Questions about medications

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straydog
Forum Moderator


Date Joined Feb 2003
Total Posts : 13451
   Posted 2/28/2009 12:48 AM (GMT -7)   
Hey Gang,
 
We have been getting quite a few questions about medications and how they work and do they work, or what works the best.  Folks you have to remember chronic pain is a very individualized disease. By that I mean what may hurt me may not hurt you at all to do. Its the very same way with our medications. We metabolize our medications differently each and every one of us. No two of us are alike. Which means what I take may not even touch your pain, Just because its a pain medication does not mean it will help everyone. Whatever we experience with a medication does not mean you will have the same effect. We have not been trying to be vague in our answering questions on this subject, just a little uncomfortable. Why for one thing if I told you or anyone else on here that this medication works great and you went to your dr and got him/her to put you on it and it did nothing for your pain you are going to be mighty upset to the point you may think someone lied to you. Regardless you don't need that kind of stress. We don't want things like that happening here on this forum.
 
Don't ask us to give facts on medication trying to break down the doseage of one medication versus the doseage of another. We are not pharmacist here. Call your pharmacist or dr and ask these kind of questions. You would have a better shot at calling your pharmacist than trying to get thru to a dr for sure.
 
We all most likely when starting a pain medication started out on the lowest dose and then over time it was increased due to needing to be bumped up a little I don't think any of us on here every got put on large doses of opioids right off the bat. So, don't compare what Joe Blow is taking to the doseage you are taking. The best place to get info on your medication is online at a place like Drugs.com or one of those places. Drugs.com gives a detailed list of potential side effects and when you need to call the dr. If you don't want to look it up read your printout that comes with the script, I always read those things. Or call the pharmacist and ask your questions.
 
We are all here to help one another any way we can, but we don't want to be giving out bad info either. Pain medication is just too individualized to start comparing it to what other people take cause it may not help you or the side effects may get you. Kind of like comparing apples to oranges,lol.
 
Hope we can all have a LP weekend. I want to get rid of this nasty bug, its really bugging me. Hugs, Susie


mom9mom
Regular Member


Date Joined Sep 2008
Total Posts : 489
   Posted 2/28/2009 2:44 AM (GMT -7)   
Susie I really liked your post and I hope it opens some peoples eyes.Pain medication is like anti-depression medication thay are not one size fits all.I would like to add to your post. If some thing works for you great if not talk to your DR. until you find what will work for you.Try not to talk someone out of trying a med. that there DR. would like them to try just because it wont work for you don`t mean that it wont work for them.



Susie hope you get over your bug.It has made the rounds of my family and it seems to have hit a lot of people on this web-sit to.We can all just hope that the worst of the cold season is gone for the year.Hope every one has a good weekend.
Lost half of my small intestineJan.2008.Ilieostomy for 5 months then reverst in June 2008,Nerve damage to right leg,part of my right hip bone removed Jan. 2008,Cronic pain,hernia,infection in my back called discites,and depression.Gallbladder removed Nov,2008.Surgery to fuse L3 and L4 vertabra Dec. 31,2008.Mother to 9 kids 7 boys 2 girls and 1 stepson.4 grandsons,9 grandaughters.4 of my grandkids I inherited from my twin sister who passed away 6 1/2 years ago from a blood clot after surgery.God has given me my life back after I almost lost it.Even though its a painful and sometimes hard road to walk I take it one step at a time and give thanks to god for every step I take.


Pamela Neckpain
Veteran Member


Date Joined May 2008
Total Posts : 1821
   Posted 2/28/2009 3:46 AM (GMT -7)   
Susie,
Great post.
I will put Drugs.Com in my favorite places.

I want you to rest up. I have sent you a long, long
long e-mail. You need to be up with perky ears and
sharp tapping fingers.

Thank you a million times over for being there.
Pamela yeah

Stella Marie
Veteran Member


Date Joined May 2005
Total Posts : 601
   Posted 2/28/2009 6:25 AM (GMT -7)   
Thank you so much for your excellent posting Suzie. When I stop to think how many different medications and different doses that I have tried over the years, the list would be very long. As you stated so well, what works for one person, may do nothing for another.. Another good website is:

"The Clinicians' Ultimate Reference" http://www.globalrph.com/index.htm.

It is designed for professional pharmacist's and provides a wealth of information about individual medications, conversion calculators, drug interactions, cost comparisons, etc. But as Suzie said, we are not trained doctors, pharmacists, psychiatrists, etc. so be careful how you interrupt what you read. We are not always astute enough to take in all the variables. I have hesitated to post this site before, but I know many people like myself want to understand as much as they can about the medications they take. The best source is always your doctor or health care professional.

Thanks Suzie a another great posting. When will you be publishing "The Best of Suzie"....

Stella Marie

Rare neurodegenerative disease called “Multiple System Atrophy”.  Wheelchair, O2, & Bipap, intrathecal pump, Neurostimulator, dystonia, neuropathic pain and spasticity.


straydog
Forum Moderator


Date Joined Feb 2003
Total Posts : 13451
   Posted 2/28/2009 10:21 AM (GMT -7)   
Oh, Stella I had to chuckle when you wanted to know about my book,lol. I bet all of us could get together and write one heck of a book but the problems we have encountered with CP, problem is no one would really believe it as a true story,lol. Can you imagine this, A Patients Guide to Chronic Pain Written by Chronic Pain Patients. Hey that sounds kind of snappy we may all have to put our heads together on this one, we may have a best seller at our finger tips. We could have each person write a a short story of their escapades wth CP. No one would really believe us gang,lol.

Many of us have learned the hard way about educating ourselves when it comes to drs and medications of any kind. But, the best information is what we can gleem off of our pharmacists and reading on reputable web sites. Our drs think they are just too busy to really give us lengthy easy to comprehend explanantions about our health and that problem gets worse every day. My old PCP told me one time to go online to any reputable site and read about crohns disease. He said you can learn more that way than I could possibly ever tell you. Now, thats straight from the horses mouth,lol. Hugs to all, Susie


PAlady
Veteran Member


Date Joined Nov 2007
Total Posts : 6795
   Posted 2/28/2009 3:03 PM (GMT -7)   
Susie,
So glad you posted this. It seems we mention it periodically, but it then gets lost in the shuffle. We aren't doctors or pharmacists - and even if we were this site isn't designed to give medical advice. It's against one of the rules, and for good reasons. I kind of agree, Stella, I'm not sure a lot of people should go to such sites. Unless you've got some medical background, you're going to find it confusing, and probably will cherry pick things that will end up confusing or scaring you.

Pharmacists are a wealth of information in most instances - especially making sure you're talking to the pharmacist and not a tech. My cousin is a pharmacist and I would now have known so many things if it hadn't been for her. I've learned because of that to lean on my pharmacist as much as my doctors - sometimes more so. And why when my insurance forced us all to use a hospital pharmacy I felt like one leg of my medical team had been pulled out from under me. But it was so nice - I ran into one of the pharamcistsi in CVS the other day and she said I can still come there for questions, even if I'm no longer getting my meds from them. They know me well enough now.

Another thing I often do is go directly to the manufacturer's website for a drug, particularly a new drug. It's similar to the print out you get from your pharmacist, but in even more detail. Again, sometimes if you find yourself getting more confused, ask your pharmacist or your doctor.

PaLady
p.s. Susie - the book idea - GREAT ONE! yeah

MVASurvivor
New Member


Date Joined Feb 2009
Total Posts : 9
   Posted 3/1/2009 10:10 AM (GMT -7)   
Hello - I am Bev - New on the Forum. I had to finally join after reading for a while. Stella - that website is awesome. What information !!! I found so much information about my meds and treatments !!! I just wanted to say hello to everyone and Thank you guys for being my online friends. Take care all.
Motor Vehicle Accident survivor, Closed Head & Facial Injuries, 16 Reconstructive Surgeries to both face and front of skull. Chronic Pain, Fibromyalgia, Neuralgia, Rheumatoid Arthritis and mild Narcolepsy. Currently being treated for probable MS. - It a fight everyday just to laugh and smile - but I can always find something....we are all still here, right ?


PAlady
Veteran Member


Date Joined Nov 2007
Total Posts : 6795
   Posted 3/1/2009 3:13 PM (GMT -7)   
Hi, MVASurvivor,
Just wanted to say hi and welcome you to the site, although sorry to hear about all your injuries and pain. We are a great site for support and even a little craziness. You might want to start a new thread and introduce yourself to everyone, as your post here might kind of get lost.

Again, welcome!

PaLady

MVASurvivor
New Member


Date Joined Feb 2009
Total Posts : 9
   Posted 3/1/2009 3:30 PM (GMT -7)   
Good Idea !!! I think I will do that. Thanks for the greeting !!!
Motor Vehicle Accident survivor, Closed Head & Facial Injuries, 16 Reconstructive Surgeries to both face and front of skull. Chronic Pain, Fibromyalgia, Neuralgia, Rheumatoid Arthritis and mild Narcolepsy. Currently being treated for probable MS. - It a fight everyday just to laugh and smile - but I can always find something....we are all still here, right ?


skeye
Veteran Member


Date Joined Mar 2008
Total Posts : 2976
   Posted 3/2/2009 8:33 PM (GMT -7)   
Susie,

I'm so glad you posted this! You couldn't have put it into better words!

Skeye
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