Dr. visit today

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uniquelyme
Veteran Member


Date Joined Nov 2008
Total Posts : 1037
   Posted 2/4/2009 8:59 PM (GMT -7)   
 
 
I went to my regular Pain Dr. visit today...As he was getting my perscriptions ready he informed me of a recall on Roxicodone.  So, he wrote me a different medication that I had never heard of (Opana) and sent me on my way.  I get to the Pharmacy and the guy says "this is very expensive". "How much is it?" I asked with a smile....$700... 
 
I wonder who cleaned up the floor after I left..(from me peeing myself).  Can u imagine? That is rent for many people....and I don't have insurance... confused smhair
So, I had to drive back to the Hospital and ask the nurse to have him change it to something a bit more in my budget...
 
I waited 30 min. and nothing. I waited another 20 min. and still nothing... mad
 
Oh, did I mention that his office is on the 7th floor...and I forgot to grab the stupid script when I got out of my car?
 
So, after going up and down..up and down, the girl finally came out just to tell me that he would have to write me percocet 10....Well, okay then, just do it!!!
 
I am worn out, hurting from going back and forth to my car and up and down the elevator...
As you can guess I was not in a good mood.
 
So, finally she brings the new one out and I am off to the pharmacy... turn yeah
 
My other script is only $70, my methadone is only $50, and this new one is $160....Wow, I am so freakin broke....
 
But at least I finally got home and got to take my meds..
 
Did I mention that it was only 27 degrees when all this was goin on?
 
Sorry about all the venting...but who else would listen to my bullcrap?  Nobody but my friends at Healingwell that's who..
 
Thanks for the ears guys..
Me

 

 Post Lamenectomy Syndrome, Bipolar, GERD

Hemi-lamenectomy, Spinal Fusion

120mg. methadone daily, 60mg. oxycodone daily

 


Lindaloo
Veteran Member


Date Joined Sep 2006
Total Posts : 1711
   Posted 2/4/2009 9:42 PM (GMT -7)   
Sorry you had such an exasperating experience today. That's just awful that your meds cost so much without insurance. You think he would have asked that to begin with. Doctors just don't think about those things and they should. I went to my pain doctor today and asked about lidocaine patches for my back cause this past week I couldn't move to get out of bed in the morning from the pain in my back. She suggested other things too but said ok to the patches and then never came through and I forgot too. My next appointment is in six weeks. Try getting through to her before then.

Oh what a mess.

Gentle Hugs,

Lindaloo
Moderator Chronic Pain
 
Believe in yourself.  Be kind to fellow humans and animals.  Take time to smell the flowers and the coffee.
And by all means, when you are down, ask me for help.  I will be there.
 
Linda


Pamela Neckpain
Veteran Member


Date Joined May 2008
Total Posts : 1821
   Posted 2/5/2009 3:14 AM (GMT -7)   
Oh my gosh, Me ...

What a story! How awful. Really.

Your doctor is a total ash! Who does he think he is
writing a script for $700 without warning his patient
first. It sounds to me like he was having a little sadistic
fun up there on the 7th floor in the dead of winter.
Oh Oh ... I do not like that man.

When doctors are so neglectful of their patient's feelings,
I really question if they are doing the right thing - medically.

Your day sounds like a nightmare.
Try to take it out of your mind.
No - wait -- drop a note to your doctor
and tell him what you went through.
Keep the tone light - Could you do humor?
He needs to know what happened in the life of
his pain patient.
But then I ask ...
WILL HE EVEN CARE?

Pamela

We take the same amount of Methadone? Is that the maximum that can be
taken?
MEDICAL CONDITIONS

Osteoarthritis all levels of spine right down to Coccyx,Spondilytis,Myofascial Pain
Fibromyalgia,Bulging Discs,Spinal Stenosis,Scoliosis,Osteopenia,Chronic Constipation
Carpel Tunel Syndrome, Attention Deficit Disorder,
Depression & Anxiety

Methadone for Pain, Xanax for Anxiety, and more, of course.


jenius
New Member


Date Joined Feb 2009
Total Posts : 9
   Posted 2/5/2009 11:45 PM (GMT -7)   
I havent heard a recall on roxicodone- That is my breakthru!
I just filled it today!
Is it a certain brand/strength!?

Wow that is NOT fun for you, I live in cold weather too- and i think it would about kill me to go the trek you did with that whole ordeal!
Im glad you got a new script- and I hope its working!

PAlady
Veteran Member


Date Joined Nov 2007
Total Posts : 6795
   Posted 2/5/2009 11:51 PM (GMT -7)   
Hi, Jenius,
Welcome to the chronic pain forum! I'd suggest you call your pharmacist and ask about the recall. Sometimes it may be certain batches, and they can tell you if what you just had filled is part of it. Sort of like with all this peanut butter stuff!

And oh, the cold. That's a problem in itself for some of us!

Welcome!

PaLady

Tirzah
Veteran Member


Date Joined Jul 2008
Total Posts : 2203
   Posted 2/5/2009 11:58 PM (GMT -7)   
Me,
That totally sucks about how much your meds cost, though I can relate since my Actiq costs $1200/month for the generic. what the heck?! My PM said he would have never even guessed it b/c the fentanyl itself is super cheap. I told him then he ought to figure out the formula & I can take it to a compounding pharmacy. He said I could probably get it for like $5-10/month if he could. It'll probably never happen but I just think it is such a scam what the drug companies charge. I thought once it went generic I would be golden, but instead the price only dropped by about half due to shady agreements the manufacturers have amongst themselves.

Now I print off a list of costs of the different meds & take it with to my doc's office for my visit. Since I'm allergic to just about all of them, I also print off the cost of other meds that may be needed to treat the symptoms produced by the lower cost drugs. We add up the different combinations to try to figure out the best combination based on what I can afford. It is way too much work, but what else can be done about it?

take care,
frances

jenius
New Member


Date Joined Feb 2009
Total Posts : 9
   Posted 2/6/2009 12:58 AM (GMT -7)   
Yes, I will call in the A.M.
Im hoping that my pharmacist surely knew and wouldnt have filled my script w/recalled pills today, though...

Im definitly counting down the days for spring! I think we all do better when it isnt 20 degrees out (on warm days)...

Ill try to find some info on the web about that recall since im having a bout of insomnia tonight lol...

TTYS !

jenius
New Member


Date Joined Feb 2009
Total Posts : 9
   Posted 2/6/2009 1:36 AM (GMT -7)   
It is the ETHEX brand roxicodone.
(Mallingrodt was not recalled, which is what my script is)...
TTYS!

uniquelyme
Veteran Member


Date Joined Nov 2008
Total Posts : 1037
   Posted 2/6/2009 9:33 AM (GMT -7)   
 
 
I am so glad that you got your medication...I wish I had, then maybe I wouldn't have had such a rough time yesterday...They didn't tell me that it was any certain brand, they just said that it should be figured out and fixed by the time I go back next month...So, I am taking Percocet 10mg w/tylenol.  I like the other (Roxicodone 15) because it doesn't have the tylenol in it...better on my tummy...
 
I couldn't believe that he wanted...no, expected me to be able to get that $700 Opana... I doubt that any insurance would have covered it anyway!!! smhair
But I am none the worse for wear after my ordeal yesterday...Keep a stiff upper lip and all..
 
Thanks for all the kind words from everyone.  It makes me feel great to know that I have friends here that understand and maybe even have been through the same stuff.
 
I am going to talk to my Dr. about what happened..Not only about the script, but also about me having to go back and forth so many times in the cold and up and down the elevator...I was in tears by the time I got back to my car.. shakehead
 
I hope we all have a great and painless day today...The temp is supposed to get up to 60* today and the rest of the weekend....YIPPEE DOO!!!!! yeah
 
Love to all,
Me.

 

 Post Lamenectomy Syndrome, Bipolar, GERD

Hemi-lamenectomy, Spinal Fusion

120mg. methadone daily, 60mg. oxycodone daily

 


uniquelyme
Veteran Member


Date Joined Nov 2008
Total Posts : 1037
   Posted 2/6/2009 10:06 AM (GMT -7)   
 
Pamela,
Yes, I believe we are on the "High" level of methadone...Although I have seen others in NY on upwards of 300 mg. daily...I would be dead if I took that much!!! But they get it from a clinic...not a legit Dr.
 
Thankfully the methadone does pretty well...if I have BT meds on top of it...
 
Hope your feeling better today Pamela, moving can sure take it out of ya can't it???
 
Love and Kisses,
Me.
 

 

 Post Lamenectomy Syndrome, Bipolar, GERD

Hemi-lamenectomy, Spinal Fusion

120mg. methadone daily, 60mg. oxycodone daily

 


Pete trips again!
Veteran Member


Date Joined Nov 2006
Total Posts : 1899
   Posted 2/6/2009 2:18 PM (GMT -7)   
Wow, some Doctors are such jerks! I think living in their little doctorworld they don't even think about $$$ because in doctorworld, they all have it! It's never a problem there, they just pull out the old AMEX and have someone else an accounant, secretary or spouse pay the bills! I know, they are not all that way but I'm sure a good number are. Life is good in Doctorworld as long as they don't get caught doing something wrong, kind of like polititionworld! Sorry that happened to you, Me! Write someone a letter. I don't know who, maybe a congressman or senator or Mr. Obama. Get it off your chest and maybe you'll feel better. Or just write us! Thats what I've been doing lately and as you know, it helps! Wow, I just wrote myself around in a circle. Later gang>> Huggy-Wugs!
Pete
55 years old, Surgury, Radical Prostatectomy 8/20/03, PSA 6.6, Gleason 3 + 3 = 6, Adenocarcinoma extent (moderate) Stage & Margin:T2NOMX, No Metastases, Organ Confined, bone scan: Neg. 3 1/2 years of depression after surgery prior to Hypogonadizm DX, Testosterone Theropy (Testim Gel)since 12/06 but switched to a higher dose of (Androgel) 6/08. 55 and still alive and so glad to still be here to see my two sons grow up to be fine young men. They are both serving in the US Navy, one on an aircraft carrier heading for Hong Kong and the other on a Gator Freighter stationed in Norfolk, Va. I am one proud PaPa! 


BrentE1961
Regular Member


Date Joined Jan 2009
Total Posts : 47
   Posted 2/6/2009 4:53 PM (GMT -7)   
The cost of narcotic pain relievers is criminal. I have insurance but the receipt shows the list price for my Oxycontin 40 mg tabs. They are supposedly over 800 dollars for 90 tablets!

That is downright criminal.

They know we have no other alternative, and supply is kept low by regulating and limiting the manufacturers, so we suffer financially as well as physically and emotionally.

It just makes me so mad sometimes.
47 YO Male, chronic back pain. Herniated disc L5/S1 2003. Discectomy with partial laminectomy 2004. Now told I have Failed Back Syndrome with discogenic pain.
 
Oxycontin 40mg every 8 hours, Norco 10mg every 4 hours as needed, Celebrex 200 mg twice a day.
 
Pain level varies from disturbing to nearly intolerable.


jenius
New Member


Date Joined Feb 2009
Total Posts : 9
   Posted 2/6/2009 10:44 PM (GMT -7)   
I used to be on the percocet w/acet you are taking now too-
I agree with you, roxicodone does wayyy better on the stomach.
Since the roxicodone is my breakthru, i like it way better than the percocet/acet because it works soo much faster, too.
Did you notice that?
Well I also heard today that the pharmacies should have it straigtened out w/in the next two weeks, so you should definitly be able to get your normal script soon.

THOUGH- theres also all this talk about an oxycodone shortage in general, and I still havent figured out yet if that is becaus of the ethex recall or if that is something different all together.
When I filled my script yesterday the pharmacist didnt have my scripted dose and instead gave me twice as many in the lower dose that he did have. But he didnt say it was a shortage or anything. He is a really nice guy- Ive been in pain mgmt for a long time, w/the same doc and same pharm and so of course like you all know, you really get to know the pharmacist! Im going to call him tomorrow and ask him if what the deal is w/all ive been hearing, just out of curiosity.

I said this on another thread, but Im a member (really a lurker) at a lot of pain mgmt support groups and the oxycodoen shortage seems to be pretty spread out. There are posts everywhere about it....
Hopefully its straightened out soon, whether its the ethex OR another reason for all the problems!
There are a WHOLE lot of chronic pain pts in bad places right now w/whats going on w/the oxy confusion now!

Anyway, not sure how that got so long!!!

Im glad you didnt wake up in a flare after your hike yesterday! And i hope you do ok w/your substitute meds!!
TTYS

uniquelyme
Veteran Member


Date Joined Nov 2008
Total Posts : 1037
   Posted 2/6/2009 11:43 PM (GMT -7)   
Speaking of criminal Dr.'s....I saw on our local news that a well known "pill Doctor" was led off in handcuffs for giving out perscriptions to patients that lived in Kentucky and drove all the way to Nashville to see him... Another Dr. in his office was also arrested..I also read that several years ago he was arrested for shooting his wife and mother in law...he only served 5 years and then came here to open up his practice...Can u believe that they let him keep his liscence after that?

Everybody around here knows who he is...he is one of those "Cash Doctors"..no insurance there..And he will write anything you want. As long as you have the money and pass random drug screenings (just for the DEA I'm sure)...

What will happen to all of those patients that had appts. after he got arrested? I'm sure that some of them are just addicts but some are legit...They are gonna be hurting..I'm sure that there was nothing set up just in case this happened...I feel bad for them.

Love to all,
Me
 

 Post Lamenectomy Syndrome, Bipolar, GERD

Hemi-lamenectomy, Spinal Fusion

120mg. methadone daily, 60mg. oxycodone daily

 


jenius
New Member


Date Joined Feb 2009
Total Posts : 9
   Posted 2/6/2009 11:47 PM (GMT -7)   
What a nightmare for his legit patients!

This probably sounds crazy but i have NEVER heard of a cash only doctor!

straydog
Forum Moderator


Date Joined Feb 2003
Total Posts : 11522
   Posted 2/7/2009 4:43 AM (GMT -7)   
I guess I am lucky, my drs all have a book they look in for meds on my ins. I have never been handed a script that was not covered. Its been this way for as long as I can remember. Yes, I sure would let that dr know the price of that medication, just gripes me how they can sometimes act. Hope everyone has a warmer decent weekend.....Susie


mom9mom
Regular Member


Date Joined Sep 2008
Total Posts : 489
   Posted 2/8/2009 9:14 AM (GMT -7)   
Everyone here is right about the cost of meds. but most DR. do not even know what a lot of drugs cost.They usually know if its cheap or expensive but not really the dollar amount.Fentanyl patches are about 125.00 a month(I pay 25.00 a month and my insurance pays 80 % of it) that is cheap compared to the 1200.00 a month but for people without insurance that is a lot.
Lost half of my small intestineJan.2008.Ilieostomy for 5 months then reverst in June 2008,Nerve damage to right leg,part of my right hip bone removed Jan. 2008,Cronic pain,hernia,infection in my back called discites,and depression.Gallbladder removed Nov,2008.Surgery to fuse L3 and L4 vertabra Dec. 31,2008.Mother to 9 kids 7 boys 2 girls and 1 stepson.4 grandsons,9 grandaughters.4 of my grandkids I inherited from my twin sister who passed away 6 1/2 years ago from a blood clot after surgery.God has given me my life back after I almost lost it.Even though its a painful and sometimes hard road to walk I take it one step at a time and give thanks to god for every step I take.


Baybreeze
Regular Member


Date Joined Oct 2005
Total Posts : 315
   Posted 2/8/2009 2:02 PM (GMT -7)   

I've found that most doctors seem to have no clue as to the cost of meds these days; also, many aren't even aware of side effects or if certain meds don't mix with other meds. This is why I always consult with my pharmacist first, as they are medication experts. What I do is, once I leave the office, i call my pharmacy to check on the price and ask if there is a cheaper alternative. That way I don't waste time and money going all the way to the pharmacy to fill a script, only to find I cannot afford it. I can just go right back into the doc's office and tell them.

Also, if you meet certain income requirements, you might want to check into the various prescription assistance programs out there. I personally qualified for my 2 doses of lyrica for free directly through Pfizers program, which was wonderful. That saved me over $200/month. Plus switching to some generics helped as well. Every drug manufacturer has their own program with their own income requirements. Some may ship free meds, others may require a small co-pay, depending on your income. It won't hurt to look into this at least.


uniquelyme
Veteran Member


Date Joined Nov 2008
Total Posts : 1037
   Posted 2/8/2009 9:02 PM (GMT -7)   

Baybreeze,

If my Dr. didn't give me samples of Lyrica I wouldn't be able to take it at all...At my last visit I mentioned that my middle toes have been going numb so he increased my Lyrica to 150mg. 2xdaily...If I didn't have the samples I'd be in trouble...

 

Me.


 

 Post Lamenectomy Syndrome, Bipolar, GERD

Hemi-lamenectomy, Spinal Fusion

120mg. methadone daily, 60mg. oxycodone daily

 

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