I need some information on pancreatitis

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bamaskies
New Member


Date Joined Feb 2009
Total Posts : 18
   Posted 3/10/2009 5:17 PM (GMT -7)   
Since august I have been having severe pains just in my upper abdomen. I was in the hospital for a week and a ct revealed that my pancreaus was enlarged. I went to a specialist and had an EUS which revealed an enlarged bile duct. At a second procedure the bile duct was streched because of a narrow opening. All that happened in Sept 2008. I have had reaccurring severe pain and nausea at least two weeks of every month since then and in the past two weeks have had nausea and vomiting. I call the doc when I have the worst attacks but all he says is to wait to see if it gets better. He said that I could be put in the hospital for a few days NPO and to see if that helps. I have been increasing my pain meds when I have the attacks but I want to know if any one has had recurring problems and how to approach the doc about doing something about it.
Frankie

all cervical disks removed and L4L5 removed. nerve damage from surgeries and nerve root blockage on siatic nerve in left leg.
chronic pain from failed back and neck surgeries. spinal stenosis, sciatica
depression
 
Look for the better times; they do come. God bless you. 


ryand
Veteran Member


Date Joined Dec 2007
Total Posts : 639
   Posted 3/10/2009 6:00 PM (GMT -7)   
bamaskies:

I am not up to writing much, but I wanted to reply to this. The ONLY treatment for pancreatitis is complete rest of the digestive system. That is - stop eating and drinking - NPO like the doctor said. If you have an extremely mild case, a liquid diet or soft diet might be okay. You just have to learn your body. The worse it gets, the worse you make it by trying to digest anything - including pills. If you continue to irritate the pancreas, it can progress to severe and scary levels. Don't mess with this. Listen to your doctor.

Ry

Dagger
Veteran Member


Date Joined Apr 2008
Total Posts : 1522
   Posted 3/10/2009 8:03 PM (GMT -7)   
If you are worried, you should get a second opinion.

king1234
Regular Member


Date Joined Nov 2006
Total Posts : 491
   Posted 3/24/2009 8:32 PM (GMT -7)   
I am in somewhat a similiar boat. For 1 1/2 months I have had upper left ab pain on and off daily and some centered burning too. My lipase was elevated mildly. My dr also checked my ca 19 (tumor marker for pancreas)-he had checked this previously as well as my dad died of PC. So here goes, in Sept my ca 19 was slightly elevated at 42, retested in Feb it was 37 (high normal) retested when the pains started (4 wks after the Feb test) and it was 66-so dbl normal and dbl what it was 4 wks prior.
 
I am terrified I have cancer vs mild pancreatitis.
 
My Ab US, CT and EUS were all clear. However, I have read that PC can be missed on scans due to location.
 
This pain continues and I dont know if its normal to have mild pancreatitis for this long.
 
I am going to get an MRI too....
 
Any feedback appreciated.
----------------------------------------------------------------------
34 yr old female/GERD dx 3/07/Migraines with Aura/IBS
SYMPTOMS  migratory joint/bone pain, extreme joint cracking, feet buzzing/vibrating, right eye pain,mid spine soreness (like a constant bruise) fatigue and dizzy spells, bumps and indents on nails. 
New as of Aug-muscle twitching throughout my bod NONSTOP DAILY EVERYWHERE. 
 TESTS-BloodCBC,ANA,Sed rate,Lupus,RA, Vit D,Anti nuc,Calcium.TSH T3 -Too many to list -all CLEAR
 Scans/xraysUltra sound of stomach organs,Sig/colonoscopy (mid way through),MRI of head and spine, full body bone scan-ALL CLEAR
2/09-UPPER LEFT SIDE AB PAIN MID CENTER BURNING "DX" AS MILD PANCREATITIS-STILL UNDERGOING FURTHER TESTING.
 
 
 
 
 
 


Hello~Kitty
Veteran Member


Date Joined Jun 2005
Total Posts : 610
   Posted 3/24/2009 9:33 PM (GMT -7)   
I have pacreatic divisum, which is a genetic disorder, my pancreas never fused together before I was born like it was suppose to. They did an ERCP and put a stent in. So I understand that pain, it's the worse. It started when I was 14 with gallstones, and then after I had my gallbladder removed when I was 15, the pain came back, so we knew it wasnt my gallbladder anymore cause that was gone, so they thought maybe a stone was stuck in my pancreas, which I heard is common with gallstones. Well they found out I had this pancreatic divisum and put a stent in cause the ducts where too small. It took a while for the pain to finally subside, about 4 years. The GI doctor had to refer me to a pain specialist cause my insurance wouldnt pay for him to do anything else to my pancreas, and was right away put on oxycontin and pancreas enzymes and actiq for when I had breakthrough pain at 19 years old. It was not a fun few years, but now I do suffer drom time to time with pain, but also being on a low protiene and low fat diet is a MAJOR thing your going to wanna follow, I'm sure your doctor has already told you this. And it's embarrassing sometimes for me to have this because when I tell people I have a history of chronic pancreatitas they automatically think It was due to drinking too much, so I always have to excplain to the doctors and nurses who have no idea what pancreatic divisum is. But I feel for you, pancretitas has been known to be one of the worse pains a person can go thru, nothing worse then the high fevers and vomiting up that brown bile, it feels like the pain is in your chest and back, and it hurts to move, breathe, or even scream. I know I will never forget that pain, much worse then gallstones, migraines, and childbirth with no drugs, 100 times worse!!! I know the GI doctor even talked about putting in a feeding tube to help with the pain, he even wanted to do some botox in a few places around my pancreas, but of course my iinsurance wouldnt touch that, they said I could be helped with a medicine that I'm allergic to, but they said I could take benadryl, so I told them to forget it, I was not taking that med, even if my life depended on it.

-hellokitty
26 year old Female , single mother of 2 kids, on SSI for migraines, pain, pancreas issues
All the things broken with me: Migraines, Fibromyalgia, Chronic lower back pain that causes severe pain/numbness/tingling especially to my left leg, Genetic Pancreatic Divisum that causes chronic pancreatitas, Asthma, Depression w/Anxiety/panic attacks
Prescription Meds:Suboxone 24mgs daily, Cymbalta 60mg nightly, Lyrica 50mgs nightly, Imitrex as needed, Ibprofen 800 twice daily, Zanaflex as needed, Ventolin as needed for asthma attacks, Advair twice daily
Over the conter meds: Benadryl nightly for itching due to meds (not sure which one yet),
Surgeries: Gallbladder removed at 15 years old, 2 ERCPs, stent put in pancreas, countless upper GI scopes, Bartholin gland opened permanetly due to recurring painful cysts
Goals: to go to college next fall to be a nurse and get off of SSI
Wishful thinking: to not be in pain!!!


king1234
Regular Member


Date Joined Nov 2006
Total Posts : 491
   Posted 3/24/2009 9:41 PM (GMT -7)   
Wow you have been through alot. The dr did not tell me about low protein, good to know seeing as I eat turkey daily.
 
My pain is thankfully not severe, but it is there on and off throughout the day. No throwing up, or fever either.

I am so terrified its cancer.
----------------------------------------------------------------------
34 yr old female/GERD dx 3/07/Migraines with Aura/IBS
SYMPTOMS  migratory joint/bone pain, extreme joint cracking, feet buzzing/vibrating, right eye pain,mid spine soreness (like a constant bruise) fatigue and dizzy spells, bumps and indents on nails. 
New as of Aug-muscle twitching throughout my bod NONSTOP DAILY EVERYWHERE. 
 TESTS-BloodCBC,ANA,Sed rate,Lupus,RA, Vit D,Anti nuc,Calcium.TSH T3 -Too many to list -all CLEAR
 Scans/xraysUltra sound of stomach organs,Sig/colonoscopy (mid way through),MRI of head and spine, full body bone scan-ALL CLEAR
2/09-UPPER LEFT SIDE AB PAIN MID CENTER BURNING "DX" AS MILD PANCREATITIS-STILL UNDERGOING FURTHER TESTING.
 
 
 
 
 
 


hsmom24boys
Regular Member


Date Joined May 2007
Total Posts : 53
   Posted 3/25/2009 1:14 PM (GMT -7)   
It sounds like you may have chronic pancreatitis.  Do you have loose stools with fat rings surrounding the toliet bowl?  I have the same kind of pain and have finally been given a diagnosis.  Viokase is a pancreatic enzyme that was rx'ed for me along with Zofran and Reglan for the nausea. You have to take the Viokase with each meal and you have to take a Prilosec every day for the Viokase to work. After 6 months it seems to be helping some.  The nausea meds help a lot.  Also try to notice foods that may aggrivate it.  I can't tolerate anything carbonated.  And I have found that lying on my left side helps when the pain is bad. Remember that chronic pancreatitis is a completely different animal from acute pancreatitis. By the screen name, I take it you are in Alabama?  I live in the Montgomery area.
Diagnosed with chronic pancreatitis last year. Still searching for diagnosis and treatment of widespread joint pain.
  Homeschool mom 2 four boys (make that 3, we graduated one!)
Labor and Delivery RN
Beloved, Think it not strange concerning the fiery trial which is to try you, as though some strange thing happened unto you, But rejoice in as much as yea are partakers of Christ's sufferings: that when His glory shall be revealed, ye may be glad also with exceeding joy.    I Peter 4:12-13


Jules22871
Regular Member


Date Joined Jan 2006
Total Posts : 142
   Posted 3/25/2009 1:18 PM (GMT -7)   
I am really sorry to hear about what you are going. I have had abdominal pain before and it isn't fun at all. I hope they figure out what is going on so you can get some relief.
Motorcycle wreck 08/2004: 119 fx, 13 surgeries with more to go, including 5 bone grafts, 2 skin grafts, pelvic reconstruction x2. Right leg is 1.5" shorter than left. Have to wear knee brace for life and also AFO brace for drop foot. Nerve damage from hip down to toes, nerve pain in lower leg. Spinal fusion. Will be on crutches the rest of my life. Pain level never below 5 even on pain meds. Since August 2007 I have been diagnosed with chronic atelactesis, tachycardia, high blood pressure, borderline personality disorder, depression and Delayed sleep phase syndrome


king1234
Regular Member


Date Joined Nov 2006
Total Posts : 491
   Posted 3/25/2009 2:01 PM (GMT -7)   
Would chronic pancreatitis cause daily pain for over a month w/out nasua? My pains are also upper left and they come and go throughout the day, like light stabs also some upper centered burning. Sometimes I seem to set it off by bending over. My EUS did not show any inflammation. I am scared its PC
----------------------------------------------------------------------
34 yr old female/GERD dx 3/07/Migraines with Aura/IBS
SYMPTOMS  migratory joint/bone pain, extreme joint cracking, feet buzzing/vibrating, right eye pain,mid spine soreness (like a constant bruise) fatigue and dizzy spells, bumps and indents on nails. 
New as of Aug-muscle twitching throughout my bod NONSTOP DAILY EVERYWHERE. 
 TESTS-BloodCBC,ANA,Sed rate,Lupus,RA, Vit D,Anti nuc,Calcium.TSH T3 -Too many to list -all CLEAR
 Scans/xraysUltra sound of stomach organs,Sig/colonoscopy (mid way through),MRI of head and spine, full body bone scan-ALL CLEAR
2/09-UPPER LEFT SIDE AB PAIN MID CENTER BURNING "DX" AS MILD PANCREATITIS-STILL UNDERGOING FURTHER TESTING.
 
 
 
 
 
 


hsmom24boys
Regular Member


Date Joined May 2007
Total Posts : 53
   Posted 3/25/2009 2:35 PM (GMT -7)   
Yes. My EUS, MRI, MRCP never showed chronic pancreatitis changes, but yet my symptoms are consistant with the diagnosis and the meds seem to help. From what I know, Pancreatic cancer would show in the imaging studies. my pain is pretty constant upper left and through to my back and is made worse with any kind of pressure in that area. Nausea and poor appitite and wt loss are also involved. If you don't get answers, get another GI MD. Waiting isn't the best option, he should try Viokase and give you nausea meds. Eat small meals low in fat when the nausea is better.
Diagnosed with chronic pancreatitis last year. Still searching for diagnosis and treatment of widespread joint pain.
  Homeschool mom 2 four boys (make that 3, we graduated one!)
Labor and Delivery RN
Beloved, Think it not strange concerning the fiery trial which is to try you, as though some strange thing happened unto you, But rejoice in as much as yea are partakers of Christ's sufferings: that when His glory shall be revealed, ye may be glad also with exceeding joy.    I Peter 4:12-13


king1234
Regular Member


Date Joined Nov 2006
Total Posts : 491
   Posted 3/25/2009 2:49 PM (GMT -7)   

Thanks for your response. I am petrfied of PC as my dad died of it. My lipase has been slightly elevated and CA 19 (tumor marker) is dbl normal-though Ihave been told this rises with any inflammation to the pancreas or other areas. I have read of PC being missed on scans etc. so of course I think the worst!

 

I dont really get naseua. Mainly its this nagging upper left pain that comes and goes throughout the day, and I get centered burning too. If I bend over it can set it off-is that odd?

 

I was dx as having GERD 2 yrs ago due to upper stabbing pains around heart area and some burning, for the most part I could control it with aciphex but did have breakthrough pains. I wonder--could it have been pancreatitis this whole time.

 

Wondering if my birth control could be a factor too

I appreciate you sharing your knowledge with us...

 

 


----------------------------------------------------------------------
34 yr old female/GERD dx 3/07/Migraines with Aura/IBS
SYMPTOMS  migratory joint/bone pain, extreme joint cracking, feet buzzing/vibrating, right eye pain,mid spine soreness (like a constant bruise) fatigue and dizzy spells, bumps and indents on nails. 
New as of Aug-muscle twitching throughout my bod NONSTOP DAILY EVERYWHERE. 
 TESTS-BloodCBC,ANA,Sed rate,Lupus,RA, Vit D,Anti nuc,Calcium.TSH T3 -Too many to list -all CLEAR
 Scans/xraysUltra sound of stomach organs,Sig/colonoscopy (mid way through),MRI of head and spine, full body bone scan-ALL CLEAR
2/09-UPPER LEFT SIDE AB PAIN MID CENTER BURNING "DX" AS MILD PANCREATITIS-STILL UNDERGOING FURTHER TESTING.
 
 
 
 
 
 


hsmom24boys
Regular Member


Date Joined May 2007
Total Posts : 53
   Posted 3/26/2009 5:23 AM (GMT -7)   
have you had an MRCP done? If not, I would ask them to do one, just to be sure. And if it turns out to be chronic pancreatitis, make sure you are followed up regularly because you have increased risk factors for PC. Not trying to scare you, just the truth. Chronic pancreatitis is likely given your history of a narrowed bile duct.
Diagnosed with chronic pancreatitis last year. Still searching for diagnosis and treatment of widespread joint pain.
  Homeschool mom 2 four boys (make that 3, we graduated one!)
Labor and Delivery RN
Beloved, Think it not strange concerning the fiery trial which is to try you, as though some strange thing happened unto you, But rejoice in as much as yea are partakers of Christ's sufferings: that when His glory shall be revealed, ye may be glad also with exceeding joy.    I Peter 4:12-13


king1234
Regular Member


Date Joined Nov 2006
Total Posts : 491
   Posted 3/31/2009 5:10 PM (GMT -7)   
HSmom- I noticed you have widespread joint pain. I have had this for 8 plus months, but they are random stabbing pains. Are yours similiar?
----------------------------------------------------------------------
34 yr old female/GERD dx 3/07/Migraines with Aura/IBS
SYMPTOMS  migratory joint/bone pain, extreme joint cracking, feet buzzing/vibrating, right eye pain,mid spine soreness (like a constant bruise) fatigue and dizzy spells, bumps and indents on nails. 
New as of Aug-muscle twitching throughout my bod NONSTOP DAILY EVERYWHERE. 
 TESTS-BloodCBC,ANA,Sed rate,Lupus,RA, Vit D,Anti nuc,Calcium.TSH T3 -Too many to list -all CLEAR
 Scans/xraysUltra sound of stomach organs,Sig/colonoscopy (mid way through),MRI of head and spine, full body bone scan-ALL CLEAR
2/09-UPPER LEFT SIDE AB PAIN MID CENTER BURNING "DX" AS MILD PANCREATITIS-STILL UNDERGOING FURTHER TESTING.
 
 
 
 
 
 


hsmom24boys
Regular Member


Date Joined May 2007
Total Posts : 53
   Posted 4/1/2009 6:10 AM (GMT -7)   
My joint pain is like you have jammed your finger --- but in all my joints.  I was diagnosed last week with polyarthritis.  This is likely rheumatoid but I don't quite meet the criteria yet.  I started on plaquinil and pain meds and am very thankful to have a diagnosis and a treatment --- and a MD to take me seriously.

Diagnosed with chronic pancreatitis last year. Still searching for diagnosis and treatment of widespread joint pain.
  Homeschool mom 2 four boys (make that 3, we graduated one!)
Labor and Delivery RN
Beloved, Think it not strange concerning the fiery trial which is to try you, as though some strange thing happened unto you, But rejoice in as much as yea are partakers of Christ's sufferings: that when His glory shall be revealed, ye may be glad also with exceeding joy.    I Peter 4:12-13


Minnesota
Regular Member


Date Joined Jan 2012
Total Posts : 131
   Posted 5/2/2014 6:47 AM (GMT -7)   
I wanted to jump in here given that some of you seem well versed in pancreatitus.  I would really like some comments on my deal and compare them to what I am reading.  Had gallbladder removal in August of '13 after enduring 5 months of abdominal cramping, distention, and pain whenever using my core muscles.  The HIDA scan revealed a slightly low functioning GB.  Given I was so tired of dealing with the symptoms, I had it removed.  For 5 months after this, everything was back to normal (even my diet).  Then in early January of this year, I started getting the massive stomach bloating and cramping again (out of nowhere mind you). This progressed as though my GB grew back.  GI doc noted some pancreas enzymes were high in my blood test, suggested an ERCP.  So, went ahead with this mid March.  Felt decent for a week after, then bam, the same symptoms set in but this time with more nausea.  Pacreas enzymes high again.  One item I did not see with others is the bloating of the stomach.  Anyone else have this mixed in? I was then put on a small dose of Remeron, an SSRI medication that can regulate the digestive system.  Curious if anyone else has tried this.  Seemed to work for the past couple of weeks (reducing symptoms, not eliminating) but then yesterday the same symptoms came roaring back.  This is really affecting my quality of life and ability to carry on my job.  The CT scans and MRI test reveal nothing serious, but that I am backed up with stool.  I contend that the stool deal is a byproduct of something else...possibly chronic pancreatitus?  It seems like my ordeal fits this set of symptoms.  Not sure where to turn if the symptoms continue at this level.  I get the feeling my GI doc is tired of treating me.  Couple things....scar tissue in the bile duct from the ERCP?  Would a genetic test help to see if I have the markets consistent with chronic pancreatitus?  Could bacteria be doing something here?  Like most of you, I am just looking for answers given that I know something has broken down internally.

straydog
Forum Moderator


Date Joined Feb 2003
Total Posts : 13481
   Posted 5/2/2014 7:25 AM (GMT -7)   
Hello Minnesota, I need to point out that you have posted on a very old thread that is 5 yrs old and none of the original posters are still at Healing Well. You may want to use the search feature here at Healing Well & see if you can pull up posts about pancreatitis. As far as I know we do not have any members dealing with this problem.

I had a neighbor that had this for years & was in & out of the hospital all the time. She said she finally made the decision to eat a proper diet for pancreatitis & this stopped the attacks & she has stayed out of the hospital since.

I suggest getting a 2nd opinion with another GI dr & take it from there. So sorry I cannot be of much help. Since this is such an old thread I am going to lock it.

Take care.
Susie
Moderator Chronic Pain & Psoriasis Forums
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