hey, i'm back to ask a few questions.

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lolcashment
New Member


Date Joined Dec 2008
Total Posts : 11
   Posted 3/1/2009 7:52 PM (GMT -7)   
Hey, just fyi if anybody remembers me I dont post much but i do read almost every thread daily on here. It has been a lot of help. I guess since i'm a guy and dont like sharing my feelings or complaining about whats wrong with me so i dont post much. That sounded kinda harsh but i dont want to offend anybody. I guess i was raised up not to share feelings or complain about anything. I say this just so you guys know i'm here just dont post much.

I do have a question which i will get to in a sec but first i'll explain what is going on.

I managed to email a lot of doctors in my area and told them what is going on with me. I received a lot of generic replies telling me to make an appointment and we'll be glad to see you. I got one that looked like a personally written email from a relatively new doctor who's been practicing for about 5 yours. It basically said that it sounded like nobody has taken me seriously and that she will personally take the time and effort to help. I also researched her and found out she seems like a excellent and caring doctor. I am going to be seeing her in 10 days after waiting 2 months for an appointment.

I still have a lot of things that are wrong that i would like her to know about but i have a hard time telling doctors whats wrong with me (go back to the first paragraph to find out why. lol)

I plan on writing down all my symptoms and showing that to her but does anybody else have any other ideas I should do? If i keep a pain journal i'ld be writing in it 24/7 and with a 15m old son thats almost impossible. I have been looking for different things i can print off and fill out but have not found much of anything. Any help will be appreciated.

Cliff notes for the tl/dr people
Looking for different stuff I can bring to my doctor when i see her for my initial visit in 9 days.

Lindaloo
Veteran Member


Date Joined Sep 2006
Total Posts : 1713
   Posted 3/1/2009 8:44 PM (GMT -7)   
Dear lol, it's nice to meet you. I am very glad you posted. I am married to a latin man and also am a retired RN. I understand very well about how men do not like to complain as a rule and keep things inside. You are right, a lot of men are raised that way. I hope you will teach your own little boy not to be so introspective when it comes to how he feels.

Unfortunately, I have no advise to offer you, but I think your idea of writing questions down before you go and maybe a brief outline of your pain history will be beneficial when speaking to this new doctor. I am encouraged that she wrote to you and was so inviting and encouraging. I wish you well and hope very much that you will come back here and tell us how the appointment went. I, for one, am very interested. I just know things are going to go well.

In the meantime, could you post a little bit about your history and what is going on with you symptom-wise? I really am interested and I'm sure a lot of others would be as well.

Gentle Hugs

Lindaloo
Moderator Chronic Pain
 
Believe in yourself.  Be kind to fellow humans and animals.  Take time to smell the flowers and the coffee.
And by all means, when you are down, ask me for help.  I will be there.
 
Linda


lolcashment
New Member


Date Joined Dec 2008
Total Posts : 11
   Posted 3/1/2009 10:33 PM (GMT -7)   
http://www.healingwell.com/community/default.aspx?f=16&m=1317714&g=1324061#m1324061 great place to start for a brief history.

mrsm123
Veteran Member


Date Joined Dec 2007
Total Posts : 1228
   Posted 3/2/2009 12:17 AM (GMT -7)   
Lolcashment,
I just read your other posts. I developed Cauda Equina Syndrome after my first back surgery. I also suffer from the bladder and bowel incontinence issues that it appears that you are suffering from. I can explain the reason that you are having issues with your bladder, with the herniations at L2-3. It is simply because damage to the spinal nerves at any level in the lumbar area, also effect the nerves below that area. So, simply put, the stenosis at L2-3, is damaging the spinal nerves from that part of your lumbar spine down. You need to see a neurosurgeon. Most GP's won't even know what CES is, let alone how to treat it.
The longer the compression of the spinal nerves is left to continue to cause damage, the less likely that the nerves will make a full recovery. Is there a teaching hospital near you? The ER doctors will focus on the immediate problem, get you an MRI even, but unless they are specializing in neurosurgery, they probably know as much about CES as most lay people do.
You really need to get in to see a neurosurgeon today...can you call different offices and see if they can see you? Some might see you, even without insurance since this is surgical emergency.....they may even be able to help you get some insurance to cover this, since you don't have any at this time.
This isn't something that you can wait to get fixed......believe me, I know. It took me 17 months after the onset to find out what was causing my problems and what to do about it.
Good luck, and make sure that you explain the problems that you are having, especially the incontinence issues due to the stenosis.
Sandi
PLIF/TLIF Fusion w/Instrumentation L4-5 Spondololysthesis L4-5.Laminectomies L4-5, foraminal stenosis L3-4, L4-5, L5-S1, herniations L3-4, L4-5, L5-S1, central canal stenosis L3-4, L4-5 and L5-S1
POST OP CES 3/30-06
Neurogenic Bladder and Bowel, bilateral numbness legs and feet
Revision for failed Back surgery, pseudoarthrosis L4-5, hemilaminectomies L3-4, L4-5, L5-S1, bmp added to revision fusion, replaced two bent screws that were reversing out of vertebrae - August 2, 2007
On going back pain and neuropathic pain, failed back surgery, consult for scs, decided not to do that at this point.
Adhesive Arachnoiditis also......just what I didn't need..9/08- adding bilateral ulnar neuropathy with severe compression to the mix. They want me to see a surgeon for ulnar nerve surgery, but I'm not biting.
I've seen enough surgeons over the last few years.


uniquelyme
Veteran Member


Date Joined Nov 2008
Total Posts : 1037
   Posted 3/2/2009 1:51 AM (GMT -7)   
 
 
Lolcashment,
Here is an example of a pain diary that I found online...The Year says 2006, but you can still use the idea.  It's a calendar....
 
Me.
 

 
We are all in the same boat...unfortunatley it seems like it's sinking...
 
Rhonda
Post Lamenectomy Syndrome
Hemi Lamenectomy
Spinal Fusion
 
120 mg. Methadone daily
60 mg. Oxycodone daily
Lyrica as needed 

 


edt
Veteran Member


Date Joined Dec 2008
Total Posts : 773
   Posted 3/2/2009 5:49 AM (GMT -7)   

lolcashment,

So glad you decided to join us!!

Most Dr.'s that I have been to have an extensive questionnaire for new patients.  My PMD has a Pain/Medication form that I fill out each time I go for a visit!  Its a pain but it does allow you to update them on what has happened since your last visit!

After working in the Medical Field for over 35 years, take your list with you..even if you don't give it to the Dr. it will serve as an outline so you don't miss anything you need to talk about!

As everyone has said, we do care so don't hold back on sharing with us!!

edt 


lolcashment
New Member


Date Joined Dec 2008
Total Posts : 11
   Posted 3/2/2009 9:43 AM (GMT -7)   
I do have tenncare now and am going to the doctor in like 8 days.

uniquelyme
Veteran Member


Date Joined Nov 2008
Total Posts : 1037
   Posted 3/2/2009 12:06 PM (GMT -7)   
 
 
Hey Lolcashment,
I just got my TennCare too!!! I am so happy!!! Let's do the Happy Dance together
 
yeah   yeah yeah turn tongue turn smilewinkgrin yeah yeah yeah
 
Me.

 
We are all in the same boat...unfortunatley it seems like it's sinking...
 
Rhonda
Post Lamenectomy Syndrome
Hemi Lamenectomy
Spinal Fusion
 
120 mg. Methadone daily
60 mg. Oxycodone daily
Lyrica as needed 

 


Scarred_for_life
Veteran Member


Date Joined Jul 2008
Total Posts : 1559
   Posted 3/2/2009 2:57 PM (GMT -7)   
I don't know if I have welcomed you lol and if I haven't yet I say Welcome to HW now. I'm not very talkative lately due to the fact that my pain has taken me on so many roller coaster rides that I'm just wiped out physically and emotionally. But I did not want to go without saying a big welcome and I am so sorry that you are in so much pain. I know how you men are as far as not telling your true feelings or showing that you are in pain as I am married to the most bullheaded, pain in the butt when it comes to being sick. Hubby is hard to take care of when he is sick or in pain and I know that most men have a hard time revealing their feelings as they were taught to keep it in at all times.

Anyway, Welcome!

Scarred
What doesn't kill us only makes us fight back harder! :P

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