Opiods Don't Work For Me.

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Pamela Neckpain
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Date Joined May 2008
Total Posts : 1821
   Posted 3/29/2009 1:45 PM (GMT -7)   
It would be totally impossible for me to hold a job. Unthinkable. My pain will not
permit it. Going grocery shopping is a major task. I wonder if I'll make it
to family Easter dinner. I can't drive. It's too difficult to turn my head. I'd be a
menace in this big city whizzing traffic.

My pain medication doesn't work for me. There has NEVER been a pain medication
that has worked. I wonder if my system simply doesn't accept the help Opiods
can give? (Seven Years)

I've tried almost every Opiod that exists at the current moment.

Painsters, how well does your medication work. Does our pain over power the pills?
What happens?

The only thing that helps me is Nitrous Oxide that the dentist gives. For the bried
time I'm in the dental chair, I'm painfree.

And then I go to the office to pay me bill and of course, pain slaps me down really
hard. $$$$$$$$$$$$$$$

Pamela

Pamela Neckpain
Veteran Member


Date Joined May 2008
Total Posts : 1821
   Posted 3/29/2009 1:46 PM (GMT -7)   
ps

A lot of my pain is bone spurs. I guess there isn't much that can be done about that
without surgery.

Post Edited (Pamela Neckpain) : 3/30/2009 2:29:45 PM (GMT-6)


LLPLUV
Veteran Member


Date Joined Mar 2009
Total Posts : 1158
   Posted 3/29/2009 2:38 PM (GMT -7)   

I'm sorry pain meds don't work for you... confused

Can I ask how you make it through a day?  I will put you in my prayers for alittle relief.

What do you do to help with it???

Laurie


Chronic Kidney Stones, PKD (Polycystic Kidney Disease), Chronic Kidney Failure, Severe Hypertension


Pamela Neckpain
Veteran Member


Date Joined May 2008
Total Posts : 1821
   Posted 3/29/2009 6:00 PM (GMT -7)   
I make it through the day feeling a lot of pain. It's a difficult way to live.
Thanks for posting, Laurie.

Pamela
MEDICAL CONDITIONS

Osteoarthritis all levels of spine right down to Coccyx,Spondilytis,Myofascial Pain
Fibromyalgia,Bulging Discs,Spinal Stenosis,Scoliosis,Osteopenia,Chronic Constipation
Carpel Tunel Syndrome, Attention Deficit Disorder,
Depression & Anxiety

Methadone for Pain, Xanax for Anxiety, and more, of course.


Tony McGuire
Regular Member


Date Joined Feb 2009
Total Posts : 483
   Posted 3/29/2009 6:30 PM (GMT -7)   
Pamela,

We have very different types of pain, and mine only get me to about a 5/10 for relief at best with frequent stints in the 7 level, but I'll give you mine anyway.

I take Methadone 20mg/10mg/20mg morn/noon/bed but I don't think it works even half as well without the Morphine IR 30mg that I take with it (I believe they work in combination for me).

In addition I take Lyrica 150mg morn/noon/bed and Cymbalta 60mg morn/bed.

I was taking each of these without the others at one point or another, and nothing was working for me. Then I switched to a PM, and he started grouping them together. Voilá, I started getting relief. No change in AMOUNT, just in WHEN.

I tell you, the Cymbalta DEFINITELY enhances the Lyrica where pain is concerned. They know it, too. (They being the drug companies, doctors and FDA.) They should combine these as a new drug for pain instead of only sell them separately and make you buy and mix yourself. The combination is HUGELY different than either alone.

I've been to 2 Neurologists, both saying I was at the end of treatment options and the PM says about the same thing. I forget to take my meds quite frequently, and the riproaring pain comes back at about 14 hours. It is there, just being held at bay by the miracle of drugs. Unfortunately, this is lifelong for me, if the Neurologists, PM and PCP doctors are right.

I hope that there is a combination for you waiting. And I hope you can find your combination before too long, or that your condition can be fixed or cured.

Please tell me that some of the above is new knowledge for you, and I didn't waste 5 hours trying to remember how this all works.
Wife: Liz
Dogs: Koshka & Chomp


Pamela Neckpain
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Date Joined May 2008
Total Posts : 1821
   Posted 3/29/2009 6:46 PM (GMT -7)   
I'll go take my Morphine IR and be right back, Tony.

Back. Well, that's something to try.I had just taken my afternoon Methadone.
I take the 10 mg Methadone. I take it in evenly divided doses of 40/40/40.
When I get panicky about my pain, I take 1 mg. Xanax (That helps. But I have
to be very careful when I take them)

I don't take Lyrica and Cymbalta because I can't afford them. Sometimes companies
give you a financial break if you need it. I'd like to find out. They sound good, Tony.
(My financial problems came when the stock market went bad.)

I just have a feeling that Lyrica and Cymbalta would be the ticket for me.

Do you ever think of the Pain Pump? If not, why not? : ). I'm scared of it.
I'm not sure my doctor will do the right thing.

I was told by another pain doctor at a big clinic to never get a pain pump because
of the issue of infection. I've seen how infection works. OMG, it's terrible. My
husband almost died. He was in the hospital for 4 or 5 days and sick, sick, sick.

Fear doesn't do anybody any good. I should just : X.

Thank you. I've learned something. Your five hours lost in thought were for MY
benefit. yeah

Pamela

Post Edited (Pamela Neckpain) : 3/29/2009 7:49:03 PM (GMT-6)


Tony McGuire
Regular Member


Date Joined Feb 2009
Total Posts : 483
   Posted 3/29/2009 6:51 PM (GMT -7)   
What I failed to mention is that some opioids work TOO WELL for me.

Oxycodone 10/625 I believe it was put me on cloud 9. And it has been the ONLY thing that has given me 100% pain relief. On it, I had NO PAIN whatsoever. Unfortunately, it works too well. Except it only works for three hours when it is supposed to work 6-8, and it takes a full hour to start working.
Wife: Liz
Dogs: Koshka & Chomp


Pete trips again!
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Date Joined Nov 2006
Total Posts : 1899
   Posted 3/29/2009 6:52 PM (GMT -7)   
Pam, I think it may have something to do with the methadone. I believe it's a weird drug like no others! It seems to work differently w/ different people and also in combination with other drugs! I really haven't talked much about what happend after my surgery as I didn't want to scare anyone, especially you! I had it bad on the first two days. I never felt anything like it in my life and I've been through a few doozies!. If a #10 on the scale of #10 is holding your hands in the flames of a fire and leaving them in there, thats what I felt when I woke up from surgery in my neck!!! A full blown #10, no if's and's or but's!!!!! I was screeming for meds and they gave me morphine which did nothing at all. I screamed more so they gave me Dilladid? and nothing! I cried and screamed from what I remember and they said we gave you everything, what do you want? I asked about methadone and said thats what I take. They called the Dr. who said, no way you'll kill him! So for a last resort they gave me some percocets to try, they actually helped a little which blew my nurses in ICU away. How could the hard IV stuff do nothing for me and the Perc's did? Maybe because my methadone filled receptors are used to getting oxicodone given to them several times a day. It's what I use for break-thru pain! So for the rest of my stay, I took exactly what I take at home>> Methadone & Percocet!!! NOTHING worked any better! So Pam, I may be totally wrong but before my surgery when my neck was really rocking in pain, none of my meds even put a dent in it! I know how you feel! I'm so happy I had the surgery even if it meant going to hell and meeting the devil! I made it back and would do it again if I had to That #10 stuff is no fun at all!!! God Speed that pain away Pam!
Your Buddy,
Pete
56 years old, Surgury, Radical Prostatectomy 8/20/03, PSA 6.6, Gleason 3 + 3 = 6, Adenocarcinoma extent (moderate) Stage & Margin:T2NOMX, No Metastases, Organ Confined, bone scan: Neg. 3 1/2 years of depression after surgery prior to Hypogonadizm DX, Testosterone Theropy> new 2/6/09> 400mg injections every 2weeks . 56 and so glad to still be here to see my two sons grow up to be fine young men. They are both serving in the US Navy, one on the aircraft carrier USS John Stennis in port in Japan and the other on a Gator Freighter USS Bataan stationed in Norfolk, Va. I am one proud PaPa! 


straydog
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Date Joined Feb 2003
Total Posts : 13473
   Posted 3/29/2009 8:03 PM (GMT -7)   
Pam, have you had the Morphine all along and not taking it? How did it work for you? Be interesting to hear from you and how things came out. SusieQ


Tony McGuire
Regular Member


Date Joined Feb 2009
Total Posts : 483
   Posted 3/29/2009 8:21 PM (GMT -7)   
Yes, Cymbalta is VERY expensive ($260/mo for my dose). My dr had to fight like a lion to get the insurance company to pay for it in the increased dose (insurance said I only needed 30mg 2xday, and who was a dr to countermand an insurance company).

Insurance insisted I fail on Amitriptyline first. So I went on 150mg 3 times a day, I believe it was.

Well, I didn't fail in that the Amitriptylline actually cut the pain as well or better than the Cymbalta, each on top of the Lyrica. But the 'trip' in the med's name had definite meaning for me.

It was stronger than alcohol, I'll say that. I couldn't walk 2 feet straight; more than half of my sentences didn't make sense to me, let alone anyone else.

So they put me on the Lyrica @ 150mg 3xDay on top of Cymbalta @ 60mg 2xDay like my doctor wanted. And I've been on that ever since.
What I'm getting at is the Amitriptyline may be an option for you. Or another light anti-depressant in combination with the Lyrica; I understand they (anti-depressants) most all act to heighten the effects of the Lyrica for pain relief - to one degree or another.

The ones who can probably tell you more are #1 the pharmacist and #2 your doctor.

Again HTH. (Hope This Helps)

(Edit: Lyrica replaced Cymbalta)
Wife: Liz, the choice of a lifetime
Dogs: Koshka & Chomp

Post Edited (TonyMcGuire) : 3/30/2009 8:21:05 PM (GMT-6)


Tony McGuire
Regular Member


Date Joined Feb 2009
Total Posts : 483
   Posted 3/29/2009 8:27 PM (GMT -7)   
PAIN PUMP? Neither my PCP nor PM have ever brought it up.

Personally, I worry about the pain and infection. I know someone who has a pump, and he says he wouldn't do it again now that he's had one. Although his BIG pain is mostly taken away, he has niggling pain all the time so it is a trade.

I don't like the idea of wires inserted inside me. I'm one who would probably feel the wires while asleep, and work very hard to rip them out while sleeping. And I'm totally untrainable in that regard.
Wife: Liz
Dogs: Koshka & Chomp


Hello~Kitty
Veteran Member


Date Joined Jun 2005
Total Posts : 610
   Posted 3/29/2009 9:11 PM (GMT -7)   
Absoutly no narcotics worked for me, and I tried them ALL!! The only think that I found to work was Morphine ER 100mg 3 times a day with Actiq 800mg 4 times a day, but my insurance wont pay for the Actiq anymore since I turned 21 and lost my dad's insurance. Then morphine seemed to slowly stop working too. But Suboxone has been a God send for me, which surprises me cause I thought it wouldnt work at all for pain, but if definitly does. My doctor and I decided to keep me on it a while longer on it then we agreed to, and I wouldnt trade it for anyother painkiller. I love how it works as a long acting drug plus a breakthrough, cause I can take a milligram extra for breakthrough (just cant exceed 24mg in one day), and it only takes 15 mintutes to work since its absorbed under the tongue straight into the blood stream, so theirs no waiting an hour or 2 for pain releif. Plus the Cymbalta and Lyrica has been doing their job also, even if that means losing my eyesight to the lyrica.

-hellokitty
26 year old Female , single mother of 2 kids, on SSI for migraines, pain, pancreas issues
All the things broken with me: Migraines, Fibromyalgia, Chronic lower back pain that causes severe pain/numbness/tingling especially to my left leg,Arthiritis in my back, Genetic Pancreatic Divisum that causes chronic pancreatitas, Asthma, Depression w/Anxiety/panic attacks, Bipolar
Prescription Meds:Suboxone 24mgs daily, Cymbalta 60mg nightly, Lyrica 50mgs nightly, Imitrex as needed, Ibprofen 800 twice daily, Zanaflex as needed, Ventolin as needed for asthma attacks, Advair twice daily
Over the counter meds: Benadryl nightly for itching due to meds (not sure which one yet),
Surgeries: Gallbladder removed at 15 years old, 2 ERCPs, stent put in pancreas, countless upper GI scopes, Bartholin gland opened permanetly due to recurring painful cysts
Goals: to go to college next fall to be a nurse and get off of SSI, would love to work in a inpatient rehab center for drug addicts
Wishful thinking: to not be in pain!!!


White Beard
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Date Joined Feb 2009
Total Posts : 3611
   Posted 3/29/2009 9:23 PM (GMT -7)   

Pamela

Often a low dose anti-depressant is used in conjunction with a pain medication, it has a synergistic effect, and is usually better than treating pain with either one alone. But I do know that when I had the herniated disc at C6/7 for those 3 months before they finally found out what it was and done the surgery, they gave me every type of pain med imaginable and nothing could block that pain. Very few pain meds are effective against nerve root pain. My surgeon explained that when the nerves that branch off the spinal cord are impinged upon, ( that is the the root of the nerve) hardly anything is effective against the pain that is produced. And I like Pete had a very miserable first few days, right after the surgery, but most of my pain  was in my pelvis, because that is where they took the bone for the fusion. I honestly thought that area hurt worse than my neck! To this day I can feel th notch on my top right  pelvis bone where they took the graft.  Anyway Pamela maybe that is why your having so much pain maybe the nerve roots are being impinged upon. Have you heard anything about your MRI yet and what it showed? I haven't heard you mention anything about it in quite awhile. I sure wish you weren't in so much pain!

Good Luck to You Pamela

White Beard



 

I'm Retired USAF, went back to school and became an RN, and now am on ful disalbility!

Degenerative Disc (affecting mostly the thorasic disc but all levels involved), C6/7 laminectomy/diskectomy& fusion, Osteoarthritis, Ulcerative colitis, Chronic Pain, Fibromyalgia, Complex Sleep Apnea, and host of other things to spice up my life!(NOT!)

Medications: Oxycontin, Percocet, Baclofen, Sulfasalazine, Metoprolol, Folic Acid, Supplemental O2 at 3lpm with VPAP Adapt SV

Post Edited (White Beard) : 3/29/2009 10:28:23 PM (GMT-6)


Hello~Kitty
Veteran Member


Date Joined Jun 2005
Total Posts : 610
   Posted 3/29/2009 10:33 PM (GMT -7)   
There is also the possibilty of rebounding from opiods (I forgot the real name for it), it's basically your brain convincing you're in more pain then there really is just so you feed it more narcotics. And they find that quite a good portion of people taking pain meds for pain suffer from this, more then half. the only way to find out if you have this is to stop pain meds all together for a period of time, which is what I'm suppose to be doing, and will do, cause my tolerence kept getting higher and higher with no pain releif at all. Well just a thought. Not saying that this is your problem, just naming a possiblity, and when I thought alot about this, it made alot of sense, cause I was taking 60mg of methadone 3 times a day with absoutly no pain releif, and refused to go up and decided that this whole bussiness was stupid, I should of been dead from all the methadone I was taking, but instead I couldnt sleep or eat or do anything because of the pain.

-hellokitty
26 year old Female , single mother of 2 kids, on SSI for migraines, pain, pancreas issues
All the things broken with me: Migraines, Fibromyalgia, Chronic lower back pain that causes severe pain/numbness/tingling especially to my left leg,Arthiritis in my back, Genetic Pancreatic Divisum that causes chronic pancreatitas, Asthma, Depression w/Anxiety/panic attacks, Bipolar
Prescription Meds:Suboxone 24mgs daily, Cymbalta 60mg nightly, Lyrica 50mgs nightly, Imitrex as needed, Ibprofen 800 twice daily, Zanaflex as needed, Ventolin as needed for asthma attacks, Advair twice daily
Over the counter meds: Benadryl nightly for itching due to meds (not sure which one yet),
Surgeries: Gallbladder removed at 15 years old, 2 ERCPs, stent put in pancreas, countless upper GI scopes, Bartholin gland opened permanetly due to recurring painful cysts
Goals: to go to college next fall to be a nurse and get off of SSI, would love to work in a inpatient rehab center for drug addicts
Wishful thinking: to not be in pain!!!


Pamela Neckpain
Veteran Member


Date Joined May 2008
Total Posts : 1821
   Posted 3/29/2009 10:52 PM (GMT -7)   
Tony McGuire,

I took my usual four Methadone and as you know I put the Morphine IR on top of it.
That was four hours ago. I went shopping and enjoyed the canned music even!
I bought some good looking food and felt hungry for it. I was happy and normal.
That was ONE time. I'll have to see if it continues to do the job for me. I'm thinking
I am undermedicated OR the Morphine causes a synergy. I didn't go outside what
my prescription allows. I'll talk to my pain doctor tomorrow.
So to you people who don't take your medicine because you're afraid, don't do that!
You could just be causing yourself problems. Apparently I did.

I have some more I want to say to people and will be back asap.

Pamela

Tonight for dinner it's spinach salad with feta cheese and glazed walnuts. Also
golden squash with butter and brown sugar. Also, Tapioca with whip cream for desert! yeah
I'm hungry for the first time in a very long time.

Tony McGuire
Regular Member


Date Joined Feb 2009
Total Posts : 483
   Posted 3/30/2009 12:20 AM (GMT -7)   
Pamela,

WOW! I'm so sorry I went to bed and wasn't up to 'celebrate' with you your medical miracle. It sounds like you've discovered at least a partial fix to your overall pain issues. I'm so VERY happy for you if it turns out like it is sounding like it is going to turn out.

By the way, your fear...did you mean that you didn't think it sounded right to put morphine on top of methadone - because of the type of drugs they are? Cause that was a fear I had when they were first prescribed. I was afraid that the morphine would cause an overdose of the methadone - and almost didn't take them. Just wanted to clear that up.

(Well, the Tapioca sounds *wonderful*. skull )

(Edit: added 'd' to be for bed)
Wife: Liz
Dogs: Koshka & Chomp

Post Edited (TonyMcGuire) : 3/30/2009 1:42:19 AM (GMT-6)


Stella Marie
Veteran Member


Date Joined May 2005
Total Posts : 601
   Posted 3/30/2009 12:21 AM (GMT -7)   
You said your pain was from bone spurs if I am not mistaken. That is a totally different type of pain. I also have bone spurs as a result of osteo-arthritis. Bone spurs are actually very sharp calcium deposits on your bone joints that protrude and physically cut into the surrounding tissue. They cause ongoing injury and inflammation. I am not sure you are going to find a narcotic that covers this type on ongoing trauma. My orthopod finally recommended the surgical removal of the spurs and fusion of the affected joint. Pain meds rarely cover the type of pain that results from something (e.g. a bone spur) literally poking and cutting tissue every time you move. I was pain free after the surgery. There are times when you have to evaluate surgical options to help reduce or eliminate a defect that is causing ongoing trauma. Have you been evaluated for possible surgical intervention?

Stella Marie

Rare neurodegenerative disease called “Multiple System Atrophy”.  Wheelchair, O2, & Bipap, intrathecal pump, neurostimulator, dystonia, neuropathic pain,  spasticity...etc..etc.


Tony McGuire
Regular Member


Date Joined Feb 2009
Total Posts : 483
   Posted 3/30/2009 12:25 AM (GMT -7)   
~HelloKitty: "..even if that means losing my eyesight to the lyrica."

Is potential loss of eyesight one of the side effects of Lyrica? I don't think I had heard that before...
Wife: Liz
Dogs: Koshka & Chomp


Tony McGuire
Regular Member


Date Joined Feb 2009
Total Posts : 483
   Posted 3/30/2009 1:12 AM (GMT -7)   
Pamela: "When I get panicky about my pain, I take 1 mg. Xanax "

What's to be panicky about your pain?

Seems to me it is the LAST thing to be panicky over. It will always be there, following you around like a little puppy. ALWAYS dependable. And if for some reason it ISN'T there, that is a reason to celebrate.

So, I'd say the last thing to be panicky over.
Wife: Liz
Dogs: Koshka & Chomp


Pamela Neckpain
Veteran Member


Date Joined May 2008
Total Posts : 1821
   Posted 3/30/2009 1:38 AM (GMT -7)   
Pete,

I did wonder how things went for you afterward. Now I know. : - /

I believe you are fortunate that your pain doctor knew that Methadone would kill
you at that certain point after surgery. Sheesh!

I don't think my pain doctor would know that. I don't think he knows much of anything
about Methadone. Another doctor prescribed it to me and then we moved and I
had to change doctors. Methadone is probably why they couldn't sedate me when they
put me in the MRI. I kinda doubted that they had anything in those IV's, but now
I believe they did and I just couldn't feel it.

In some ways we're like pioneers in the Chronic Pain history. I don't know the
story of Methadone but I do know it hasn't been used for pain for so very many
years.

Unfortunately I don't have a good pharmacist anymore. Those are the people who
should know the story. I don't think I'll have to have surgery now - but I dunno.
I'll find out tomorrow.

It's very good to have you back where you belong. I'm kinda glad you're gonna
hang out with us even though your pain is lighter.

When I was giving birth, there was a woman in the next room screaming her head
off. It was distracting. It was just plain rude. I asked the nurses to tell the lady
to be quiet. "It's you who is screaming," they said. Geeze. They gave me the stuff
that makes you forget pain.

So if you forget pain do you really feel it.

Thanks for the post, Pal Pete. From Pamela :-)

Pamela Neckpain
Veteran Member


Date Joined May 2008
Total Posts : 1821
   Posted 3/30/2009 2:03 AM (GMT -7)   
Hello~Kitty,
It's good to know about Suboxone. That one's really new, I think. Maybe medical
science is catching up just a little? I hope you can accomplish your goals. I'll bet
you can.
I don't know if I have that rebound thing. I need to find out. I sure could have it.
Try to find out the real name for that rebounding thing. OK?

StrayDog/Susie
I've always had the Morphine. I've tried it and it didn't do anything. Apparently, it
has to be mixed with Methadone. We'll see. Maybe it was just beginners luck.

White Beard,
I didn't go to the hospital to get my one MRI. Fear, you know. I will see the doctor
tomorrow. I take Celexa. It hasn't seemed to help.

Tony,
The spinach salad was wonderful. All those good vitamins. Oh yummmmm.
I ate candy while I was in the store. A lot. When I got home I wanted something
healthful.
Yes. I thought the morphine would cause an overdose.

Stella Marie,
You have a pretty name. I'm going to suggest Stella as a name for my grandaughter
who is due on June 3.
The doctors have told me all along that i have bone spurs. It does feel like cutting.
That sounds bad.
I will be evaluating my surgical options. That's for sure.

uniquelyme
Veteran Member


Date Joined Nov 2008
Total Posts : 1037
   Posted 3/30/2009 5:53 AM (GMT -7)   
 
 
Hey Pamela,
My methadone friend...ha ha
 
I was first told to take my methadone like you are...40/40/40.  Then when I told my Dr. that it wasn't working as well as it had in the past she told me to take it 60/60...what a difference it makes.  Of course, since then I have hit a plateau.  But it did work for a while.
 
Ask your Dr. about the change.  I also used to take all 120 mg. at once for about 6 months.  That was strange to say the least.  Now it's better.
 
I hope you eventually find a combination that works for you...What is the diff between Morphine IR and Oxycodone 15 mg.?  I'm wondering if I should ask to try something else.
 
Me.

 
We are all in the same boat...unfortunatley it seems like it's sinking...
 
Rhonda
Post Lamenectomy Syndrome
Hemi Lamenectomy
Spinal Fusion
 
120 mg. Methadone daily
60 mg. Oxycodone daily
Lyrica as needed 
 
Type 2Diabetes 
Metformin 500 mg. once daily
                                                                     

 


Tirzah
Veteran Member


Date Joined Jul 2008
Total Posts : 2283
   Posted 3/30/2009 10:28 AM (GMT -7)   
Pamela,
Sorry to hear you are in a lot of pain right now. Opioids didn't work too well for me either until after surgery. Maybe you need to find a hospital where you would feel comfortable with surgery. There are a ton of choices out there & it may be that your hospital doesn't have a good record with infections, idk. That was something that I looked into prior to surgery. Hospitals are required to keep statistics on those kinds of things. They keep records of how many infections in general & then keep separate numbers for MRSA. You can check into that and choose a facility that has a good record. Whenever possible, I choose an outpatient surgical center b/c they tend to have a very, very low rate of infection. I'm not sure if that's possible for what they want to do to treat you (for sure the pump implant can be done at a surgicenter, but I'm not sure about bone spurs -- sometimes they can, sometimes they can't b/c you need to say overnight for observation). I know those things make the news, but they really are pretty rare, especially for patients who are either out-patient or only there for a day. There are new antibiotics available & you will be given an antibiotic as a precaution prior to surgery. By choosing a healthy hospital & keeping your wound clean after release, the odds of infection really are minuscule.

I know you keep worrying about all the things that can go wrong with surgery, but I think you're only other option is to live in horrible pain for the rest of your life. It is a hard place to be. Speaking for myself (& probably most others), I can't imagine anyone picking surgery as their first choice, but Stella is right that some conditions cannot be adequately managed with surgery. Once I had surgery, the opioids helped enough that I could do PT (though with a LOT of pain). After a period of weeks, the PT started to make a difference, my muscles got stronger & now I am cutting back quite a bit on the meds. I cut down by half last month & this month I've already cut down by another quarter. Maybe soon I will be able to just take them occasionally & that's the best possible outcome imaginable! :) I can carry in my groceries, visit with friends, go to church, apply for jobs, go on interviews, go for a short walk around the block -- life really is good.

It just seems like the idea of surgery has been a fear of yours for a long time. Perhaps a pain psychologist could help you with the decision. I just hate to see you keep being in this tug-of-war where you don't ever get to a place where you find relief. I wish there was something I could do, but I'm not sure what you need. Sometimes I wonder if maybe you're looking for someone to affirm your belief that surgery is horrible, dangerous & to be avoided at all costs. Personally, I can't do that for you, but if that's what you need maybe you could ask for people to share their bad stories about infections or such. Perhaps there are others out there who could offer you reasons not to go through with the surgery.

best wishes,
frances

straydog
Forum Moderator


Date Joined Feb 2003
Total Posts : 13473
   Posted 3/30/2009 12:07 PM (GMT -7)   
Pam-so glad to hear that the Morphine kicked in for you. That may be your right combination. Do you feel foolish now that you had that there all along and refused to take it and now you see the difference it has made? Makes you want to kick yourself for sitting there being miserable all this time. I did that one time back when I was on orals and one time only. I felt to stupid afterwards too. That was back in the beginning of the world of opioids. After that I said I would educate myself. I would fiind someone that could answer my questions if I had doubts.
 
Tony I don't know who or where you got any info on a pump but you are dead wrong. You have no wires sticking out anywhere. Where in the world did you get that idea? The pump is inplanted in your body and after a few months you don't even realize its there. I can tell you first hand, the pump beats the oral pill world all to hell. No having to have someone dole out your meds to you, no clock watching, you have a continuous flow of pain meds just like an iv only its internal. There are no high no lows, its awesome. But, you must have an educated dr in pain pumps. I have a new one because the former closed his practice. Wow, this new dr is incredible. She increased my medications and we are still increasing them as needed. She told me she would give me my life back, it may be a little different than the original one but she will have me out there running again with the best of them. I believe her, I already know what a dfference she has made in my life. I have only been with this dr since the end of Jan. and she has done more for me than the former dr did in 5 years. My former dr was not educated enough in pumps or the medications that go in them.
 
As for the infections that arise in pumps. Believe or not, its the drs fault for these happening as a rule. Two things that can cause this problem, using the wrong medication in the pump, not just any medication can be used in a pump and having a person on an excessively high dose. Those are your tw major culprits. There is again, it all boils down to having an educated dr. 
 
Am I glad I have a pump you bet I am. I cannot imagine living the way I was on pills. Is the pump for everyone, NO.
 
Stella Marie hit it right on the head about bone spurs, all the medication in the world will not take that pain away. Susie


Pamela Neckpain
Veteran Member


Date Joined May 2008
Total Posts : 1821
   Posted 3/30/2009 12:11 PM (GMT -7)   
Uniquelyme: Do you mean that you take your pills twice a day instead of taking
them three times a day?
I'm taking mine WITH the prescribed Morphine. It's doing good. So far ...
We've got to become experts in Methadone. One of us could have a surgery. This
is a big big worry of mine.
Methadone is a strange medicine. As I find out interesting stuff, I'll let you know.
Sometimes I don't think there's a whole lot known about it - not compared with
other opiods

Pamela

frances,I think you ARE a pain psychologist. I'm thinking about what you said.
My husband is the one who had the serious infection after surgery.
I don't need to know about anyone else. (That's just a little defense of mine.)

The hospital that I'd have to go to for a real surgery has been written up in the
paper for quite some time for being high in infections.

You made good sense. That's for sure. Now I've just gotta stop these knees from
knockin' so loud that I can't hear what the doctor says.

Pam smhair
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