pharmacy ran out of my meds!

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skeye
Veteran Member


Date Joined Mar 2008
Total Posts : 2976
   Posted 3/27/2009 4:21 PM (GMT -7)   
I went to get my monthly refill of my dilaudid on Monday & the pharmacy only had about 150 out of the 180 that I needed. I don't have a contract stating that I can only use one pharmacy anymore, as my pcp is now my prescriber, however, we have a sort of verbal agreement that as a good CP patient I will stick to the same pharmacy and notify my doc of any change beforehand. I had actually talked with him the day before about possibly switching to a pharmacy closer to my school. He wanted me to talk with the pharmacist first to make sure that they would take me (as my doc is not a local prescriber for that pharmacy, as it is about 70 mi away from his practice) & then talk to him again before I switched if I chose to do so. Well, by the time I took my prescription to the pharmacy (my regular one) on Monday evening, my doc's office was closed, so it was too late to call to okay using the other pharmacy & at that point I was also already in the opposite end of the state from the new pharmacy. I needed the meds right then, as I only had enough to get me through that night, so I just took what they had. I knew from past posts here that the remainder of my script would be void & I would need a new one if I was to get the rest of my meds. I left under the impression that the pharmacist was going to order more dilaudid the next morning & that they would have it later in the week (as we had talked about how I needed the rest & needed to get a new script & documentation to show my doc, etc). I talked to my doctor the following day & explained the situation, and he agreed to write me a new script for the remainder of the pills that I needed.

So today I took the new script back to my regular pharmacy, only to find out that they did not order any more, & despite my asking them to order some again today, were not planning on ordering any in the near future, as the entire Walmart store is under construction & so they are cutting back on their orders (it would have been nice to have given their customers some warning! there was no prior notice about the construction, the duration of the construction, or how it would affect the pharmacy). It's not like I haven't been a regular customer for months! Not to mention that I have been getting the same thing for a while now! I ended up having to bring the second script over to my old pharmacy neaby.

It turns out that my insurance won't accept the new script until the second week in April anyway, which is frustrating, since I didn't get my whole script to begin with, so I don't see why they won't accept the new script for the remainder of the script that was only partially filled earlier in the week! I was (and still am a bit) worried that if I get this small script (about 5 days worth) filled in two weeks, that I won't be able to get my normal monthly supply when I need it. The pharmacist said that it shouldn't be a problem, but I'm still hesitant. I left the script with them & they are supposed to fill it when my insurance okay's it, but I'm still not sure if that is the right thing to do. If I don't fill it, it will mean going through 5 days without meds/conserving my meds ahead of time, but if I do fill it, then it could potentially mean going an entire month without any meds & being forced into withdrawl! At least I trust this pharmacist more than the pharmacists at Walmart (who have given me horribly incorrect information more than once). He's probably right, but I'm just not sure! I wish I could have stuck with my old pharmacy, as it is a small mom & pop type place, and the people are pretty nice (although not as nice as the old owners). I have used them my whole life until several months ago, when they just got too expensive under my new insurance plan, as I had to pay almost the full price of all my meds, as well as the full price for all my doctors visits until I met my deductible. I never once had a problem with them running out of my meds. They are very good about keeping the meds that their regular clients use in stock. I'm actually thinking about switching back to them, as I've just met my deductible for the year, so all my meds are now "free," but I'd then have to switch back to Walmart at the beginning of the year until I meet my deductible once again. However, I'm afraid that that might raise some red flags. Why does this have to be so complicated! We shouldn't have to plan for things like this!

Skeye

Post Edited (skeye) : 3/27/2009 5:27:01 PM (GMT-6)


PAlady
Veteran Member


Date Joined Nov 2007
Total Posts : 6795
   Posted 3/27/2009 4:36 PM (GMT -7)   
Oh, SKeye!!!

You're so right, we shouldn't have to juggle like this! It's hard enough getting the script filled the first time!

It seems you have a good relationship with your PCP, so maybe explain to them what is going on and your concerns about next month's script. Or maybe call your insurance company and try to understand what their policy will be (it doesn't seem right they're making you wait to refill the remainder of your script...what's up with that?).

Maybe this is a good time to try to switch to that pharmacy closer to school. Have you talked with them yet about whether they'd accept your doctor's scripts - and I'd be sure to talk with the head pharmacist, and explain the kinds of meds you get so they know you'll be a CP patient. If they're going to give you any hassle, it's sure not worth it. Then maybe the juggling you talked about starting in Jan. with Wal Mart, returning to your Mom & Pop pharmacist as soon as your deductible is met, is the best plan, as long as your doctor agrees and the Mom & pop pharmacy undersands your problem. I wonder if the Mom & Pop pharmacy would be willing to work out some kind of payment plan with you so that you could pay off that deductible slowly, but still stay with them? Just a thought.

I don't know if I'm helping or just rambling but I will send you a huge hug!

((((((((((((((((((Skeye))))))))))))))))

And a big GRRRRRR for Wal Mart!

PaLady

skeye
Veteran Member


Date Joined Mar 2008
Total Posts : 2976
   Posted 3/27/2009 4:55 PM (GMT -7)   
Palady,

After giving it more thought, I decided not to switch to the pharmacy up by school. I don't exactly go to school in a safe neighborhood. And although the pharmacy is in a better part of town, I am still quite worried about getting my pain meds there. Also, the whole reason for switching would be that it would be easier for me, so I don't have to drive down to the other end of the state every month just to fill my script. But I realized that I would still have to drive back anyway to pick up my script (I don't feel comfortable having them mail it to my college address, even if they agreed). It's a no win situation either way. I think I'll talk with my doc about switching back to my old mom & pop pharmacy/ the possibility of having to flip flop pharmacies depending on my insurance status, at my next appointment.

I just can't wait until things get even more "fun" in a year or two, when I go off of my parent's insurance plan & onto my own. If anyone even wants to risk taking me on, I'm sure all my eye stuff & other CP related things will be excluded. My parents are already really struggling because of my medical bills. I'm afraid of what will happen to me with very little money & large amount of school loans. But I need to not worry about that for now. Why do they make life so hard for CP patients?

Skeye

PAlady
Veteran Member


Date Joined Nov 2007
Total Posts : 6795
   Posted 3/27/2009 5:54 PM (GMT -7)   
Skeye,
As lousy as it may sound, maybe you'll qualify for some government programs by then. I'm beginning to think as tough as it will be to try to get Medicaid (hopefully I'll qualify once my COBRA runs out), it may be the only way in the long run I'll ever be able to afford health care. Eventually I'll get onto Medicare, but if I am still poor (can't imagine that I wouldn't be unless someone wins the lotto and gives me a chunk) Medicaid will probably be my secondary carrier.

It's all so sad and frustrating, isn't it? And something we really shouldn't have to worry about - at least not to the extent we do in this country.

PaLady

Tirzah
Veteran Member


Date Joined Jul 2008
Total Posts : 2280
   Posted 3/27/2009 8:40 PM (GMT -7)   
Skeye,
Some insurance companies do have a policy that you cannot get a new script until your current one is about to run out (even if your current one is only for 2 or 3 weeks). Still, that does mean that you shouldn't have any problem whatsoever getting your script at the beginning of next month b/c you will only be getting a small script & will be near running out of it by the time you try to fill your 30-day script in late April. It is really inconvenient, but unfortunately the insurance companies don't care.
As far as what to do after school, if you pick a large employer (500+ employees) they are required by law not to put an exclusion period or exclusion clause for pre-existing conditions as long as you have had continuous medical insurance for the previous 12 months. After you graduate, if you don't have a job right away, almost every college offers an insurance program for it's graduates that you can purchase. It's not anything amazing, but it will allow you to maintain that "continuous medical insurance" that you need in order to get coverage for your pre-existing condition. If you work for a smaller employer, but still participate in a cafeteria plan, they can exclude your condition for up to 12 months. If you have to buy an individual policy b/c your employer does not offer any insurance, they can exclude your condition for up to 36 months. It is frustrating to have to take things like that into consideration when job hunting (esp. in this market), but that's what I do & it's gotten me this far. Like the saying goes "cross that bridge when you come to it".

I don't know whether you saw the program on TV the other day from AARP about America's top hospitals. They said that the Eye Institute at the University of Miami was their top ranked hospital for anyone with any kind of an eye problem b/c it is the only facility in the nation that has doctors with every possible specialty related to eye disorders. Maybe you've already looked into it, but I just thought I'd mention it to you. If you could just get your eye healed up, then you wouldn't even have to think about insurance & meds & doctors or any of that other stuff. Oh, how I wish that for you. :) Good luck!

peace,
frances

Pete trips again!
Veteran Member


Date Joined Nov 2006
Total Posts : 1899
   Posted 3/27/2009 9:16 PM (GMT -7)   
PA, Yes> I'm still playing the Lottery and WHEN I win, you & Wild Frances are going to be the first on my list of share holders! Skeye, you too but in the mean time, if you every need a place to stay if you come to Fla to see the Eye Doc's in Miami, you are certainly welcome here at my place. I'm just a little over an hour from there depending on traffic!!
Luv Yuze> Later>
Pete
56 years old, Surgury, Radical Prostatectomy 8/20/03, PSA 6.6, Gleason 3 + 3 = 6, Adenocarcinoma extent (moderate) Stage & Margin:T2NOMX, No Metastases, Organ Confined, bone scan: Neg. 3 1/2 years of depression after surgery prior to Hypogonadizm DX, Testosterone Theropy> new 2/6/09> 400mg injections every 2weeks . 56 and so glad to still be here to see my two sons grow up to be fine young men. They are both serving in the US Navy, one on the aircraft carrier USS John Stennis in port in Japan and the other on a Gator Freighter USS Bataan stationed in Norfolk, Va. I am one proud PaPa! 


skeye
Veteran Member


Date Joined Mar 2008
Total Posts : 2976
   Posted 3/28/2009 5:56 PM (GMT -7)   
Thanks everyone!

Frances, thanks for the info about the Eye Institute in Miami. That is pretty neat that they have all those specialists situated in one area! I haven't looked into it in depth, but I had previously seen that is it ranked #1 for ophthalmology by the US News & World Report. I am definitely going to be looked into places like that in more detail this summer. Right now, I'm kinda waiting to see if anything comes out of this conference my doc is going to in a couple of weeks, plus I have to wait until I'm out of school anyway. But I am definitely thinking & planning, so I'll be sure to put it on my list!

Pete, awww, thanks for the offer! You're too sweet!

Skeye
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