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Chartreux
Veteran Member


Date Joined Aug 2006
Total Posts : 9622
   Posted 3/5/2009 6:53 PM (GMT -7)   
two years ago my asthma/allergy doctor sends me to a neurologist because of headaches,
well, this neurologist gets a mri and contrast mri and both show enlarged pituitary gland,
for which I'm sent to endocrinologist, did lots of blood works and olny thing comes back
bad was my prolactin levels, well been okay until this afternoon, had a tunneling vision blackout
for which I've not had since being on the med treating the pituitary gland, so I called the
endocrinologist and he said I need to see a neurologist... I'm just so confused, I thought
all this vision blackouts was cause by the pituitary gland, I've had vision blackout going way back
and well I just don't know who or what to see???? Any Ideas folks??? so darned confused...
this medicine for the pituitary gland is controlling the prolactin levels and the doc at the time
said it didn't look like a brain tumor, but didn't seems sure..I think I'll call my PCP and see what he thinks
sure could use some support, I don't faint at all for these vision blackouts and they don't last long...
Any help would be appreciated,
your friend Chart
I do have a mild headache after this vision blackout and it tunnelled in on me (started from outside going black first)
shakehead sad shakehead sad shakehead sad cry cry cry
**********************************************
* Asthma, Allergies, Osteoarthritis, Spinal Stenosis, Degenative Disc, Fibromyalgia, Gerd, Enlarged Pituitary Gland
******** "We could never learn to be brave and patient if there were only joy in the world" from Helen Keller *********

********>^..^<********>^..^<********>^..^<********


White Beard
Forum Moderator


Date Joined Feb 2009
Total Posts : 3611
   Posted 3/5/2009 9:42 PM (GMT -7)   
Chartreux how often does these blackouts happen? You said they don't last long. but how long is that? seconds? minutes? Please be careful!, Do you drive? How long have you been having these blackouts anyway? You said you have been having them from way back, but does your Doctors know about you having them? You know Chartreux this is not the type of thing to be taken lightly, You really need to be talking with Doctor about this and soon. I ask these questions because if you are driving and that happened well????? You have my support and definitely my concern, but you need to have your Doctor be looking into it! I would think a neurologist would be an appropriate Doctor to see, but definitely your PCP, and he can refer you to the right person. So Please don't wait around on this,  talk with your Doctor soon.(real soon) and don't be driving! If nothing else, you can always go to the ER when it happens!
 
Good Luck to you
White Beard
I'm Retired USAF, went back to school and became an RN, and now am on full disability!
Degenerative Disc (affecting mostly the thorasic disc but all levels involved), C6/7 laminectomy/diskectomy& fusion, Osteoarthritis, Ulcerative colitis, Chronic Pain, Fibromyalgia, Complex Sleep Apnea, and host of other things to spice up my life!(NOT!)
 
Medications: Oxycontin, Percocet, Baclofen, Sulfasalazine, Metoprolol,  Folic Acid, Supplemental O2 at 3lpm with VPAP Adapt SV


Stella Marie
Veteran Member


Date Joined May 2005
Total Posts : 601
   Posted 3/5/2009 9:53 PM (GMT -7)   

You definitely need to call your doctor and tell him what is going on.  When I was between that ages of 20 - 35 I suffered from migraine headaches.  Many times, up to 48 hours prior to getting a headache I would experience visual disturbances.  I would either lose my vision for several hours or have flashing lights and patches of dark spots.  At first, I thought I was having a stoke.  I later learned from my doctor that migraine patients can have all kinds of visual disturbances and or auras.  Not all of these disturbances result in a headache afterward.  My daughter, now 25 experiences the exact same thing.  Both of ours tend to follow a period of stress.

Make sure you call your doctor. A neurologist would probably be the best choice since you a dealing with the brain.  Try and keep a log of when these spells happens and what happens afterward.  The more information you can give your doctor the better.

Good luck



Stella Marie

Rare neurodegenerative disease called “Multiple System Atrophy”.  Wheelchair, O2, & Bipap, intrathecal pump, Neurostimulator, dystonia, neuropathic pain and spasticity.

Post Edited (Stella Marie) : 3/5/2009 9:57:46 PM (GMT-7)


mrsm123
Veteran Member


Date Joined Dec 2007
Total Posts : 1228
   Posted 3/5/2009 10:28 PM (GMT -7)   
Yes Chartreux, you do need to call your doctor and get a referral to a neurosurgeon I would guess. When I had an MRI that showed some lesions, I was sent to a brain neurosurgeon, since they all tend to either be just neurologists or they tend to specialize into some types of surgery related to the brain or spine or alzheimers, or different diseases of the nervous system.
Best of luck to you and don't wait........get in to be seen as soon as possible.
Sandi
PLIF/TLIF Fusion w/Instrumentation L4-5 Spondololysthesis L4-5.Laminectomies L4-5, foraminal stenosis L3-4, L4-5, L5-S1, herniations L3-4, L4-5, L5-S1, central canal stenosis L3-4, L4-5 and L5-S1
POST OP CES 3/30-06
Neurogenic Bladder and Bowel, bilateral numbness legs and feet
Revision for failed Back surgery, pseudoarthrosis L4-5, hemilaminectomies L3-4, L4-5, L5-S1, bmp added to revision fusion, replaced two bent screws that were reversing out of vertebrae - August 2, 2007
On going back pain and neuropathic pain, failed back surgery, consult for scs, decided not to do that at this point.
Adhesive Arachnoiditis also......just what I didn't need..9/08- adding bilateral ulnar neuropathy with severe compression to the mix. They want me to see a surgeon for ulnar nerve surgery, but I'm not biting.
I've seen enough surgeons over the last few years.


PAlady
Veteran Member


Date Joined Nov 2007
Total Posts : 6795
   Posted 3/5/2009 11:29 PM (GMT -7)   
Char,
Well, you probably don't need to hear it one more time, so I'll just say "ditto" to what others have said. I would think either the neurologist or your PCP. The neurologist might be able to help with a diagnosis faster.

Hugs!!

PaLady

Pete trips again!
Veteran Member


Date Joined Nov 2006
Total Posts : 1899
   Posted 3/6/2009 5:19 AM (GMT -7)   
Chart,
I'm sorry to hear about your problem, it must be scarry! I had similar symptoms two years ago. Actually they started years ago but came to a head 2 years ago. Like Stella said, I was diognosed w/ optical migrains. I never had a migrain before and had no pain at all w/ these events. I would lose vision in half of my feild of veiw. It was so weird, looking straight ahead and see only the floor and nothing above it. It would only happen in one eye at a time until two years ago while driving on the highway. I lost sight in both eyes going about 80mph up I95. Not fun, it scarred the crap out of me! Luckily I didn't crash. I also had the streamers, flashes & auras at times. I also thought I was having a stroke or some very late LSD flashbacks!! The doc doubled my Effecsor wwhich I take for depression. He said sometimes these kind of drugs help. It must of since I haven't had another eppisode since then! Good luch Hun! I hope you find out what it is soon. Stuff like that is maddening!
HUGZZZZZ!
Pete
56 years old, Surgury, Radical Prostatectomy 8/20/03, PSA 6.6, Gleason 3 + 3 = 6, Adenocarcinoma extent (moderate) Stage & Margin:T2NOMX, No Metastases, Organ Confined, bone scan: Neg. 3 1/2 years of depression after surgery prior to Hypogonadizm DX, Testosterone Theropy> new 2/6/09> 400mg injections every 2weeks . 56 and so glad to still be here to see my two sons grow up to be fine young men. They are both serving in the US Navy, one on the aircraft carrier USS John Stennis in port in Japan and the other on a Gator Freighter USS Bataan stationed in Norfolk, Va. I am one proud PaPa! 


Chartreux
Veteran Member


Date Joined Aug 2006
Total Posts : 9622
   Posted 3/6/2009 7:55 AM (GMT -7)   
I see my Doctor today at 11am, and yep this sure is scary..
Thanks everyone, I post back later after I've seen my doctor..
Thank You WhiteBeard, Stella Marie, Sandi, Palady and Pete..Lots of HUGZ to y'all......
{{{{{{{{{{{{{{{{{{{{{{{{{{{{{{{{HUGZ}}}}}}}}}}}}}}}}}}}}}}}}}}}}}}}}}
**********************************************
* Asthma, Allergies, Osteoarthritis, Spinal Stenosis, Degenative Disc, Fibromyalgia, Gerd, Enlarged Pituitary Gland
******** "We could never learn to be brave and patient if there were only joy in the world" from Helen Keller *********

********>^..^<********>^..^<********>^..^<********


mom9mom
Regular Member


Date Joined Sep 2008
Total Posts : 489
   Posted 3/6/2009 10:14 AM (GMT -7)   
Good luck at the Dr. office.
Lost half of my small intestineJan.2008.Ilieostomy for 5 months then reverst in June 2008,Nerve damage to right leg,part of my right hip bone removed Jan. 2008,Cronic pain,hernia,infection in my back called discites,and depression.Gallbladder removed Nov,2008.Surgery to fuse L3 and L4 vertabra Dec. 31,2008.Mother to 9 kids 7 boys 2 girls and 1 stepson.4 grandsons,9 grandaughters.4 of my grandkids I inherited from my twin sister who passed away 6 1/2 years ago from a blood clot after surgery.God has given me my life back after I almost lost it.Even though its a painful and sometimes hard road to walk I take it one step at a time and give thanks to god for every step I take.


Chartreux
Veteran Member


Date Joined Aug 2006
Total Posts : 9622
   Posted 3/6/2009 3:04 PM (GMT -7)   
Went to my PCP Doctor, he did a lot of physical things and sent some blood work away, but,
he's sending me to neurologist as he thinks I have Ocular (Ophtalmic) Migraines with
full vision blackouts and followed with migraine pain and he wants me to up my Vicodin
for which I'll have to ask my PM Doctor next week about.
The earliest I can see the Neurologist is 8 April 2009.
So next week I'll learn the blood results, and see my PM Doctor, ain't a gal like me so lucky to have so
many Doctors................Geezee.........
Thanks
{{{{{{{{{{{{{{{{{{{{{{{{{{{{{{{{{{{{HUGZ from me to you}}}}}}}}}}}}}}}}}}}}}}}}}}}}}}}}}}}}}}

At least most of what I got ain't catchy.....................
**********************************************
* Asthma, Allergies, Osteoarthritis, Spinal Stenosis, Degenative Disc, Fibromyalgia, Gerd, Enlarged Pituitary Gland
******** "We could never learn to be brave and patient if there were only joy in the world" from Helen Keller *********

********>^..^<********>^..^<********>^..^<********


White Beard
Forum Moderator


Date Joined Feb 2009
Total Posts : 3611
   Posted 3/6/2009 3:13 PM (GMT -7)   
Chartreux I sure am glad you got in to see your Doctor! When you get these do you get any indication that it's comming on? Anyway Please Careful!!, I would think having vision blackouts could be dangerous!
 
White Beard
I'm Retired USAF, went back to school and became an RN, and now am on full disability!
Degenerative Disc (affecting mostly the thorasic disc but all levels involved), C6/7 laminectomy/diskectomy& fusion, Osteoarthritis, Ulcerative colitis, Chronic Pain, Fibromyalgia, Complex Sleep Apnea, and host of other things to spice up my life!(NOT!)
 
Medications: Oxycontin, Percocet, Baclofen, Sulfasalazine, Metoprolol,  Folic Acid, Supplemental O2 at 3lpm with VPAP Adapt SV


PAlady
Veteran Member


Date Joined Nov 2007
Total Posts : 6795
   Posted 3/6/2009 4:05 PM (GMT -7)   
Char,
I'm glad you're getting this taken care of, and can only imagine how scary it must feel.

And yes, you're so important - that's why you have all these doctors interested in you! (well, I'm trying to put a spin on it for ya, gal!)

((((((((((((((Chartreux)))))))))))))))

PaLady

Chartreux
Veteran Member


Date Joined Aug 2006
Total Posts : 9622
   Posted 3/6/2009 4:21 PM (GMT -7)   
Interesting question White Beard, the answer is nope, only indication before a vision blackout, is I get dizzy and then wam the vision blackout and
I eat all the appropriate foods to help prevent a migraine as I like them, just can't figure this one out...I just hope I don't
have to have my licence (to drive) taken away..
Awe, PAlady, Thank you so much...
I'm going to rest up...
{{{{{{{{{{{{{{{{{{{{{{{{{{{HUGZ}}}}}}}}}}}}}}}}}}}}}}}}}
**********************************************
* Asthma, Allergies, Osteoarthritis, Spinal Stenosis, Degenative Disc, Fibromyalgia, Gerd, Enlarged Pituitary Gland
******** "We could never learn to be brave and patient if there were only joy in the world" from Helen Keller *********

********>^..^<********>^..^<********>^..^<********


straydog
Forum Moderator


Date Joined Feb 2003
Total Posts : 13481
   Posted 3/6/2009 7:47 PM (GMT -7)   
Chart oh I do feel for you. That very thing happened to me driving home from work one day. I was not far from the house so I pulled off to a side street. Sitting there crying because I was scared because everything went black no warning. Alady came out and saw me crying, she called my husband for me so he could come pick me up. I usually get alot of zig zags that cuts off the tops of letters and stuff like that. Awful thats all I got to say. Hugs, Susie


skeye
Veteran Member


Date Joined Mar 2008
Total Posts : 2976
   Posted 3/6/2009 7:52 PM (GMT -7)   
Sounds absolutely terrifying!! Sending you lots of hugs! ((((((((((((Char))))))))))))))). I'm sorry that you have to wait so long to see the neurologist. Hopefully the blood work will give you some answers in the mean time.

Skeye

Pete trips again!
Veteran Member


Date Joined Nov 2006
Total Posts : 1899
   Posted 3/6/2009 8:25 PM (GMT -7)   
Char,
Yes thats what they called it !! Ocular, I wrote optical! Thats what happened to me too! All I can say is ever since the doc upped my Effecsor from 75mg a day to 150mg per day, I haven't had another one of those awful scarry things again! It's been 2 years now and I sure don't miss them! I hope they do something for you too!
Hugzzz!
Pete
56 years old, Surgury, Radical Prostatectomy 8/20/03, PSA 6.6, Gleason 3 + 3 = 6, Adenocarcinoma extent (moderate) Stage & Margin:T2NOMX, No Metastases, Organ Confined, bone scan: Neg. 3 1/2 years of depression after surgery prior to Hypogonadizm DX, Testosterone Theropy> new 2/6/09> 400mg injections every 2weeks . 56 and so glad to still be here to see my two sons grow up to be fine young men. They are both serving in the US Navy, one on the aircraft carrier USS John Stennis in port in Japan and the other on a Gator Freighter USS Bataan stationed in Norfolk, Va. I am one proud PaPa! 


edt
Veteran Member


Date Joined Dec 2008
Total Posts : 773
   Posted 3/6/2009 8:38 PM (GMT -7)   

Char,

I'm feel so bad for you!!!.... sending you big, warm, fuzzy, loving, healing, HUGS ((((((((((((((Char)))))))))))))!!

XXOO
Patti


White Beard
Forum Moderator


Date Joined Feb 2009
Total Posts : 3611
   Posted 3/6/2009 9:12 PM (GMT -7)   
Hey straydog you mentioned "zig zags that cuts the tops of letters" are those flashing zig zaggy lines? I ask this because every now and then I get these zig zaggy lines that are curves like half C and move back and forth (wavy like ) and flash brightly, sometimes they last for a minute or so and sometimes 15 to 20 minutes or longer, sometimes I can go months without having it other times I will have 5 or 6 or more in a day. It is alway in the upper right hand quadrant of my vision, and when it happens, I can see, but I can't read or anything because of the bright flashing. There is no pain, but I do have a very calm peaceful feeling when it happens. When I got my retirement physical from the Air Force back in 1990, the doc saiid it sounded like a migrain with out the pain. Over the years I have mentioned it several times to the neuros, all of them just shrugged and said the same sounds like migraines! Now I'm reading these post, can you lose your vision with these things? I honestly never thought to much about it, they were just kind of annoying. In fact I had one, just the day before yesterday, lasted about 10 minutes, that is the first one I've had in several weeks! One time I did pull off the road and waited till it went away, just to be on the safe side! But now I am rereading over these post, and it dawned on me, is this the same type of thing? So far I have never lost my vision! But reading all your post about this doesn't give me a warm fuzzy either! Sorry Chart for butting in, on your post like that! Looks like I will have to do some checking and research!

White Beard
I'm Retired USAF, went back to school and became an RN, and now am on full disability!
Degenerative Disc (affecting mostly the thorasic disc but all levels involved), C6/7 laminectomy/diskectomy& fusion, Osteoarthritis, Ulcerative colitis, Chronic Pain, Fibromyalgia, Complex Sleep Apnea, and host of other things to spice up my life!(NOT!)
 
Medications: Oxycontin, Percocet, Baclofen, Sulfasalazine, Metoprolol,  Folic Acid, Supplemental O2 at 3lpm with VPAP Adapt SV


skeye
Veteran Member


Date Joined Mar 2008
Total Posts : 2976
   Posted 3/8/2009 9:50 PM (GMT -7)   
Hi Char,

How are you doing? No more episodes, I hope! Thinking of you.

hugs,
Skeye

Chartreux
Veteran Member


Date Joined Aug 2006
Total Posts : 9622
   Posted 3/10/2009 1:11 AM (GMT -7)   
Chart, bad head hurts, can't sleep, need sleep but then head throbs.........
Sorri...........
**********************************************
* Asthma, Allergies, Osteoarthritis, Spinal Stenosis, Degenative Disc, Fibromyalgia, Gerd, Enlarged Pituitary Gland
******** "We could never learn to be brave and patient if there were only joy in the world" from Helen Keller *********

********>^..^<********>^..^<********>^..^<********


PAlady
Veteran Member


Date Joined Nov 2007
Total Posts : 6795
   Posted 3/10/2009 1:24 AM (GMT -7)   
No need to ever apologize here, Char!

Gentle, feather hugs to you. I hope each of those small muscles in your neck and head start to unwind and relax, and allow you to rest.

PaLady
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