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madisonkeeper
New Member


Date Joined Mar 2009
Total Posts : 8
   Posted 3/24/2009 6:53 PM (GMT -7)   
Hi I'm new to the forum and I joined because I'm at my wit's end. I'm 22 years old and have had chronic pain for 19 years. My most recent frustration is that my doctor believes that all my pain is caused by depression. I'm also worried that my doctor couldn't tell me much about the antidepressants she was prescribing and referred me to the drug's website. I can't help but feel like I was being blown off. I just get the feeling that because I am only 22 doctors and people around me don't think that I should be in this much pain, therefore I'm not in pain. Any suggestions on how to get through to doctors would be greatly appreciated.

Thanks,

Madisonkeeper

Pamela Neckpain
Veteran Member


Date Joined May 2008
Total Posts : 1821
   Posted 3/24/2009 7:05 PM (GMT -7)   
Maybe at your age, doctor's just don't understand it. That's young to even
know what Depression is. However, I've known two people who REALLY knew
what it was. He proved it the day after highschool graduation. The nicest, best
looking guy I've ever met. No one believed his Depression. To this day, my son
says, "He wasn't Depressed. I just don't understand it."
You can contact me at my address.

There are so many ways to treat serious pain. You gotta find the right person.
You will. I know you will.

Pamela

Post Edited (Pamela Neckpain) : 3/25/2009 12:02:13 AM (GMT-6)


skeye
Veteran Member


Date Joined Mar 2008
Total Posts : 2976
   Posted 3/24/2009 8:19 PM (GMT -7)   
Hi Madison,

Welcome to the CP board of HW! If you're in pain, this is the best place to come! Everyone here is so helpful & supportive. You won't find a better place where people UNDERSTAND what you are going though, and I'm sure you know what a rarity that is! That said, I can completely relate to your age issues. I too am young, only 21, although I've only been in CP for two & a half years. My pain takes the form of severe eye pain, the result of a traumatic, and somewhat devastating injury. I'm fortunate that I currently have an excellent team of doctors working for me who believe me, despite our continued lack of answers, & are devoted to helping me, but it certainly wasn't always that way! I've certainly been to quite a few doc's who did not believe me, including one doc at a highly rated university hospital that refused to listen to anything that I had to say, barely examined me, talked about me in a degrading fashion with his fellows, residents, and interns in front of both me & my mother, sent me for the wrong tests, and then all but accused me of being a drug seeker (this was well over a year before I even began taking any pain medication, despite my severe pain & in fact had refused it from my doc on several occasions because I wanted to make sure that I had tried EVERY other possible option before resorting to pain meds)! Then this guy never even wrote my doc, who referred me to him, a note, nor returned any phone calls from my doc, despite multiple attempts from my doc to get in contact with him (who by the way trained under this guy when he was a resident & were supposedly still friendly). Needless to say, I refuse to ever go back to that hospital! Even my mother couldn't believe how horribly this guy treated me (apparently she came very close to telling me to just get up & walk out in the middle of the appointment because she couldn't stand it!).

It is inevitable, that as a CP patient, you'll come across your fair share of docs and health professionals who don't believe you, or give you a hard time (especially, if you, like me, still don't have a concrete diagnosis or explanation for your pain), and unfortunately you will probably run into this even more so because of your age. Just don't give up! If your doctor does not believe you, or is not willing to give you the help that you need, switch to another doctor! There are plenty of docs out there & plenty of docs that will see you for more than your age, or your condition. Remember that as the patient, the docs work for you! May I ask the cause of your pain? Nineteen years, especially starting at such a young age, is a very long time to be in pain! Have you seen any specialists for you condition? What about a pain management doctor? If you haven't seen a pain management doc yet, it would probably be worth getting a referral. They are very specialized and highly adept at treating pain using multiple techniques, not just medications (in fact, from what I've learned, some do not prescribe meds & only perform pain-relieving injections, nerve blocks, etc). Good luck to you! Keep posting!

Skeye

Post Edited (skeye) : 3/24/2009 9:23:01 PM (GMT-6)


oddibemcd
New Member


Date Joined Mar 2009
Total Posts : 5
   Posted 3/24/2009 9:33 PM (GMT -7)   
If your doctor can't or won't give you information, you may be able to obtain it from your pharmacist. In NY, the pharmacist has to make themselves available for counseling/questions from the patient. Even if there isn't a similar requirement where you live, your pharmacist may have more time to explain and more knowledge of the drug.

I'll be hoping you get the relief you deserve.

Odd

PAlady
Veteran Member


Date Joined Nov 2007
Total Posts : 6795
   Posted 3/24/2009 9:42 PM (GMT -7)   
Hi, Madisonkeeper,
Welcome to the chronic pain forum of Healing Well. It's always sad to see someone else in pain, especially so young, but as has been said you've come to a great place for support and understanding.

Could you tell us more about the type of pain you have? Having it for 19 years means you would have been 3 years old when it started. Did something happen - an injury or some sort of trauma - when you were small? Depression is usually part of chronic pain for a variety of reasons, so it's not unusual to be prescribed an anti-depressant, but it doesn't sound like you have much confidence in your doctor. I wonder if you've seen specialists - pain management, psychiatrist, etc., or is this all from your PCP?

Sorry to ask so many questions! And I can understand if you don't feel like answering them all, but it will help us understand your situation. We're not doctors and can't give medical advice, but this is the best place for support I've ever found!

Again, welcome.

PaLady

fatherjohn
Veteran Member


Date Joined Feb 2009
Total Posts : 999
   Posted 3/24/2009 9:53 PM (GMT -7)   
Madison, welcome to the most wonderful forum on the internet. It is not that we like people to come to this site, but we know that some of us need to be here because support is not easy to find sometimes. When people come the first time, many of us remember the first time we logged in and were not sure what we would find. Let me share a few things about CP. It is not a respector of age. As I say, CP is an equal opportunity destroyer. Not all people who claim to have CP are addicts looking for pills. Un fortunately, there are many who frequent ERs, doctors and pharmacies looking for a fix to get the high or even to sell to make money. That makes it harder for those of us that are suffering with CP to get the help we need. For most of us there is no cure. There is anothet procedure, another test, another drug to test but the best we have is to look for a way to manage the pain before it manages us. My suggestion when looking for a doctor is to be prepared with the history from the past. Be specific as possible about the type of pain you are suffering with. Be open to new avenues that doctors might present. Be careful not to ask for a specific drug. One thing I did on a recent visit to my Pain Specialist, I presented him with all that I have been through for the past 11 years, names of doctors, medications tried, how those medications did or did not work and then asked him what he saw as options. He evaluated what had already been done and then came up with several options. Then I discussed the optione with him. I was educated to the options as I did my research before the visit. This forum is an excellent source to options that have and have not worked for others. Know that just because something worked or did not work for someone, does not have any bearing on whether it will or will not work for you. The lasy advise I will share is watch what your expectations are for the doctor. They are doctors but many times they are just as frustrated as we are when results are not coming forth. Keep us posted as to how things are going. Thanks for joining and we all have something to share with others. Blessings! 

madisonkeeper
New Member


Date Joined Mar 2009
Total Posts : 8
   Posted 3/25/2009 8:00 AM (GMT -7)   
"Could you tell us more about the type of pain you have? Having it for 19 years means you would have been 3 years old when it started. Did something happen - an injury or some sort of trauma - when you were small? Depression is usually part of chronic pain for a variety of reasons, so it's not unusual to be prescribed an anti-depressant, but it doesn't sound like you have much confidence in your doctor. I wonder if you've seen specialists - pain management, psychiatrist, etc., or is this all from your PCP?"

I have constant headaches, pain in my arms and legs that gets worse after I've been exercising. I don't remember anything traumatic happening or being injured when I was 3 years old. I was adopted from Korea when I was 6months old so I have no way of finding out if anything happened when I was a baby and have no family history. I've seen a neurologist and a psychiatrist. I was on anti depressants in high school but after I started college my psychiatrist did not beleive I needed them. Its my new PCP that is trying to get me on antidepressants again. I went looking for a new doctor after my last PCP stopped returning my phone calls

ekkorose
Regular Member


Date Joined Jul 2008
Total Posts : 329
   Posted 3/25/2009 8:59 AM (GMT -7)   
I hate to say it but age is a huge factor in how docs react to a person. I have the physical problems of someone in their 60's and before I found someone who listened to me I always heard the "well your too young to have these issues."

What I can say is keep looking until you find someone who will listen. Go to a teaching hospital if you can. Ask people for referals to good docs. Most of all don't give up.

Hysterectomy at 25

4 laproscopic surgeries since 24

Cervical stenosis in C3 & C4

_____________________________________________

 

Meds - percocet  3x day : nexium : xanax :

Supplements : calcium : magenesium :potassium : milk thistle : fish oil : B complex : vit E

____________________________________________

In the United States today, there is a pervasive tendency to treat children as adults, and adults as children. The options of children are thus steadily expanded, while those of adults are progressively constricted. The result is unruly children and childish adults. ~Thomas Szasz 


PAlady
Veteran Member


Date Joined Nov 2007
Total Posts : 6795
   Posted 3/25/2009 12:23 PM (GMT -7)   
I would agree with ekkrose; can you get a thorough evauation at a teaching hospital? Also - if the pain is increasing after exercise, I would stop the exercise you're doing until you find out what's going on.

I wonder what memories you have of pain as a young child, and if you've been having pain throughout your childhood, what have your parents thought or done. It does seem like you need more than a PCP to help figure out what's going on.

PaLady

LLPLUV
Veteran Member


Date Joined Mar 2009
Total Posts : 1158
   Posted 3/25/2009 1:17 PM (GMT -7)   
madisonkeeper
 
I understand.  My pains started at age 18.  I really beleive doctors feel pain is in a certain catagory.  I think most of us will agree you don't have to be older to feel chronic pain.  Depression can cause some pain and depression can make pain worse.  My question to the doctors would be "Which do you believe came first."  You know yourself better than anyone.  I would keep searching for a doctor or like everyone else has told you go to a teaching hospital.  Here in Nashville we have Vanderbult they are great.  They have been known to find causes for issues that were over looked for years by other doctors.
 
You will be in my prayers.  You are so young to have dealt with so much pain.
 
Laurie

Jules22871
Regular Member


Date Joined Jan 2006
Total Posts : 142
   Posted 3/25/2009 1:22 PM (GMT -7)   
madisonkeepr,

Laurie is right. Teaching hospitals are the bomb,lol I live in Tennessee also and once I get my insurance I will transferring my care from The University of Alabama Hospital to Vanderbilt Hospital. We already have it all lined up. If we hadn't had our wreck so close to UAB, they say that I would have either lost part of my pelvis, hip and all of my leg or I would have died. You will find some great doctors at teaching hospitals that are willing to try new things that other places won't. Many times it is just what you need to get better. I wish you the best of luck!
Motorcycle wreck 08/2004: 119 fx, 13 surgeries with more to go, including 5 bone grafts, 2 skin grafts, pelvic reconstruction x2. Right leg is 1.5" shorter than left. Have to wear knee brace for life and also AFO brace for drop foot. Nerve damage from hip down to toes, nerve pain in lower leg. Spinal fusion. Will be on crutches the rest of my life. Pain level never below 5 even on pain meds. Since August 2007 I have been diagnosed with chronic atelactesis, tachycardia, high blood pressure, borderline personality disorder, depression and Delayed sleep phase syndrome

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