Turned away at the ER????

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Scarred_for_life
Veteran Member


Date Joined Jul 2008
Total Posts : 1559
   Posted 3/8/2009 6:36 PM (GMT -7)   
Yes ladies and gentlemen its true! The pain got so bad today that I had hubby take me to the ER. Waited two hours to see a doctor and he took one look at my chart....didn't touch me at all.....told me my pain meds were way too high and that he would not give me ANYTHING for my pain! WHAT???? Told me to wait until Monday or check into a detox center. Are you serious???? OMG I thought hubby was going to hit the roof!! Instead of blowing up at the doctor hubby helped me dress....helped me out the door into the car with a nurse in tow telling us that we needed to sign a stupid paper stating I was checking out AMA which I did and he brought me home. He was so ticked off I've never seen him that mad! Me I was in tears....didn't know what to do. Crawled into to tub and began to deal with the pain the best I can for the remainder of the day.

Well here it is 8:30p and I've taken my second to the last 50 mg Kadian at 2. I've tried everything I can to make the pain go away and nothing is helping. I don't get it.....why in the hell do we bother going to ER's if all they do is turn us away?


Hugs to all of you


Scarred
What doesn't kill us only makes us fight back harder! :P


fatherjohn
Veteran Member


Date Joined Feb 2009
Total Posts : 999
   Posted 3/8/2009 7:25 PM (GMT -7)   
I am so sorry Scarred. I have no words to ease the pain or frustration. Thoughts and prayers is all I can offer at this point. The feeling of uselessness. I can only imagine how your hubby feels. He showed a tremendous amount of restraint. My hats off to him. But he also is now probably feeling useless and beyond frustration as well.

Pamela Neckpain
Veteran Member


Date Joined May 2008
Total Posts : 1821
   Posted 3/8/2009 7:44 PM (GMT -7)   
Oh Scarred,
I am soooooo sorry that this happened. It shouldn't have happened.
That doctor was a jerk. A jerk. A total jerk.
But my dear, I have met others like him.
Doctors who think I can cure my pain by talking to a pain psychologist.
They don't understand. They don't know.
Breathe deep. Do every single trick in your book to be ok.
When we get upset it sometimes makes our CP even worse.
What caused the surge in pain do you think?
I hope you will write to the administrator and tell him/her
about the experience. (Not this evening of course!)
Oh, I hope you can go to sleep, baby/
Pamela
You have a great husband. I believe it would have made
the situation worse if he'd exploded at the ER. His anger
might not be understood. But I UNDERSTAND.
Three cheers for Scarred's husband.
What doesn't kill us only makes us fight back harder! :P
AMA? What's that?

Tirzah
Veteran Member


Date Joined Jul 2008
Total Posts : 2284
   Posted 3/8/2009 7:47 PM (GMT -7)   
Scarred,
I am so sorry you are in such pain. I always wonder at all the people on this forum who say they go to the ER when they're in pain. The ER's here in Chicago have a policy not to treat unless the patient is in danger of losing life or limb. Once they come up with a dx, if it's not life-threatening, they discharge with no treatment. It's rather controversial, but I think it's the way medicine is headed.

I talked with my PM & he gave me meds to take for when the pain gets really horrible. It is the same medicine that I would have gotten in the hospital had I been admitted & put on a PCA, just oral instead of IV. I know some people, provided they have zero indicators for addiction & either have someone to administer the IV or are comfortable self-administering, are even given IV meds for times when the pain is unbearable. I can't imagine ever wanting to take that kind of risk on myself but there are patients who prefer that & some pain docs, including my PM, do write for them. Maybe you can check with your PM to come up with a treatment plan & to have some medicine on hand for when the pain gets completely out of control.

Just want to encourage you that there is hope. I know it's super miserable to be at home, unable to get out of bed for anything, but it seems that's just the way things are. There are medical supply stores that can give you the supplies you would need to protect your "bed" and to keep yourself clean. It took some getting used to, but after a time to adjust, I actually now prefer being able to treat at home. No waiting for angry nurses, no lectures, no arguments over meds. I just take the extra strong medicine, let some people know so they can check on me, set my alarm to go off regularly so I can count breathing rate & have friends/family come over to change out water, bring personal care items to within reach & help pull dirty sheets off the bed.

Feel better soon & definitely give that doc of yours a call first thing Monday morning to get you some relief. :)

hugs,
frances

wolftrades
Regular Member


Date Joined Aug 2005
Total Posts : 301
   Posted 3/8/2009 7:50 PM (GMT -7)   
I think part of the problem is that you are using a long acting med like Kadian for a bt pain that requires bt meds. I'm not familiar with your situation but do you get prescribed sa meds at all?
Also most of us cp'ers are treated like dirt at the er. They think we are doc shopping...what we need to do is to create a cp group with enough juice to explain to our new president how chronic pain patients are treated in this country

edt
Veteran Member


Date Joined Dec 2008
Total Posts : 773
   Posted 3/8/2009 8:22 PM (GMT -7)   
Oh Scarred,
I am so very sorry!! I do hope your Dr. will help you so you never have to be in this situation again!
Just know that all of your friends here are sending you healing energy and lots of prayers and big HUGS!!!
XXOO
Patti

P.S. Someday this Dr. Rude will either experience what he put you through or one of his family members will!! You know the saying what goes around comes around!!! AND you can believe it will!

Becoming undone
Veteran Member


Date Joined Jul 2007
Total Posts : 927
   Posted 3/8/2009 8:33 PM (GMT -7)   
(((((((((((((((((((((((((((((((((hugs))))))))))))))))))))))))))))))))))))
You are in my thoughts...

Frances brought up a good point. My GI stated that he would rather have a home health nurse come in next time instead of me going to the ER (to many nasty infections while I am on all these immunosuppresents). He would do both IV fluid (cause I need bowl rest in these cases) and pain relief. Heck this would end up costing the insurance less as well...I hope that maybe you could work out something with your medical team...

Until then...I'm sending good vibes...
"The earth laughs in flowers"


Scarred_for_life
Veteran Member


Date Joined Jul 2008
Total Posts : 1559
   Posted 3/8/2009 8:53 PM (GMT -7)   
Hey all. Yeah I have BT meds. Percocet is all I have right now for my pain and that is all I can use to combat my pain. I even told the doc that if he needed to talk to my PCP doc that he could cause they told me that if I had to go to the ER that all the ER docs had to do was to call them if it was the weekend but the ER wouldn't even call him! He was rude and treated me like a criminal!!! I am going to talk to my doctor and let her know the situation and see if they can make it to where I have meds available to me when my Kadian isn't avaiable (IE. a generic script)

Hugsss

Scarred
What doesn't kill us only makes us fight back harder! :P


Pamela Neckpain
Veteran Member


Date Joined May 2008
Total Posts : 1821
   Posted 3/8/2009 8:55 PM (GMT -7)   
Wolftrades,

I keep meaning to write my congress person and the president.
I got slapped down by the economy and I fell so hard I've
been unable to speak.

Maybe I could combine my issues. Someone should go on Oprah.
Problem is: People with Chronic Pain couldn't do the flight.

Chronic Pain is a cruel illness. If suddenly we should all have
Cancer, we would be treated with dignity and proper medication.

I feel like saying I don't know how to write a letter ... but I do.
I scribble all over the forum. No more excuses! Everybody here
could do it.

Pamela

We could change the way things are. Written stuff is very powerful.
One letter is worth 500 phone calls or something. The statistics are
staggering.
idea

Post Edited (Pamela Neckpain) : 3/8/2009 9:58:05 PM (GMT-6)


Pamela Neckpain
Veteran Member


Date Joined May 2008
Total Posts : 1821
   Posted 3/8/2009 9:01 PM (GMT -7)   
Scarred ...

That makes it even worse - om g, they wouldn't even make a phone
call. ARGHHHHHHHH!

You must write that letter. It's not long until tomorrow. Think of all
the thoughts and prayers and good healing wishes that are flowing your
way.

I am boiling over. However, you MUST relax. The puter is the best
place to distract ... but sleep if you can.

Sorry.
Pamela

PAlady
Veteran Member


Date Joined Nov 2007
Total Posts : 6795
   Posted 3/8/2009 9:33 PM (GMT -7)   
Scarred,
I feel so bad for what happened to you becasue I think I was one of the people who suggested the ER. And in truth, most probably are going to have policies like Frances mentioned. And unless there is something life threatening - in that moment, not for the long haul - and they see that treatment is generally being provided, they're probably not going to do much. But they could have tried to call your doctor.

Either way, it's past. The error was with Wal-Mart, and then secondarily with your doctor's office. You will have some power during the week now to get this fixed. I think maybe feeling powerless, and scared, increases our pain, so if you can see that you'll be able to get this fixed soon - and I'd tell your doctor's office it's an urgent if there's nothing in your mail tomorrow - maybe you can relax a little. Enough so the pain doesn't increase significantly.

Sending many hugs your way, my friend,

PaLady

skeye
Veteran Member


Date Joined Mar 2008
Total Posts : 2976
   Posted 3/8/2009 9:45 PM (GMT -7)   
Oh, Scarred, I am so sorry about your horrible experience. It scares, horrifies, and saddens me to hear all these stories about how CP patients are treated as criminals. You'd think that they would have some kind of system worked out by now so that they could verify one's story. Having called your doc would have been a start.

I hope tomorrow comes quickly for you & you can work something out with you doc so that you will never have to go through a nightmare like this again. ((((((((hugs))))))))).

Keeping you in my thoughts & prayers,
Skeye

Tirzah
Veteran Member


Date Joined Jul 2008
Total Posts : 2284
   Posted 3/8/2009 10:02 PM (GMT -7)   
Scarred,
Not sure what time your mail comes, but I wouldn't wait to see if anything comes before contacting your PM. Call him first thing as soon as they're open. Or better yet, leave a message now so it's waiting for them & then call again 5 minutes after they open. Tell them you'll return the other script to them when you receive it, but that you need a script that you can pick up now. Explain that you went to the hospital b/c it was so bad & even they couldn't help you at all so they send you home with no treatment. You need some medication. Be nice but firm. Sic "Hubby" on them if needed. Definitely don't wait a minute longer than necessary to speak to them. Who knows what happened to the script? Maybe it got lost in the mail. Maybe it got mis-routed. Maybe it didn't have a stamp & is being returned to the sender. Maybe the mailman got angry & piled all the mail in a dumpster & set it on fire (sorry, crazy stuff like that has actually happened here in Chicago). Nobody knows & without a tracking number there's no way to find out. They've got to come up with something to help you! Okay, they don't HAVE to, but I think they should. :)

Best wishes. Hope you get a bit of sleep tonight.

sweet dreams,
frances

wolftrades
Regular Member


Date Joined Aug 2005
Total Posts : 301
   Posted 3/8/2009 11:20 PM (GMT -7)   
Look what is happening with oxycodone. I take 30 mg 4 times a day in addition to a 100 ugh Fentanyl patch. The patch doesn't help me and I rely on the oxy. Now there is some shortage because of recalls...furthermore, since the patch is not effective and oxycodone works for me, the proper rx would be oxycontin as my LA med
..but my pain doc is too scared to write for it. I have verified injuries...3 levels of disc herniation, multiple levels of spinal stenosis, facet hypertrophy, DDD...why must we live in pain because some friggin' kid in the mountains crushed a pill and od'ed. It is sad but that person had nothing to do with m


e. We need to educate people about chronic pain.

PAlady
Veteran Member


Date Joined Nov 2007
Total Posts : 6795
   Posted 3/8/2009 11:50 PM (GMT -7)   
Scarred,
I just remembered that either my old CVS pharmacist or my NS's office told me that in an urgent situation the pharmacy can fill the script from a faxed script IF they receive the original script within so many days (I think about 3 days or something like that). It's probably one of those grey areas not many people know about or want you to know about, but it might be worth asking if you don't have your Rx in the morning can they fax a script to the pharmacy knowing that the pharmacy will receive the original script (possibly it needs to be priority mailed to the pharmacy). It's just a thought to check on.

I hope it works out soon!

PaLady

fatherjohn
Veteran Member


Date Joined Feb 2009
Total Posts : 999
   Posted 3/9/2009 2:09 AM (GMT -7)   
I had to go into work tonight and one of the issues I had to deal with was one of my students went to the ER. The Docs at the local ER are specialists at writing prescriptions for pain killers. It does not seem to matter what they go to the ER for they get Vic. All this has to be turned into me and there is a very strict accounting for each pill. When someone like Scarred goes in and doesn't really want the RX but needs it to survive, they refuse to write the script. Another example that life is not always fair. When I am out speaking about addiction, one of the figures that stands out is there are approx. 14 million individuals who are misusing prescription drugs in the US. We also know that hydrocodone, vic, percocet and oxycodone are the most widely abused. These 14 million are not people like us who use them as prescribed but we are often the ones that suffer because of others. Good luck later this morning Scarred.   

Pamela Neckpain
Veteran Member


Date Joined May 2008
Total Posts : 1821
   Posted 3/9/2009 3:14 AM (GMT -7)   
A few months back I went to ER. I was very ill. My main symptom was
diaphoreses. I was sweating like a plump pig in the summer hay field.
My hair was soaking wet. It came through my clothes. Oh, it was awful.
I had terrible pain but I can't remember what it was. Strange, but true.

They asked me what my pain level was. Of course, it was a 9 or 10 but
I primly said, "Oh it's about 4" What I meant was the pain from the
sweating and infection was four. You put my usual pain on top of it and
it goes off the charts.

One of nurses whispered to me. "You should have said at least six. They
would have given you better medication."

They hydrated me and gave me IV antibiotics - and did a bunch of stuff.
They wanted to keep meover night but ... my hair was a mess and so were my toe nails.
Vanity they name is Pamela!

It sounds a little like I was in withdrawel but i wasn't. I was fine that way.

Scarred_for_life
Veteran Member


Date Joined Jul 2008
Total Posts : 1559
   Posted 3/9/2009 1:08 PM (GMT -7)   
Hey everyone; just an update for ya. you will be pleased to know that I ended up having to go to Wichita to my Dr office to get another script. Hubby took me over and then to the Pharmacy to get my meds refilled. Went to Wal-Mart once again because they were the only ones with enough Kadian to fill my script or at least enough for now.....only got 100 pills this time! Missing 20. So I will call my dr immediately and tell them so that they can send out the script. No other Pharmacy had Any Kadian at all so I had to do it this way. Frustrating but, at least I got my Kadian and am now trying to allow the 200mg to work.

Hugssss to all of you for your support and your kindness throughout this whole ordeal! I love each of you!

Scarred
What doesn't kill us only makes us fight back harder! :P


edt
Veteran Member


Date Joined Dec 2008
Total Posts : 773
   Posted 3/9/2009 8:35 PM (GMT -7)   

Scarred,

I am so happy to hear you got your prescription, I hope you are finally feeling some relief!

SLEEP TIGHT!

XXOO
Patti


fatherjohn
Veteran Member


Date Joined Feb 2009
Total Posts : 999
   Posted 3/9/2009 9:33 PM (GMT -7)   
Good people do win sometimes. Sorry it had to take so long but I will rejoice that you are in better shape.

Pamela Neckpain
Veteran Member


Date Joined May 2008
Total Posts : 1821
   Posted 3/10/2009 3:56 AM (GMT -7)   
Scarred,

I'm really really happy that the situation got cleared up.

Are you going to do anything about the nasty doctor.

I've found that sometimes the best thing to do is just forget it.

Yay for you,

Pamela smilewinkgrin

Scarred_for_life
Veteran Member


Date Joined Jul 2008
Total Posts : 1559
   Posted 3/10/2009 5:00 AM (GMT -7)   
Actually Pam, the doctor's office told me that I am not the only one that they have been having problems with getting scripts to. So they are checking into it and I am going to be sending in for my refills 12 days before they are due from now on.
What doesn't kill us only makes us fight back harder! :P


uniquelyme
Veteran Member


Date Joined Nov 2008
Total Posts : 1037
   Posted 3/10/2009 6:44 AM (GMT -7)   
Wow!! What an ordeal you went through. I think I need to talk to my Dr. and get something in place in case this ever happens to me. What a jerk that Dr. is...But I am so greatful that you got your pain under control finally...

Me.
 
We are all in the same boat...unfortunatley it seems like it's sinking...
 
Rhonda
Post Lamenectomy Syndrome
Hemi Lamenectomy
Spinal Fusion
 
120 mg. Methadone daily
60 mg. Oxycodone daily
Lyrica as needed 

 


shannon1
Regular Member


Date Joined Feb 2005
Total Posts : 369
   Posted 3/10/2009 10:26 AM (GMT -7)   
Scarred, im so sorry about that horrible experience. I have not read everyone elses posts, but can you send a letter to the hospital regarding this.??? This goes aganist hospital policy (atleast in my state) Pain must be treated to the best of their ability.

On the other hand, i can say that i have been treated poorly also at my hospital but mostly by nurses if admitted, so far, i have not have issues in the ER.
Jan. 2009, complete hysterectomy, diagnosed stage 4 endometriosis & adenomyosis (age 36)
2003, dx moderate UC
2000, dx selective IGA deficiency w/ anti IGA antibodies
2000, dx Antipholipid Antibody Syndrome
1999-2009, chronic hemmoragic ovarian cysts, w/ partial ovary removal
1977, complete reconstruction of foot after lawnmower accident (chronic pain)
 
Meds
6mp 75mg, prednisone 40mg (just starting meds again)
percocet 5mg 3x day
potassium 3x day
 


Pamela Neckpain
Veteran Member


Date Joined May 2008
Total Posts : 1821
   Posted 3/10/2009 11:38 AM (GMT -7)   
Hello Me,

Wow, you sure made a point there.

We should ALL make sure that we have our pain checked by Medic alert
before there's an emergency. Yesterday I asked my doctor for a report
of my office visits (or whatever) just in case I had to go to the ER again.
If I forget my Medic alert, I turn around and come back home and get it.

Shannon.
Yes, there's some kind of rule that doctor's live by that requires them to
treat pain. It seems to me that it would just be a moral obligation and
a matter of kindness.
Pamela
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