My dear feloow sufferers. I had hypermobile kidneys for so long that it has caused Loin Pain Haematuria Syndrome. I have a research document in my hands done by Dr Ahmed Ghanem who has found that the latter is caused by the former. if all renal pain sufferers were given LYING AND STANDING IVP's then not only would there be a cure for LPHS IT WOULD NO LONGER EXIST!
The research is in the final publishing stages which I as a fellow sufferer am helping with. It is indeed exciting news. Dr. Ghanem found in his 10 year study that it was usually the kidney in the correct place that had originally been the hypermobile one but during an attack of inflammation it 'stuck' itself in the right place. It is often the second hypermobile kidney that is found causing the most problems.
Because all but a few urologists do the IVP STANDING AND LYING no one ever knows they have a hypermobile kidney they only know it's AGONY!
I also have narrow ureters which can cause hydroureter & hydronephrosis. these conditions both cause renal pain & colic.
My request is ...has anyone had a nerve block for renal pain that has helped? I was told a coeliac plexus nerve block would help but it made the pain worse. It can't get much worse as I take 2 hourly injections of Daimorphine 20mgs as just one of the medications on my pain plan under the care of a pain specialist.
I look forward to your help & for you all seeing the result of Ahmed Ghanem's research