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Twiggy2
Veteran Member


Date Joined Jan 2006
Total Posts : 703
   Posted 1/27/2009 7:33 AM (GMT -7)   
I have had a major sleep problem for years now. I am up most of the night and nap and no energy during the day. Up every 2-3 hours at night. I take naps in the afternoon to try to make up for the lack of sleep at night but now i i almost sleep all day and up all night. I drink coffee i know they are partly to blame but i have gone full days without naps and low caffine intake and still have the same results. The pain is the main culprit and my mind wonders like mad sometimes to cannot get a grip on it, what can i do, I guess maybe when i go to the pain clinic i will get some help with that and i am changing family doc to one that will send me for tests instead of one that brushes me off, also to i have been getting alot of headaches to almost three days in a row, tension related possible, or coming down with something, thanks for letting me vent could use some help on this if interested, Twiggy2
Degenerative Disc Disease. Facet Joints Included
8-10 Herniated Disc, Not able to have surgery.
Depression/Anxiety/Panic Disorder etc
Sleep Disorder not diagnosed
Tylenol #4 for pain, 100mgs Zoloft, Clonazpam 0.5mgs as needed, Baclofen twice daily.


Chutz
Veteran Member


Date Joined Jan 2005
Total Posts : 9090
   Posted 1/27/2009 10:23 AM (GMT -7)   
Hi Twiggy,

I'm sorry you're having such trouble sleeping. It just destroys your entire life! Work with your new doc because there are lots of ways they can help with this. Possible ideas are to give you a medication to help you sleep at night so you can get your days and night switched back to a normal pattern.

Also you could try a medication like Provigil which helps you stay awake when you need to. Since I take narcotic medications I use Provigil during the day because I was getting to sleepy at times during the day that I wasn't safe driving. These pills have a short reaction time like 3-5 hours so they won't keep you awake all night if you are careful when you take them. I can actually take them during the day and if I choose to nap I can still sleep.

Hope this helps,
CHutzie
Co-Moderator Fibromyalgia & Chronic Pain Forums
~~~
Fibromyalgia, Ulcerative Colitis, Insulin dependent diabetic, PTSD, dermatitis herpetiformus, osteoarthritis and a few other side dishes.
***************
Happiness is something to do, someone to love, and something to hope for."


Scarred_for_life
Veteran Member


Date Joined Jul 2008
Total Posts : 1559
   Posted 1/27/2009 12:13 PM (GMT -7)   
Ohhh do I know so well this topic! I swear I am becoming a cat and doing the cat naps day and night. Usually though when I am awake I feel pretty bushy-tailed for about 3 hours then its like a brick hits me and I crash hard and am ready for my next cat nap. The pain is much of my reason for mot sleeping as I cannot get comfortable in either in bed or anywhere else in my new home. I'm so not there in the brain so to speak that I cannot balance the finances and hubby has to go back over the checkbook as well as the bills to make sure I got them right. In fact, I messed up the last set of payments and I got so upset with myself that I turned the checkbook over to my husband to take care of from now on until things are straightened out with me.

It's quite irritating for each of us that our lives have been turned into one big ball of turmoil and frustration. We are either fighting with doctors for the proper care.....trying to catch up with sleep........dealing with the massive pain that courses through our bodies like snakes slithering across a desert or trying to keep ourselves from going insane from the madness of losing our lives to these horrible diseases that have inflicted our bodies and caused us to put our lives on hold for an undetermined amount of time. With all of this its no wonder any of us sleep at all let alone the little that we do get throughout the day or night that we do happen to slip in. I have found myself watching really old shows (Gunsmoke, Bonanza, Threes Company, Roseanne, Law and Order CI & SVU and others) that I haven't seen before late at night and thinking "now why haven't they shown this one before? How come they only show this after Midnight?" It's a good thing I am not into the shopping channels cause hubby would kill me as I would be buying things all the time.

Ok I've rambled enough......have a lessened pain day. Hugsss.

Scarred
HEALTH ISSUES: Herniated discs at S-1-L5, L5-L4, L4-L3. Two level fusion (2000); one level fusion (2002); Revision at L4-L3 (2003). Slight herniation at L2-3 but Neurosurgeons will not operate because of previous failed surgeries. Diagnosed with Failed Back Syndrome, Permanent Nerve damage and Chronic Pain

Medications:

Kadian, Lexipro, Percocet, Lunista, Topamax and Robaxin.


kara487
Veteran Member


Date Joined Mar 2008
Total Posts : 637
   Posted 1/27/2009 12:53 PM (GMT -7)   
I know what you are going through. I am too a chronic insomniac and will probably be going without sleep for the next 2 days because I cant refill my sleep medcine til thursday. I was up for 12 days before my dr put me on ambien. My mind was going crazy then. I was experiencing sleep deprivation then.But since been on the ambien I sleep good. I can sympathize what you are going through.have you talked to your doctor yet maybe they can prescribe you something for sleep. I am actually on 3 medcines for sleep. Trazodone,elavil and ambien. I hope you can get some help soon.
Percocet,ambien,elavil,reglan , neurontin,zyrtec and soma.
 
spinal conditions: Scolosis,herniated discs,spinal blockage,Spinal stenosis,bursitis ,Fibro,and arthritis


Scarred_for_life
Veteran Member


Date Joined Jul 2008
Total Posts : 1559
   Posted 1/27/2009 1:09 PM (GMT -7)   
Kara? Why two days until refill?
HEALTH ISSUES: Herniated discs at S-1-L5, L5-L4, L4-L3. Two level fusion (2000); one level fusion (2002); Revision at L4-L3 (2003). Slight herniation at L2-3 but Neurosurgeons will not operate because of previous failed surgeries. Diagnosed with Failed Back Syndrome, Permanent Nerve damage and Chronic Pain

Medications:

Kadian, Lexipro, Percocet, Lunista, Topamax and Robaxin.


Twiggy2
Veteran Member


Date Joined Jan 2006
Total Posts : 703
   Posted 1/27/2009 2:33 PM (GMT -7)   
Thank you so much. I don;t feel alone as much anymore i mean i know that there are people that have sleep problems but usually not very many people talk about. Despite pain meds, sleep meds etc we still suffer. Well i will keep you posted as to how things are going. Take care all and hope that I can help someone in some way. Twiggy2

Degenerative Disc Disease. Facet Joints Included
8-10 Herniated Disc, Not able to have surgery.
Depression/Anxiety/Panic Disorder etc
Sleep Disorder not diagnosed
Tylenol #4 for pain, 100mgs Zoloft, Clonazpam 0.5mgs as needed, Baclofen twice daily.


skeye
Veteran Member


Date Joined Mar 2008
Total Posts : 2976
   Posted 1/27/2009 10:13 PM (GMT -7)   
Oh, Twiggy, you are not alone at all! I can't remember the last time I got more than 4hrs of sleep at night. I usually sleep more like 2 or 3hrs. I'm a zombie. Barely functional. I don't know how I am still going after months & months of this. The sheer exhaustion has really been hitting me the past few days. I just want to give up on everything because I am so tired, but yet I can't sleep. The pain keeps me up until the wee hours of the morning & then once I finally crash, it wakes me up multiple times. I haven't found anything that really helps so far. I should probably get a sleep study done too, as I think that there is an underlying sleep disturbance going on in addition to all the pain issues, as I have never been a good sleeper, but I wasn't this bad until my good friend pain came along.

Skeye

Twiggy2
Veteran Member


Date Joined Jan 2006
Total Posts : 703
   Posted 2/2/2009 6:20 PM (GMT -7)   
Hi skeye nice to meet you sorry that you hav sleep problems too. I have trying hard to stay awake most of the day but i find that if i push to much the pain seems much more worse that night. Maybe i need to go with the flow of day and take the naps so my body rests and is not so bad a night time??? Oh well i have been having really bad pain in the front of my right upper leg, burning, cramping, stabbing. Nerve pain i think but.. At first i thought that i would go away after a couple of nights but now it gone into weeks and almost every night and left leg to but not as bad as right, and now it is also showing itself during the day time mild though. Hope to find out what that is, take care and keep in touch Hope everyone has LPD"S Twiggy2

Degenerative Disc Disease. Facet Joints Included
8-10 Herniated Disc, Not able to have surgery.
Depression/Anxiety/Panic Disorder etc
Sleep Disorder not diagnosed
Tylenol #4 for pain, 100mgs Zoloft, Clonazpam 0.5mgs as needed, Baclofen twice daily.

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