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shannon1
Regular Member


Date Joined Feb 2005
Total Posts : 369
   Posted 3/9/2009 8:57 AM (GMT -7)   
Hello everyone,
 
I am currently now 6wks post hysterectomy. I am still having pain due to the trapped nerve. I saw my doc today, who weighed me and things are not looking good. I have lost 21 lbs since surgery and am now at a ghastly 89 lbs. My doc called my gi and is suggesting a PICC line for feedings. I am just devestated. How am i going to care for my two kids with something like this? I am soooo sick to my stomach over all this, but there is just nothing that i can do. I have tried to force feed myself, but just end up feeling nausaus (sp), so mostly, i just go days with out  eating. I have added ensure, but obviously, it is not working.  My doc sorta led on that maybe i have an eating disorder???? 
 
Oh gosh, im just spewing whatever now....i just need to vent and  cry.
Jan. 2009, complete hysterectomy, diagnosed stage 4 endometriosis & adenomyosis (age 36)
2003, dx moderate UC
2000, dx selective IGA deficiency w/ anti IGA antibodies
2000, dx Antipholipid Antibody Syndrome
1999-2009, chronic hemmoragic ovarian cysts, w/ partial ovary removal
1977, complete reconstruction of foot after lawnmower accident (chronic pain)
 
Meds
6mp 75mg, prednisone 40mg (just starting meds again)
percocet 5mg 3x day
potassium 3x day
 


Pete trips again!
Veteran Member


Date Joined Nov 2006
Total Posts : 1899
   Posted 3/9/2009 9:13 AM (GMT -7)   
Shannon,
I'm so sorry hun. I wish I could help somehow. I know it's easier said than done but you HAVE to calm down. Getting so upset is just making things much worse. Have you tried deep breathing when you feel nausios? Those relaxation CD's the sell (you can find them on-line or at book stores) help me alot to calm down when I get all bunged up about something which happens alot. Please keep up w/ the Ensures, they will help. I'm going to pray for you my sister!
Big Hugzzz coming your way!
Pete
56 years old, Surgury, Radical Prostatectomy 8/20/03, PSA 6.6, Gleason 3 + 3 = 6, Adenocarcinoma extent (moderate) Stage & Margin:T2NOMX, No Metastases, Organ Confined, bone scan: Neg. 3 1/2 years of depression after surgery prior to Hypogonadizm DX, Testosterone Theropy> new 2/6/09> 400mg injections every 2weeks . 56 and so glad to still be here to see my two sons grow up to be fine young men. They are both serving in the US Navy, one on the aircraft carrier USS John Stennis in port in Japan and the other on a Gator Freighter USS Bataan stationed in Norfolk, Va. I am one proud PaPa! 


White Beard
Forum Moderator


Date Joined Feb 2009
Total Posts : 3611
   Posted 3/9/2009 10:01 AM (GMT -7)   
Shannon1
Maybe a PICC line would be a good thing for you for a while, it is used to administer TPN (total parenteral nutrition) It is a temporary way of giving you nutrition and by bassing your digestive tract entirely. The TPN would be specialy made just for you to meet your nutritional needs. Of course it is not the most ideal way of getting nutrition, but for a short time it definitely might be just the thing you need to get over all this! If you don't mind me asking how tall are you? In any event it is obvious your Doctor is concerned about you and your weight, and you definitely need the nutrition to maintain your strength and for you body to be able to heal from your surgery. The PICC line is really no big deal, and once it is in, you probably won't even think about it being there!
I do wish you all the best,
Good Luck to Youi
White Beard
I'm Retired USAF, went back to school and became an RN, and now am on full disability!
Degenerative Disc (affecting mostly the thorasic disc but all levels involved), C6/7 laminectomy/diskectomy& fusion, Osteoarthritis, Ulcerative colitis, Chronic Pain, Fibromyalgia, Complex Sleep Apnea, and host of other things to spice up my life!(NOT!)
 
Medications: Oxycontin, Percocet, Baclofen, Sulfasalazine, Metoprolol,  Folic Acid, Supplemental O2 at 3lpm with VPAP Adapt SV


shannon1
Regular Member


Date Joined Feb 2005
Total Posts : 369
   Posted 3/9/2009 11:27 AM (GMT -7)   
Thank you Pete and White Beard!

In my crazy sputtering, i did my math incorrect.....lol...i have lost a total of 11 lbs. I am 5'7 and started at 100lbs and am now down to 89 lbs. My surgeon is worried that my "fatty" layer is to low to support the inscision from the hysterectomy, and htat it might open up.

Im just back from my GI tho, and they feel that a PICC line is a bit aggressive. They have given me 24mg zolfran to take before every meal and to eat 3 very small meals a day and drink 3 ensure a day. They feel that i might have a gall bladder problem based on my symptoms (a few pain attacks in the upper gastric area, no appetite, nausea when i do eat). I am set for a ultrasound and a upper endoscopy for the end of next week. I am praying that what ever it is i do not need more surgery. I already have to get better so that i can have surgery for the trapped nerve!
Jan. 2009, complete hysterectomy, diagnosed stage 4 endometriosis & adenomyosis (age 36)
2003, dx moderate UC
2000, dx selective IGA deficiency w/ anti IGA antibodies
2000, dx Antipholipid Antibody Syndrome
1999-2009, chronic hemmoragic ovarian cysts, w/ partial ovary removal
1977, complete reconstruction of foot after lawnmower accident (chronic pain)
 
Meds
6mp 75mg, prednisone 40mg (just starting meds again)
percocet 5mg 3x day
potassium 3x day
 


ekkorose
Regular Member


Date Joined Jul 2008
Total Posts : 329
   Posted 3/9/2009 12:08 PM (GMT -7)   
Shannon,

I lost 13lbs after my hyster from not eating. The one thing that helped more then any zofran or other med was ginger and lots of it. I ate crytallized ginger like it was candy and it really helped me not be so quezy all the time. It can be a little (or a lot) strong so I would start with small pieces.

also, the fresher the better so get some from the international foods isle instead of hte spice isle. That tends to have a higher turnover rate.

Take care,
Sarrah

Hysterectomy at 25

4 laproscopic surgeries since 24

Cervical stenosis in C3 & C4

_____________________________________________

 

Meds - percocet  3x day : nexium : xanax :

Supplements : calcium : magenesium :potassium : milk thistle : fish oil : B complex : vit E

____________________________________________

In the United States today, there is a pervasive tendency to treat children as adults, and adults as children. The options of children are thus steadily expanded, while those of adults are progressively constricted. The result is unruly children and childish adults. ~Thomas Szasz 


shannon1
Regular Member


Date Joined Feb 2005
Total Posts : 369
   Posted 3/9/2009 1:16 PM (GMT -7)   
Oh Sarrah, thank you so much! I will def. try your suggestion and im soooooo glad to know that i am not the only one who has been unable to eat! Thanks so much!
Jan. 2009, complete hysterectomy, diagnosed stage 4 endometriosis & adenomyosis (age 36)
2003, dx moderate UC
2000, dx selective IGA deficiency w/ anti IGA antibodies
2000, dx Antipholipid Antibody Syndrome
1999-2009, chronic hemmoragic ovarian cysts, w/ partial ovary removal
1977, complete reconstruction of foot after lawnmower accident (chronic pain)
 
Meds
6mp 75mg, prednisone 40mg (just starting meds again)
percocet 5mg 3x day
potassium 3x day
 


Scarred_for_life
Veteran Member


Date Joined Jul 2008
Total Posts : 1559
   Posted 3/9/2009 1:19 PM (GMT -7)   
Wow! I am so sorry Shannon for your pain. I had a Hyst when I was 32 and I know that it hit me hard because of the fact that I had pre-cancerous cells in my cervix. Since I was not going to have any more children I opted to have this procedure done but they left my ovaries which I am thankful for because I did not go into Menopause until my early 40s. I know that I was in pain for many months after and was quite blessed with having a boyfriend that was very helpful (guess who??? My current husband!) He waited on me hand and foot wouldn't let me lift a finger and was a godsend with my child. I don't know what your situation is with extra help is with family but maybe you could ask? I know it's hard to ask for help from others believe me but sometimes we just have to break down and do what we have to do.

Anyway take care hun and please feel free to email me if you need to talk.

Hugs

Scarred
What doesn't kill us only makes us fight back harder! :P


Mama of 4
New Member


Date Joined Mar 2009
Total Posts : 4
   Posted 3/9/2009 1:43 PM (GMT -7)   
Your situation is not hopeless. I had an ovary out but never a hysterectomy.

****************** You are a very special person and are loved very much.
God Bless You
Lindy

(Lindy, Please read the forum rules on posting. Chutz)
10. No posts of an overtly political or religious nature OR posts promoting advocacy of particular personal, medical, legal, religious, political, or non-profit causes. The forums are intended for offering mutual personal support. Debating controversial subjects should be taken elsewhere. Limited religious references are allowed (ie. "my prayers are with you" or a brief quote as part of a larger post), but the forums should not be used to convert others.

Post Edited By Moderator (Chutz) : 3/9/2009 11:39:25 PM (GMT-6)


shannon1
Regular Member


Date Joined Feb 2005
Total Posts : 369
   Posted 3/9/2009 4:04 PM (GMT -7)   
Thanks for your kind words Lindy!

Scarred, thanks so much to! I am now 6wks post surgery and my mom has been here helping w/ the kids mostly the entire time. My husband has been great, but i think is now starting to wonder "whats next?", ya know....he is actually headed out for a guys car racing wkend, and i think it will do him good, and might help a little when he gets back and has to pick up all the slack again.

I know if i need more surgery, my mom will be here in a second. But right now, i have to just suck it up....

thanks again everyone, u all are my best "cyber" friends!!!!!
Jan. 2009, complete hysterectomy, diagnosed stage 4 endometriosis & adenomyosis (age 36)
2003, dx moderate UC
2000, dx selective IGA deficiency w/ anti IGA antibodies
2000, dx Antipholipid Antibody Syndrome
1999-2009, chronic hemmoragic ovarian cysts, w/ partial ovary removal
1977, complete reconstruction of foot after lawnmower accident (chronic pain)
 
Meds
6mp 75mg, prednisone 40mg (just starting meds again)
percocet 5mg 3x day
potassium 3x day
 


White Beard
Forum Moderator


Date Joined Feb 2009
Total Posts : 3611
   Posted 3/9/2009 6:12 PM (GMT -7)   
shannon1

Zolfran is an excellent med, it has been arround for a long time, infact it was orriginally given to chemo patients for nausea! And for most people it works extremely well! I think it is good that that they want to wait on putting in the picc line, as I said it is not the most ideal way of getting nutrition into you, but it does work! I am glad to hear that, about your weight, losing 11 lb. is much better than losing 21 lb, but with your height you really do need to keep what weight you have, and not lose anymore, and hopefully you will start gaining some! If it is your Gallbadder, that is causing your problems that is an easy fix and they can easily remove it by doing laparocholecystotomy using a laparoscope and it is usually an out patient procedure. But let's hope that isn't necessary! I do hope you start feeling better soon!

Take care and Good luck to You
White Beard
I'm Retired USAF, went back to school and became an RN, and now am on full disability!
Degenerative Disc (affecting mostly the thorasic disc but all levels involved), C6/7 laminectomy/diskectomy& fusion, Osteoarthritis, Ulcerative colitis, Chronic Pain, Fibromyalgia, Complex Sleep Apnea, and host of other things to spice up my life!(NOT!)
 
Medications: Oxycontin, Percocet, Baclofen, Sulfasalazine, Metoprolol,  Folic Acid, Supplemental O2 at 3lpm with VPAP Adapt SV


ekkorose
Regular Member


Date Joined Jul 2008
Total Posts : 329
   Posted 3/9/2009 6:16 PM (GMT -7)   
Please Please PLEASE don't suck it up. I am where I am now because I sucked it up. Please rest and let yourself heal. You can do more damage by overdoing it then you can ever expect.

I fell down the stairs 3 days after my hyster then I was thought I was ok so I was back to work within two weeks of the main surgery date. After that I was hospitalized for two days and went back to work the day after I got out. Now I will be on pain meds until medical science figures out how to rid one of adhesions that come back twice as bad everytime I go under the knife.

Take care of yourself and take it easy! Until the scar is white, there is still healing taking place deep inside your body!

Hysterectomy at 25

4 laproscopic surgeries since 24

Cervical stenosis in C3 & C4

_____________________________________________

 

Meds - percocet  3x day : nexium : xanax :

Supplements : calcium : magenesium :potassium : milk thistle : fish oil : B complex : vit E

____________________________________________

In the United States today, there is a pervasive tendency to treat children as adults, and adults as children. The options of children are thus steadily expanded, while those of adults are progressively constricted. The result is unruly children and childish adults. ~Thomas Szasz 


skeye
Veteran Member


Date Joined Mar 2008
Total Posts : 2976
   Posted 3/9/2009 9:53 PM (GMT -7)   
Hi Shannon,

I'm so sorry to hear that you are still not feeling well from your surgery! Please listen to Sarrah, and try to take it easy! Your body still has a lot of healing left to do, and in fact is probably healing a a much slower rate than normal due to the lack of nutrients. Not to mention that you won't have the same energy, stamina, etc, if you're not eating. I know you have kids, and they keep you busy, but if you can, try & get your mom, or someone to help you out for a while longer.

I think that nausea is one of the WORST feelings ever. And for whatever reason, it always seems to be one of the hardest things to get rid of (at least in my opinion)! I went through 2 months of having constant nausea after eating this fall/winter, and lost about 20 lbs, because I basically lost my entire appetite & stopped eating. I was fortunate though, that my nausea was only mild & I wasn't in nearly as dangerous a place as you are, although I was starting to get into the unhealthy range. I've since gained about half of the weight back from being on prednisone, but I can still remember how weak & tired I felt just from not eating, and on top of that your body is still trying to deal with this radical change!

Gatorade is good too. It's not the best for nutrients, but it will at least keep you hydrated & provide you with the electrolytes you need. I like the Gatorade Frost Glaicer Freeze (I only remember the name because I actually have some sitting by my bed from when I had a little stomach bug last week). You can always dilute it if it is too sweet. Sarrah's suggestion about ginger is great! Ginger is often used for nausea induced by sea sickness, etc (you can even give some to your dogs if they get car sick!). They do sell ginger pills, you can definitely get them at a health food store, and possibly even a pharmacy (not quite sure, but I think I've seen them in the pharmacy before).

I hope you feel better! Take it easy!!! You'll be in my thoughts & prayers! (((((((((((((Shannon)))))))))))))))).

hugs & healing thoughts,
Skeye

PAlady
Veteran Member


Date Joined Nov 2007
Total Posts : 6795
   Posted 3/9/2009 11:16 PM (GMT -7)   
Hi, Shannon,
I just want to send healing thoughts and support along with everyone else. I've not been posting much today; haven't been home and am fairly tired now. But I did want to tell you I was thinking of you, and hope you follow all your doctor's orders and take it easy so that you can heal as much and as soon as possible.
Hugs,

Pa

Chartreux
Veteran Member


Date Joined Aug 2006
Total Posts : 9622
   Posted 3/10/2009 1:06 AM (GMT -7)   
Shannon,
Sure Hope your feeling better soon,
Lots of prayers and soft hugz coming your ways...
{{{{{{{{{{{{{{{HUGZ}}}}}}}}}}}}}}}}}
**********************************************
* Asthma, Allergies, Osteoarthritis, Spinal Stenosis, Degenative Disc, Fibromyalgia, Gerd, Enlarged Pituitary Gland
******** "We could never learn to be brave and patient if there were only joy in the world" from Helen Keller *********

********>^..^<********>^..^<********>^..^<********


uniquelyme
Veteran Member


Date Joined Nov 2008
Total Posts : 1037
   Posted 3/10/2009 6:55 AM (GMT -7)   
 
Shannon,
Oh Honey, what crap us women have to go through.  Men don't know how good they have it.  When I had my hysterectomy I was 29 and it really tore me up that I couldn't have any more kids, then the pain from the surgery went on forever... It will get better.  Once they figure out what is really wrong, it will get better really fast.  You won't realize it until one day you are noticing that the pain is gone.  I hope that happwns soon.
 
As far as the weight loss, 11 lbs. is not that much.  You will eat better when you feel better.  That is a promise.
 
Get better soon,
Me.

 
We are all in the same boat...unfortunatley it seems like it's sinking...
 
Rhonda
Post Lamenectomy Syndrome
Hemi Lamenectomy
Spinal Fusion
 
120 mg. Methadone daily
60 mg. Oxycodone daily
Lyrica as needed 

 


shannon1
Regular Member


Date Joined Feb 2005
Total Posts : 369
   Posted 3/10/2009 10:36 AM (GMT -7)   
OMG Sarrah, how the heck were u doing that much after your hyster??? Im still needing alot of rest and am just starting driving, and a little walking outside and im 6wks post op! You are my idol girl!

uniquelyme, you also had your hyster young. I am also dealing with the emotional side of not being able to have more children. Even tho we had two high risk pg, and both were preemies, i had really hoped for more children. At this point, i am angry at myself for CHOSING to even do this to myself.....

I am trying to choke down small meals now. Yesterday along with my zolfran, i got down a bowl of tomato soup (felt nauseus), dinner i had one egg, sunny side up and one piece of toast with butter (felt sick after) i had both my ensures to. Today i was out and stopped and had a egg/cheese crousant for breakfast (felt sick) and i just could not stomach lunch today, so i used my ensure. I hope dinner tonight will be easier....

I just don't know what i would do w/o all of you. Your kindness overwhelmes me to no end!
Jan. 2009, complete hysterectomy, diagnosed stage 4 endometriosis & adenomyosis (age 36)
2003, dx moderate UC
2000, dx selective IGA deficiency w/ anti IGA antibodies
2000, dx Antipholipid Antibody Syndrome
1999-2009, chronic hemmoragic ovarian cysts, w/ partial ovary removal
1977, complete reconstruction of foot after lawnmower accident (chronic pain)
 
Meds
6mp 75mg, prednisone 40mg (just starting meds again)
percocet 5mg 3x day
potassium 3x day
 


JD23
Regular Member


Date Joined Apr 2008
Total Posts : 131
   Posted 3/10/2009 11:25 AM (GMT -7)   
Shannon-
If you dont' mind.. would it be OK if i emailed you personally? i have gone through a similar experience myself. please e-mail me at JennCA23@aol.com.
what state do you live in?
Why do your docs think you might have an eating disorder? If you could, email me and maybe i can be of help.
thanks!
jennifer

shannon1
Regular Member


Date Joined Feb 2005
Total Posts : 369
   Posted 3/10/2009 12:29 PM (GMT -7)   
Hi jennifer, i will email u tonight....

im in florida

my ob/gyn whom i have known for probally15 yrs now is just afraid of my inability to eat right now. He made a note in my file saying "surgical anorexia???" I think he is just scared. I spoke in detail with my GI about a possible eating disorder, and they don't seem to think so, but since i have always been skinny and do have some weird relationship with food, i know there is something....wether it has a name or not, i dont' know....I def. dont' think of myself as fat, i know i look horrible right now, and i WANT to gain weight, i am just unable to eat. Hopefully they will find the problem soon tho.....we can talk in more detail by email, thanks for offering!
Jan. 2009, complete hysterectomy, diagnosed stage 4 endometriosis & adenomyosis (age 36)
2003, dx moderate UC
2000, dx selective IGA deficiency w/ anti IGA antibodies
2000, dx Antipholipid Antibody Syndrome
1999-2009, chronic hemmoragic ovarian cysts, w/ partial ovary removal
1977, complete reconstruction of foot after lawnmower accident (chronic pain)
 
Meds
6mp 75mg, prednisone 40mg (just starting meds again)
percocet 5mg 3x day
potassium 3x day
 

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