I can't find anyone to help with my pain.

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hsmom24boys
Regular Member


Date Joined May 2007
Total Posts : 53
   Posted 3/23/2009 1:59 PM (GMT -7)   
I have been in chronic pain for 2 years now.  Started in my upper abd and then 5 mos later in all my joints.  I have been to IM's , GI's and now 2 rheumys.  Went to one local PM and tried to get a referral to the only other one in Montgomery and they both said they don't treat "my kind of pain"  I have a diagnosis of chronic pancreatitis for the upper abd pain but haven't been able to get a dx for the joint pain.  RA, CPC, and Sed all come back neg. The last Rheumy I went to a month ago seemed so promising but after many phone calls to her, I still don't have a treatment plan or a working diagnosis or any meds--- pain or otherwise.  Meanwhile, I feel caught in the middle and no one will treat me. I am in constant pain and am having a hard time working even one day a week. Any suggestions?
Diagnosed with chronic pancreatitis last year. Still searching for diagnosis and treatment of widespread joint pain.
  Homeschool mom 2 four boys (make that 3, we graduated one!)
Labor and Delivery RN
Beloved, Think it not strange concerning the fiery trial which is to try you, as though some strange thing happened unto you, But rejoice in as much as yea are partakers of Christ's sufferings: that when His glory shall be revealed, ye may be glad also with exceeding joy.    I Peter 4:12-13


straydog
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Date Joined Feb 2003
Total Posts : 13470
   Posted 3/23/2009 7:48 PM (GMT -7)   
I am so sorry you are having such a hard time with no help or relief. From what I understand the drs have to very careful prescribing any kind of pain medications because with the liver being involved. Because the liver absorbs these drugs it can be fairly dangerous. I feel bad that I cannot offer up any kind of suggestions other than a heating pad. Susie


CrohnsPatient
Regular Member


Date Joined Feb 2008
Total Posts : 314
   Posted 3/24/2009 7:26 AM (GMT -7)   
There are pain medicines that dont involve the liver if this is the case. Example being methadone, I know people think oh no methadone? thats for addicts. Just another stigma of the great world of pain.

Tony McGuire
Regular Member


Date Joined Feb 2009
Total Posts : 483
   Posted 3/24/2009 9:36 AM (GMT -7)   
I was one of those 'Oh no, Methadone' people until pain started. Drs took me through every option until methadone was the last choice (my decision).

Now that I take it, I have to say that nothing could be further than the 'Oh no Methadone' statement. I also take Cymbalta and I think it effects me far more than the Methadone. Same for the morphine.

If they are right FOR YOU, don't back away. It is very weird how the heavy pain medications interact with our bodies (minds).
Wife: Liz
Dogs: Koshka & Chomp


hsmom24boys
Regular Member


Date Joined May 2007
Total Posts : 53
   Posted 3/24/2009 9:49 AM (GMT -7)   
My liver seems to be fine from the labs done, it's my pancreas that is messed up and also a stomach ulcer. I can't find anyone who will treat my joint pain without a diagnosis for it and so far, no one will diagnose me, even though as far as I can tell from my research, I fit the criteria for RA. I am going back to the rheumy in 2 weeks and find out why she won't respond to my phone calls.
Have any of you had experience with a PM that only treats a certain type of pain? or is this MD speak for we don't think your pain is real because we cant explain it, so you must be a druggie?
Diagnosed with chronic pancreatitis last year. Still searching for diagnosis and treatment of widespread joint pain.
  Homeschool mom 2 four boys (make that 3, we graduated one!)
Labor and Delivery RN
Beloved, Think it not strange concerning the fiery trial which is to try you, as though some strange thing happened unto you, But rejoice in as much as yea are partakers of Christ's sufferings: that when His glory shall be revealed, ye may be glad also with exceeding joy.    I Peter 4:12-13


White Beard
Forum Moderator


Date Joined Feb 2009
Total Posts : 3611
   Posted 3/24/2009 1:04 PM (GMT -7)   

hsmom24boys

You know it just might be. because they don't have a firm diagnoses for what is causing your joint  pain. That is only a guess on my part, but from  my experience my pain Doc wants to know what is the cause, but my pain Doc willl also go out and order test and make referals to find out what is going on. But allot of them will not do that! What about your PCP? But you did mention that you had a diagnoses of Chronic Pancreatitis didn't you?  That in its self can be very painful has anyone mentioned dietary manipulation to help control your pain for that? I am sure you have probably been through just about everything imaginable already. I am kind of at a loss for suggestions for you,  I know you are in a very dificult position, right now, I do hope your rheumy can be of some help to you.

Good Luck

White Beard



 

I'm Retired USAF, went back to school and became an RN, and now am on ful disalbility!

Degenerative Disc (affecting mostly the thorasic disc but all levels involved), C6/7 laminectomy/diskectomy& fusion, Osteoarthritis, Ulcerative colitis, Chronic Pain, Fibromyalgia, Complex Sleep Apnea, and host of other things to spice up my life!(NOT!)

Medications: Oxycontin, Percocet, Baclofen, Sulfasalazine, Metoprolol, Folic Acid, Supplemental O2 at 3lpm with VPAP Adapt SV

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