I could use some new friends.

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laassh
New Member


Date Joined Nov 2008
Total Posts : 14
   Posted 3/3/2009 3:03 PM (GMT -7)   
Hello,

I am new here, I have lurked and even been a member for a while, but I don't know that I have ever posted. I am 19 years old and a college student taking 18 credit hours a semester and am currently completing my junior year. I was working, but it became too much. Since then my employer has eliminated my position and I had problems getting reemployed due to social security issues (my number was stolen). I am looking to be reemployed this May. I have been dealing with chronic pain for two and a half years. I have been to two primary care providers, a rheumatologist, like 6 podiatrists, a neurologist, an orthopedic doctor, and physical therapists. I've had numerous blood tests and an MRI to try and determine what is causing my horrible joint pain. I also have fatigue and neurological symptoms. No one can give me a cause. My pain hit an all time high last March. It was so bad that I had to be rushed to the emergency room because I was fainting and throwing up from the pain. Now my pain is approaching that level again. I am about 750 miles away from home at school. I have lost most of my friends down here do to my illness and I have seen how kind and supportive you on the forum can be. Sorry to bother you!

PAlady
Veteran Member


Date Joined Nov 2007
Total Posts : 6795
   Posted 3/3/2009 3:28 PM (GMT -7)   
Hi, Laassh,
Welcome to the forum - and you are not bothering us! I'm so glad you decided to post, but so sad to learn of your problems at such a young (not that any age is great!). If you've been reading you know we have members of all ages, although I'm one of the older crew.

18 credit hours - that's usually over a full load (in some cases way over). I used to teach college so I've got some sense of this. Have you been thinking about dropping a course to at least ease your stress a little, because as you say your pain levels are getting back to their upper levels, and stress never helps.

What support do you have at school - medical as well as friends, to at least give you a hand? Are your parents helpful? I know this may sound strange, but maybe your SSN being stolen was, in your case, a blessing in disguise. I don't know how you were working on top of 18 credits - that's a challenge even without health issues. (I'm not minimizing SSN stealing - that part really has to add stress).

Is your pain in all your joints? Have Chronic Fatigue Syndrome, Fibromyalgia, RA all been ruled out? It sounds like it's something that's systemic. I know getting an answer can often be a challenge. I wonder if youf college is affiliated with a teaching hospital where people are more curious about a variety of symptoms. Just a thought. What do you do for your pain now?

I feel like i'm playing 20 questions and I know that can be annoying, so feel free not to answer them!

But again, welcome.

PaLady

laassh
New Member


Date Joined Nov 2008
Total Posts : 14
   Posted 3/3/2009 3:48 PM (GMT -7)   
At my college 18 credit hours is a full load, but not considered an overload. This semester I am having problems keeping up with the course load because of pain. At this point I would love to drop courses, but I feel the pressure to keep my schedule this way to maintain my scholarship. My scholarship pays the difference between in state and out of state tution and makes it possible for me to attend without loans and additional financial stresses. I am luck to have my parents who are helping me with school and bills since I am out of work. I return home for the holidays and usually spend the whole time going to the doctors'. My attempts to get regular doctors' at school have been difficult and thwarted by the fact that most doctors will not accept my out-of-state insurance. The only person I am close to in my college community is my good friend/boyfriend. I have pain in most of my joints and all of my major joints. They have eliminated RA, Lupus, Lyme disease, and gluten-intolerance along with other things. I would have to travel three or more hours to reach a teaching hospital. Thank you for replying and I appreciate the support.

Laassh

straydog
Forum Moderator


Date Joined Feb 2003
Total Posts : 13481
   Posted 3/3/2009 3:50 PM (GMT -7)   
Hello Laash and welcome to Healing Well. Yes, you have landed at the right spot for support, tips, good info and good conversation. I do hate to see someone so young be plagued with chronic pain. Its just not fair, you should be able to be up and running with your friends and having a good time like most your age. Then to be so far away from home at the same time, just plain stinks. I am quite sure at times you get scared, I know I do and I am almost 57 years old. But, I will tell you this, people that suffer with CP are very, very strong people. We have to be to put up with what we do.
 
I have to wonder how big of a role stress is playing in with alot of whats going on with you. By that I mean, keeping your pain levels kicked up. Stress will aggravate pain, not cause it, but aggravate it. You have a full plate with school, you are alone and away from family at a critical time when you need them around for support, your SS# being stolen on top of it all.
 
You did not say exactly where your pain is at but did mention a podiatrist so I know there is some foot involvment, anything else? DId you mention an MRI? What part of the body was that done on?
 
Since you have pretty much had no luck with the drs so far, have you considered having your primary care physician ref you to a pain mgt specialist? You would likely need a referral from your PCP to get in ro see one. Since you didn't mention where your pain was at, this is what I thinking to consider.
 
We do have young people on the forum too, so they will along at some point to welcome you aboard. None of us are drs here, we can only make some suggestions. Take care and will look for more posts from you....Susie
 
 


laassh
New Member


Date Joined Nov 2008
Total Posts : 14
   Posted 3/3/2009 4:09 PM (GMT -7)   
It is very frustrating and I feel like the pain is part of the reason many of my friends and I have grown apart. It is difficult because I spend a lot of time on school and trying to take care of myself and not really living the college lifestyle as far as being able to keep up with my friends wanting to go out and stay out. I was going to a podiatrist because of arch pain and found out that I wasn't walking correctly. It is one of the only things that I have received treatment for and is had a positive effect on my arch pain, but no effect on my other pain. I have pain mostly in my major joints (my shoulders and hips) but also experience hand, knee, and back pain. I had an MRI, head only, not my spinal column. All of my doctors are very reluctant to put me on medication for pain, mostly because they cannot find the cause of the pain and because of my age. My rheumatologist did give me a prescription for Tramadol 50mg twice a day. It has little to no effect on any major pain and gives me fuzzy brain. I have also been put on high doses of ibuprofen and on celebrex and then discontinued those because of lack of effectiveness or side effects. I appreciate your posting and your questions. Thank you

Laassh

renie_
New Member


Date Joined Mar 2009
Total Posts : 5
   Posted 3/3/2009 7:28 PM (GMT -7)   
I've lost most of my friends due to my pain and mobility limitations.  Most folks just don't get it and others think I'm being overdramatic.  But what you will learn is that those friends who have stayed are your true friends.  I must commend you on being a full time student.  I was 30 before I went to college and boy was it hard working full time with 2 kids and being a full time student; but well worth it in the end.  Good luck in all you do.  I am certain you will find your path and have a very fufilled life. 

renie
 
rheumatoid arthritis, osteo arthritis, fibromyalgia, degenerative disc disease, fatigue syndrome, and a great sense of humor.


laassh
New Member


Date Joined Nov 2008
Total Posts : 14
   Posted 3/3/2009 7:35 PM (GMT -7)   
Hi Renie,
It was great to hear from you. I have had so many friends be so non-understanding. I am also having a really hard time meeting new friends because I am in a different place in my life than a lot of the other students that are my age. I tend to get along better with the returning students with families. Of course, they have so much on their plates and don't exactly have lots of time to socialize with us college "kids." Thanks for writing.

Laassh

PAlady
Veteran Member


Date Joined Nov 2007
Total Posts : 6795
   Posted 3/3/2009 7:36 PM (GMT -7)   
Hi, Renie,
I just wanted to welcome you to the forum. You may want to start a new thread and introduce yourself, if you haven't already done so. I might have missed it!

PaLady

edt
Veteran Member


Date Joined Dec 2008
Total Posts : 773
   Posted 3/3/2009 7:39 PM (GMT -7)   
Hi Laassh,
Welcome, I am so sorry to hear your story, like the others I hope having us to chat with will help you deal with your situation.
Take Care,
Patti

skeye
Veteran Member


Date Joined Mar 2008
Total Posts : 2976
   Posted 3/3/2009 8:43 PM (GMT -7)   
Hi laaash,

Welcome (or welcome back) to HW!

Your story sounds so similar to mine! I too am a junior in college, although I'm a couple of years older than you (you started young!). Like you, the onset of my CP started a little over two years ago, with a traumatic injury to my eye. The injury healed, but I'm left with severe pain & other functional issues of which we are unsure of a cause. I've also been through the ringer as far as different doctors, test, and treatments are concerned. We've just recently "reached the end of the rope;" no one knows what to do or what to think anymore. Right now we're hoping to get some new ideas as to both a diagnosis & treatment/management from a national conference my doc is presenting my case at, but other than that my docs are stumped. It's hard not to be incredibly frustrated, and not to lose hope.

I also struggle to maintain a full coarse-load. Last semester I was forced to drop some classes, as well as one of my majors, and I was nearly forced to drop out completely this semester (I'm still not sure returning to school was the best idea). As you know, it is incredibly hard to maintain the level of work that you were doing before the pain. It takes so much effort to get through each day, let alone focus on your studies. It's especially hard for me since my vision & overall functioning of my eye is affected as well. Plus medication side effects are no walk in the park.

I understand what you are saying about your friends not understanding & losing friends as well. No one understands at all, so I try not to even bring it up, unless someone mentions it. It actually makes me feel worse talking about my pain when no one gets it. I also feel like I've lost or strained friendships because of my CP, although your true friends will stick around (sounds like your boy friend is a great guy for staying with you). I too spend a lot of time trying to take care of myself & very little, if any time living a normal college life.

Have you considered seeing a pain management physician? Maybe one of your docs can give you a referral. A PM might be able to help you out with some pain-relieving injections or other treatments & if they also manage pain with medication, might be more willing to prescribe to you. It's tough getting someone to take you seriously when you are young. I've had my fair share of docs who didn't believe me, but fortunately I now have a few excellent ones who are really fighting for me.

Skeye

Lindaloo
Veteran Member


Date Joined Sep 2006
Total Posts : 1713
   Posted 3/3/2009 9:09 PM (GMT -7)   
Hi laassh,

Welcome to the Chronic Pain forum of Healing Well. We are glad you posted here.

As you have noticed, we are a tight knit group with open arms for always one more, so please consider yourself a part of us now. I am feeling very sad however, at the fact that you have such pain at such a young age and that you feel alone and are far away from home. You are only a keystoke away from us here, so feel free to post at any time. We will listen and offer support and some advice sometimes, although we are not physicians.

Palady and Susie have already given some great advice. I only want to add that I hope you are able to see a pain management specialist, as I find that they can control the pain better.

Looking forward to your next post

Gentle hugs,

Lindaloo
Moderator Chronic Pain
 
Believe in yourself.  Be kind to fellow humans and animals.  Take time to smell the flowers and the coffee.
And by all means, when you are down, ask me for help.  I will be there.
 
Linda


Chartreux
Veteran Member


Date Joined Aug 2006
Total Posts : 9622
   Posted 3/3/2009 9:27 PM (GMT -7)   
Welcome Laassh,
Nice to meet you, so very sorry your going through quite a lot at a young age..
Since you've seen a Rheumatologist then I guess you've been tested for RA arthritis?
If not then maybe nows a good time to find out, maybe try looking in finding a
Doctor that treats Fibromyalgia, just don't give up yet. Have you tried using a moist/heating
pad? as it might help. Skeye mentioned a lot of wonderful suggestions for you to look into
I would also, recommend maybe a good Pain Management Physicologist (sorry my spelling is off)
Maybe ask your doctor about trying Cymbalta if your depressions gets bad.
Having friends and combating chronic pain can be hard and we tend to push our friends away,
but the good friends will be there for you, and like Skeye and the others said try to keep Hope.
Someday they'll find a cure for all of us.......
((((((((((((((((((((((((((HUGZ}}}}}}}}}}}}}}}}}}}}}}}}}}}}}}}
**********************************************
* Asthma, Allergies, Osteoarthritis, Spinal Stenosis, Degenative Disc, Fibromyalgia, Gerd, Enlarged Pituitary Gland
******** "We could never learn to be brave and patient if there were only joy in the world" from Helen Keller *********

********>^..^<********>^..^<********>^..^<********


skrape
Regular Member


Date Joined Feb 2009
Total Posts : 141
   Posted 3/3/2009 10:27 PM (GMT -7)   
I just saw this thread. I have had a rough time over the past, well, I have been having a rough time. I am also young, not quite as young as you (get used to hearing that!), but I am still pretty young as far as CP goes. Please hang in there. When you are younger, doctors have a harder time believing that there is something truly wrong with you. There has to be another doctor with some compassion that will help ease the pain. I wish you luck.


Skrape
Fentanyl Patch - 75mcgs x 72 hours
Baclofen - 5mg x 8 hours


fatherjohn
Veteran Member


Date Joined Feb 2009
Total Posts : 999
   Posted 3/3/2009 11:58 PM (GMT -7)   
Welcome Laassh. First let me state that CP is not a respector of age. Most all of us have gone through the issue with people in our lives not being able to handle the CP in our lives. I like to think that they move on not because of me but because they don't understand the effects of CP and the side effects of the meds. As you know it is very hard to help others understand the unwelcomed guest called Chronic Pain. That is why this site is so important to us. Here people understand without judging as we all have been there and are stuggling with living every day. Some days are better than others but most seem to find very little time that is pain free. Keep fighting the battle and we are here to help each other when the battle seems to big. Blessings!

White Beard
Forum Moderator


Date Joined Feb 2009
Total Posts : 3611
   Posted 3/4/2009 12:19 AM (GMT -7)   
Hi Laassh

Pain can be a very difficult thing for Doctors to track down, it is so subjective, but don't give up hope, and I agree with the others, maybe it would be better if you could see a specialist at a pain clinic, I know the one I go to, just doesn't treat pain, he also tries to track down the cause, through ordering tests, and making referrals to other specialist. Not all of them do that of course, but even if they didn't at least they could treat your pain. I do wish you well! good Luck to you

White Beard
I'm Retired USAF, went back to school and became an RN, and now am on full disability!
Degenerative Disc (affecting mostly the thorasic disc but all levels involved), C6/7 laminectomy/diskectomy& fusion, Osteoarthritis, Ulcerative colitis, Chronic Pain, Fibromyalgia, Complex Sleep Apnea, and host of other things to spice up my life!(NOT!)
 
Medications: Oxycontin, Percocet, Baclofen, Sulfasalazine, Metoprolol,  Folic Acid, Supplemental O2 at 3lpm with VPAP Adapt SV


EMTJenn
Regular Member


Date Joined Feb 2009
Total Posts : 28
   Posted 3/4/2009 12:24 AM (GMT -7)   
Hello and welcome to the board!! There are sweet caring people here!!

(((((((((Gentle Hugs)))))))))))

EMTJenn
Medical Problems:  Chondromalacia Patellafoemoral Syndrome-Bilat Knees, Causes me alot of pain
                                  Major Depressive Disorder/Anxiety/PTSD-My main problem I can't get a handle on
                                  Fibro-Not treated with meds, streching, relaxtion techniques help me
                                  Endometroisis/Adhesions Stage 4-Better after my total hysterectomy
                                  ADD since childhood, treated with meds when in school, just started back on meds
                                 
Meds: Pristiq(depression) Ambien (sleep) Dexedrine (ADD) Clonozepam PRN (anxiety)
            OTC-Womens One A Day Vitamin  Glucosamine/Chondroitin and tons of Emu Cream for knees
                                  
I lost my mother to suicide in 2003, my father to cancer in 2007 and my grandmother this month...I have not been right since my mothers suicide, mentally speaking.  I am trained to save lives, and I could not save her......
 
 


uniquelyme
Veteran Member


Date Joined Nov 2008
Total Posts : 1037
   Posted 3/4/2009 9:47 AM (GMT -7)   
 
 
Welcome again Laash,
Oh to be so young and in so much pain is not good.  My pain issues started at age 19/20 so I understand some of the things you are going through.  Just about all of my friends either didn't care about my issues with pain, or they just didn't believe me and thought I was taking pain pills to get high.  I dumped many of them very fast.
 
It was very lonely for a long time..Even my mom, who was there when I had my first "episode" with my back going out, started to think I was "faking" the pain so I could get high.  Back then, in the early 90's, they didn't have Pain Management Dr.'s, just neurologists, orthopedics, and neurosurgeons...and they were about as compassionate as an IRS agent... confused
 
So, for years I went from one Dr. to another just to try and find out what was wrong.  Finally, I had a great Ortho who saw that I had bulging discs that were pressing on the nerves..This only after I had been walking bent over for 5 months. I couldn't stand up straight!  So, after I had a disc rupture I finally had surgery...my first.
 
Anyway, I do understand about losing friends and being frustrated with the system.  I give you props for continuing with your schooling.  It has to be hard to do.
 
Most of us have been going through this for quite a while and we can offer some great advice about a lot of things associated with Chronic Pain.  So, if you ever want to talk or just ask a question, we are here for you...
 
I hope you have a low pain day today.... yeah
 
Me.

 
We are all in the same boat...unfortunatley it seems like it's sinking...
 
Rhonda
Post Lamenectomy Syndrome
Hemi Lamenectomy
Spinal Fusion
 
120 mg. Methadone daily
60 mg. Oxycodone daily
Lyrica as needed 

 


skeye
Veteran Member


Date Joined Mar 2008
Total Posts : 2976
   Posted 3/4/2009 9:35 PM (GMT -7)   
Hi Laaash,

Is there anything the school could possible do to help you? My school tries to help me out where they can (although most of the time it's a nice thought, but they don't follow through, or their suggestions are not practical), although my situation is a little different. You might consider talking to someone at your student services or Dean of Students' office about disability. Also like others suggested, if you're not already seeing some type of a councilor, you might want to look into doing so. A lot of schools have counciling services on campus (and some, like mine, are free of charge). I used to use my school's counciling services in the beginning, although I did end up switching to a private psychologist, as I got sick of having the same exact conversation week after week (the psychologists there were recent grads & the one I was seeing, though incredibly nice, just wasn't helping me at all).

Skeye

MVASurvivor
New Member


Date Joined Feb 2009
Total Posts : 9
   Posted 3/5/2009 7:11 AM (GMT -7)   
We are all in this together here...no one is ever a bother !!! Just think of us as lots of shoulders to lean on and ears to listen !!! Stay positive and keep an opened mind when your doc or friends make suggestions !!! You never know what may help ease your pain...for me sometimes, it just takes a nice big bowl of Chocolate Chip cookie Dough Ice Cream with a little hot caramel sauce !!!

Take care and stay sweet !!!

Bev
Motor Vehicle Accident survivor, Multiple Head & Facial Injuries, 16 Reconstructive Surgeries to both face and front of skull. Chronic Pain, Fibromyalgia, Neuralgia, Rheumatoid Arthritis and mild Narcolepsy. Currently being treated for probable MS. - It a fight everyday just to laugh and smile - but I can always find something....we are all still here, right ?


griffin
Regular Member


Date Joined Jan 2009
Total Posts : 56
   Posted 3/5/2009 8:54 AM (GMT -7)   
dont feel sorry for what you call bothering us it is what we are here for to help each other through this mess we call life. i am sorry that you have lost some of your friends i guess you know who your real friends are now. i could always use another friend in my life so feel free to email me any time i dont get around to check them all the time but i do get in here almost everyday and i do more time in thew fibro space. anyways my name is molly and i am 29. o love animals do you? see we are making friends already
I smile through fibro


laassh
New Member


Date Joined Nov 2008
Total Posts : 14
   Posted 3/5/2009 10:34 AM (GMT -7)   
I want to thank all of you for the information and the friendship. I will certainly look into all of your suggestions. My school does provide a counciling service, but they will only see you up to three times. My professors have been unable to "work with me" because the cognitive effects of whatever is going on haven't been investigated and scientifically documented by a doctor and I don't have any diagnosis. MVASurvivor, I laughed when I read your post. My kid brother used to love cookie dough ice cream when we were little. Griffin, I do love animals. I grew up in the country and we always had dogs and rabbits and fish and spent lots of time around horses and cows with my grandparents. I miss my dogs so much. I wish I could have one here, but I can't so I just have to "borrow" other people's. Thank you all.

Laassh

griffin
Regular Member


Date Joined Jan 2009
Total Posts : 56
   Posted 3/5/2009 12:23 PM (GMT -7)   
laassh,
i have two pit bull mix dogs a boy that turned out to be a good disaibilty dog for me i fall and he lets me use him to pull myself up with his name is bull and his sister hier name is griffin that is why i use that as my username in here and she is deaf and i am teavhing her sign languge. she has the most beautiful sky blue eyes. then i have a black cat and a albino burmess python. my boyfriends dad lives with us and has two small dogs, those are the ones that drive me crazy cause they always bark. you said that you had dogs growing up and that you cant have them where you live now. what area do you live in? i am in northern utah in the salt lake area. keep posting girl it is always nice to hear from people on a one to one basis


molly
I smile through fibro


Scarred_for_life
Veteran Member


Date Joined Jul 2008
Total Posts : 1559
   Posted 3/5/2009 2:15 PM (GMT -7)   
Laassh; I'll let ya borrow one of my labradors!! In fact, LOL, you can have the yellow one He's being a pain in he you know what these days since he is getting older and getting crabbier by the day LOL.

Welcome both to you and Griffin to the HW Chronic Pain forum. I wish that you did not have to join us here but it is nice to have others around. Feel free to email me or ask whatever you want :-)

Hugs

Scarred
What doesn't kill us only makes us fight back harder! :P


laassh
New Member


Date Joined Nov 2008
Total Posts : 14
   Posted 3/5/2009 4:05 PM (GMT -7)   
OOOO . . . I would love to borrow a lab, even a cranky one. We had mostly bird dogs. Now my family has a lab and a yorkie-pom (but I swear he isn't yappy). If I could have dogs here (neither my apartment nor my boyfriend's allow them), I would have a hard time deciding between a big dog that could be trained to be a good helper or a smaller dog to share my chair with when I'm not feeling well. I am from Southwestern Colorado, but I am going to school in Southwestern New Mexico.

Pete trips again!
Veteran Member


Date Joined Nov 2006
Total Posts : 1899
   Posted 3/5/2009 6:01 PM (GMT -7)   
Hello Yunguns!
I just stopped in to say hi & welcome to our little cyber family! I don't know much about the type of ailments you folks have and I try to keep my nose out of something I know little about. Heck I don't know much about my own din-dang problems for that matter! I can't imagin what it must be like to be so young and feel so old, physically that is. It must be terrably hard for you!! I may be old but people are always telling me I act so imature, espessially my wife of 29 years! I get along w/ my two sons better than most Dads I know and I think it's because I can relate to them so well. I used to say, I'll never grow old and really tried to make it happen way back in my "Just say yes days." But like alot of things in life, I was a failure at leaving at a young age although I came real close several times! Now all the self abuse I put myself through at a young age (mostly in my 20's) has come back to torture me as a mature (physically) man. I tell people who know me not to feel sorry for me because I brought all this on myself, except the cancer part! Heck, that probably too, they just haven't proved it yet! In England they just came out w/ a study linking prostate cancer to the amount of sexual partners you had when you were young, if thats true, then that explains it, I was such a *****! But you sure don't deserve being in pain!!! I'm not sure where I'm going w/ this thread and my freinds here will tell you I do manage to get off track quite a bit but I guess I'm just trying to make you feel at home and hope you will stick around! We could use some young blood around here. No offense to you geezers now! You know me too well!!! Anyway, heres a couple of big warm S.Florida hugs coming at you from your new friend.
Pete
56 years old, Surgury, Radical Prostatectomy 8/20/03, PSA 6.6, Gleason 3 + 3 = 6, Adenocarcinoma extent (moderate) Stage & Margin:T2NOMX, No Metastases, Organ Confined, bone scan: Neg. 3 1/2 years of depression after surgery prior to Hypogonadizm DX, Testosterone Theropy> new 2/6/09> 400mg injections every 2weeks . 56 and so glad to still be here to see my two sons grow up to be fine young men. They are both serving in the US Navy, one on the aircraft carrier USS John Stennis in port in Japan and the other on a Gator Freighter USS Bataan stationed in Norfolk, Va. I am one proud PaPa! 

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