New to CP=glad to be here!

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Diggsy
New Member


Date Joined Mar 2009
Total Posts : 6
   Posted 3/22/2009 4:37 AM (GMT -7)   
Hello everyone. I'm new here, since yesterday, ha ha.. I'm not sure what I should be writing exactly or where to put my "background". But I will do it here and if it's not the right place, please let me know.
 
I'm a 46 year old white female. I had a TKR in June of 2006 on my left knee. I had problems from the start including almost dying in the recovery room from a mistake made with anesthesia. Then with the machine they hooked up to me in my room to make my knee bend. It was so painful but the nurse, well he just told me I had to do it and if I didnt then I would suffer the consequences. He was telling this to me in the middle of the night while I was heavily medicated. I then went through all the PT and had to have deep tissue massage which is one of the most tortuous treatments I have had done. I still had continued severe pain and swelling and poor range of motion. This continued without improvement or relief. In November 2006 I went for a second opinion to an Ortho doc that specializes in TKR that "go wrong". He found that they put in the wrong size knee joint. I underwent a second TKR in December of 2006. I now have better ROM but continued swelling and pain and numbness now as well. I have been seeing a pain doc and psychologist now. My Ortho doc that did the second surgery said that everything looked fine and he didnt know what else to tell me. At this time, I'm am still in constant pain, anywhere from a 5 to a 9, and it's exhausting as you all know.
 
I work for our local hospital as a medical transcriptionist now. I used to be an EMT but am unable to perform those duties anymore. I have two daughters; ages 23 and 18, and one new granddaughter (there's my ray of sunshine!)  I just want to be "normal" again so I can enjoy my life and my family.
 
 

Stella Marie
Veteran Member


Date Joined May 2005
Total Posts : 601
   Posted 3/22/2009 4:48 AM (GMT -7)   
Diggsy,

Welcome.....we glad you found us.

Stella Marie

Rare neurodegenerative disease called “Multiple System Atrophy”.  Wheelchair, O2, & Bipap, intrathecal pump, neurostimulator, dystonia, neuropathic pain,  spasticity...etc..etc.


Scarred_for_life
Veteran Member


Date Joined Jul 2008
Total Posts : 1559
   Posted 3/22/2009 4:52 AM (GMT -7)   
Welcome aboard the "Crazy Train" Diggsy ha ha ha! I'm glad you could join us here but, on the other hand I am sad to see that you too are in pain and that you have to live with this.

Anyway just wanted to welcome you to our little piece of the web.

Hugs

Scarred
What doesn't kill us only makes us fight back harder! :P


bluejet2
Regular Member


Date Joined Feb 2009
Total Posts : 487
   Posted 3/22/2009 12:47 PM (GMT -7)   
Diggsy:

I just wanted to welcome you as well, I'm sorry that you are in such pain, but you will get support here like none other. It's helpful somehow to know that the people who say "I know how you feel", truly know.

Bluejet2

White Beard
Forum Moderator


Date Joined Feb 2009
Total Posts : 3611
   Posted 3/22/2009 12:56 PM (GMT -7)   
Diggsy

I will Welcome you again! I think you really will find this a great place to come to.

White Beard
 

I'm Retired USAF, went back to school and became an RN, and now am on ful disalbility!

Degenerative Disc (affecting mostly the thorasic disc but all levels involved), C6/7 laminectomy/diskectomy& fusion, Osteoarthritis, Ulcerative colitis, Chronic Pain, Fibromyalgia, Complex Sleep Apnea, and host of other things to spice up my life!(NOT!)

Medications: Oxycontin, Percocet, Baclofen, Sulfasalazine, Metoprolol, Folic Acid, Supplemental O2 at 3lpm with VPAP Adapt SV


Lindaloo
Veteran Member


Date Joined Sep 2006
Total Posts : 1713
   Posted 3/22/2009 2:09 PM (GMT -7)   
Diggsy,

Welcome to the Chronic Pain Forum of Healing Well. We are so glad you found us. Like Bluejet said, you will find support here like none other. The people here are very knowledgeable but mostly caring and just plain wonderful. We all look forward to getting to know you.

Sorry you are having such problems with the knee pain. Have you considered seeing a pain mangement specialist?? I go to one and she is wonderful. I have fibromyalgia and my pain is mostly in my lower extremities. I also have a back history, so I know what you are going through with the pain and I am sending you gentle hugs. I will keep you in my prayers as well.

Please continue to post, as we would love to get to know you and you will learn about us, every time you read remarks from folks on these different threads. I truly love the people on this forum and feel like they are family. Hope you end up feeling the same way!!

God bless!

Lindaloo
Moderator Chronic Pain
 
Believe in yourself.  Be kind to fellow humans and animals.  Take time to smell the flowers and the coffee.
And by all means, when you are down, ask me for help.  I will be there.
 
Linda


fatherjohn
Veteran Member


Date Joined Feb 2009
Total Posts : 999
   Posted 3/22/2009 6:45 PM (GMT -7)   
Diggsy, I already welcomed you on another thread but once again welcome. You state that you just want to be normal again. For some of us, CP has become normal. (Not that we want it to be that way) I personally don't want to believe I am not normal but soem would argue the point. Anyway, keep tuned in and get to know us as we get to know you. Blessings!

Chutz
Veteran Member


Date Joined Jan 2005
Total Posts : 9090
   Posted 3/22/2009 7:15 PM (GMT -7)   
Hi Diggsy and welcome!!

Wishing for 'normal' again is mostly a dream...IMHO... but we can come darn close and in some respects better. WE appreciate days with no pain...do 'regular' folks? WE notice when we can wrestle with the kids/grandkids and it doesn't hurt for a week....do 'regular' folks? Now, don't get me wrong here. I'm not saying what we go through is in any way good, but we are the ones who stop to smell the roses and appreciate their beauty...do 'regular' people?

I would have suggested you get to a teaching hospital but you might be comfortable with the one you have. Often the teaching/university hospital are more able to take on tough problems like what you have. Might be worth a try.

Keep us posted!
Chutzie
Co-Moderator Fibromyalgia & Chronic Pain Forums
~~~
Fibromyalgia, Ulcerative Colitis, Insulin dependent diabetic, PTSD, dermatitis herpetiformus, osteoarthritis and a few other side dishes.
***************
Happiness is something to do, someone to love, and something to hope for."
(\__/)
(='.'=)
(")_(")


skeye
Veteran Member


Date Joined Mar 2008
Total Posts : 2976
   Posted 3/22/2009 8:49 PM (GMT -7)   
Hi Diggsy,

I am truly sorry that you are joining us because you too experience CP, but we are happy to have you here! I want to extend a warm welcome to the CP board at HW from myself and the other members of our CP family. We all believe that you will find no better place for support, knowledge, and friendship! Welcome aboard!

Skeye

Diggsy
New Member


Date Joined Mar 2009
Total Posts : 6
   Posted 3/23/2009 9:12 AM (GMT -7)   
Thanks everyone! I am considering going to the University of Chicago Hospital which is a teaching hospital as soon as I can. I think I have used up all my resources here pretty much! Have an appt tomorrow afternoon with the Pain doc to see if there are any other ideas he can come up with. Wish me luck!
 


oddibemcd
New Member


Date Joined Mar 2009
Total Posts : 5
   Posted 3/23/2009 11:55 AM (GMT -7)   
From another new person here, sorry that you had to find this board. U of C is a great school and turns out some of the best Dr's in the Midwest. If there is something that can be done, I'd bet that someone there can figure it out. Best of luck.
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