I've had a pump even longer than Susie and she taught me a thing or two, or three, or four!!!
I just wanted to add that when the pump is implanted be very diligent in avoiding infection. about a week after my implant surgery, I got an abcess/infection in the incision in my stomach. I did not understand the possible serious ramifications of an infection from this particular surgery because the infection could have gone into the device itself and then spread through the catheter right into my spinal canal and caused bacterial menengitis.
If the infection had gotten into the device, even if it did not reach the spinal canal, they would have had to take it out completely, and there was a good chance that the insurance company would have looked at it as if my body had rejected the device and they would not have paid to have it re-implanted. I had to be on very strong I.V. antibiotics for 6 weeks.
I wish you the best!!!
Rare neurodegenerative disease called “Multiple System Atrophy”. Wheelchair, O2, & Bipap, intrathecal pump, neurostimulator, dystonia, neuropathic pain, spasticity...etc..etc.