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skrape
Regular Member


Date Joined Feb 2009
Total Posts : 141
   Posted 3/18/2009 5:49 AM (GMT -7)   
I do not know if it is the Fentanyl or the Baclofen that the doc upped the dosage on but I have been getting bad, bad headaches lately. Before he upped the dosage on the two, I woke up with a headache every morning (just since starting these drugs) but it was not terribly bad. The doc upped my dosages on Thursday and I have been having 2 to 3 bad headaches every day since. I think I woke up yesterday morning without much of a headache but that was the only time. Right now it is so bad that I cannot see straight. If I cough it is like someone set off a bomb in my head. Blowing my nose, torture. I will take this over the back pain but wow, this is BAD. My back is chronic but this headache stuff is acute, very acute. I am in a lot of pain right now....

While writing this, I just got really nauseous and lost it. Had to run to the kitchen and grab a bowl. OMG this is bad...


Skrape
Fentanyl Patch - 100mcgs x 72 hours
Baclofen - 10mg x 8 hours


Momcares
New Member


Date Joined Feb 2009
Total Posts : 16
   Posted 3/18/2009 8:06 AM (GMT -7)   
Do me a favor call your doctor-have someone check your blood pressure!! Do something! Momcares

My daughter has been in chronic pain for seven yrs after a work related injury that caused neuropathy pain in her thoracic vertebrae area. She has tried physical therapy, she has had 3 failed neural stimulators surgeries 2 which were implanted directly into her spine, morphine pain pump that was infected during implant -caused her to go septic and needed to be remove-took a year to heal.On Bipap w/ oyxgen. Doc has tried neurotin, lyrica, hydrocondone,methadone, percocet, etc. all with serious side effects, now on MS Contin 30mg 4x daily for pain and morphine 15mg for break through pain and proxac 40mg for depression, worker's comp wants her to try Suboxone-been through too much,not sure it won't cause severe adverse reactions and pain doc doesn't think it is a good idea. Tired of fighting it all. Momcares.


skrape
Regular Member


Date Joined Feb 2009
Total Posts : 141
   Posted 3/18/2009 8:29 AM (GMT -7)   
I called the doc. He is closed on Wednesdays but he leaves his cell number on the voice message so I called that. He picked up right away and I told him what was going on. I reminded him of the past headaches I have gotten while on these medications. He said to stop taking the muscle relaxer (Baclofen) and see if that makes a difference. I hope it does. I really do not want this patch to be the reason for the headaches. It is the only thing keeping me from wanting to die from my back pain. Sorry if that is a little harsh but it is the truth.

I just realized how strange it is for me to be on here complaining about pain other than in my back! I am trying to get some work done even though my head is killing me. I work from home so I am sitting at the computer trying to get something done in between bouts of vomiting. I am sure that the headache is what started me off with the vomiting but the Excedrin didn't help, that stuff is so bitter! Well, I just wanted to let you know that I did talk to the doc and he said to stop the Baclofen and to come in tomorrow if I still have problems.


Skrape
Fentanyl Patch - 100mcgs x 72 hours
Baclofen - 10mg x 8 hours


straydog
Forum Moderator


Date Joined Feb 2003
Total Posts : 13451
   Posted 3/18/2009 9:24 AM (GMT -7)   
Makes you kind of wonder if the increase in the patch to 100mcgs may be too much for you. Terrible thought to have I know, the idea of having to lower a pain med, but that may be very well what you may need to do. I know all about how a migraine can knock you to your knees, I have them and I passed them on to both children. Skapre read what I am getting ready to post on Generic Meds. Maybe a 75mcg would be better who knows, only you & the dr. Susie


skrape
Regular Member


Date Joined Feb 2009
Total Posts : 141
   Posted 3/18/2009 9:42 AM (GMT -7)   
I was on the 75mcgs patch for about 3 weeks (might have been 2 1/2) and my back pain was at a steady 8/8.5 the entire time. I know and maybe even agree with what you are saying about the 100mcgs patch. I just don't know what I would do about the pain on a 75mcgs patch. The doc didn't want me even taking anything for breakthrough so this is basically what I have, a patch or nothing type of situation. I am pretty much painted into a corner without any other options.

I have been trying not to complain too much but between the headaches, the sleepiness, the WD during the last 24 hours, poor pain control, patches coming off, bad rashes from both brands of patch, worry of overdose from sunlight or hot shower or other heat source, etc. It seems to just go on and on. The side effects and problems with this type of medication are just too much and too many. This has to be the worst medication I have ever been on. I am just really frustrated...

I read what you posted on generics just now (this is my edit of my original reply) and I agree that there could be a big difference between the 100mcgs name brand and the generic (or the 75mcgs), etc. I guess it is possible that I might do ok on the generic 75mcgs name brand is the 100 is causing the headaches. I never tried the name brand 75 before.

I thought about this the other day since noticing such a difference between the name brand and the generic. It may sound like I am making excuses here but the month I had my failed procedure and went through too many meds (please remember I saw my doc and told him about this 3 times during that month) was the same month that I was given the generic Oxycontin. I had always had the name brand Oxycontin and had never had the generic before. I asked the pharmacist if there was a difference and he said no. I don't know that I believe this now. Like I said, it sounds like I am justifying or rationalizing this, but it seems like less of a coincidence the more I think about it. My pain went through the roof from that procedure and the medication could have been less effective.... Maybe had something to do with me needing more medication to remain functional?? I don't know.


Skrape
Fentanyl Patch - 100mcgs x 72 hours
Baclofen - 10mg x 8 hours

Post Edited (skrape) : 3/18/2009 10:59:01 AM (GMT-6)


straydog
Forum Moderator


Date Joined Feb 2003
Total Posts : 13451
   Posted 3/18/2009 10:07 AM (GMT -7)   
Skrape I understand totally what you have posted. I did very well on the 50's only while they worked. But, I had to order thru the pharmacy a clear adhesive called Tegaderm to put over the darn things to keep them on. They would not stick on me without it. Then in the summer I would get too hot outside and wham to much medication was released and I would get goofy and sick at my stomach. But, before summer cme, in the winter I was still only getting 48 hrs of relief. Day 3 was nothing but pure withdrawls. In my opinion for me, they were not a good drug for me. My dr increased me to 75 and omg I was unable ti urinate and that ended my days of the patch. I am so sorry this is happening to you. It gets so frustrating for sure. Susie


skrape
Regular Member


Date Joined Feb 2009
Total Posts : 141
   Posted 3/18/2009 10:34 AM (GMT -7)   
I read about Tegaderm and asked my pharmacist about it and he told me they didn't have anything like that and I would have to use tape. I checked at another pharmacy in town and they said they didn't have anything like that either. I asked both if they could order it and they both said no. I emailed the company that made the patches and they sent me a message saying that they did not sell or provide any covers for the patches. They also told me to use tape. I did buy some bandages off the shelf made by 3M that are called Tegaderm but they are way too small to cover my patch. They might have covered the little 25mcgs patches I had in addition to the 50mcgs patches (when the doc upped it to 75mcgs) but they were to small to cover even the 50mcgs.

I have tried 4 different kinds/brands of tape and they all gave me a rash as well. Some of them took a good portion of my chest off along with the patch. I changed my patch yesterday after having the old one on for about 73 hours. I still have a red, irritated, painful, broken out rectangle in the exact same size/shape as the patch. Pretty soon I will run out of decent skin to put these on. I know I am just complaining about something pointless to complain about. There is nothing to be done about it.


Skrape
Fentanyl Patch - 100mcgs x 72 hours
Baclofen - 10mg x 8 hours


Chartreux
Veteran Member


Date Joined Aug 2006
Total Posts : 9622
   Posted 3/18/2009 10:43 AM (GMT -7)   
I would rather have to force a pill down and sometimes I have too, then
wear one of those patches, I was on the lidocaine patch and well summer's here
heat was 103 and got so sick as soon as I opened the door, no more patches please..
I guess up north you could wear the patches till June, but it heats up early hard and fast here in Texas,
Had records heat levels here in Texas last year for the first week of June 105 + the humidity..
But I love the Winter's here, no snow, woohoo...
Anyhow yeah hate the patch..
{{{{{{{{{{{{{{{{{{{{{{Skrape}}}}}}}}}}}}}}}}}}}}}}}}
**********************************************
* Asthma, Allergies, Osteoarthritis, Spinal Stenosis, Degenative Disc, Fibromyalgia, Gerd, Enlarged Pituitary Gland
******** "We could never learn to be brave and patient if there were only joy in the world" from Helen Keller *********

********>^..^<********>^..^<********>^..^<********


skrape
Regular Member


Date Joined Feb 2009
Total Posts : 141
   Posted 3/18/2009 10:54 AM (GMT -7)   
I would love to be back on what I took before for a year and a half. It worked well and I had absolutely no side effects. This patch thing has been nothing but problems. I haven't been on these in the summer yet but I am not looking forward to it.

Did the Lidoderm do much for you? I had been given Lidoderm and I never could tell if it did anything. From what I could tell, Lidoderm is usually used for skin pain like after having shingles, etc. I didn't really understand why she gave me Lidoderm because the problems I have are deep within my back (feels like it is inside my spine). At any rate, it never did anything for me.


Skrape
Fentanyl Patch - 100mcgs x 72 hours
Baclofen - 10mg x 8 hours

Post Edited (skrape) : 3/18/2009 12:01:33 PM (GMT-6)


straydog
Forum Moderator


Date Joined Feb 2003
Total Posts : 13451
   Posted 3/18/2009 11:21 AM (GMT -7)   
Skrape, Lidoderm is the same as pain patchs as far as getting too hot and releasing to much medication and actually causes skin burns. You really don't want to go there. I am not even sure they would help your problem. FDA just sent out a warning a week ago concerning things like Lidoderm patchs, any patch along that line including pain patches getting to hot and releasing to much meds. This was aimed at people undergoing MRI's and the patches heating up too much and releasing too much medication. I think I would sit down and make a detailed list of what has happened with the each type of patch you have tried and discuss it with the dr. He may change his mind when he sees the difficulty you are experiencing, its worth a shot. I would tell him straight from the list what has happened, then look him directly in the eye and say what do you recommend now!! Put his butt on the hot seat. Sometimes that eye to eye contact can go a long ways. Look in your yellow pages under hospital supplies and call them about Tega Derms and tell them the size you need, they will have it. I bought one size I cut in half to save money. Had to be careful on cutting it or it curled up. Your drug store people ar too lazy to order what you need. Mine ordered all of mine. Its the same clear plastic stuff they use to cover an IV. It sticks and sometimes pulled a little skin with it but my patches darn sure never came loose using it. I put patches on my back too. Susie


skrape
Regular Member


Date Joined Feb 2009
Total Posts : 141
   Posted 3/18/2009 11:33 AM (GMT -7)   
I agree with the eye contact thing. I usually have docs that intentionally make a lot of eye contact and look for it. This guy does not make eye contact very often. He usually has his head down and is writing notes. It's a little strange.

I do make eye contact as often as I can. I usually try to make eye contact and hold it with anyone I talk to. Just a habit I have. I was once told that it is easier to keep eye contact with someone if you focus on one of their eyes rather than trying to look into both. Try it sometime, it really does work.


Skrape
Fentanyl Patch - 100mcgs x 72 hours
Baclofen - 10mg x 8 hours


straydog
Forum Moderator


Date Joined Feb 2003
Total Posts : 13451
   Posted 3/18/2009 11:41 AM (GMT -7)   
Hey thanks for the tip, but the good news for a change for me is I finally have a great team of drs. Well, I am on the lookout for a new cardiologist but I won't need one of them till Dec when its time to do the yearly tests. Have to try that on the new one. Susie


skeye
Veteran Member


Date Joined Mar 2008
Total Posts : 2976
   Posted 3/18/2009 4:32 PM (GMT -7)   
Hi Scrape,

I'm so sorry about the headaches! Yuck! Nausea alone has got to be one of the worst feelings out there! I can't imagine having such a severe headache too, and then all of that on TOP of your "normal" pain.

I use Lidoderm patchs, but due to the location (my face), I cannot use Tegaderm. Just like your Fentanyl patches, my Lidoderm patches peel at the edges. I use Johnson & Johnson cloth tape to secure the patch. I've found that it is gentle enough that I can use it on my face, but strong enough that it holds the patch on pretty well. Maybe this would work for your sensitive skin as well? I got mine at CVS. It is fairly expensive though - $4/roll. It takes me about a week & a half to go through a roll, using one patch a day.
I was also confused by the nature of the Lidoderm patch at first (and I still somewhat am). They actually DO seem to help me, although only a small amount (but hey, I'll take whatever I get!). My pain is also very deep, behind my eye. From my understanding, the theory is that by numbing the skin in an area near your pain, although not the area of pain itself, the body's pain signals get dulled because the brain gets "confused" by the lack of any signals coming from this numb region. My doc did say that no one is really sure about the mechanism, but that these patches are used quite often with deep lower back pain & do help a fair number of people, at least to an extent. I'm sure some of it is also related to the type of pain that you have & other individual factors. Hope this helps some.

I hope you are feeling better tonight & that the discontinuation of the Baclofen does the trick (and does not cause any other unwanted, unpleasant side effects). ((((((((((((hugs))))))))))))))).

Skeye

One other thing: I have recently found, that if I clean the area where I put the patch with an alcohol prep (or cotton ball dipped in isopropyl alcohol) first & then rinse it with water & dry it, the Lidoderm patch seems to stick better. I don't know if this would help with your Fentanyl patch, but you might want to give it a try. I was surprised at what a significant difference it made!

Post Edited (skeye) : 3/18/2009 7:04:39 PM (GMT-6)


skrape
Regular Member


Date Joined Feb 2009
Total Posts : 141
   Posted 3/19/2009 4:01 AM (GMT -7)   
Well, after not having anything to eat for 24 hours and after 12 hours straight vomiting, I called my doc again. He said to go to the ER and that he would call and tell them I was coming. It really did feel like my head would explode. They ran an IV and gave me an anti-nausea, a med for the headache and some Benadryl. I was just about good to go after an hour. I went back home, ate some chicken noodle soup and went to bed.

I woke up this morning and my head hurts again. It is not on the level that it was yesterday and I am trying to gobble some crackers so I can take some Excedrin and I hope it helps. I can't take anymore of the same from yesterday.

Well, I did get some crackers down and I took a couple Excedrin. I have held those down and some 7-Up as well. My headache that I woke up with this morning seems to be dying down a bit. It isn't gone yet but I am hoping it will go. Looks like I may have dodged a bullet (and another ER visit!) this morning. I am hoping it stays that way. I left a message with the Doc to get back with me about following up on the migraine business. Hopefully we can get this under control very soon.


Skrape
Fentanyl Patch - 100mcgs x 72 hours
Baclofen - 10mg x 8 hours

Post Edited (skrape) : 3/19/2009 6:24:53 AM (GMT-6)


mom9mom
Regular Member


Date Joined Sep 2008
Total Posts : 489
   Posted 3/19/2009 11:48 PM (GMT -7)   
Skrape are you sure that you do not have some type of bug??? The kind of headache that you are describing sounds like the kind I get when I get a bad bug.For the tegadurm have you tried a home health type of medical place.
Lost half of my small intestineJan.2008.Ilieostomy for 5 months then reverst in June 2008,Nerve damage to right leg,part of my right hip bone removed Jan. 2008,Cronic pain,hernia,infection in my back called discites,and depression.Gallbladder removed Nov,2008.Surgery to fuse L3 and L4 vertabra Dec. 31,2008.Mother to 9 kids 7 boys 2 girls and 1 stepson.4 grandsons,9 grandaughters.4 of my grandkids I inherited from my twin sister who passed away 6 1/2 years ago from a blood clot after surgery.God has given me my life back after I almost lost it.Even though its a painful and sometimes hard road to walk I take it one step at a time and give thanks to god for every step I take.


skrape
Regular Member


Date Joined Feb 2009
Total Posts : 141
   Posted 3/20/2009 5:44 AM (GMT -7)   
The doc at the ER told me that since I had my medications adjusted on Thursday that I was still adjusting to them. I had no other symptoms other than migraine and vomiting. I went through all of yesterday without vomiting and without getting much of a headache. When I woke up this morning, I had no headache and since I haven't taken any Baclofen for about 60 hours, if it doesn't come back when I change the patch at 2:00pm, I am going to assume that is what was causing the headaches. The only other thing I could do is take the Baclofen again and see if they come back, ;-(


Skrape
Fentanyl Patch - 100mcgs x 72 hours
Baclofen - 10mg x 8 hours


MiaVT
New Member


Date Joined Dec 2005
Total Posts : 7
   Posted 3/20/2009 9:37 AM (GMT -7)   
I have been away from this site for a long time, so, firstly "Hi!!!"
 
Secondly, I am SO sorry to hear about the problem you are having with headaches and nausea.  I know that severe headaches make ME vomit.  I especially can look forward to this "treat" when I have a "sizable" med adjustment!  OR even a moderate one under the "right" circumstances. 
 
I just had my MS Contin ER increased by 30mg daily (not a huge leap for me).  However, I thought my head was going to blow off the first time I REALLY NEEDED and took 15mg Morphine Sulfate IR for break through.  You see?  It was the COMBINATION that put me over the edge!!!
 
Regarding the "Name Brand" vs "Generic", my Physiatrist CLAIMS that the name brand can be up to 25% stronger than the generic (in an opiate).  Therefore, in theory, if you were increased by 25mcgs but switched from generic to name brand, your increased dose could be nearly DOUBLE that.  PHARMACISTS (and a lot of GP's) will INSIST that there is NO difference between generic and name brand.  "Same stuff", they'll insist.  Sure, to some degree--but the fillers, dyes, lab processes & lots of other contents/events that COULD affect strength ARE there!  I can neither deny, nor confirm the "25% claim" that my Dr. puts forth (not having switched back & forth).  However, it's worth a consideration that you MAY be adjusting to MORE of an increase than you thought!
 
Have you been through so many meds that Fentanyl Patches are all that's left to you?  Do you have ANY other options?  Patches never lasted longer than 2 days for me and loaded me with TOO much medication in the FIRST 48 hours--probably because I was having hotflashes--ha ha.
 
Anyway, keep in touch w/your Doc & I wish you well!
 
Mia



"When I stand before thee at the day's end, thou shalt see my scars and know that I had my wounds and also my healing"~Rabindranath Tagore

 

DISORDERS:  Osteoarthritis; Degenerative Disc Disease (degeneration at C- 2 to 4 with Osteophytes, T- 8 to 12; L-4 &L-5); Facet Joint Disease through out; Spinal Stenosis; Neurogenic Claudication; Anterior Displacement at the L-4/L-5 site; De Quervain's tenosynovitis of the wrist; Ulcerative Colitis; Diverticulitis; Chronic Clostridium Difficile; Irritable Bowel Syndrome

 TREATMENTS:  3 Radiofrequency denervations (Thoracic/Lumbar Facet Joint Nerves); 2 Epidurals (Cervical Herniations, Cervical Facet Joints)

 MEDICATIONS:  MSContin ER 60mg 2x; Morphine Sulfate IR 15mg 2x prn; Naproxen 500mg 3x; Tizanadine 2mg 1- 3 at bedtime, 1- 2 2x daily; Clonazepam 1mg; Wellbutrin 400mg; Lexapro 30mg; Topomax 100mg  bedtime; Provigil 200mg, 2x; Metoclopramide 20mg, 2x; Asacol 400mg, 3x

 

Post Edited (miavt) : 3/20/2009 10:54:49 AM (GMT-6)

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