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Scarred_for_life
Veteran Member


Date Joined Jul 2008
Total Posts : 1559
   Posted 3/10/2009 4:57 AM (GMT -7)   
if your medication(s) are working take a hiatus from them for a day or two. I'm serious here! I was beginning to think that my Kadian was not working, that I was becoming to well adjusted to that little green capsule. But I've now taken two doses and my pain has gone from a 10 (actually a 14 by my scale LOL) clear down to about a 5!! I can now tolerate the pain enough to go about my day and do the things that I need to do. Even maybe enjoy a short walk today, if it is nice enough outside. There is a huge park two blocks to the west of me and I have been dying to grab my sketch pad and pencils and sit in the park and sketch for awhile....so if the weather permits me to do so today I think I will take advantage of it. If not...there is a blank canvas down in the basement that I think needs a picture. :-) I'm feeling creative today which is refreshing since I have not felt like painting or sketching for a very very long time. So I think I will take advantage of my creativeness and let myself be swept away from the tides of pain into my world of colors, hues, palates and brushstrokes.

Huge hugs to each of you that have helped me through this past weekend. You are all so fantastic and I want you to each know how special you are to me. :-)

Love,

Scarred
What doesn't kill us only makes us fight back harder! :P


Pete trips again!
Veteran Member


Date Joined Nov 2006
Total Posts : 1899
   Posted 3/10/2009 5:11 AM (GMT -7)   
OH thats Great News Scarred!
You may be on to something there! I'm really happy you are feeling better today, I can feel it in your words. Take advantage of it and enjoy yourself, you certainly deserve it!
Hugz!
Pete
56 years old, Surgury, Radical Prostatectomy 8/20/03, PSA 6.6, Gleason 3 + 3 = 6, Adenocarcinoma extent (moderate) Stage & Margin:T2NOMX, No Metastases, Organ Confined, bone scan: Neg. 3 1/2 years of depression after surgery prior to Hypogonadizm DX, Testosterone Theropy> new 2/6/09> 400mg injections every 2weeks . 56 and so glad to still be here to see my two sons grow up to be fine young men. They are both serving in the US Navy, one on the aircraft carrier USS John Stennis in port in Japan and the other on a Gator Freighter USS Bataan stationed in Norfolk, Va. I am one proud PaPa! 


edt
Veteran Member


Date Joined Dec 2008
Total Posts : 773
   Posted 3/10/2009 6:28 AM (GMT -7)   

Scarred,

Great news to hear!  I have played with my pain med dosage, with what you discovered in mind.  Sometimes, I take one less PP because I find the next day when I go back to the normal dose I get better relief.  This is something I have done for close to a year when I felt I was getting used to this dosage.  The thought of something stronger scared me, so I decided to try it!  My PMD thought it was a great idea but had his doubts! 

I am elated to hear YOU so happy and creative...you survived, in my book you are AMAZING!

Much love and many blessings to you,

Patti


uniquelyme
Veteran Member


Date Joined Nov 2008
Total Posts : 1037
   Posted 3/10/2009 6:49 AM (GMT -7)   
Scarred,
I, too love to draw with pencils...Maybe after I have my MRI today I will go to the park and draw...It's supposed to get to 80 today here in Nashville....WOW! Spring is here...until Thursday, then it's back to 40...YUK!!!

Glad you are feeling good today.

Me.
 
We are all in the same boat...unfortunatley it seems like it's sinking...
 
Rhonda
Post Lamenectomy Syndrome
Hemi Lamenectomy
Spinal Fusion
 
120 mg. Methadone daily
60 mg. Oxycodone daily
Lyrica as needed 

 


atticbat
New Member


Date Joined Mar 2009
Total Posts : 12
   Posted 3/10/2009 7:41 AM (GMT -7)   
Scarred,
Hi!!
Good luck with your canvas it sounds wonderful!!
I have also found sometimes when I pull back on the pain meds that I can feel ok!!
I think alot of people could benefit from this but we are afraid of
the pain.
Pain keeps alot of us scared to do alot of the things we probably should be doing.
Or maybe trying to be doing.
I made the mistake last week because I felt really good.
And walked one of my dogs. ( dumb)
Sunday I felt like I was having a good day again and I went shopping for longer than 1
Hour, I felt fine. ??????
But I was proud of myself for doing both!!!
I think the key is to work on the med intake by yourself and see where your threshold is!!

Have fun painting!!!
Great day to all!!!

Atticbat yeah

White Beard
Forum Moderator


Date Joined Feb 2009
Total Posts : 3611
   Posted 3/10/2009 8:04 AM (GMT -7)   
Scarred
I am glad that you are feeling better, I must admit, I was more than a little rattled by your post, of your treatment in the ER! I thought it best if I bite my tongue and not say anything, but for similiar reasons I will not go to an ER! While you are drawing, will you sketch a picture for me, what medium is your favorite? I use to do allot of drawing, and sculpture, but I have such a difficult time holding my arms out for any length of time now, and my hands just don't work quite right, and then the spasms set in, so I no longer do it. I have a hard enough time just typing on the computer, that is why I am so slow at typing my replies!.

I do think I will pass on your idea of taking a hiatus from my pain meds, a couple of 2 or 3 times over the years I have missed my dose of Oxycontin, and within 8 hours, I am beside myself in pain, it goes completely off the chart! And my Oxycontin is not that high of a dose, only take 40mg's every 12 hours, but if I miss one, as I said within 8 hours, it is unbearble, at 6 or 7 hours, I know something is not right, but by 8 it is so bad! WOW, and taking a Percocet right then, does little to help, taking two helps a bit, but it still takes around 45 minutes to feel the pain ease-up! And as you know, even 45 minutes can seem like a life time, when you are in excruciating pain! I do hope that you can get something worked out with your pharmacy so you won't have to be in this situation ever again.

Good Luck to You

White Beard
I'm Retired USAF, went back to school and became an RN, and now am on full disability!
Degenerative Disc (affecting mostly the thorasic disc but all levels involved), C6/7 laminectomy/diskectomy& fusion, Osteoarthritis, Ulcerative colitis, Chronic Pain, Fibromyalgia, Complex Sleep Apnea, and host of other things to spice up my life!(NOT!)
 
Medications: Oxycontin, Percocet, Baclofen, Sulfasalazine, Metoprolol,  Folic Acid, Supplemental O2 at 3lpm with VPAP Adapt SV


shannon1
Regular Member


Date Joined Feb 2005
Total Posts : 369
   Posted 3/10/2009 10:14 AM (GMT -7)   
Scarred!!!! Im so glad that you are actually able to notice a difference! I know for sure that my meds make it tolerable for me to go throught the day to.

I hope the weather is good and you can go out and sketch and enjoy your day! Im so happy for you, it's nice to see someone actually ready to enjoy the day! remembr not to over do it tho, we don't want you in alot of pain later! hugs
Jan. 2009, complete hysterectomy, diagnosed stage 4 endometriosis & adenomyosis (age 36)
2003, dx moderate UC
2000, dx selective IGA deficiency w/ anti IGA antibodies
2000, dx Antipholipid Antibody Syndrome
1999-2009, chronic hemmoragic ovarian cysts, w/ partial ovary removal
1977, complete reconstruction of foot after lawnmower accident (chronic pain)
 
Meds
6mp 75mg, prednisone 40mg (just starting meds again)
percocet 5mg 3x day
potassium 3x day
 


Scarred_for_life
Veteran Member


Date Joined Jul 2008
Total Posts : 1559
   Posted 3/10/2009 11:09 AM (GMT -7)   
Well....the weather didn't hold to be able to go out and draw. But, I have been sitting here with my sketch pad on my bed playing with a few sketches and listening to my BBC recording of The Lord of the Rings (see I told you I was a dork ha ha). It's nice to be able to just relax for awhile and not be in so much pain. I really didn't think I was going to make it through the weekend, had the shakes...felt like I had the flu and was just in a crummy place. But the strength inside of me is very tough and what got me through is thinking that I cannot do much about what happened and my doctor explained that I was not the only one that they are having problems with getting scripts to so that made it feel a bit better.

With that also came the realization that I hopefully will soon be getting my SCS and have to remember that I will have to eventually go off my medications and deal with the withdrawls. But since doc is going to decrease me over time that will help I think and things will be a bit easier then. I don't ever want to go through that again that's for sure! I had a long talk with the Pharmacist at Wal-Mart and He is going to make sure that he orders my Kadian every month a week and a half before I have to go in and get it so that I won't be short again. It upset him that I was out for the weekend and I think I made him feel bad LOL.

White: My fav medium for sketching is pencil but I have been playing with pastels lately. I love the brilliant colors and I hate the fact that I left them in the camper that is over in Bucklin. Guess next weekend I will grab them when I am over there :-). My medium for my paintings on canvas is acrylics cause it drys faster and is much easier to use when your in so much pain. I have played with oils and want to go back to them but maybe after everything gets settled with the back (or so it is to be hoped) I will be able to go back to it.

Anyway hugssssssssssssssssssssss

Scarred
What doesn't kill us only makes us fight back harder! :P


PAlady
Veteran Member


Date Joined Nov 2007
Total Posts : 6795
   Posted 3/10/2009 12:39 PM (GMT -7)   
Scarred,
I'm so glad you're feeling better, but I'm not so sure I'd advocate anyone playing with their medication without their doctor's knowledge. With some medications, that could really be dangerous. Some doctors will do medication holidays, especially if someone is developing tolerance at the higher end of the scale of a particular medication, as it sometimes help "reset" the body's tolerance a little. So it may be a good idea, but I hope people check with their doctor first!

PaLady

Scarred_for_life
Veteran Member


Date Joined Jul 2008
Total Posts : 1559
   Posted 3/10/2009 2:09 PM (GMT -7)   
PA; I was NOT playing with my medications intentionally. I was only referring to the fact that since I was almost completely out of medication this weekend and only had 3 50mg capsules of Kadian that it was a good indicator that my medication that I have been taking was indeed working better then I thought it was. I would NEVER tell anyone to play with their medications and I am not saying that, if anyone did decide to lower their dosage or take a hiatus or a "holiday" as someone on this forum put before, I would definitely tell them to consult their doctor before hand. It is in my honest opinion very very dangerous to decrease or go off your medications without telling your doctor and after this weekend of having almost none because of a screw-up on my doctors part and the Pharmacy I would not recommend doing this without a doctor's consultation.

I realize that now that I did not state this and I should have and for that I am very sorry. So if anyone else reads my post above......DO NOT GO OFF YOUR MEDS WITHOUT CONSULTING YOUR DOCTOR!!! It could leave you in a very very bad way!!!!!


Hugs PA

Scarred
What doesn't kill us only makes us fight back harder! :P


PAlady
Veteran Member


Date Joined Nov 2007
Total Posts : 6795
   Posted 3/10/2009 2:59 PM (GMT -7)   
Scarred,
I know you weren't playing around!! You had no choice in the matter!! I was just concerned about someone misinterpreting what you were saying and not knowing your situation.

Ok? :-)

Hugs back at ya! yeah

PaLady
BTW Scarred, when you feel up to it do you want to start a Part 2 of your time to fly thread? I guess that's what Lindaloo wants. If you don't feel like doing it, that's ok, just let us know. wink

Post Edited (PAlady) : 3/10/2009 4:22:06 PM (GMT-6)


edt
Veteran Member


Date Joined Dec 2008
Total Posts : 773
   Posted 3/10/2009 6:13 PM (GMT -7)   

I would like to clarify my post about playing with my med dose....its more adjusting my dose and ALWAYS with and NEVER without my PMD'S involvement!

Our pain meds keep us going for sure!

(((((((((((((((((((((((((((((hugs to all of my friends))))))))))))))))))))

XXOO
Patti

 


Scarred_for_life
Veteran Member


Date Joined Jul 2008
Total Posts : 1559
   Posted 3/10/2009 7:29 PM (GMT -7)   
PA; of course hun. :-) I am sorry if I made it sound like I was upset that was not my purpose not my feelings. When I saw that you had posted that I re-read my original post and to my horror I realized it sounded like I went off my meds without my doctors instructions or care and that is not the case. Actually what I was trying to say (and sometimes the things that I am trying to put into words do not come out right) was that because of this mess up this past weekend I was reaffirmed that my Kadian was working quit well. By no means would I like to see anyone ever go through what I did this last weekend...in fact I wouldn't wish that on my worst enemy! It was horrible I felt like I had the flu! I was achy all over and my nose was stuffed up....I was cranky and in so much pain that I couldn't even move from my bed without being in tears.

Adjusting your pain meds or taking a "Holiday" from your medications should be done under strict supervision by your PCP doctor and not any way else!

Huggles

Scarred
What doesn't kill us only makes us fight back harder! :P


PAlady
Veteran Member


Date Joined Nov 2007
Total Posts : 6795
   Posted 3/10/2009 7:52 PM (GMT -7)   
Scarred,
We all post things that don't come out sounding like we meant them!! Put me in that line, too! smilewinkgrin

Glad you started a new Pt. 2!!! I'll see you there later! yeah

PaLady

Scarred_for_life
Veteran Member


Date Joined Jul 2008
Total Posts : 1559
   Posted 3/11/2009 8:52 AM (GMT -7)   
Thanks PA huggles to you hun for catching my goof up. I didn't realize that I had made it sound like I was condoning playing with your meds without your doc's supervision.

I am so glad that you like the new thread. :-)

Scarred
What doesn't kill us only makes us fight back harder! :P

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