Lyrica + Cymbalta + Morphine + Methadone +pain + new user

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Tony McGuire
Regular Member


Date Joined Feb 2009
Total Posts : 483
   Posted 2/11/2009 10:25 AM (GMT -7)   
My real pain started the week prior to April 27, 2008.
I had been ignoring diabetes for about 10 years, but it was tired of ignoring me, so it woke me up that week.

Was working with very little pain in left foot, but got infection in right foot (that to this day even the podiatrist has no idea where it came from). The infection blew up into surgery and that all resulted in extreme pain in *both* feet from then on.

I've started seeing a family physician as a manager of the other doctors and the diabetes and another doctor for pain management. The neurologists simply say they can't do anything for me, after testing. I go for an MRI of brain on the 18th of Feb 2009, mainly because of brain 'zaps' or brain 'stutters' as I've heard them referred to.

The 'zaps' started on very rare occasion around September 2008, and in January 2009 as a daily and multiple times a day in February 2009. Although we have 13 computers all linked in the house (plus 2 laptops), and both my wife and I do programming for a living, I didn't think to really do intense searching and research on my own condition until December and January.

But, of course, I get to be excused by the pain meds. I've been on Lyrida from the start. Insurance refused Cymbalta at the dosage I needed until I 'failed' on a generic anti-depressant, even though I wasn't taking it as an antidepressant. They didn't know it was used in combination with Lyrica for neuropathic pain. So, I went on amytriptoline for a month; what a **trippy** drug. I simply refused to take any more of it at that point; and lo and behold the insurance company finally gave in and approved the Cymbalta.

Oxycodone worked for me, but you could set your watch: 1 hour to start working, 2 hours of relief, back to level of 10 on pain meter. And that didn't work for trying to get a night's sleep. Not to mention how quickly dependence would have set in, based on what the PP indicated.

At the same time, my family physician asked if I would go to a pain clinic, and I got an appointment that day.

This lead me to the titled pain med combination - after 3 nerve block attempts, all of which did NOTHING and several other drugs that did little or nothing (except a sample drug that allowed me to make some money doing a Vaudeville act while on travel cruises to Mars and Jupiter; I turned those in to the pharmacy for disposal as well).

So here I am. Neurologists who can't do anything more. Family physician who I can't accept any pain medication or other help from due to contract at the pain clinic because of narcotics. And a pain specialist who indicates that we are near or at the end of possibilities for pain relief.

I can get rid of the methadone and morphine, and live at about a 7 of 10 pain level 100% of my day, with breakthroughs to 10 and beyond that may last minutes or hours.

If I stop all 4, I have a 14 hour window before I am at level 10 of 10 on a pain scale of 1-10.

I am scared spitless by the Methadone, based on past stories of Methadone being used for junkies, and current advise given about Methadone being more addictive than heroin.
I am scared spitless by the Cymbalta, based on several forums where I have read people's stories about their experiences with Cymbalta and especially Cymbalta withdrawal.

I've talked this over with my Primary Physician, as well as the Pain Specialist. Basically, they don't agree with the bottom line on either medication. And they both say "If you have any other choices, we'd try them". (Not literally, but basically the same.)

At this point I've discovered that I can manage the Diabetes pretty well. I went from an A1C of 15.9 to 7.8 in about 3 months, and am maintaining at 7.3 so far.

I'm looking anywhere I can for options on managing the pain. I'll trade dependence for the pain, but right now I'm averaging about a 4, and I'd like to get it lower.

Sorry for rambling on, but I seem to be left with that as a companion to the methadone or one of them anyway.

I know my symptoms are probably pretty mild compared to many of you out there, but they sure seem severe to me.

And I would appreciate any insights into dealing with this. Whether physically dealing with it based on a medication suggestion I can talk over with the doctor, help with the stress or even another group here that might have information helpful to me.

Sorry for the length, but a lot was buildup and won't be repeated each post.

I'd prefer Tony for a screen name, but it was taken.

Post Edited (TonyMcGuire) : 2/11/2009 10:40:22 AM (GMT-7)


kttn251977
Veteran Member


Date Joined Jul 2007
Total Posts : 554
   Posted 2/11/2009 10:38 AM (GMT -7)   
Hi Tony, I want to say welcome..... though I LUCKILY do not have diabetes- I thought I wrote your post. lol. We are so similar.... fyi, amitryine, like lyrica & cymbalta, will calm down once you are used to using it. I have been on it for 2 years now. You can see my medicine chest mirrors yours! So what you need to say up front you are not getting enough relief from you meds..... I am on the path to a pain pump because I have had 20 different types of blocks and nothing. I have done it all. acupuncture. pt. meds. How many times a day do you take your oxy? Have you considered asking for Oxycontin? It works great for me. I have tried almost every med and when one works months later I am tolerant against it. I know what you mean exactly!!! Now there is a shortage of oxycodone to top things off. **sighs** Welcome and you have some meds that work well for me.... hang in there!! -Shannon
RX's: Oxycontin 80mg 2x's daily; Oxycodone 30mg 5xs daily; Zanaflex 4mg 3x's daily; Restoril 15mg 1x; Soma 3x's daily; Lyrica 100mg 3x's daily (pain & fibro.); Phenergan 25mg (as needed); Amitriptyline 25mg 1x (chronic pain); Cymbalta 60mg 2x's daily (pain from fibro); Abilify 5mgs at bedtime (depression); Metoclopram (as needed) & Senokot (as needed).
"The most critical choice you'll ever make is the one you make about what you're going to do with this. The past is over. The future hasn't happened yet. The only time is now."
- Dr. Phil


Tony McGuire
Regular Member


Date Joined Feb 2009
Total Posts : 483
   Posted 2/11/2009 10:44 AM (GMT -7)   
Shannon,
Thanks for chiming in; yes we have similar but yours is a bit more intense I think.
No, I don't take any oxycodone or oxycontin. 'Lucky' for me, with the shortage.

Not likely to be a shortage of Methadone or Morphine - ever. Too much in use.

Look forward to getting to know about everybody here.

Tony

uniquelyme
Veteran Member


Date Joined Nov 2008
Total Posts : 1037
   Posted 2/11/2009 10:51 AM (GMT -7)   
Hi Tony,
I have been taking methadone for a very long time..I started taking it because of a back problem, I have since had 2 surgeries, one of them fusion surgery.

I know I will have to take something for the rest of my life for pain...and although I don't like the thought, I do know it to be true. I would rather take pain medication then be an invalid...I take 120 mg. methadone and oxycodone 15 mgs. 4xdaily.... I also take Lyrica when needed.
Not everyone who takes methadone is an addict (or junkie as u put it). It may be used to help people with addictions but it is very good for long term pain issues.

At one point during my pain issues I was also worried about being addicted to the methadone..But my friends here are easy to let me know that being addicted is not the same as being dependant...which is what I am....I depend on these medications for my livelyhood.(sp). If I didn't take them I would not want to get out of bed, I mean I wouldn't be able to.

I better get back to the weather, we are having 60 mile an hour winds, and a Tornado Watch...I need to grab my 3 kitty's and put them in the closet....Wish me luck guys....

Me.
 

 Post Lamenectomy Syndrome, Bipolar, GERD

Hemi-lamenectomy, Spinal Fusion

120mg. methadone daily, 60mg. oxycodone daily

 


Pamela Neckpain
Veteran Member


Date Joined May 2008
Total Posts : 1821
   Posted 2/11/2009 10:52 AM (GMT -7)   
I have this question:

Why oh why would junkies use Methadone?
As far as I know Methadone gives no high.
If one takes Methadone,there are no other narcotics that will cause a high.
Methadone works a little bit for pain.
(Oxycontin did nothing for my pain but was He ll going off of)
I guess when you have serious pain you really need Demerol or something strong.
I sure don't know what that "something strong" might be.
I haven't found it yet.
I'm so disappointed that I can't do my life the way I want.
No high hopes, I just want to pad around and do my garden, keep my place nice,
paint a little, cook a little and takes walks.
High hopes are long gone.
But the simplest things are not possible for me.
(I realize I'm not the only one on board who can make this statement)
I would just like to tell those people who are painfree ...
ENJOY YOUR LIFE. YOU ARE BLESSED AND LUCKY.
Pamela
MEDICAL CONDITIONS

Osteoarthritis all levels of spine right down to Coccyx,Spondilytis,Myofascial Pain
Fibromyalgia,Bulging Discs,Spinal Stenosis,Scoliosis,Osteopenia,Chronic Constipation
Carpel Tunel Syndrome, Attention Deficit Disorder,
Depression & Anxiety

Methadone for Pain, Xanax for Anxiety, and more, of course.


Tony McGuire
Regular Member


Date Joined Feb 2009
Total Posts : 483
   Posted 2/11/2009 11:09 AM (GMT -7)   
Pamela (my sister's name),

Methadone is given to 'junkies' as a *maintenance* substitute for Heroin. Junkies trying to get off of Heroin.

Yes, I misused the term. I didn't realize how serious it was used here, and I'll try to honor that culture as I begin to understand it better.

Methadone has been a lifesaver for me. It, in conjunction with Morphine, has been the 'other 50%' of pain relief I've gotten. Lyrica with Cymbalta on top being the other. These get me to 70% or so, other than breakthrough pain.

As far as Methadone and a high? Well, either it or Cymbalta or Morphine gives a high. But maybe what my brain feels isn't a 'high'. Fuzzy, imbalanced, vision distorted, can't quite control legs/arms/hands/etc properly and run into things; fall down once in a while?
(I have a choice of this or pain, it seems, and I'll accept this any day.)

I'm hoping for another 30%. And a replacement that gets me to 100% by itself, without side effects, would be the ultimate goal, of course.
Wife: Liz
Dogs: Koshka & Chomp
http://www.lostlore.com a hobby to share information.
(Moderators, is above site OK to display?)

Post Edited (TonyMcGuire) : 2/11/2009 11:19:16 AM (GMT-7)


Tony McGuire
Regular Member


Date Joined Feb 2009
Total Posts : 483
   Posted 2/11/2009 11:13 AM (GMT -7)   
Shannon,

When you said you thought you wrote my post, I didn't realize.

I saw in another post by you this morning that oxycodone is 2 hours then poof! for you as well. That is strange.

My doctor thinks I am lying about that, I think. Maybe you'd write a note to him and let him know I'm not the only one.


Tony
Wife: Liz
Dogs: Koshka & Chomp
http://www.lostlore.com a hobby to share information.
(Moderators, is above site OK to display?)


Scarred_for_life
Veteran Member


Date Joined Jul 2008
Total Posts : 1559
   Posted 2/11/2009 11:59 AM (GMT -7)   
Tony I would like to welcome you to HW. I can see the pain in your post and it saddens me to see another person fall to CP. My mom has diabetes. She has had it for aprox. three years now but does not have to take insulin shots as she produces too much insulin. The problem my sis and I face with our mom is keeping her AWAY from the sweets. She is determined that if her blood sugar is 124 that she can have a candy bar. Then wonders why when she takes it again at bedtime why its up at 189 duh! Mom complains that her feet hurt but refuses to go to the dr for it and my sis has to force her to go to the dr to get it checked out. Its a battle with her to get her to do anything. For the first two years she swore she didn't have diabetes and that the doctors were wrong. But after a near fatal over load where she passed out and her blood sugar was over 400 and she ended up hospitalized she now takes it a bit more serious. Biggest problem is getting her to eat, its like pulling teeth.

Wish there was something I could tell you that would help.

Scarred
What doesn't kill us only makes us fight back harder! :P


Tony McGuire
Regular Member


Date Joined Feb 2009
Total Posts : 483
   Posted 2/11/2009 12:52 PM (GMT -7)   
Thank you, Scarred, always appreciate the thoughts.

I may be able to help with your Mom a bit.

Ocean Spray has always equaled Cranberry STUFF. I hate Cranberry ANYTHING. However, a diabetes center here convinced me to try a low sugar cranberry/grape mix. Only 10 carbs (all sugar but that is pretty low). Once I got there, in looking I found a DIET version. Only 2 carbs and both sugar I think. But only TWO CARBS in a 10 or 12 ounce glass! It is sweet, and no after-taste. There is also a cranberry/grape mix in Diet but Wal-Mart is the only place I've found it here in Utah.

Hard candies? Creme Savers has some fairly low carb/sugar candies that might carry someone to sleep.

Hope this can help.

Tony
Wife: Liz
Dogs: Koshka & Chomp
Site: http://www.lostlore.com - a hobby to share information.
(Moderators, is above site OK to display?)


Scarred_for_life
Veteran Member


Date Joined Jul 2008
Total Posts : 1559
   Posted 2/11/2009 2:44 PM (GMT -7)   
You know Tony, I made some fudge a few years ago (two or three) that I was experimenting with the Splenda sweetener. Well when we moved I gave it all to my mom and she Loved it! Asked me for the recipe so I gave it to her and she is now making the stuff left and right ha ha ha

Scarred
What doesn't kill us only makes us fight back harder! :P


kttn251977
Veteran Member


Date Joined Jul 2007
Total Posts : 554
   Posted 2/11/2009 4:44 PM (GMT -7)   
anything to help, lol
RX's: Oxycontin 80mg 2x's daily; Oxycodone 30mg 5xs daily; Zanaflex 4mg 3x's daily; Restoril 15mg 1x; Soma 3x's daily; Lyrica 100mg 3x's daily (pain & fibro.); Phenergan 25mg (as needed); Amitriptyline 25mg 1x (chronic pain); Cymbalta 60mg 2x's daily (pain from fibro); Abilify 5mgs at bedtime (depression); Metoclopram (as needed) & Senokot (as needed).
"The most critical choice you'll ever make is the one you make about what you're going to do with this. The past is over. The future hasn't happened yet. The only time is now."
- Dr. Phil

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