Just read last note from Pete. Here are my problems

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Sleepy4ever
New Member


Date Joined Feb 2009
Total Posts : 3
   Posted 2/13/2009 11:31 PM (GMT -7)   
 I have just had surgery in November 2008 of C5- C6, C6-C7. Some of the same problems showed up he mentioned  with the encroachment part on my MRI. I have healed up pretty well, but I thought the surgery would help out with some of my other problems I have lived with for years, like my fibromyalgia, but no such luck. I also have the double gene for hemochromatosis which means I have it. It is causing my body to go downhill with arthritic pain in my joints rather quickly. I am only 52. I am still working part time, but don't know for how much longer. I seem to  be hurting more and tired all the time, even though I always get more than plenty of sleep. I can safely say I am joining the ranks of those who are in a great deal of pain. Along with that, concentration is worse, memory is worse. I always wondered why the older population were so cranky, now I know. I know pain can come in all ages, but for most of us, you don't expect to get it early and have to live so many years with it. I can relate to the woman on the commercial who says, that's not for me, thats for some old person. I know my age is now not a young person, but in relative terms, I am pretty sure I have less years to live than I already have. I am a Nurse also and I work with psych patients. I know that many who are depressed are living with pain whether emotional or physical or both. I see the very despondent people every time I go to work. In some ways you can look at that as this. I am not as bad off as this person or that person. In other ways, I sometimes think to myself, why are they depressed, they don't have half the problems I have. Everyone has their own perception of which end of this line they fall on. The best thing I or anyone can do is hang in there. Let things work out as they may and pray for the best. I have said my say. Thanks for listening. turn

PAlady
Veteran Member


Date Joined Nov 2007
Total Posts : 6795
   Posted 2/13/2009 11:49 PM (GMT -7)   
Hi, Sleepy,
I just wanted to welcome you to the chronic pain forum. We're always sorry that there's anothet person in pain, but this is a great support group, and it sounds like you have much to offer.

We also do some silly things to cope. Feel free to jump in anywhere.

Again, welcome.

PaLady

Scarred_for_life
Veteran Member


Date Joined Jul 2008
Total Posts : 1559
   Posted 2/13/2009 11:56 PM (GMT -7)   
Sleepy; I want to welcome you to HW. Its sad to see that another one has to join the ranks of our ever growing family. I have a couple of questions. Did your doctor say that the other problems would be taken care of with the surgery? and if so did he tell you how long it would take for this? You are still pretty fresh from your fusion and I am thinking that it is going to take some time to heal before you are really going to see some more permanent results of the decreased pain. I am sorry though that you have to live with Arthritic pain, it is so horrible to watch a person go through this and my prayers go out to you.

Anyway, I am in gobs of pain and headed for a long bath. But if you are up later I would love to talk more.

Your friend

Scarred
What doesn't kill us only makes us fight back harder! :P


Sleepy4ever
New Member


Date Joined Feb 2009
Total Posts : 3
   Posted 2/16/2009 5:11 AM (GMT -7)   
Thanks Palady and Scarred_For_Life for your replies. I just now got back on to read the replies. I just seem a bit overly tired. I worked Saturday and SUnday evening and as usual when I get overly tired last night, I am just waking up here at 6am to find myself asleep in my recliner. I was so tired at work even before leaving I was thinking , Gee I hope I don't fall asleep on the drive home. Saturday evening I was sitting at kitchen table trying to read my mail and found myself falling asleep as I sat looking at it. I guess I should be glad sleep comes, but now wondering if something is wrong and if I am in danger with driving when I fall asleep so easily here lately. I have had the pain relieved that was going down my arm and the numbness feeling since the cervical surgery. So in that respect there has been some help. I had also been told if I had even one more auto accident and it involved my neck, I could be paralized with the condition my neck was showing on MRI. I figured I probably should then, to at least save myself from that sort of future problem. I need to return to bed to finish sleeping, thanks for the support.

Tirzah
Veteran Member


Date Joined Jul 2008
Total Posts : 2283
   Posted 2/16/2009 12:46 PM (GMT -7)   
Sleepy,
Welcome to HW! Sorry you've got so many troubles.
Have you ever tried Provigil? I was on it for a while for sleep disturbances (crazy neighbors keeping me up til early in the morning - my boss let me start work later, but it really threw off my sleeping schedule). It wasn't as good as actually getting sleep, but it definitely helped me stay more alert to drive & do my job.
It is on-label for sleep-shift disorder so maybe it would be worth a try. The lowest dose is 100mg & you can break them in halves or quarters if you don't need the whole thing. It won't give you any more physical energy, but does promote alertness so maybe it could at least keep you awake enough to drive.

stay safe,
frances

Sleepy4ever
New Member


Date Joined Feb 2009
Total Posts : 3
   Posted 2/16/2009 2:03 PM (GMT -7)   
Frances, Thanks for the reply. No I have not taken that. I will suggest to possibly get this next time I see my DOctor. I have so many health problems, and one comes to mind, High Blood pressure, that any new RX's must be OK to use or it could cause problems with other things. For right now, I take a caffeinated Soda to work with me and drink it as often as I get to. Obviously it must not be enough.

straydog
Forum Moderator


Date Joined Feb 2003
Total Posts : 13467
   Posted 2/18/2009 12:36 PM (GMT -7)   
Hi Sleepy,
 
I too want to welcome you to Healing Well. I am so glad you found us, I belong on some of the other forums here besides CP. This place has really been a safety net for me over the years. When I first joined it was after an emergency resection due to my crohns disease and I really needed people to talk to that understood the disease. I don't think there are any finer forums than what we have here at Healing Well.
 
You are right, your surgery did nothing for your fibro, it wouldn't. It sounds like so far you are getting some relief from your surgery. If anything trauma like conditions can aggravate it, which may have happened after your surgery.
 
My daughter has hemachromatosis. She was in her earlyt 20's when she was diagnosed with it. Her iron levels get way too high and she does phlebotomies every other month. Her dr wants her to do them more often than that but she tells me she just gets too sick. I remember when she was doing them in the beginning and she was going every other week for awhile and it really did take it out of her. Do you have to do phlebotomies? Her dr does yearly sonograms of her liver to watch for any involvement there. She does have arthritis too and some times she really suffers with it. She can now tell when it time to go and do her blood. She has done very well in the diet dept as far as avoiding foods with iron. It can be a very debilitating disease without proper treatment for sure. We feel very lucky that her gi dr is so knowledgable about the disease. He stays in close contact with her PCP and so forth. I have had the DNA testing and I am a carrier but I do not have the disease.
 
Yes, depression and chronic pain do go hand in hand. I think it would be a rarity to find a CPer without depression. I have had problems with depression long before the CP hit, hwever, it sure seemed to magnify it. I don't know what I would do if it weren't for my chill pills for sure.
 
Hope to see you more on the forum....Susie
 
 


straydog
Forum Moderator


Date Joined Feb 2003
Total Posts : 13467
   Posted 2/18/2009 12:39 PM (GMT -7)   
Sleepy, forgot to ask will your dr give you something to help with the arthritirs? There are many anti-inflamms on the market these days. Susie

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