Post Edited (PAlady) : 2/2/2009 6:54:16 PM (GMT-7)
It is so nice to hear that people getting varying degrees of relief from their CP, it gives me a little bit of hope. I have been on a lot of the meds spoken of, but not in the same combinations, and either because of persistent side effects or no relief, I have stopped taking them. Presently I have an intrathecal pump which delivers dilaudid and bupbivicaine directly into my spine, and in addition I take 60 mg Roxicode every 3 hours, 20 mg flexiril 3 x's a day, 1 mg Klonipin a.m. & p.m., and 20 mg Ambien at bedtime and I have a spinal cord stimulator that I have running at its highest settings 24/7 (I go through a battery that is supposed to last 5 - 7 years in as little as 2 months), and with all that, my pain level is rarely below an "8", usually a "9", and often reaches a "10" and if after trying a hot shower, laying on a heating pad, and a light back rub if I can find willing hands, I will go to the emergency room where I usually encounter nasty attitudes from doctors, and nurses telling me that they have never seen someone on the level of meds I'm on, and after hours of torture laying on an uncomfortable gurny, getting 2 mg of dilaudid at a time, I get admitted every time for several days of dilaudid by IV in addition to my regular meds until the pain gets back "under control" at an "8" or "9" on the pain scale.
I am grateful for their willingness to help me at all in the ER, because I know many CP sufferers are turned away completely because they are suspected of being drug seekers, and as wrong as that is, I understand the doctor's and nurses point of view as well because I have an identical twin who has been abusing prescription pain meds for years and has been turned away many times. But it seems to me that these doctor's & nurses because of their experience be able to "read" people better and be able to weed out the addicts from the real sufferers.
Take care all, and enjoy your alleviation from the horrors of CP.