pain in my legs

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cshelp
Regular Member


Date Joined Mar 2009
Total Posts : 96
   Posted 3/22/2009 7:56 PM (GMT -7)   
I have so much pain in my legs, can't find right doctor have had four back surgeries and was in a car accident, no one will help me, and sick of people telling me I am depressed.

White Beard
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Date Joined Feb 2009
Total Posts : 3609
   Posted 3/22/2009 8:31 PM (GMT -7)   
cshelp Welcome to the forum I am sorry to hear about your pain, How long have you been suffering from it? Has any of your Doctors recommended you to a Pain Clinic for an evaluation? You mentioned (" I have so much pain in my legs, cant find right doctor ") What type of Doctor have you been looking for? What type of back surgeries have you had? And what type of actual help are you seeking? Something to cure the pain in your legs, or to treat and control it? We cannot provide you actual medical help or advice, but we can provide you with lots of support in your quest for help! Good Luck to You

White Beard
 

I'm Retired USAF, went back to school and became an RN, and now am on ful disalbility!

Degenerative Disc (affecting mostly the thorasic disc but all levels involved), C6/7 laminectomy/diskectomy& fusion, Osteoarthritis, Ulcerative colitis, Chronic Pain, Fibromyalgia, Complex Sleep Apnea, and host of other things to spice up my life!(NOT!)

Medications: Oxycontin, Percocet, Baclofen, Sulfasalazine, Metoprolol, Folic Acid, Supplemental O2 at 3lpm with VPAP Adapt SV


PAlady
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Date Joined Nov 2007
Total Posts : 6795
   Posted 3/22/2009 9:16 PM (GMT -7)   
Hi, Cshelp,
I want to welcome you to the CP forum of Healing Well, although we're always sad to meet another person in pain. White Beard asked a lot of questions. I'm not quite sure what you're looking for from us, but certainly feel free to vent.

You may also find some helpful informaiton by reading through othet threads, depending on what you're looking for. Since you've had multiple surgeries, and a car accident, it would seem you would need a good pain management specialist, but I know they aren't always easy to find. Depression, however, usually comes along with chronic pain. Not only because of the many losses we suffer, but because of actual changes in body chemistry from chronic pain that help create depression. Sometimes I think we believe when a doctor suggests we may be depressed that we're being told our pain is all in our head, which is definitely not true. Mind and body are not separate, so an anti-depressant may be helpful as one medication. It certainly doesn't solve all the pain (unless you get really lucky). Many of us are on anti-depressants, myself included, along with other pain medications. But you do need to have a comprehensive assessment for pain, and put together the different treatments, medications, and therapies that can help us to manage pain. In most of our cases, we're not lucky enough to be cured, but we can learn to lower pain levels.

Hope you stay with us. Again, welcome.

PaLady

Becoming undone
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Date Joined Jul 2007
Total Posts : 927
   Posted 3/22/2009 9:22 PM (GMT -7)   
cshelp...welcome...we usually support each other. I wish you and the rest of those on CW the best.
"The earth laughs in flowers"


Chutz
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Date Joined Jan 2005
Total Posts : 9090
   Posted 3/23/2009 9:50 AM (GMT -7)   
Hi cshelp and welcome!!

Can you fill us in a bit more on the problems you are having. Maybe we can suggest something that might help. What are you doing for pain relief? What about your Doc? We'd love to help any way we can, even if it's just being here to listen.

Hugs,
Chutzie
Co-Moderator Fibromyalgia & Chronic Pain Forums
~~~
Fibromyalgia, Ulcerative Colitis, Insulin dependent diabetic, PTSD, dermatitis herpetiformus, osteoarthritis and a few other side dishes.
***************
Happiness is something to do, someone to love, and something to hope for."
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(='.'=)
(")_(")


cshelp
Regular Member


Date Joined Mar 2009
Total Posts : 96
   Posted 3/23/2009 11:15 AM (GMT -7)   
It's a long story. I am a RN, had lami, then fusion of L4-L5, didn't feel right after surgery went back to work had accidental overdose of xanax but they found a lesion on my brain and treated it got my life back together and am working. then I had herniated disc at T10 had surgery went back to work and 6 weeks after surgery someone T-boned me and reherniated the disc and the pain in my legs wont go away saw 2 pain docs and there goal is to get me off the meds, keep pulling up the past. I need help Financing going down the tubes, husband no support and doesn't want to hear about it taking neurontin and not doing any good.

White Beard
Forum Moderator


Date Joined Feb 2009
Total Posts : 3609
   Posted 3/23/2009 12:03 PM (GMT -7)   
cshelp it does sound like you have had more than your share of misfortune,I am sorry to hear that you have had so many problems! You mentioned that they said they found lesions on your brain do you also have MS? And are you on any pain medications right now other than neurontin? I had also been given neurontin, and it did nothing for me either, other than it had some nasty side affects, and I had to be taken off of it! Did your pain Doctors explain why they wanted to get you off what ever meds you are on? Also you said you are an RN are you able to work with everything that is going on?
Anyway from the sound of your post you must be very frustrated, andwith that said you have found a very good place to come and vent. As we are all, very good listeners, and want to help and support you in anyway we can. So please continue to post and let us get to know more about you!

Good Luck to You

White Beard
 

I'm Retired USAF, went back to school and became an RN, and now am on ful disalbility!

Degenerative Disc (affecting mostly the thorasic disc but all levels involved), C6/7 laminectomy/diskectomy& fusion, Osteoarthritis, Ulcerative colitis, Chronic Pain, Fibromyalgia, Complex Sleep Apnea, and host of other things to spice up my life!(NOT!)

Medications: Oxycontin, Percocet, Baclofen, Sulfasalazine, Metoprolol, Folic Acid, Supplemental O2 at 3lpm with VPAP Adapt SV


Lindaloo
Veteran Member


Date Joined Sep 2006
Total Posts : 1713
   Posted 3/23/2009 1:59 PM (GMT -7)   
Hi cshelp,

I, too, was an RN (am retired now) and had a laminectomy at L4-5 years ago. I know how frustrating it was for me to go back to work and to try not to re-injure my back. I now see a pain management specialtist who monitors my pain and gives me medication to control the pain.

I also want to welcome you to the chonic pain forum of healing well. We encourage you to continue to post even if it is to vent. It's ok. We are here for you.

God bless you,

Lindaloo
Moderator Chronic Pain
 
Believe in yourself.  Be kind to fellow humans and animals.  Take time to smell the flowers and the coffee.
And by all means, when you are down, ask me for help.  I will be there.
 
Linda


cshelp
Regular Member


Date Joined Mar 2009
Total Posts : 96
   Posted 3/23/2009 9:12 PM (GMT -7)   
thanks for listening, when i had my back fusion, I worked in a hospital, but couldn't think straight. I kept working and my neurosurgeon told me to get out before I would wreck my back. I then went to work in a clinic not thinking straight. I was let go after my probation period. My life started to down spiral. I was stressed and couldn't sleep. I went to see a Psych MD, he prescribed the 4 mg xanax, I should have been thinking what am I doing. I went to sleep one noc and my husband found me barely breathing. After I got out of the hospital, I went right back to work and I was fired for no reason. I then lost my mind. My husband took me to the ER multiple times, I had no MD at the time and one just picked me up and I dont like her because she judges what happened 3 years ago and doesnt look at what has happened to my back since then. i saw a pain doc and he pointed his finger at me and said, we are going to get you off these meds and I will inject your back. My neurosurgeon never suggested a needle at any point. I ended up yelling at the MD that he threatened me. My neurosurgeon called me and apologized. The next pain doc, put me on Kadian, didn't refill my vicodin and I felt terrible. i called once and the nurses were rude. I ended up running out of meds 3 days prior to my refill, she wanted to see the pysch paperwork and told me she wasnt going to refill my meds and that was it. She told me I have 2 children to take care of and she would inject me. People think that if you work then you are not in pain. I have to keep going or I will go nuts. When I am at home I cant sit or lay down because my back hurts and my legs start to cramp and scream at me. I have now went back to the primary and she started me on neurontin. I hurt 80% of the time and sleep on heating pad. This isnt the life I dont have any quality of life. My kids keep me going and I help other people. The accident 1 year ago has ruined our finances and everyday is a struggle.

White Beard
Forum Moderator


Date Joined Feb 2009
Total Posts : 3609
   Posted 3/23/2009 10:06 PM (GMT -7)   
cshelp you really need to get to a good pain clinic with good pain doctors to manage you, I am so sorry to hear the way you have been treated. There are so many doctors that just don't know how to properly treat patients that suffer with chronic pain.

I do wish you only the best!
Good Luck to You cshelp

white Beard
 

I'm Retired USAF, went back to school and became an RN, and now am on ful disalbility!

Degenerative Disc (affecting mostly the thorasic disc but all levels involved), C6/7 laminectomy/diskectomy& fusion, Osteoarthritis, Ulcerative colitis, Chronic Pain, Fibromyalgia, Complex Sleep Apnea, and host of other things to spice up my life!(NOT!)

Medications: Oxycontin, Percocet, Baclofen, Sulfasalazine, Metoprolol, Folic Acid, Supplemental O2 at 3lpm with VPAP Adapt SV


cshelp
Regular Member


Date Joined Mar 2009
Total Posts : 96
   Posted 3/24/2009 9:49 AM (GMT -7)   
I am going to doctor tomorrow and talk to her and get a MRI, maybe they will see how much pain i am in.Scared though dont want to have more surgery

White Beard
Forum Moderator


Date Joined Feb 2009
Total Posts : 3609
   Posted 3/24/2009 11:05 AM (GMT -7)   
cshelp
I wish you well, and hope things work out for you! Please keep us posted on your progress.

Good Luck to You

White Beard
 

I'm Retired USAF, went back to school and became an RN, and now am on ful disalbility!

Degenerative Disc (affecting mostly the thorasic disc but all levels involved), C6/7 laminectomy/diskectomy& fusion, Osteoarthritis, Ulcerative colitis, Chronic Pain, Fibromyalgia, Complex Sleep Apnea, and host of other things to spice up my life!(NOT!)

Medications: Oxycontin, Percocet, Baclofen, Sulfasalazine, Metoprolol, Folic Acid, Supplemental O2 at 3lpm with VPAP Adapt SV


cshelp
Regular Member


Date Joined Mar 2009
Total Posts : 96
   Posted 3/24/2009 11:31 AM (GMT -7)   
I hope she helps me, being a nurse makes me stubborn but we will see

White Beard
Forum Moderator


Date Joined Feb 2009
Total Posts : 3609
   Posted 3/24/2009 11:35 AM (GMT -7)   
Don't they always say Docs and Nurses make the worst patients!
 

I'm Retired USAF, went back to school and became an RN, and now am on ful disalbility!

Degenerative Disc (affecting mostly the thorasic disc but all levels involved), C6/7 laminectomy/diskectomy& fusion, Osteoarthritis, Ulcerative colitis, Chronic Pain, Fibromyalgia, Complex Sleep Apnea, and host of other things to spice up my life!(NOT!)

Medications: Oxycontin, Percocet, Baclofen, Sulfasalazine, Metoprolol, Folic Acid, Supplemental O2 at 3lpm with VPAP Adapt SV


cshelp
Regular Member


Date Joined Mar 2009
Total Posts : 96
   Posted 3/24/2009 9:18 PM (GMT -7)   
I wish my husband would understand pain, but he doesnt. He thinks I dont need anything for pain and I need to exercise more, when do I have time, I dont. Life sucks right now. My neurosurgeon is the only one that understands that I am in pain. He told me that he never met someone with high goals. My husband will probably leave me if I would start taking the pain pills again. He feels I get a high off of a simple vicodin, it makes me feel normal and I can accomplish normal everyday things. I went to the grocery store the other day and after I was up til 3 am and it felt like a truck ran over me. I dont know. Just got home from work and I can feel the disc throbbing.

PAlady
Veteran Member


Date Joined Nov 2007
Total Posts : 6795
   Posted 3/24/2009 9:26 PM (GMT -7)   
Cshelp,
Just once I'd love to get a "high" from my pain meds. Just once! The best I hope for is relief, not even 1005, just taking a good edge off the pain. I don't even know what feeling "normal" is anymore; guess there's a new normal for all of us we've got to find.

I have to ask, and I hope you don't take this wrong, but if you had cancer would your husband's lack of understanding and/or disapproval (based on ignorance) stop you from getting treatments? Because it's no different. You're a nurse; take your husband to your NS appointment with you and have your NS explain to your husband why you have pain, but to not take pain medication as prescribed which would give you relief because of your husband's views makes no rational sense. Notice I used the word "rational", and that was deliberate.

Another suggestion would be getting involved with a pain psychologist, who could do a few joint sessions with you and your husband.

I hope you will make some changes to decrease your pain. You have choices.

PaLady

cshelp
Regular Member


Date Joined Mar 2009
Total Posts : 96
   Posted 3/24/2009 9:37 PM (GMT -7)   
I know I have put him thru a lot and he still loves me, but sometimes just being held would make me feel better. I know I yell sometimes but its the pain that is yelling. he told me there are other drugs except the narcotics. Well, why did he let me take them and today he got this odd idea that I wont live long if I started taking pain pills again. He has also said in the past he would take my beautiful girls (7 + 13) They love me and know I am in pain. My husband is wonderful and he does everything at home for me and I feel I am selfish. I work alot, he does the laundry. Sometimes I cant understand when a man can go to bed when he knows I am in pain up til 2AM. My parents are no support, they had their kids and dont see the grandkids and live the good life. I am babbling

cshelp
Regular Member


Date Joined Mar 2009
Total Posts : 96
   Posted 3/24/2009 9:43 PM (GMT -7)   
I know I have put him thru a lot and he still loves me, but sometimes just being held would make me feel better. I know I yell sometimes but its the pain that is yelling. he told me there are other drugs except the narcotics. Well, why did he let me take them and today he got this odd idea that I wont live long if I started taking pain pills again. He has also said in the past he would take my beautiful girls (7 + 13) They love me and know I am in pain. My husband is wonderful and he does everything at home for me and I feel I am selfish. I work alot, he does the laundry. Sometimes I cant understand when a man can go to bed when he knows I am in pain up til 2AM. My parents are no support, they had their kids and dont see the grandkids and live the good life. I am babbling

PAlady
Veteran Member


Date Joined Nov 2007
Total Posts : 6795
   Posted 3/24/2009 9:51 PM (GMT -7)   
Cshelp,
You're not babbling at all. Why is your husband so suspicious of these medications? Have either of you had experience with addiction that would make him say these things? One would think he would want you to find relief - of course, under a doctor's supervision. Something doesn't fit here for me.

It really sounds like seeing a pain psychologist would be helpful to you in a lot of ways. Nothing you're saying indicates to me you're selfish, but you may need some positive support so you begin to see that yourself.

PaLady

Jules22871
Regular Member


Date Joined Jan 2006
Total Posts : 142
   Posted 3/24/2009 9:58 PM (GMT -7)   
Cs, I am so sorry you are going thru so much. It is really hard when you live with someone that doesn't understand what pain is. I really don't know what to say but I just wanted to send you some gentle hugs and all of my best wishes. I really hope you can find some relief soon.
Motorcycle wreck 08/2004: 119 fx, 13 surgeries with more to go, including 5 bone grafts, 2 skin grafts, pelvic reconstruction x2. Right leg is 1.5" shorter than left. Have to wear knee brace for life and also AFO brace for drop foot. Nerve damage from hip down to toes, nerve pain in lower leg. Spinal fusion. Will be on crutches the rest of my life. Pain level never below 5 even on pain meds. Since August 2007 I have been diagnosed with chronic atelactesis, tachycardia, high blood pressure, borderline personality disorder, depression and Delayed sleep phase syndrome


cshelp
Regular Member


Date Joined Mar 2009
Total Posts : 96
   Posted 3/24/2009 10:05 PM (GMT -7)   
When I had my back fusion, I was on a duragesic patch and vicodin and soma. He watched me go thru withdrawal, but I came thru it. The last pain doc gave me kadian. I ran out 3 days prior to the refill, I didnt go thru withdrawal, he thinks I did, the pain was extruciating with no meds. The MD put me on clonidine patch and NSAID which made me tired, I took baths, used heating pad and paced around the house for 3 days. He would kill me if he knew I was on this site. He doesnt want to hear about the pain. I dont even feel good enough to have sex and that is frustrating to him. He wont go to any MDs with me. He hates doctors and hospitals, his dad died of MS when my husband was 14 and went thru all of that. We will be married 15 years this May. He hasnt given up on me. I wish he would listen but he doesnt want to worry about me. Men hide things so easily.

cshelp
Regular Member


Date Joined Mar 2009
Total Posts : 96
   Posted 3/24/2009 10:11 PM (GMT -7)   
still recovering, Nice to hear from you, this support helps me vent my feelings, you have been thru a lot. I think life does eventually get better, I hope. There are doctors out there who help but I think soceity and the abuse of narcotics has made it harder for them to treat the right person who needs it. I made mistakes, but I am not going to give up. I want to just get in my vehicle and drive away, I dont know where but maybe things would change, just a thought

Jules22871
Regular Member


Date Joined Jan 2006
Total Posts : 142
   Posted 3/24/2009 10:12 PM (GMT -7)   
you mentioning a bath reminded me of something that I do that does give me some periodic relief. I bought some dead sea salt off of EBay. I run the water as hot as I can stand it and put a couple of cups of the dead sea salt in it and then just lay back and relax. It does help me as long as I get in there before the pain gets to bad.

People that don't have to deal with pain really don't understand what you are going through. I am lucky. My husband deals with it too and my kids are great about helping us both out. Has your husband ever gotten on this website and read some of the posts? If he did maybe it might just make him understand a little better about what you are going thru?
Motorcycle wreck 08/2004: 119 fx, 13 surgeries with more to go, including 5 bone grafts, 2 skin grafts, pelvic reconstruction x2. Right leg is 1.5" shorter than left. Have to wear knee brace for life and also AFO brace for drop foot. Nerve damage from hip down to toes, nerve pain in lower leg. Spinal fusion. Will be on crutches the rest of my life. Pain level never below 5 even on pain meds. Since August 2007 I have been diagnosed with chronic atelactesis, tachycardia, high blood pressure, borderline personality disorder, depression and Delayed sleep phase syndrome


PAlady
Veteran Member


Date Joined Nov 2007
Total Posts : 6795
   Posted 3/24/2009 10:16 PM (GMT -7)   
Cshelp,
It sounds like there's a lot of fear and some ignorance influencing your husband's view of everything. But to say he would kill you just for being on this site is disturbing. Yes, it does sound like there are positive things in your marriage, but my suggestion would be for you to find a good therapist for yourself so you could get some confidence, and think more clearly about what you need to do for your health.

Pain robs so much from our lives. There's a thread about relationships that you may want to post to, and a couple of great men here who have been sharing their insights on that thread. Maybe that can help you. But it's not fair or right for you to go without treatment because of some bad experiences, which often happen to those of us with chronic pain (the med changes, withdrawals, etc.).

I hope others come along with more thoughts.

PaLady

cshelp
Regular Member


Date Joined Mar 2009
Total Posts : 96
   Posted 3/24/2009 10:25 PM (GMT -7)   
I will try to see a therapist. I worked so hard to be a nurse and I love helping people who are sick, dying, in pain, but I dont think of myself. I look at all the medical bills on the table. I cant even go see my neurosurgeon unless I start paying for the cost of what the accident resulted me in going to the doctor. I see the attorney in 2 weeks to possibly settle. That might take off the financial burden and guilt of the medical bills and then I wont feel so panicked by going to the doctor. She took 100% fault in the accident, which doesnt even matter. I had this leg pain for over a year prior to realizing the herniated disc and the pain was gone after the surgery and BAM car accident, leg pain back and pain in other places.
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