Chronic Pain - Possible Ankylosing Spondylitis

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Alexandre Brazil
New Member


Date Joined Feb 2009
Total Posts : 1
   Posted 2/24/2009 5:04 PM (GMT -7)   
I have Chronic Pain for 9 years. In the begining they found I have back pain in th spine. This pain usually accours for 3 days and got to normal for 3 or 4 months. In 2006 this pain got on top and my Neurologist made miofacial infiltrations and I felt better for 2 years. Recently in september 2008, this pain back more strongly and Neurologist made another infiltration on my spine. Three days before my pain get alive again. Till this time I never had a day without pain. The pain is more active in the morning and at night. Recently I got to a Rheumatologist and she said I have clinically Ankylosing Spondylitis (AS). I made blood test 2 times and answer was Negative. Some poeple told that this diagnosis can be positive trying blood tests many times.
Is there anybody that had negative for times and got positive after that ?
My pain is in my back, on sacroiliac area, moving up to my spine and down to my legs. There is a pain in my shoulders too.
I do HidroTerapy 3 times a week and using medications as above.
 
I apreciatte your assistance. I need a diagnosis.
 
I went to another Neurologist that said that I dont have neurological problems, but suggested to do one Transcranial Magnetic Stimulation (to find a better place) to start a Transcranial Electrical Stimulation. I read that there is no danger of damage in my brain, but I´m very afraid about it.
 
Thanks for your responses.

Alexandre Brazil
 
CD: Chronic Pain , Possible Ankylosing Spondylitis (on research)
 
RX´s: Cymbalta 60Mg 1X  (in the morning for Chronic Pain); Neurontin 600Mg 2X (Chronic Pain); Azulfin 500Mg 2X (Sulfazine for AS); Indocid 50Mg 3X ; Tramadol 100Mg 1X 8/8 hours in much pain


PAlady
Veteran Member


Date Joined Nov 2007
Total Posts : 6795
   Posted 2/24/2009 5:30 PM (GMT -7)   
Hi, Alexandre,
I want to welcome you to the chronic pain forum of Healing Well. I'm sorry to learn of your pain and your struggles, but I don't have the answers to your questions. We can provide great support here, but we're not doctors. But someone may come along who's had more experience with what you're asking.

I don't know about Transcranial Magnetic Stimulation. Maybe someone else here does. Keep doing your research, and possibly get a second opinion. I wish I could offer more.

Again, welcome.

PaLady

skeye
Veteran Member


Date Joined Mar 2008
Total Posts : 2976
   Posted 2/24/2009 10:42 PM (GMT -7)   
Hi Alexandre,

Welcome to the CP board of HW. If you stick around, you'll discover that this is a really great group of people & that we can provide each other with a lot of support when it's needed the most!

I'm not a doctor or a medical professional, but I'm curious, have you ever seen an orthopedist? In some of the time that I've spent working with an orthopedic surgeon, the topics of spodylitis & spondylothesis have come up. If you do have ankylosing spondylitis, it is something that can usually be picked up on x-ray. A good orthopedist should be able to diagnose it, especially if they commonly work with spine issues. My guess is that you've already seen an orthopedist, after dealing with this condition for 9 years, but just a thought!

Skeye

Chutz
Veteran Member


Date Joined Jan 2005
Total Posts : 9090
   Posted 2/25/2009 11:46 AM (GMT -7)   
Hi and welcome to our CP family!

I'm so sorry for the pain you're going through right now, especially since you still are not sure what is causing it. When you said you have pain down your legs I am wondering if there are problems at the base of your spine, sacroiliac area, and the nerves going down your legs are getting pinched...which causes the pain. I have this problem and it can be very debilitating. I don't have any experience with AS...sorry.

I do hope you get some answers soon.
Chutz
Co-Moderator Fibromyalgia & Chronic Pain Forums
~~~
Fibromyalgia, Ulcerative Colitis, Insulin dependent diabetic, PTSD, dermatitis herpetiformus, osteoarthritis and a few other side dishes.
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straydog
Forum Moderator


Date Joined Feb 2003
Total Posts : 13471
   Posted 2/26/2009 2:54 PM (GMT -7)   

Hi Aleandre and welcome to Healing Well. I know a little about AS not much. You said they did blood test, did they do a ERS and CRP? There is also another blood test they can do that will show if you have the gene for AS. The test is called HLA-B27 gene. Even if you test positive it does not necessarilym mean you have AS but it can be taken into consideration with other positive testing. Have your dr done any CT's of MRI's to check for inflammation in your joints? As generally hits the spine and sacroliac joints in the beginning. It can affect other parts of your body as the disease progresses. If you cannot get anywhere with the dr you have then get into another dr, don't give up.

Sometimes if the inflammation is mild it will not show up in blood work. Try to get your dr to do further testing with either a CT Scan or an MRI. Its much better to catch AS in the early stages and slow the progressio of the disease down. Good luck...Susie

 


Boroboy
New Member


Date Joined Feb 2009
Total Posts : 9
   Posted 2/27/2009 4:24 AM (GMT -7)   
Hello,
I can sympathise, I too am a long term Ankylosing Spondylitis sufferer.
Most people with AS are HLA-B27 positive, but not all.
Here's a couple of links to AS related forums which may help:-
 
 
 
Hope these help.
Best wishes.
George.
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