Are you afraid of telling your doctor if you want a med increase?

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DavyDave
Regular Member


Date Joined Feb 2009
Total Posts : 33
   Posted 2/21/2009 3:17 PM (GMT -7)   
My mom is 63 year old woman and also a Chrono Pain sufferer. She has Fibromyalgia, Osteoporosis, and Arthritis. She's been wanting a med increase for quite some time but she's afraid to ask her doctor because she things she'll be labeled a drug seeker aka drug addict by her doctor. She has never abused any of her meds. The poor woman has in a lot of pain in her legs and feet. So she too is suffering as well. More so then me. She takes 5/500 (I think) of Percocet 6x a day.
 
Are any of you afraid to tell you doctor if the pain med(s) aren't helping anymore and you want a stronger dose?

PAlady
Veteran Member


Date Joined Nov 2007
Total Posts : 6795
   Posted 2/21/2009 3:25 PM (GMT -7)   
Hi, Davy,
Your Mom is understandably being influenced by all the misinformation about medications - and the overemphasis in the media (IMHO) on addiction, drug diversion, etc. Sadly, this results in someone like your Mom having pain that's undertreated. That could also be dangerous because a condition could be worsening. Would she let you go to the doctor with her? You don't have to be in the room for any examinations, of course, but be present to tell the doctor how she hurts, and to make sure she tells the doctor her symptoms. Then the doctor can take it from there. If you have a sister, maybe she could go along, but it sounds like your Mom needs someone at her side.

She could also post here - or read some of these posts. I'm 59. Wish I didn't have to be on all these meds either, but I'd have absolutely no functioning without them.

Hope this helps a bit.

PaLady

straydog
Forum Moderator


Date Joined Feb 2003
Total Posts : 13478
   Posted 2/21/2009 3:26 PM (GMT -7)   
Davy your Mom needs to just be honest with her dr and tell him the medication is not relieving her pain. How long has your Mom been on this doseage? When the dr asks your Mom how she is doing this is her time to let him know about the meds not working. If we don't tell these drs whats going on they will onlt assume we are doing fine. The last two pain mgt drs I have had always have asked me how the pain medication was working. The best thing your Mom can do is be honest about the pain.....Susie


griffin
Regular Member


Date Joined Jan 2009
Total Posts : 56
   Posted 2/21/2009 8:59 PM (GMT -7)   
i have a saying, always tell your doctor the truth they are the only one that can kill you with a lie.
i have fibro and spend most of my time on that forum, i have been on pain meds for three years and have had to change for precocets to oxycodones. the prec. just was not working any more you get use to them after awhile. good luck with your mom and tell her dont be worried about a good dr. will know the difference between a person in pain and a person just wanting to get pills
I smile through fibro


fatherjohn
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Date Joined Feb 2009
Total Posts : 999
   Posted 2/21/2009 11:19 PM (GMT -7)   
Right now I would be more than happy to call my dr and ask for more/stronger if I had his home number. That might be why I don't have his number. I have asked for an eval on my meds and will have one this week. I am careful not to ask for a specific meds but don't hesitate to tell them that they need to look at something different or stronger. I believe like others have stated it is not wrong to be honest with thrm and let them know how you are feeling. From their side, unless we are truthful, how will they know.

Chutz
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Date Joined Jan 2005
Total Posts : 9090
   Posted 2/21/2009 11:28 PM (GMT -7)   
Hi Davy~

You're a wonderful son! and your mom is very lucky for your concern. I agree with the suggestions above, especially about going to the doc with mom. If she's been on pain meds for a long time then the doc knows he can trust her. They expect to have to increase dosages over time, it's just the nature of narcotic medications. Your body becomes resistant to them and it takes more to handle the pain.

Also, your reaction to the medications you take is the only way for the doc to know how they are working. In a way they are diagnostic. If you don't say anything then he assumes they are working perfectly! So mom needs to just be honest and tell him how the medications are working...or NOT.

I've posted a link below my signature for you to check out. It's for a pain journal template you can copy and use for free. It's courtesy of the American Pain Foundation. Ask mom if she'll fill it out for a couple of weeks. It will show the doc her level of pain throughout the day among other things. That way he gets a clearer picture of how she's doing on her medications. It will also show the doctor you are serious about your treatment and respect the situation.

I hope this helps and please keep in touch. Also we'd love to have mom join us. We have a very active and warm fibromyalgia forum...it's more like a caring family of friends and we're always looking for new 'family members' to join us. I'm sure we could learn a few tricks from here too.

Chutzie

http://www.painfoundation.org/Publications/TargetNotebook.pdf
Co-Moderator Fibromyalgia & Chronic Pain Forums
~~~
Fibromyalgia, Ulcerative Colitis, Insulin dependent diabetic, PTSD, dermatitis herpetiformus, osteoarthritis and a few other side dishes.
***************
Happiness is something to do, someone to love, and something to hope for."
(\__/)
(='.'=)
(")_(")


Lindaloo
Veteran Member


Date Joined Sep 2006
Total Posts : 1713
   Posted 2/21/2009 11:34 PM (GMT -7)   
Yes definitely tell your doctor the truth about the pain meds you are taking. I agree that he or she can only help you with honest input about the efficacy of the medication on your pain. My percocets weren't working a year ago and we went round and round with alternatives. We finally revisited the adding of lyrica and that did the trick finally. But we came to that conclusion as a partnership and honest conversation about the effects on my pain.

Good luck.

Lindaloo
Moderator Chronic Pain
 
Believe in yourself.  Be kind to fellow humans and animals.  Take time to smell the flowers and the coffee.
And by all means, when you are down, ask me for help.  I will be there.
 
Linda


DavyDave
Regular Member


Date Joined Feb 2009
Total Posts : 33
   Posted 2/22/2009 3:03 PM (GMT -7)   

Thank you for all of your of kind replies.

My mom has been on Perocet for 15 years. Before that Tylenol 4 for I don't know how long. She was originally given Percocet by her current (btw her doctor is a she ;)) doctor to take 4 x a day. When my mother was first diagnost with Fibromyalgia, her doctor refused to up the dose to 6 until she went to a conference in Boston, this was like 6 years ago. When she upped the dose she told her she wouldn't give her anything else and practually through the script at my mom. This is probably why she's afraid to ask her. Add on to the fact on what happened to me when doctors can just take a patient off their medication with a snap of their hands.

My mother is at the point where evertime someone touches her she says "Oww."

I will go with her to her next appointment. Though she's a bit apprehensive about me going for some reason. If her doctor refused to up her dose of Perocet, I wonder if there are drugs to take along with her current dose to make her comfortable.


PAlady
Veteran Member


Date Joined Nov 2007
Total Posts : 6795
   Posted 2/22/2009 3:20 PM (GMT -7)   
Davy,
I don't blame her for being apprehensive if she was treated that way! Is this a PM doc? And does your Mom want to look for another doc? Just a thought.

But you're right, there may well be other medications that can be combined with the percocet, because they don't help all kinds of pain (I know that firsthand!). So I'm glad you're going with her. You might do what Chutz suggested about a pain journal (ask your Mom to keep one), and also help your Mom write down all her questions in advance. You want to try not to forget anything.

You sure are a good son!

PaLady

DavyDave
Regular Member


Date Joined Feb 2009
Total Posts : 33
   Posted 2/22/2009 4:42 PM (GMT -7)   
PAlady said...
Davy,
I don't blame her for being apprehensive if she was treated that way! Is this a PM doc? And does your Mom want to look for another doc? Just a thought.

But you're right, there may well be other medications that can be combined with the percocet, because they don't help all kinds of pain (I know that firsthand!). So I'm glad you're going with her. You might do what Chutz suggested about a pain journal (ask your Mom to keep one), and also help your Mom write down all her questions in advance. You want to try not to forget anything.

You sure are a good son!

PaLady
Hi PALady,
 
She's a DO doctor in a Family Practice. My mom has known her for years, since we first moved to Maine. She was also my doctor for a while.
 
Seems like she wants the doctor to raise the Percocet to 10mg, 6 pills daily instead of 5mg.  I just asked my mom if wanted to take a drug like Lycria and my mom said she doesn't want to take it because of the side-effects. I was wondering if they can substitute Lycria in between the Perocet. I'm trying to give her more info about these types of drugs.

PAlady
Veteran Member


Date Joined Nov 2007
Total Posts : 6795
   Posted 2/22/2009 5:36 PM (GMT -7)   
Davy,
Lyrica and Percocet are totally different drugs, for different types of pain. While people often take them together, it's not really to substitute. I take percocet and neurontin, but they each act on different aspects of my pain.

You might discuss with your Mom - and then her PCP - a referral to a pain management specialist. Just be sure it's someone who does all types of pain management and not just the high tech injections and such. Not that those are bad, and may even be something for your mother to consider, but some pain management docs don't prescribe ongoing medications, and that could leave your Mom in a bind. But it's worth a discussion with your Mom and the doctor. A pm specialist would know all the types of meds. that might help your mother.

PaLady

straydog
Forum Moderator


Date Joined Feb 2003
Total Posts : 13478
   Posted 2/23/2009 2:08 PM (GMT -7)   
Davy its a shame your Mom won't try Lyrica for the fibro. Many people on the Fibro board is on it with good results. Has she been on it in the past? It may not be a good idea at all for your Mom to be specific in the doseage of Percocet she is wanting. That usually sends a red flag up with a dr and since this dr takes such a hard stance on pain meds this may not be the thing to do. Instead your Mom needs to say the pain meds have stopped working after this long time of being on this and is there something different the dr can try. If she is still taking her old stance then ask for a referral to a pain mgt dr. She may do much better with a pain mgt who has a broader area of expertise over a family practice dr. Susie


shannie727
New Member


Date Joined Feb 2009
Total Posts : 2
   Posted 2/23/2009 7:25 PM (GMT -7)   
Hey Davy, I'm a new member with twelve years of chronic back pain. I see a pain dr and neurologist both. I use two pain meds and also Lyrica for the nerve pain in my legs. The pain meds do different things as one is a short acting and one is long acting. Your mom could benefit from a combo of meds. See if the dr will consider a change from Percocet to something else with a long term drug to go with it. I took Percoset for a while and then changed to Methadone and it works much better for me along with MS Contin. I also use Baclofen for muscle spasms. So, you see she can take many more drugs and she too can be a zombie like myself. It sucks but I have no more options left but meds forever. My drs have exhausted all surgeries and treatments for me. I've had fusion, injections, nerves burned, a stimulator put into my back, nerve blocks and no relief. The meds are the only thing that keeps me from losing my mind completely. Good Luck and write to me more. I need someone to talk to.


Shannie727

Post Edited (shannie727) : 2/23/2009 7:29:44 PM (GMT-7)


deenewme
New Member


Date Joined Feb 2009
Total Posts : 6
   Posted 2/23/2009 8:29 PM (GMT -7)   
I told my doctor to switch me from 100mg of Morphine to Oxycontin because the morphine was not working but i had to tell him he had to put me on a higher dose of oxycontin not the 20mg or 40mg and he did. I have a good doctor though he is very understanding
 
 
Osteoarthritis of spine and hip, nerve damage on right side which includes leg, arm, and neck/with chronic nerve pain, bi-polar, anxiety disorder. Taking Oxycontin 60mg OxyIR 30mg as needed for breakthru pain, Xanax 2mg, Valium 10mg, Abilify 10mg

Pamela Neckpain
Veteran Member


Date Joined May 2008
Total Posts : 1821
   Posted 2/23/2009 11:10 PM (GMT -7)   
Davey,
I tell my doctor I'd like a change of meds. I say my Methadone isn't
working too well. All he says is, I'll solve all your problems with a pain
pump.
I don't want a pain pump. I've heard too much bad stuff about them. I am
afraid of them. He says, "Just look at this brand new medtronic CD about
the pump."
OF COURSE MEDTRONIC IS GOING TO SAY GOOD THINGS about THEIR
PUMP. THEY MAKE LOTS OF MONEY ON IT.
Ahem, excuse me there. I got carried away.
Soo... It doesn't do me any good to say anything.
Like Chutz says,
it is a nice group in Fibromyalgia. (Good here too, of course)
Pamela Neckpain
(\__/)
(='.'=) <--Chutzie's Bunny
(")_(") :-)
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