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straydog
Forum Moderator


Date Joined Feb 2003
Total Posts : 13458
   Posted 1/23/2009 6:56 PM (GMT -7)   
Hey Gang,
 
I saw my new pain mgt dr this morning and she is taking over the mgt f my pump. All I can say is WOW, and my head is still spinning. This lady has a different approach to pain than the run of the mill I have seen. She has her own sheet with lots of info on rating the pain scale. Not the little smiley/sad face thing. Hers is in depth but brief. Keep in mind she is a a neurosurgeon turned pain mgt specialty.
 
She had reviewed my chart from old dr and then saw where I rated on my pain today which is bad. I have not bounced back from running the sweeper in 2 rooms a few days ago, plus I have been getting the burning in my butt, which is new for me, incredible left hip pain. First thing out of her mouth was" Your pain has been undertreated"!!!  My mouth fell open, she went on to explain that so far all the patients my old dr referred to her that she has seen, every single one of us had their pain undertreated, we are all pump patients. She went on to tell me that all tho my dr was a very good dr, he was not educated enough to be handling pump patients, therefore, we were not getting the full benefit of having a pump!! I will get you your life back to where you are able to function every day at a decent level!!!!!Now, my words were, you mean to tell me that the last 4 yrs I have sucked it up and decided even with the pump this is the way things will be and I keep pushing all my buttons as hard as I can to keep going, because I have always had the fear if I didn't keep pushing I would get down and not be able to get back up. Are you telling me I have suffered in silence because I have a pump, I am not suppose to hurt this bad. I had even began to think maybe this pain was in my head, after all I have a pump. Her next comment was, I see you have 2mg of Dilaudid for BT pain, do you take it, I said no rarely because it didn't help, I lived off Zanaflex. I told her I did not get a new script of pain meds every month because I felt like I was wasting money buying them. She said well, I did not know it came in such a low dose, therefore, I am giving you a script for 4mg and you may take 1-2 tabs 4 times a day!!! And when you come in on the 28th, I will be increasing your  pump 50% and then you are to come back in 3 weeks, sooner if needed then it will be a 10% increase until we get you where you need to be. Also, when I refill your pump on the 28th I will be decreasing the Bupivacaine from 15mg to 7mg, because that doseage is way too high, it causes leg problems.  The purpose of Bupivacaine is it helps the pain medication to actually adhere to the pain receptors. WOW- so much for this brain to comprehend. I had to just sit in my car in the parking lot with my head swimming. I do know of this leg problem because many peeps on the Pumpsters site are having a terrible time with their legs and their drs are not smart enough to know what that med is actually used for and they keep increasing it on these people and their legs are getting worse to the point some of them legs are getting so weak they cannot stand.
 
My dr went on to tell me she is the top rated pump dr in the state of Texas and she has more pump patients than any other dr. Therefore, she writes more scripts for narcotics than any dr in the state. The boys from the DEA paid her a visit and told her she was a naughty girl for writing so many prescriptions to people. She let them have full rein of course of her medical records and anything else they need to review. After they did their audit, they shook her hand and told her to keep up the good work. She told them they were welcome any time to come in her office. In addition, she is no more intimidated by the DEA than she is a bird pooping on her windshield,lol.
 
All I can say is I am still in shock by todays events. Is this a dream? Will I wake up tomorrow and it be a farce? There is no pain Contract to sign in her office. There are no signs posted anywhere. There are no ua's done by this dr.
 
So, what do I make of this visit. Anyone considering a pain pump, please do your homework on your dr and find out how long he has been working with pain pumps, whats is his education on pain pumps. I read on another site and this is so true, a pain dr can make your pain pump either a success or a failure. I found out today this is so true. Do not hesitate asking your dr about his experience with pain pumps. The way I see things now, my dr did me a favor by quitting pain medicine. Maybe in his heart he knew he was out of his league, who knows. I always felt like I had good care with him and still think I did. He did do things that helped my pain so I take nothing from him as a dr.
 
So is this a dream? What do you all think???.......Susie
 
 


PAlady
Veteran Member


Date Joined Nov 2007
Total Posts : 6795
   Posted 1/23/2009 7:56 PM (GMT -7)   
Susie,
I'm speechless, but thrilled for you! If it's a dream, don't wake up! This doctor made a switch from being a NS to a PM and I wonder why, but she obviously knows a heck of a lot - probably more than most PM's from seeing a lot of failed back surgeries? Just guessing on my part, but any doctor that so readily understands undertreated pain and is willing to help a person get their life back is "A+" in my book! I hope she trains other doctors.

Great for you!!

PaLady

straydog
Forum Moderator


Date Joined Feb 2003
Total Posts : 13458
   Posted 1/23/2009 8:22 PM (GMT -7)   
I know what you are saying. For one thing she is a DO and they closed down our big osteopathic hospital here many years ago and that is where she sent her patients. She could have got privleges at any of the other hospitals but, DO's are not looked upon very well here. I know for a fact she would not have had the camraderie in the other hospitals practicing w/MD's compared to being with her own groups of Do's. Number 2 the cost of medical malpractice insurance here has skyrocketed. Many of our highly regarded back surgeons are no longer doing spine surgery of any kind, because it makes a big difference on the premium. This is something seen here in solo practice. I do know when she was doing surgery she had excellent results and very happy & loyal patients. Personally, I think its great to see a dr in her specialty do pain mgt-they would have better 1st hand knowledge of how the spine works and what causes pain in the spine. She did backs only when she did surgery. I am quite sure she made more than her fair share as a surgeon, and she does have a large pain practice and has been doing it over a decade. Even with the passage of the new laws on suing a dr, the in industry said it would lower the drs premeium-well guess what, they continue to escalate, they lied again. I know 1st hand the cost of coverage is outrageous. Still sitting in shock here for sure on appt today.lol Susie


Pamela Neckpain
Veteran Member


Date Joined May 2008
Total Posts : 1821
   Posted 1/23/2009 8:46 PM (GMT -7)   
Susie,
The clunk you hear is my jaw dropping to the tile floor.
I know I have been through the Pumpster thing and trying to get on. I fiddled around
on my old Mac and couldn't get there. I got frustrated and just gave up. Could you
please put me in touch with the Pumpsters - that is, tell me how to get there.
I'm miserable.
I've been doing a lot of stuff and telling my self I'm fine. Fine. Perfectly fine.
BUT
I'm not.
People don't smile at me in the store any more.
I feel cranky and mean at the world. I've become an old lady.
I have lines around my mouth.
(Don't we hear about cranky old ladies?)
I'm about to start my letter-writing campaign to our congress people.

"I woke up this morning and I wrote down a song.
I just don't know who to send it to." James Taylor

I am very happy for you. I am so very very very happy.
My ear will be to the computer to hear how things are going.
How in the heck do you find out how to find out about a doctor's credentials?
(I'll make a thread)

Congratulations, Susie Q. Let's clink our Cinnamon toast, kiddo.

Pamela Neckpain smilewinkgrin smilewinkgrin

skeye
Veteran Member


Date Joined Mar 2008
Total Posts : 2976
   Posted 1/23/2009 9:08 PM (GMT -7)   
Susie,

Congrats on the new doctor! Sounds like she is a keeper & is really going to go to bat for you! That is just wonderful! Hopefully she'll be able to give you some more of your life back! Congrats again! I hope her new plan works!

Skeye

kara487
Veteran Member


Date Joined Mar 2008
Total Posts : 637
   Posted 1/24/2009 4:57 AM (GMT -7)   
Susie,congratulations on the new doctor . I am glad she is helping you to get better control of your pain. I hope you have a LPD.
Percocet,ambien,elavil,reglan , neurontin,zyrtec and soma.
 
spinal conditions: Scolosis,herniated discs,spinal blockage,Spinal stenosis,bursitis ,Fibro,and arthritis


Lindaloo
Veteran Member


Date Joined Sep 2006
Total Posts : 1713
   Posted 1/24/2009 6:01 AM (GMT -7)   

Susie,

First of all congratulations on your new found dr and your luck.  Second of all, I think this was a very important post for you to put here for others to read who are dealing with pain pumps.  Kudos to you for all the information.  I know it will be a help to others.  Please continue to post on the subject so the word gets around.

I am so happy you found someone to help you.  I know I felt that way when I found my doctor too.  I am not on a pain pump, mind you, I have fibromyalgia, but the pain is pretty intense just the same and my pain management doctor has been a Godsend to me as well.

I wish you continued pain relief and success with all you are doing.  God bless

Gentle Hugs,

Lindaloo tongue


Moderator Chronic Pain
 
Believe in yourself.  Be kind to fellow humans and animals.  Take time to smell the flowers and the coffee.
And by all means, when you are down, ask me for help.  I will be there.
 
Linda


Chartreux
Veteran Member


Date Joined Aug 2006
Total Posts : 9622
   Posted 1/24/2009 11:59 AM (GMT -7)   
Congrats Susie,
Wow, you'll have to give me this Doctor's name, I'm in Texas too...
Sure could use more good doctor's like yours...
Right now I like my Doctor, but should I even need anything else, well send me
this doc's name. k...
Soft Hugz and wishing much more continued success..
WOOHOO for ya'
**********************************************
* Asthma, Allergies, Osteoarthritis, Spinal Stenosis, Degenative Disc, Fibromyalgia, Gerd, Enlarged Pituitary Gland
******** "We could never learn to be brave and patient if there were only joy in the world" from Helen Keller *********

********>^..^<********>^..^<********>^..^<********


PAlady
Veteran Member


Date Joined Nov 2007
Total Posts : 6795
   Posted 1/24/2009 2:45 PM (GMT -7)   
Susie & others who have great docs,
Please pass on the word at your next visit how grateful we all are to know that doctors like them are out there. Maybe also say that some of us are professionals as well as CPP's, and would so encourage these great doctors to talk with their colleagues about undertreated pain, and that we use our meds as directed, and would do anything to help them catch and stop those who abuse or divert meds for the wrong reasons.

just my 2cents.

PaLady

straydog
Forum Moderator


Date Joined Feb 2003
Total Posts : 13458
   Posted 1/25/2009 12:34 AM (GMT -7)   
Well, my head and mind is still reeling with the events surrounding my new dr to say the least. I promptly filled my script of Dilaudid 4mg after seeing her. Came home and heated up some biscuits hubby baked earlier that morning, he saved me 2. My new dr is also a beekeeper and sells her honey at her office. OMG talk about something wonderful in taste-fresh raw honey. I bought a small bottle and have already gone thru half so I will going by and buying the biggest one she has.lol. Now, on to the ain pills. I have only had the courage to take them 1 at a time and I am totally amazed at the difference they make.
 
Now here is some turmoil that is creeping in on me and I am really trying hard to block this totally out of my mind, as I just don't need to go there or deal with it. I truly in my heart thought that after the 1st year of having my pump that I was a success. I came here and told all you guys that I was a success. It took that long because of other health issues and my dr being very cautious. That is not the normal time frame used to get a pump patient comfortable. My deal was just a whole different set of circumstances involved, this I know & understand, rather I thought I did. I am a very strong minded and strong willed person. I have dealt with the ups & downs of pain for so many years that I became use to the idea of having pain in my life. She confirmed this very statement to me Friday, "people can become use to pain". I am one of these people. I think of the things I missed out on during these past say 3 yrs, since the first year was not so good with the pump. I think about how I forced myself to function and do things that I highly paid for that evening and for the next several days because of excruiating pain and I am getting really angry. I don't want to do this, I don't have the energy the anger saps out of me. I know my old pain dr really thought he was taking care of me, but darn it he wasn't come to find out and now I am getting mad at him too!!! I suppose this is all normal, but I just don't like it. I feel cheated, thats the best way I can describe it. I can't go back and reclaim any of that time, this I know. But I promise you, katy bar the door, once I am truly up and on my feet as my current dr says I will be, all I can say is look out, Susie is back in town.
 
PA, yes I did thank this dr from the bottom of my heart. I told her she was one in a million and there were so many more drs needed like her that used her approach. I can tell you guys first hand, the the vast majority of pain mgt drs started out as anesthiologist. They are listed this way in our yellow pages as well. I really doubt many started out such as my dr as a practicing dr in some field. All you have to do is look at their credentials hanging on their walls. This may be the direction CP people need in order to get their pain truly managed instead of us being  juggled around by anesthesiologist-pain mgt dr., I just don't know. I am tired and off for the night. Hugs to all, Susie


Scarred_for_life
Veteran Member


Date Joined Jul 2008
Total Posts : 1559
   Posted 1/25/2009 3:01 AM (GMT -7)   
Susie; how great that you finally found a dr that is treating you as a whole patient instead of half of one! I am so happy for you! Now see this is where I am praying to God that WC will not let my doctor go and force me to find another PCP. I feel that this doctor is actually going to treat me as a whole patient and not just treat the pain with pain medications or mask my pain when I told her that I was not sleeping and that my BT meds were not doing all that much she did not change them. She felt that there was no use in changing them now as there is nothing that they can put me on that is really going to help with where the pain is located or anything like that so why try. This was refreshing to me and I was surprised because my other doctors would have just increased my meds or changed them.

Good Luck hun!

Scarred
HEALTH ISSUES: Herniated discs at S-1-L5, L5-L4, L4-L3. Two level fusion (2000); one level fusion (2002); Revision at L4-L3 (2003). Slight herniation at L2-3 but Neurosurgeons will not operate because of previous failed surgeries. Diagnosed with Failed Back Syndrome, Permanent Nerve damage and Chronic Pain

Medications:

Kadian, Lexipro, Percocet, Lunista, Topamax and Robaxin.

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