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nurse2
Regular Member


Date Joined Jul 2005
Total Posts : 229
   Posted 3/16/2009 6:11 PM (GMT -7)   
I did everything I was supposed to after the epidural.....didn't even get dressed for three days. I'm still having waves  of nausea and I'm so horribly exhausted that I feel like my hemagloblin should be about 2!  I still get a headache if I turn my head much. Maybe this is just going to be the way it is. I was going to cancel the appt. with the pain group but everyone says to just go for the consultation and see what they say. I got an appt. with another rheumy next month. The doc who did my epidural told me not to go back to the last one.  I have to have a psych interview the end of the month for my disability request. I keep getting tons of paperwork to fill out and they want to know EVERYTHING you do during your day! I'm beginning to be sorry that I ever started this disability thing but I have worked so hard all of my life and now I can't work at all. Oh well, nothing good ever comes easy. I just think that the psych eval is a big waste of time and money for the state....mine is purely a physical handicap. Do they not read these forms they make you fill out?
Nurse2
Degenerative disc disease,osteoarthritis, status post 4 cervical spinal surgeries with plate insertions and fusion, Lupus, Sjogren's Disease, Fibromyalgia, chronic heacaches and chronic pain.


White Beard
Forum Moderator


Date Joined Feb 2009
Total Posts : 3611
   Posted 3/16/2009 6:22 PM (GMT -7)   
nurse2 do those epidurals help you? I have yet to have one that gave me more than just 3 weeks (max) of any type of relief! Most have caused me more pain, than anything else!

I am sorry that you are having so much trouble, I do hope you get to feeling better! You know the paper work is a real hassle for the disability, there are so many hoops to jump through! But hang there, if you can't work it will all be worht it in the end!

Good Luck to You

White Beard
 

I'm Retired USAF, went back to school and became an RN, and now am on ful disalbility!

Degenerative Disc (affecting mostly the thorasic disc but all levels involved), C6/7 laminectomy/diskectomy& fusion, Osteoarthritis, Ulcerative colitis, Chronic Pain, Fibromyalgia, Complex Sleep Apnea, and host of other things to spice up my life!(NOT!)

Medications: Oxycontin, Percocet, Baclofen, Sulfasalazine, Metoprolol, Folic Acid, Supplemental O2 at 3lpm with VPAP Adapt SV


ekkorose
Regular Member


Date Joined Jul 2008
Total Posts : 329
   Posted 3/16/2009 7:17 PM (GMT -7)   
Nurse,

My epi has caused me a myriad of problems as well. I became a crying mess for three days and have had really bad heart palpatations. These symptoms are just now subsiding but my injection site is still sore when I bend my head in certain ways,

I hope you feel better soon and just wanted to let you know someone shares your problems.

Take care,
Sarrah

Hysterectomy at 25

4 laproscopic surgeries since 24

Cervical stenosis in C3 & C4

_____________________________________________

 

Meds - percocet  3x day : nexium : xanax :

Supplements : calcium : magenesium :potassium : milk thistle : fish oil : B complex : vit E

____________________________________________

In the United States today, there is a pervasive tendency to treat children as adults, and adults as children. The options of children are thus steadily expanded, while those of adults are progressively constricted. The result is unruly children and childish adults. ~Thomas Szasz 


bluejet2
Regular Member


Date Joined Feb 2009
Total Posts : 487
   Posted 3/16/2009 9:07 PM (GMT -7)   

Hi Nurse2:

I just wanted to let you know that there is another person out here that is thinking about you during this difficult time.  Do you have a Spinal headache from the procedure?  I had one after each of my C-sections, and after my intrathecal pump trial and it was the worst headache I have ever had (and I suffer from migraines that have put me in the hospital), and I had terrible nausea too.  I literally had to hold my head up with my hands to walk to the bathroom because I felt like I had no muscle control.

It took some time, but the good news is that it was temporary. 

I hope that you are feeling better real soon.

As far as the paperwork for disability, I truly believe they are hoping you will be so overwhelmed by the paperwork, that you will give up, but we must persevere! 

Bluejet2

 

 


skrape
Regular Member


Date Joined Feb 2009
Total Posts : 141
   Posted 3/17/2009 5:22 AM (GMT -7)   
Nurse2,

I had a spinal/epidural in November and it sent me spiraling downward. The morning after, I had to sit on the edge of my bed for over an hour to even be able to stand up. I moved as well as I could to the couch and stayed there for about 3 days. This procedure made my pain in my back jump from around a 6 to a solid 8.5. I saw the PM doc again and told her what happened. She told me I was lying and that no one has ever had a bad reaction to an epidural before, ever! I know now that she was in CYA mode. Keep your head up, it does get better eventually. I will be thinking about you, I know what it's like to have an epidural do nothing but harm to you.


Skrape
Fentanyl Patch - 100mcgs x 72 hours
Baclofen - 10mg x 8 hours


edt
Veteran Member


Date Joined Dec 2008
Total Posts : 773
   Posted 3/17/2009 6:00 AM (GMT -7)   

Nurse2,

I am so sorry, this is happening to you.  One of my friends had a reaction similar to this, she finally got through the side effects and in the end it did help the pain.   Hopefully, there is light at the end of the tunnel SOON, sending you a big warm tender hug(s)!!!!!!!!!

((((((((((((((((((((Nurse2)))))))))))))))))

XXOO
Patti


nurse2
Regular Member


Date Joined Jul 2005
Total Posts : 229
   Posted 3/26/2009 12:03 AM (GMT -7)   
Thanks for the kind words. I still have a killer headache that I can't get any relief from. I'm not sleeping more that 2-3 hrs a night and then those are choppy. I  think that the increase in Neurontin is screwing with my vision.  I don't know if it is just that I am so tired or what. I had my PT eval yesterday and start hydrotherapy around 10 a.m. today. They are going to move very slowly and for the first week of so I will just get into the pool and walk and then have the jets against my neck. My psych eval is Fri. for my disability. I have to go back to the doctor who does my epidurals for an exam and consult before he will sign off on the disability. Wish me luck.
Nurse2
Degenerative disc disease,osteoarthritis, status post 4 cervical spinal surgeries with plate insertions and fusion, Lupus, Sjogren's Disease, Fibromyalgia, chronic heacaches and chronic pain.


Jules22871
Regular Member


Date Joined Jan 2006
Total Posts : 142
   Posted 3/26/2009 12:40 AM (GMT -7)   
Dear nurse, I am so sorry that you are going thru such a hard time. It always seems the darkest before the dawn. I had to go thru the psych eval with my disability application too just because I am on Elavil. But the did find out that I had depression and PTSD to go along with everything else that is wrong and that just helped my case some. I took nuerontonin for nerve pain and I hated that stuff. It permanently messed up my vision. I lost a full power in each eye in less than 4 months and didn't really get any relief from the med so I quit taking it. The side effects are worse than the nerve pain for me.

I really hope you get some relief soon. I wish you the best of luck!

Jules
Motorcycle wreck 08/2004: 119 fx, 13 surgeries with more to go, including 5 bone grafts, 2 skin grafts, pelvic reconstruction x2. Right leg is 1.5" shorter than left. Have to wear knee brace for life and also AFO brace for drop foot. Nerve damage from hip down to toes, nerve pain in lower leg. Spinal fusion. Will be on crutches the rest of my life. Pain level never below 5 even on pain meds. Since August 2007 I have been diagnosed with chronic atelactesis, tachycardia, high blood pressure, borderline personality disorder, depression and Delayed sleep phase syndrome


White Beard
Forum Moderator


Date Joined Feb 2009
Total Posts : 3611
   Posted 3/26/2009 1:32 AM (GMT -7)   
stillrecovering you know it has been quite a few years ago now but my doc had put me on nuerotonin and I was only on it for 3 or 4 weeks and I had just gotten new glasses with a new prescription about 6 weeks before I was put on the nuerotonin and it screwed up my vision so bad I ended up digging out an old pair of glasses that I had from at least 5 or 6 years earlier that I could finally see out of. I also immediately quit taking it. It also never did anything for my pain!

nurse2 good luck to you I hope everything goes well for you with getting your disability!

White Beard
 

I'm Retired USAF, went back to school and became an RN, and now am on ful disalbility!

Degenerative Disc (affecting mostly the thorasic disc but all levels involved), C6/7 laminectomy/diskectomy& fusion, Osteoarthritis, Ulcerative colitis, Chronic Pain, Fibromyalgia, Complex Sleep Apnea, and host of other things to spice up my life!(NOT!)

Medications: Oxycontin, Percocet, Baclofen, Sulfasalazine, Metoprolol, Folic Acid, Supplemental O2 at 3lpm with VPAP Adapt SV


Pamela Neckpain
Veteran Member


Date Joined May 2008
Total Posts : 1821
   Posted 3/26/2009 3:35 AM (GMT -7)   
Hi Bluejet,

Why did you have this procedure right after your intrathecal pump trial. I am
wondering because I may possibly have this pump trial and I NEED to know. :-)

White Beard & Still Recovering,

I have taken Neurontin for years. I don't question it, but my eyes are tetting worse
It's difficult for me to read ANY book. I don't have a lap top so my time on the
computer is really limited.

Neurontin and Old Age are racing to mess up my eyes. I'd rather go to the dentist
than to the ophamologist. (Has somehing to do witn a childhood memory.) Have
no ideas what it's about.

Pamela

White Beard
Forum Moderator


Date Joined Feb 2009
Total Posts : 3611
   Posted 3/26/2009 7:30 AM (GMT -7)   
Pamela after that happened I read up on the stuff and sure enough in my Drug Guide listed under Adverse events observed, and then further down under special senses, it says Frequent Abnormal vision!

Now as for "Old Age" It looks like I am losing that race! smile! I wonder what happened with you getting yours eyes checked? I know most people are just the opposite, they would rather see an Eye doctor than go to a Dentist! For along time I would have rather seen any other type of Doctor other than a Dentist. Because a Dentist always meant PAIN!

White Beard
 

I'm Retired USAF, went back to school and became an RN, and now am on ful disalbility!

Degenerative Disc (affecting mostly the thorasic disc but all levels involved), C6/7 laminectomy/diskectomy& fusion, Osteoarthritis, Ulcerative colitis, Chronic Pain, Fibromyalgia, Complex Sleep Apnea, and host of other things to spice up my life!(NOT!)

Medications: Oxycontin, Percocet, Baclofen, Sulfasalazine, Metoprolol, Folic Acid, Supplemental O2 at 3lpm with VPAP Adapt SV


Pamela Neckpain
Veteran Member


Date Joined May 2008
Total Posts : 1821
   Posted 3/26/2009 9:23 PM (GMT -7)   
eye doctors see into your soul.
i had no way to floss,
brush & water pick & gargle
my soul.

pamela

i will tell you more in
e-mail IF you have an
enquiring mind. i can't
e-mail

Post Edited (Pamela Neckpain) : 3/26/2009 10:28:37 PM (GMT-6)


nurse2
Regular Member


Date Joined Jul 2005
Total Posts : 229
   Posted 4/11/2009 4:01 AM (GMT -7)   
I saw my dpc yesterday and I really like him. He agreed that the Neurontin had been the cause of my edema and shortness of breath. I had already cut it backe to 1800 mg, and that things are a little better. I still feel a little "winded" a little and my hands still really hurt. Now it's a atter time before all of the swelling goes down. I just love this doc. He shoots straight from the hip it. And he truly tries to help me. I changed back to the Cymbalta over the Prozac. All I did was cry and want to just randomly slap people for just breathing. I was so very miserable and I wanted everyone else to be as miserable as I was. Sounds like I'm a Holy terror or something but, I'm not. Just too many changes in and types of medication too quick. Oh well, another day tomorrow, wright? I hope you have a wonddeful
Degenerative disc disease,osteoarthritis, status post 4 cervical spinal surgeries with plate insertions and fusion, Lupus, Sjogren's Disease, Fibromyalgia, chronic heacaches and chronic pain.


White Beard
Forum Moderator


Date Joined Feb 2009
Total Posts : 3611
   Posted 4/11/2009 8:18 AM (GMT -7)   

nurse2

I hope you got you got your meds all straightened out! It is weird the affects they can have on you!

I hope you also have a wonderful wonderful!

White Beard


  I'm Retired USAF, went back to school and became an RN, and now am on full disalbility!--Degenerative Disc (affecting mostly the thorasic disc but all levels involved), C6/7 laminectomy/diskectomy& fusion, Osteoarthritis, Ulcerative colitis, Chronic Pain, Fibromyalgia, Complex Sleep Apnea, and host of other things to spice up my life!(NOT!) Medications: Oxycontin, Percocet, Baclofen, Sulfasalazine, Metoprolol, Folic Acid, Supplemental O2 at 3lpm with VPAP Adapt SV


uniquelyme
Veteran Member


Date Joined Nov 2008
Total Posts : 1037
   Posted 4/11/2009 11:19 AM (GMT -7)   
 
 
I have had a couple of epidural injections and a caudle injection. The first one was okay, I was pretty young and hadn't had any surgeries yet. They gave me liquid valium and it seemed to work for a little while.  The second one was after a surgery...several years after.  I had so much scar tissue built up that the Dr. said it was like trying to put a needle in a block of wood.  He said "Never again".  They wouldn't even give me a sedative!!
 
So, I don't have to worry about having that done again...
 
Me.

 
We are all in the same boat...unfortunatley it seems like it's sinking...
Post Lamenectomy Syndrome
Hemi Lamenectomy/Spinal Fusion(Lumbar)
120 mg. Methadone daily /15 mg. Oxycodone as needed
High Blood Pressure: Lisinopril HCTZ 10 mg. daily
Type 2Diabetes: (March 16, 2009)
Metformin 850 mg. twice daily (so far)
ME. (Rhonda)                                                                    

 


nurse2
Regular Member


Date Joined Jul 2005
Total Posts : 229
   Posted 4/12/2009 5:55 PM (GMT -7)   

Well, I read my last e-mail back just now and again I sounded like an idiot. My Ambian must have kicked in or something. Who knows these days. Sometimes I swear that they substitute some of my pills with "stupid" pills just for fun. I hope that everyone had a wonderful Easter. We had a little Easter egg hunt at my house for the grandkids (ages 2 1/2 and 1 yrs. old) It was a hoot! Isabella was just bopping around picking up one and then another. Ethan, the younger one had no idea what he was doing but he had a good time anyway. I had a wonderful Easter suprise.....I was laying on the couch and one of my crowns on my teeth just fell out into my mouth! Now, I've had both knees replaced and spinal surgeries and many other nasty things done to me but nothing compares, for me at least, like going to the dentist! With the Sjogren's Disease my teeth are dying and the thousands of dollars I have spent on dental work I couldn't even add that high. Now one just fell off and into my mouth! I hope and pray that he can super glue the thing back in but tht would probably be too easy for it to happen to me! And, the 2+ pitting edema is back in my legs up to above my knees and I haave that "winded" feeling again around  my epigastric area.  I took 40mg. of Lasix and it didn't even make me run to the bathroom like it usually does! I feel like a toothless blowfish! Oh well, at least I didn't swallow it! If the thing starts hurting I think that I'll get down that really old (probably 8yrs. old) bottle of Whiskey that I have. I bet it has aged to perfection! :) You can see how much I drink! I hope everyone got a wonderful day today.

Nurse 2


Degenerative disc disease,osteoarthritis, status post 4 cervical spinal surgeries with plate insertions and fusion, Lupus, Sjogren's Disease, Fibromyalgia, chronic heacaches and chronic pain.


White Beard
Forum Moderator


Date Joined Feb 2009
Total Posts : 3611
   Posted 4/12/2009 6:33 PM (GMT -7)   
nurse2 I am sorry about your tooth, I don't envy you going to the dentist, I would rather go to a Doctor any day than go to the dentist! I have been doing some reading, and nurse2 you have my up-most admiration ( I can not find the words that I am looking for to describe what I want to say!) let me just put it this way ( and I know you already know this) but my God you have allot going on with you you! Just one of your problems would be enough of anyone to have! I do hope your pitting edema goes down! I am glad you had a good day with your Grandchildren!

May only the best things come your way!

White Beard
  I'm Retired USAF, went back to school and became an RN, and now am on full disalbility!--Degenerative Disc (affecting mostly the thorasic disc but all levels involved), C6/7 laminectomy/diskectomy& fusion, Osteoarthritis, Ulcerative colitis, Chronic Pain, Fibromyalgia, Complex Sleep Apnea, and host of other things to spice up my life!(NOT!) Medications: Oxycontin, Percocet, Baclofen, Sulfasalazine, Metoprolol, Folic Acid, Supplemental O2 at 3lpm with VPAP Adapt SV


Pamela Neckpain
Veteran Member


Date Joined May 2008
Total Posts : 1821
   Posted 4/13/2009 7:01 AM (GMT -7)   
Everyone needs a dentist who gives nitrous oxide. It is a blessing for all.
For chronic pain people it's a miracle medicine. I feel sooooooooooo much
better for about two days after the nitrous. He used to give me a lot and
that's when it worked so good. Now that I'm HIS PATIENT, I do not get so
much Nitrous.

Maybe I'll change dentists. I can't even afford to go to the dentist now so I don't
know what I'm talking about.

Nurse2, I'm sorry you're not feeling well. I hope you're better soon.


Pamela

Tony McGuire
Regular Member


Date Joined Feb 2009
Total Posts : 483
   Posted 4/13/2009 7:28 AM (GMT -7)   
Nurse2,

My respect for your ability to handle this, and as for the dentist - wait till it is bad enough to just knock out with a baseball bat. :-)

I'll deal with neuropathic pain any time, before I'll deal with pain from an impacted tooth.

A coupla prayers, in my signature, for your quick recovery from both.
Wife: Liz, the choice of a lifetime
Dogs: Koshka & Chomp
Koshka Prayer
Chomp Prayer

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