Can't tell the difference

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edt
Veteran Member


Date Joined Dec 2008
Total Posts : 773
   Posted 2/28/2009 6:04 AM (GMT -7)   
Hi Friends,
I have been having a hard time for the past 2 weeks, pain level has stayed at a 12!  I normally wake up with a headache but can control it with heat, pain meds and PT exercises  Not the case since yesterday it is beyond unbearable.  Tried to get into the Dr. I used to work for for injections, he was at the airport when he got my email.  Called my PMD he was out of the office....I was able to speak with his MA, I called to let them know I needed help and asked if they would chart that I was taking an extra pain pill or 2.  She told me to do that and they would call on Monday!  She did remind me of my pain contract, which is the main reason I called before increasing pp.
My problem is dealing everyday with pain...I really can't tell if I'm sick and thats where the headache is from or if I have a new area above/below the fusion that is wearing out, causing this flare! I was in bed most of the day yesterday, woke up at 3AM, have done everything I can think of to manage the pain...got a little relief for about 30 minutes and now its coming back with a vengeance!
This SUCKS...thanks for listening! 
XXOO
edt
 
 

Pete trips again!
Veteran Member


Date Joined Nov 2006
Total Posts : 1899
   Posted 2/28/2009 6:59 AM (GMT -7)   
EDT,
I'm so sorry to hear your having it so bad, wish I could do something for you. I can send a big warm Florida sunshine hug your way and say a prayer that your misery ends soon. Can you take a warm bath or shower? That always seems to help me. I know it may be a silly suggestion but I feel so hopeless that I can't do more to help you.
Your loyal friend,
Pete
56 years old, Surgury, Radical Prostatectomy 8/20/03, PSA 6.6, Gleason 3 + 3 = 6, Adenocarcinoma extent (moderate) Stage & Margin:T2NOMX, No Metastases, Organ Confined, bone scan: Neg. 3 1/2 years of depression after surgery prior to Hypogonadizm DX, Testosterone Theropy> new 2/6/09> 400mg injections every 2weeks . 56 and so glad to still be here to see my two sons grow up to be fine young men. They are both serving in the US Navy, one on the aircraft carrier USS John Stennis in port in Japan and the other on a Gator Freighter USS Bataan stationed in Norfolk, Va. I am one proud PaPa! 


edt
Veteran Member


Date Joined Dec 2008
Total Posts : 773
   Posted 2/28/2009 7:36 AM (GMT -7)   

Thanks Pete, I did just take a shower, you were right it did help some!  My old boss just called and said he will be back in town around 7 tomorrow eve.  He is going to meet me at his office then....so if I can just hold on for another day 1/2, I know I will get relief from the injections he will give me!

I am going to do nothing today but rest.....thanks for your healing thoughts!!  RIGHT BACK AT YA...how are you today?

edt


Chartreux
Veteran Member


Date Joined Aug 2006
Total Posts : 9622
   Posted 2/28/2009 8:41 AM (GMT -7)   
awe, edt so sorry your going through a rough time, sure hope the day flies by fast
so that you can get these helpful injections...
Keep us posted...
{{{{{{{{{{{{{{{{{{{{{{edt}}}}}}}}}}}}}}}}}}}}}}}}}}}}}
**********************************************
* Asthma, Allergies, Osteoarthritis, Spinal Stenosis, Degenative Disc, Fibromyalgia, Gerd, Enlarged Pituitary Gland
******** "We could never learn to be brave and patient if there were only joy in the world" from Helen Keller *********

********>^..^<********>^..^<********>^..^<********


edt
Veteran Member


Date Joined Dec 2008
Total Posts : 773
   Posted 2/28/2009 2:51 PM (GMT -7)   

Chartreux and Pete,

Feeling a tad better, thanks for the hugs!  Hot shower, REST, PM and relaxing music....not sure what did it but I am so grateful for a little relief!

XXOO
edt (Patti)


PAlady
Veteran Member


Date Joined Nov 2007
Total Posts : 6795
   Posted 2/28/2009 3:21 PM (GMT -7)   
Edt,
Misery loves company, right? So let me be your companion today! LOL I'm heading for a warm shower myself; horrible back spasms just started out of nowhere last night when I got up from a chair.

I, too, wonder about my fusion and other levels getting worse. I know it happens. Sometimes I don't want to know, ya know?

So we'll get through this next day or so. We'll just come here and ramble a lot. :-)

PaLady

uniquelyme
Veteran Member


Date Joined Nov 2008
Total Posts : 1037
   Posted 2/28/2009 9:42 PM (GMT -7)   
Hey Edt,
I am having a similar situation. I have been sick for the past week with Bronchitis...the coughing is causing the most excruciating headache I have ever endured...really, I want to cut my head off. It feels like a little person is inside my skull with a sledge hammer...whacking me over and over and over and over....you get the just.

My meds are doing nothing but making me sick at my stomach, so I don't take them. I am miserable right now...Help me please friends, I don't know how much more I can take...

Me.
 
We are all in the same boat...unfortunatley it seems like it's sinking...
 
Rhonda
Post Lamenectomy Syndrome
Hemi Lamenectomy
Spinal Fusion
 
120 mg. Methadone daily
60 mg. Oxycodone daily
Lyrica as needed 

 


edt
Veteran Member


Date Joined Dec 2008
Total Posts : 773
   Posted 3/1/2009 5:54 AM (GMT -7)   

Hi PALady and Me,

I love that we can ramble and feel sorry for ourselves SAFELY....Rhonda I'm so sorry you feel so crappy, I'm sending you little hugz because I don't have the strength to send big ones, you too PALady.

I love to read your posts, even if I don't reply they touch me deeply and express most of the time what I am feeling!

Its been rough for sure, this morning I decided to get up at 3AM...(3AM whats wrong with this picture).  Even lying down is too uncomfortable, I brought my pillows out to the sofa and put them behind my back with an herbal heating pad on the neck and low back, I was hoping by targeting both areas I'd get some relief! Lets just say NOT MUCH!  Decided to check for posts and seeing your replies helped more then the heat!  THANK YOU!

I hope you feel better and we all have a low PD!!!

XXOO
edt (Patti)

 


straydog
Forum Moderator


Date Joined Feb 2003
Total Posts : 13466
   Posted 3/1/2009 6:02 AM (GMT -7)   
Patti hope your are doing better. I woke up Tuusday thinking my head would explode from pain even my hair hurt, it was awful, had sweat rolling down into my eyes burning the heck out of them. I have a bug or virus of some sort.

Me try to eat a little something before taking your meds, even if its just a piece of toast. My usual is a fold over peanut butter sandwich so I can take my pills.

Susie


Pete trips again!
Veteran Member


Date Joined Nov 2006
Total Posts : 1899
   Posted 3/1/2009 12:46 PM (GMT -7)   
Patti, I'm so glad the shower & music helped! I love to listen to music too, somehow it takes me away. Sometimes to pats travels, places or old friends, other times just fantisizing about things I love to do.
Rhonda-me, Geeze, I'm so sorry you are in such a bad way, I think it will end soon and that little A-hole who has been hitting your brain like a #12 for days will turn into an #7 which will be a welcome friend again after the agony! Please know I'm thinking about you.
Susie, my good friend, I feel like we're old friends already! I hope those spasms left just as fast as they started! I sure know what you mean by "not wanting to know. I put off having the MRI's for longert than I thought. I was looking back through some old paperwork from 03,04 & 05 and all the shots I had back then in my lumbar & cervical spine, geeze, I had so many! I'm really glad I saved them all now, as they may help w/ the SS Dissability I hope! I'm going to look up my old family doc who first started sending me to ortho's back in the late 80's and see if I can get a copy of those records and the pain I was having back then. Sorry, somehow it always comes back to me. I said I wasn't going to post for a while because of that but when I read my friends are hurting, I have to write. Can't help it!
Your good friend,
Pete
56 years old, Surgury, Radical Prostatectomy 8/20/03, PSA 6.6, Gleason 3 + 3 = 6, Adenocarcinoma extent (moderate) Stage & Margin:T2NOMX, No Metastases, Organ Confined, bone scan: Neg. 3 1/2 years of depression after surgery prior to Hypogonadizm DX, Testosterone Theropy> new 2/6/09> 400mg injections every 2weeks . 56 and so glad to still be here to see my two sons grow up to be fine young men. They are both serving in the US Navy, one on the aircraft carrier USS John Stennis in port in Japan and the other on a Gator Freighter USS Bataan stationed in Norfolk, Va. I am one proud PaPa! 


edt
Veteran Member


Date Joined Dec 2008
Total Posts : 773
   Posted 3/2/2009 5:41 AM (GMT -7)   

Hi Everybody,

Dr.'s plane was late last night so no luck in getting shots!  I am heading there at 8AM, I can hardly wait to be tortured lol for some relief at last...I hope anyway!

Will let you know how it goes and thanks again!

XXOO
edt


Pete trips again!
Veteran Member


Date Joined Nov 2006
Total Posts : 1899
   Posted 3/2/2009 7:14 AM (GMT -7)   
I'm thinking about you Patti. Hope it doesn't hurt too much and helps your pain a lot!
Pete
56 years old, Surgury, Radical Prostatectomy 8/20/03, PSA 6.6, Gleason 3 + 3 = 6, Adenocarcinoma extent (moderate) Stage & Margin:T2NOMX, No Metastases, Organ Confined, bone scan: Neg. 3 1/2 years of depression after surgery prior to Hypogonadizm DX, Testosterone Theropy> new 2/6/09> 400mg injections every 2weeks . 56 and so glad to still be here to see my two sons grow up to be fine young men. They are both serving in the US Navy, one on the aircraft carrier USS John Stennis in port in Japan and the other on a Gator Freighter USS Bataan stationed in Norfolk, Va. I am one proud PaPa! 


Chartreux
Veteran Member


Date Joined Aug 2006
Total Posts : 9622
   Posted 3/2/2009 8:12 AM (GMT -7)   
Hope you've had the injections by now and are heading home for some relaxing sleep!
Take Care and post when you can....
{{{{{{{{{{{{{{{{{{{{HUGZ}}}}}}}}}}}}}}}}}}}}}}
**********************************************
* Asthma, Allergies, Osteoarthritis, Spinal Stenosis, Degenative Disc, Fibromyalgia, Gerd, Enlarged Pituitary Gland
******** "We could never learn to be brave and patient if there were only joy in the world" from Helen Keller *********

********>^..^<********>^..^<********>^..^<********


straydog
Forum Moderator


Date Joined Feb 2003
Total Posts : 13466
   Posted 3/2/2009 2:17 PM (GMT -7)   
Patti what kind of injection does your dr friend do???? Hope you feel better.Susie


Pamela Neckpain
Veteran Member


Date Joined May 2008
Total Posts : 1821
   Posted 3/2/2009 3:20 PM (GMT -7)   
Uniquelyme,
I hope you feel better real soon. Those words don't seem like much, but they
are truly deeply felt. I have had Bronchitis before. It's terrible. I have never
had the pleasure of having Bronchitis while at the same time carrying Chronic
Pain.
Maybe some saltine crackers with 7 up before the meds? or bread, like Susie
mentioned. Ginger Ale? Coca Cola? ....I will now close my mouth : - X

edt
Veteran Member


Date Joined Dec 2008
Total Posts : 773
   Posted 3/3/2009 4:59 AM (GMT -7)   

Hi Everybody,

I went for the shots yesterday (Neural Therapy) had relief for about an hour (as long as the procaine lasted).  Basically, everything is the same, I am wearing out...going to PMD today 4:30pm.  

I feel like I can't hold my head up, burning I'm estimating around the T1 area....will be in touch tonight.  It feels like something new is going on below the fusion.  Honestly, can't really tell just so much pain!

Thanks....I feel your hugz and appreciate your thoughts!!

XXOO
Patti

 


PAlady
Veteran Member


Date Joined Nov 2007
Total Posts : 6795
   Posted 3/3/2009 1:16 PM (GMT -7)   
Edt,
Wanted you to find some hugs when you returned -

((((((((((((PATTI))))))))))))

So sorry the injection hasn't helped much. And I know the thoughts about the fusion issue. I am so scared about that I don't even want to ask my doctor.

PaLady

edt
Veteran Member


Date Joined Dec 2008
Total Posts : 773
   Posted 3/3/2009 8:18 PM (GMT -7)   

Thanks PAlady,

I went to my PMD and he thinks I have a whiplash, while I was filling out my symptom update sheet I remembered that I tripped and fell in early Feb.  Its been since then I've been dealing with this, after the fall there was no obvious injury just a slow steady increase of symptoms thats why I couldn't figure what I did....duh!

Anyway, the area around C7,8-T1 is very painful on palpation with arm symptoms and I am getting numbness in different area's off and on (C567 fused).  He has ordered CS and TS xrays to make sure the Plate and screws are okay and no cracks etc.  plus to make sure I didn't cause any damage to the Tspine.  Whenever they order xrays and they come back negative they always then order an MRI, I am a little frustrated as to why he just didn't order the MRI to begin with.  Of course, I'm not thinking straight so I should just shut up!  

Seems like when I coast along and am dealing with the regular pain level I go and do something that makes it unbearable.......of course, when I get through that, I always feel grateful to be back to my normal severe pain vs. unbearable....sick huh?  Do you understand what I am saying?

XXOO
Patti


PAlady
Veteran Member


Date Joined Nov 2007
Total Posts : 6795
   Posted 3/3/2009 9:34 PM (GMT -7)   
LOL, Patti! I sure do! Maybe that's to remind us it could be worse? (not that we need reminders)

My neurosurgeon told me that xrays give him a better view of the actual fusion, position of the hardware, etc., but the MRI is what gives the detailed view of tissues, nerves, etc.

I don't know. Sometimes I feel like Linda Blair. turn

PaLady

edt
Veteran Member


Date Joined Dec 2008
Total Posts : 773
   Posted 3/4/2009 5:43 AM (GMT -7)   

Thanks PALady....lol....so true!  My intelligent mind knows about the xray/MRI difference, you haven't seen it anywhere have you?  I told my Dr. I feel like I'm turning into a wack wack....oh wait I earned that title years ago....

I decided today I am going to wear the cervical collar and see if it helps!  Going for the xrays later today...yesterday PMD gave me his email address so I could contact him directly should I have an emergency because when you call his office and leave a message it can be 24-48 hours before they return the call.  Last Friday when I called the Angels were with me because his MA answered the phone, so I was able to get help instantly and they called me on Monday with more instructions and an appointment time! Thats what I call LUCK! hmmm maybe I should buy a lottery ticket lol 

Hope everybody has a low PD!!!

XXOO

Patti 

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