronic pain patients also do not, but I'm sure there is always a first.

Well I suppose I should try to get to bed. Having had gotten a total of less than one hour of sleep last night certainly didn't help things today either!

Thanks again to everyone for all your support & ideas! You guys really help me to cope, understand, and keeping going!

Skeye

Post Edited (skeye) : 1/12/2009 10:29:50 PM (GMT-7)


Pamela Neckpain
Veteran Member


Date Joined May 2008
Total Posts : 1821
   Posted 1/12/2009 10:32 PM (GMT -7)   
Skeye,
I am sorry for your pain and your disappointment.
When things get like that it's just one step and then another.
On return I read your post and Palady's post and
I'm just done in for the night.
Pamela

hep93
Elite Member


Date Joined Jul 2005
Total Posts : 12014
   Posted 1/12/2009 10:33 PM (GMT -7)   
Skeye, I hope you get some sleep.  Lack of sleep exacerbates pain.  You are right about the tense muscles.  When you are in pain, your muscles involuntarily tense up against it, which causes more pain, so it's a vicious cycle.  It's good that you are getting accupuncture.  Massage is also good.  (I also take Flexeryl.)  It's necessary to break that cycle so you don't suffer more pain that necessary.

hep93
Forum moderator - Hepatitis


skeye
Veteran Member


Date Joined Mar 2008
Total Posts : 2976
   Posted 1/12/2009 11:08 PM (GMT -7)   
Thanks Pamela! I read your post on another thread as well. I'm glad to hear that you made it though the move, but sorry to hear that you are having increased pain! I hope you didn't overdo it too much!
How does your cat like the squirrels?!

Oh, hep, you are so right about pain & sleep, and pain & muscles, and the entire vicious cycle thing! Not sleeping makes everything, not just pain, worse! I just wish it was easier to break! My PM did have my try a muscle relaxer at one point, but not surprisingly it didn't help with my pain at all, but it was worth a try, especially, since in addition to relaxing muscles, the older ones have the ability to block some pain signals. I have been taking prescription sleep aids lately to try to counteract some of my chronic sleep deprivation. But even with them, I can't remember the last night that I got more than four hours of sleep at night! It must have been months and months ago. I honestly don't even know how I am still functional, as lately, I have been sleeping more like 2hrs. I do try to take some naps during the day when possible, although that isn't the best thing for me either. I really just need to find some way to get back into a somewhat normal sleep pattern.

Okay, off to sleep for real now, I promise! Gotta get up in 4hrs anyway, so hopefully I fall asleep right away!

Skeye

Pete trips again!
Veteran Member


Date Joined Nov 2006
Total Posts : 1899
   Posted 1/13/2009 5:07 AM (GMT -7)   
Skeye,
I know you are hurting bad right now and it's hard to listen to some guy trying to tell you about his experiances when you can't get answers about your pain. But I have to! 4 years ago, I was in your shoes, I know exactly how you are feeling. I was going to doctor after doctor after doctor and ended up at the Cleveland Clinic here in S.Fla. who I was told would figure out exactly what my problem was. Well, after a couple month waiting list I finally went there to see their #1 doc for my problem. When he told me that I was seriously depressed and thats all, I broke down in tears in his office like a 3 year old. I though he was going to comit me right there but I eventually got control of myself. Did he diognose me correctly? Yes & no, I was seriously depressed but there was a physical reason for it that he and the 8 other doctors missed! A doc finally did find out what was wrong but after seeing that doc at the Cleveland Clinic, I was seriously thinking about cashing it in. Thank God I didn't. What I'm trying to say is don't give up, There is an answer to what is causing your pain and they will find it. It might not be the doc w/ the best credentials who finds it either! Hang in there and keep the faith. You have a lot of us chering and praying for you.
Your friend,
Pete
55 years old, Surgury, Radical Prostatectomy 8/20/03, PSA 6.6, Gleason 3 + 3 = 6, Adenocarcinoma extent (moderate) Stage & Margin:T2NOMX, No Metastases, Organ Confined, bone scan: Neg. 3 1/2 years of depression after surgery prior to Hypogonadizm DX, Testosterone Theropy (Testim Gel)since 12/06 but switched to a higher dose of (Androgel) 6/08. I am's what I am's and that's all that I am's! (Popeye)  55 and still alive and so glad to still be here to see my two sons grow up to be fine young men. They are both serving in the US Navy, one on a ship in the Atlantic and the other on a ship in the Pacific!!! I am one proud PaPa!!!!! 


kara487
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Date Joined Mar 2008
Total Posts : 637
   Posted 1/13/2009 6:19 AM (GMT -7)   
I am sorry the doctor didnt understand what was going on with your eye and I am very sorry for the pain in.
Lortab,ambien,elavil,reglan , neurontin,zyrtec and soma.
 
spinal conditions: Scolosis,herniated discs,spinal blockage,Spinal stenosis,bursitis ,Fibro,and arthritis


uniquelyme
Veteran Member


Date Joined Nov 2008
Total Posts : 1037
   Posted 1/13/2009 9:01 AM (GMT -7)   
Skeye, You know that show "Mystery Diagnosis"? That show is all about people like you that have something wrong but nobody can figure it out...Sometimes it takes years, but eventually they find a Dr. that isn't willing to give up and they find the problem...The reason I am telling you this is to say "DO NOT STOP UNTIL YOU FIND A DOCTOR THAT IS WILLING TO GO THE DISTANCE WITH YOU"....There is a problem, a medical problem, and somebody will find it....

Me.
 

VIEW IMAGE

 Post Lamenectomy Syndrome, Bipolar, GERD

Hemi-lamenectomy, Spinal Fusion

120mg. methadone daily, 60mg. oxycodone daily

 


skeye
Veteran Member


Date Joined Mar 2008
Total Posts : 2976
   Posted 1/13/2009 8:06 PM (GMT -7)   
Thanks again everyone for all the support! I am getting the MRI done tomorrow night (I can't believe it was scheduled that fast!). It is at a very odd time though (8pm), and apparently I have to park in some back lot because the main lot isn't safe enough at night, and this other lot has a lot of security... It's a fabulous hospital, but in a horrible location. I'm just glad I'm not going alone. I'm trying to stay positive.

Skeye

PAlady
Veteran Member


Date Joined Nov 2007
Total Posts : 6795
   Posted 1/13/2009 9:22 PM (GMT -7)   
Skeye,
I'm so glad that you don't have a lot of wait time for the MRI. I do know they're sometimes scheduled at all hours - especially those done in the hospital, because they have to accomodate inpatients and emergencies. Outpatients centers don't have to do that. But I'm glad you have someone going with you (and a puppy waiting to greet you at home!).

Let us know how it goes.

Hugs,
PaLady
I just read your other post re: the allergic reaction. Goodness!! How much do the doctors think this may have contributed to all of your problems (or is this where you think the inflammation came from)? Sometimes these things cause lasting problems, but I'm sure you've already thought of this.

Post Edited (PAlady) : 1/13/2009 9:37:09 PM (GMT-7)


skeye
Veteran Member


Date Joined Mar 2008
Total Posts : 2976
   Posted 1/14/2009 9:33 PM (GMT -7)   
Well, I'm back from my MRI. I can't believe how many MRI machines this hospital had! They had at least 5 going at once! I'm used to the one dinky old one in the hospital that I usually go to (except the few times that I have had MRI's done in private MRI centers in nyc) & the hospital nearest to where I live is so small & rural, that it doesn't even have an MRI machine! I think they have a MRI truck come by a couple of times a week.

I feel asleep during the MRI (how I do that with the combination of all the awful noise & the pain, I don't know, -- especially since I don't even sleep in my own bed! -- but I always seem to fall asleep during MRI's -- does this happen to anyone else, or am I just weird? ) & I apparently jerked my head, so they had to redo one of the tests & it just happened to be the LONGEST one! smhair Ugh, but no worries, I soon feel back asleep & it passed by rather quickly. I just hope I didn't move around too much the other times I feel asleep! I tried to stay awake (since I was afraid that I would change my head position if I nodded off), but I just couldn't. Thank you good old chronic sleep deprivation. smilewinkgrin

Palady,
I wouldn't be surprised if that allergic reaction contributed to my current situation. I've certainly thought about that, but none of my doctors have really mentioned it as having been a possible trigger. Maybe I should ask them about that. I'm honestly not even sure my ophthalmologist really remembers about it. He of course remembers the injury, the surgery, & the iritis/pressure issues that I had for over 6 mo after the injury, but I'm not sure he would remember that the allergic reaction triggered several more months of iritis without looking back through my chart. I might have to refresh his memory. There has just been too much going on with my eye!

Anyone else being hit with this cold? It is supposed to be 20 below around here the next few days when you factor in the windchill!

Skeye

PAlady
Veteran Member


Date Joined Nov 2007
Total Posts : 6795
   Posted 1/14/2009 10:14 PM (GMT -7)   
Hi, Skeye,
Glad you're back and that the experience wasn't unpleasant. I think we just get so used to the MRI's after having so many. I remember my first one, and now when I go in I kind of shrug. I just try to close my eye and think about stuff like the grocery list, or something more pleasant. Don't think I've fallen asleep yet! When I had the one done on my knee a few years back they let me bring in my favorite CD and that was kinda cool because I brought in a relaxation one so I wouldn't start thumping to the music!

Oh, the cold. Yep, I've got it here. And snow. Supposed to get much worse tomorrow. This winter has been soooooo long. Started early and we already have double the amount of snow we usually have so we'll probably set some kind of record. To me it just means more shoveling. That's one of the few good things about not going out to work regularly. I don't think I could manage if i had to do it.

Let me know when you get the MRI results.

PaLady

skeye
Veteran Member


Date Joined Mar 2008
Total Posts : 2976
   Posted 1/14/2009 10:44 PM (GMT -7)   
Oh, having music is great! I think the first MRI I ever had, they told me that I could bring a CD ahead of time & they played it for me, and then they played the radio during one other one I had done several years ago. I brought a CD with me tonight, but I left it in the car, whoops! Like you said, we get used to the MRI's - I can't even remember how many I've had over the years - and so I don't really care so much about the noise anymore (although music is much more pleasant to listen to, than all the beeps, screeches, and pounding of the machine!).

I'll definitely let everyone know what we find out. I'm not expecting them to find anything, but I'm trying to keep my hopes up (but not too high). Is it bad that I want them to find something wrong? I don't want there to be something wrong, because that is bad, but I want there to be something wrong so that I can finally have an explanation for all this pain, and that maybe, just maybe, it will give us a better idea of how to manage it!

I hate this waiting part. The hospitals are definitely getting cheap. They used to give you a copy of your films to take with you for free, and then they moved on to a cd of your films, and now they don't give you anything anymore! I always liked to look at my films (not that I understood what they showed at all, but I liked to look at them anyway, it helped me be less anxious while waiting for the report), and it is useful to have around, since many times the docs want to see the actual films, not just the report! I'm hoping that they at least send a copy to the doc that sent me for the scan.

Skeye

PAlady
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Date Joined Nov 2007
Total Posts : 6795
   Posted 1/14/2009 10:53 PM (GMT -7)   
SKeye,
I've learned to get a copy of the CD for myself. Sometimes I've ahd to pay about $5 for it, but I've also asked to wait until the report is on the CD, which means picking it up another time. You can actually upload the entire thing onto your computer - that is if you have a PC! I discovered it doesn't work on Mac's!!

Before the CD's, I used to pick up the MRI's and open the report that was inside and read it and make myself a copy. That way I had some sense of what to talk to the doctor about. I know they don't want you to read the report until after you've discussed it with your doctor, but i've found the reverse much more useful, even though I may not understand all the details in the report. Usually we can get the jist of the summary.

If the doctor is part of the hospital system, he/she can access it right from their office without having to transfer anything. But at my one local hospital I had to go to medical records to sign a separate release form and then pay for the paper copy of the report to be sent to me. More hoops - like we need that, right?

PaLady

skeye
Veteran Member


Date Joined Mar 2008
Total Posts : 2976
   Posted 1/14/2009 11:49 PM (GMT -7)   
Hmm, I might have to call them about getting a copy. I did ask the MRI technician if they were going to give me a CD or films & she said no, but she didn't mention anything about being able to purchase a copy or pick one up at another time. I guess I'll wait & see what they say on the report. I don't know that I'd be able to go back to the hospital to pick up a copy anyway, since it is an hour & a half away & I go back to school in a week, but maybe they could mail me one. Thanks for the idea!

And I agree, knowing what is in the report ahead of time (or at least having some idea of what it says) is very useful. For a year or two I saw a nurse practitioner at my father's office as my pcp, so everything would be sent to his office & I could read the reports ahead of time & have a copy on hand. But that's not the case anymore, so now I just have to wait until I hear from my docs like normal people.

Skeye

Jules22871
Regular Member


Date Joined Jan 2006
Total Posts : 142
   Posted 1/15/2009 5:32 PM (GMT -7)   
Sorry to hear that you are having such a difficult time getting a dx. University hospitals are awesome. If my accident hadn't happened a few miles from one I wouldn't be here. Even though it is 180 miles from me I still go there now for treatment. Hang in there and don't stop until they figure something out. You owe it to yourself!

hep93 is right. The docs do a better job of dictating when they do while you are there. I did dictation for one doc that would o his later in the day. I swear I have heard that man use the bathroom more times than I should have. And as such, I was constantly having to do addendums because he would get things wrong. That is one job I don't miss.

Here's a prayer that you get what you need to get better!
Motorcycle wreck 08/2004: 119 fx, 13 surgeries with one more to go, including 5 bone grafts, 2 skin grafts, pelvic reconstruction x2. Right leg is 1.5" shorter than left. Have to wear knee brace for life and also AFO brace for drop foot. Nerve damage from hip down to toes, no feeling in lower leg. Spinal fusion. Will be on crutches the rest of my life. Pain level never below 5 even on pain meds. Since August 2007 I have been diagnosed with chronic atelactesis, tachycardia, high blood pressure, borderline personality disorder, depression and Delayed sleep phase syndrome

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