Still not well from hysterectomy, and more...

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shannon1
Regular Member


Date Joined Feb 2005
Total Posts : 369
   Posted 3/1/2009 2:00 PM (GMT -7)   
Hi everyone, been away for a little bit,things here have really been bad. I am now 5 1/2 wks post total abdominal hysterectomy and appendectomy.  I am still recovering from that, and have been hit now with surgically induced medapause. I am a total MESS, the hot flashes are horrible, mood swings, uncontrollable crying, ect.
 
I am suppose to start back taking care of the kids tomarrow and i just don't know how im going to do it ,  I am soooo physcially tired.
 
I try so hard not to complain to my spouse, but after a talk we had today, i know he is just sick of all my CHRONIC everything (pain, ulcerative colitis, immune defiency). Of course he would never come out and say that, but did tell me that "someone" told him that "I don't know how u do it", meaning deal with me....i don't know if he feels this way to, or if this is just his way of patting his own back??? Im so emotional right now as my HRT is not working, and i just feel like he doesn't care about me anymore due to all these issues...He swares he's in it for the long run. I don't know if this feeling is just me trying to cope with everything or what.
 
I do see the Pm doc tuesday for the nerve block for the nerve that is hurting me in the groin area, so i hope that takes one problem off my plate. Anyways, i just really needed a place to vent and cry, yo all have been very good to me and i feel safe with you all.  Thanks for reading...
Jan. 2009, complete hysterectomy, diagnosed stage 4 endometriosis & adenomyosis (age 36)
2003, dx moderate UC
2000, dx selective IGA deficiency w/ anti IGA antibodies
2000, dx Antipholipid Antibody Syndrome
1999-2009, chronic hemmoragic ovarian cysts, w/ partial ovary removal
1977, complete reconstruction of foot after lawnmower accident (chronic pain)
 
Meds
6mp 75mg, prednisone 40mg (just starting meds again)
percocet 5mg 3x day
potassium 3x day
 


Becoming undone
Veteran Member


Date Joined Jul 2007
Total Posts : 927
   Posted 3/1/2009 2:11 PM (GMT -7)   
oh, please come here and vent all you want. And here, ((((((((((((((((((((HUGS)))))))))))))))))))
I only wish I could do more...I know I blame prednisone a lot..but...it DOES have a lot of little nasty side effects. (Heck I don't know how my DH stands me...god bless him...)
again, ((((((((((((((((((((HUGS)))))))))))))))))))

You've just been through surgery, a big one, it takes time to heal. Also surgeons tend to lowball the recovery issues. Think it might make the feel better and allow people to go ahead and take the risk of surgery (cause if they told you how long it would REALLY take to recover, most would probably decline)

I know we all wish our bodies acted better and healed faster (my dad feels the same, he had heart surgery, my sister also had a hysterectomy). Heck, I want to scream and yell to the powers that be, "WHY HAVE YOU DONE THIS TO ME!!! I CANT TAKE ANOTHER MINUTE". Somehow I'm still here. I've found so much help from all of you....
and lastly ((((((((((((((((((((HUGS))))))))))))))))))) cuz you need it...
"The earth laughs in flowers"


EMTJenn
Regular Member


Date Joined Feb 2009
Total Posts : 28
   Posted 3/1/2009 3:06 PM (GMT -7)   
Aftre my hysterectomy I was the same way, emotionally as he** and hard to deal with, crying over anything and my HRT did not work either. I ended up stopping HRT therapy. It just wasn't for me. The symptoms finally eased off after a couple of years. I know when you are in chronic pain you feel like you are a burden to everyone but remember your husband loves you and men are programmed to want to fix things, when he sees you hurt it probably pains him that he can't fix that for you...I have been there and done this if you ever need to talk I am always here OK. Take it easy on yourself, a hysterectomy is hard to bounce back from!

((((((((((((GENTLE HUGS)))))))))))))))))

EMTJenn
Medical Problems:  Chondromalacia Patellafoemoral Syndrome-Bilat Knees, Causes me alot of pain
                                  Major Depressive Disorder/Anxiety/PTSD-My main problem I can't get a handle on
                                  Fibro-Not treated with meds, streching, relaxtion techniques help me
                                  Endometroisis/Adhesions Stage 4-Better after my total hysterectomy
                                  ADD since childhood, treated with meds when in school, just started back on meds
                                 
Meds: Pristiq(depression) Ambien (sleep) Dexedrine (ADD) Clonozepam PRN (anxiety)
            OTC-Womens One A Day Vitamin  Glucosamine/Chondroitin and tons of Emu Cream for knees
                                  
I lost my mother to suicide in 2003, my father to cancer in 2007 and my grandmother this month...I have not been right since my mothers suicide, mentally speaking.  I am trained to save lives, and I could not save her......
 
 


PAlady
Veteran Member


Date Joined Nov 2007
Total Posts : 6795
   Posted 3/1/2009 3:39 PM (GMT -7)   
Shannon,
You are going through so much at once - I don't know how YOU do it! Just the surgical menopause alone would be enough for most women (and men - Pete knows about this!). Then pile on everything else.

You and your family need some support. However you can get it - and including social agencies that might be able to help. Or if you're a member of a Church or other organization, someone may be willing to volunteer. Even the high schools and colleges requires students to volunteer in the community now. Not that you'd want just anyone, but maybe a nursing student, or a social work major, etc. You can't do this alone.

There's a nurse in my area who went through ovarian cancer and surgical menopause, and she wrote a book called Sudden Menopause. It's often hard to get because of demand, at least locally. Her name is Debbie D'Angelo. I've never read the book, but I understand she gives a lot of natural alternatives and suggestions to HRT. Just a thought.

I so wish I could help more, but I am sending tons of hugs your way.

(((((((Shannon))))))))

PaLady

straydog
Forum Moderator


Date Joined Feb 2003
Total Posts : 13455
   Posted 3/1/2009 10:56 PM (GMT -7)   
Hi Shannon,
 
Oh, I do hate to hear what all is going on with you. Yes, you are so right about the menopause thing, its horrible. In addition to what you wrote, please keep in mind it will cause fatigue too. Can you call your drs office anad speak with a nurse and explain the dose you are on is not helping. I don't think I would wait for my next appt unless its in a couple of days. I went thru this for a year after my hysterectomy. My dr left my ovaries but they were not functioing before the surgery, the idiot should have went ahead and took them too. Now, I have cyst on them as usual. My surgeon refused to put me on HRT. But after a year of being nuts I finally broke down and talked to my PCP about it. He started me on monthly shots which is pretty much unheard of these days. Oh, the difference those shots made were unbelievable. My old PCP said many times the ovaries go into shock after surgery and just shut down and stop working.
 
 
 
I will tell you the Predisone can make you an emotional wreck too. It can cause mood swings, crying jags, alot of what you described. Do try and call your dr ok? Hugs, Susie
 


Chartreux
Veteran Member


Date Joined Aug 2006
Total Posts : 9622
   Posted 3/1/2009 11:55 PM (GMT -7)   
Oh my Shannon, I agree with Susie, that you should call the doctor and explain that the HRT medicine is not working,
and get into this doctor before the injections are done and also, tell them about the up and coming injections, I had
a steroid injection in my knee in November 2008 and the effects are just starting to wear off for which I'm glad cause
I went into full roid rage with those last injections and at Christmas time, I almost went off the deep end at one point
and it can get there fast, so now might not be a good time for you to get those injections until you can get your
hormone levels at a good point....
Please keep us posted and cry on my shoulder anytime you need to, it'll be here for you...
lots and lots of {{{{{{{{{{{{{{{{{{{{{{{{{{{{{{{{{{{HUGZ))))))))))))))))))))))))))))))))))))
**********************************************
* Asthma, Allergies, Osteoarthritis, Spinal Stenosis, Degenative Disc, Fibromyalgia, Gerd, Enlarged Pituitary Gland
******** "We could never learn to be brave and patient if there were only joy in the world" from Helen Keller *********

********>^..^<********>^..^<********>^..^<********


uniquelyme
Veteran Member


Date Joined Nov 2008
Total Posts : 1037
   Posted 3/2/2009 1:33 AM (GMT -7)   
Shannon,
I am glad to hear that your Dr. finally did surgery about your appendix. I was worried. Now, about the crap you're going through...No wonder girl! You have been 2, count em, 2 major surgeries in a very short time...You should be in a heap and crying...Heck, I'd be on a ledge!!! Seriously, let yourself cry, and vent, and yell, and whatever else you need to do. It's normal and expected.

Keep us posted.... and I really hope you start to feel better soon.
Me.
 
We are all in the same boat...unfortunatley it seems like it's sinking...
 
Rhonda
Post Lamenectomy Syndrome
Hemi Lamenectomy
Spinal Fusion
 
120 mg. Methadone daily
60 mg. Oxycodone daily
Lyrica as needed 

 


shannon1
Regular Member


Date Joined Feb 2005
Total Posts : 369
   Posted 3/2/2009 6:35 PM (GMT -7)   
Thanks so much everyone! I saw the doc today and he switched my HRT and added effxor (sp) a antidepressant that is also suppose to help with hot flashes. He also is going to see me once a week now until he know im back on track. I totally broke down in his office, which is not really like me.....After both my csections i was spending 10 hour days in the Neonatal Intensive Care unit with my babys, but i can't even watch my toddler more than two hrs right now before im just totally physically/mentally exhausted! Doc is worried about my weight tho, i have lost almost 10lbs since surgery (5 1/2 wks ago), and that is not good with the starting weight of 100lbs.

I am going for the nerve block tomarrow since the first one is starting to wear off, and i hope that in a few wks i will be ready to party with you all and maybe even burn a few tampons (sorry for the bad humor gentlemen)!!!!

Anyways, as always, thank you so much for your support , you guys are the greatest group of people and im very lucky to have found you all.
Jan. 2009, complete hysterectomy, diagnosed stage 4 endometriosis & adenomyosis (age 36)
2003, dx moderate UC
2000, dx selective IGA deficiency w/ anti IGA antibodies
2000, dx Antipholipid Antibody Syndrome
1999-2009, chronic hemmoragic ovarian cysts, w/ partial ovary removal
1977, complete reconstruction of foot after lawnmower accident (chronic pain)
 
Meds
6mp 75mg, prednisone 40mg (just starting meds again)
percocet 5mg 3x day
potassium 3x day
 


PAlady
Veteran Member


Date Joined Nov 2007
Total Posts : 6795
   Posted 3/2/2009 7:19 PM (GMT -7)   
(((((((((((Shannon))))))))))))

Glad your doctor is going to see you so regularly. I'm on effexor, too, thankfully, but mostly for mood.

I hope you can get some help with the kids!

PaLady

skeye
Veteran Member


Date Joined Mar 2008
Total Posts : 2976
   Posted 3/2/2009 9:23 PM (GMT -7)   
((((((((((((((((Shannon))))))))))))))))

Skeye

mom9mom
Regular Member


Date Joined Sep 2008
Total Posts : 489
   Posted 3/3/2009 12:54 AM (GMT -7)   
Shannon just sending you a nice soft hug and a prayer that you will feel better soon.
Lost half of my small intestineJan.2008.Ilieostomy for 5 months then reverst in June 2008,Nerve damage to right leg,part of my right hip bone removed Jan. 2008,Cronic pain,hernia,infection in my back called discites,and depression.Gallbladder removed Nov,2008.Surgery to fuse L3 and L4 vertabra Dec. 31,2008.Mother to 9 kids 7 boys 2 girls and 1 stepson.4 grandsons,9 grandaughters.4 of my grandkids I inherited from my twin sister who passed away 6 1/2 years ago from a blood clot after surgery.God has given me my life back after I almost lost it.Even though its a painful and sometimes hard road to walk I take it one step at a time and give thanks to god for every step I take.


momofmany
Regular Member


Date Joined Apr 2008
Total Posts : 58
   Posted 3/3/2009 7:51 AM (GMT -7)   
After my hysterectomy, they put me on HRT and I was a walking time bomb! My husband finally told me to quit taking those or he was sending me to my moms!!(haha) Come to find out, when they took my ovaries out, I didn't need hormones because my ovaries were "dead" they hadn't released hormones or worked correctly for a while, so my body had already adjusted to no hormones, then WHAMO, I was loading up on hormones and sending myself into a hormonal tornado. After I stopped taking them, I settled down quite a bit and to this day don't take any.....hot flashes were the only thing I really dealt with, and those are eventually slowing down.


straydog
Forum Moderator


Date Joined Feb 2003
Total Posts : 13455
   Posted 3/3/2009 4:48 PM (GMT -7)   
Shannon, so glad your dr changed your HRT, this should help hopefully. I was on Effexor for years and went all the way up to 300mg which was the max. I did very well on it for quite a long time. For me it was a great medication while it worked. I was sad that I had to go onto something different when it quit working. Between your surgery and the homone imbalance yes, no wonder your energy level is wiped out, hoping the Effexor will kick in soon.

Be prepared for the steroids from the injection to kick in and make the hot flashes worse, its a real possibility you know. I don't know how you react to steroids but they caused mood swings with me, hot flashes, made me hateful, hungry all the time (which you need some weight )stayed up for 48 hours straight from one injection. So be prepared just in case.Hugs, Susie


shannon1
Regular Member


Date Joined Feb 2005
Total Posts : 369
   Posted 3/4/2009 10:22 AM (GMT -7)   
thanks everyone for all the support!!!!!

today has been a good day! NO hotflashes!!!! and my mood has already lifted. I often wondered how much hormones my one working ovary was even making, so it is always a option to stop hrt if we don't find they are working. But, right now, today, i am good...never thought i would say that!

i had the nerve block yesterday and the nerve that runs through my groin area is now numb! YEA
so, really tho only thing im fighting is fatigue and lack of appetite.

i will keep praying that everything keeps working! lol

hope u all are having a LPD!
Jan. 2009, complete hysterectomy, diagnosed stage 4 endometriosis & adenomyosis (age 36)
2003, dx moderate UC
2000, dx selective IGA deficiency w/ anti IGA antibodies
2000, dx Antipholipid Antibody Syndrome
1999-2009, chronic hemmoragic ovarian cysts, w/ partial ovary removal
1977, complete reconstruction of foot after lawnmower accident (chronic pain)
 
Meds
6mp 75mg, prednisone 40mg (just starting meds again)
percocet 5mg 3x day
potassium 3x day
 


straydog
Forum Moderator


Date Joined Feb 2003
Total Posts : 13455
   Posted 3/4/2009 10:42 AM (GMT -7)   
Shannon, thats good news. Remember till the hormones level out you will be tired from the inbalance. Man, those things can sure mess a girl up,lol. Take care and continue to get well..Susie

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