New Topic Post Reply Printable Version
[ << Previous Thread | Next Thread >> ]

keepingthefaith
Regular Member


Date Joined Aug 2006
Total Posts : 331
   Posted 3/30/2009 11:48 PM (GMT -7)   
I had a 2 level anterior cervical fusion C4/5 C6/7 last June.  Going Friday to see if it has fused.  Can you tell me how you did post surgery?  Do you still work? Any limitations, etc.  Thanks in advance. 
Dx with CD 1987, 3 colon resections, 3 rectal abscess sx, anterior cervical neck fusion with plate & screws,6/2008. Major depression/anxiety, kidney stones & sx to remove, now 45 yrs old.  Still trying to figure out this disease & all the little extra complications that come with this rollarcoaster of a life with CD. Meds:Humira 40mg every other wk, Imuran .75 daily, welchol 625 x 3 daily, cymbalta 60 mg 2xdaily, Wellbutrin xl 150mg 1x daily, fish oil, folic acid,Vit B12,inject monthly, Oscal w/Vit D, xanex .5 nightly, Gabapentin 600 mg 3x daily, Soma 350 mg nightly & Tramadol/apap 37.5/325 mg 3-4x daily
 
         
 
 


keepingthefaith
Regular Member


Date Joined Aug 2006
Total Posts : 331
   Posted 3/30/2009 11:55 PM (GMT -7)   
What is the website "youdon'tlooksick".  I couldn't find it?  Thanks

Dx with CD 1987, 3 colon resections, 3 rectal abscess sx, anterior cervical neck fusion with plate & screws,6/2008. Major depression/anxiety, kidney stones & sx to remove, now 45 yrs old.  Still trying to figure out this disease & all the little extra complications that come with this rollarcoaster of a life with CD. Meds:Humira 40mg every other wk, Imuran .75 daily, welchol 625 x 3 daily, cymbalta 60 mg 2xdaily, Wellbutrin xl 150mg 1x daily, fish oil, folic acid,Vit B12,inject monthly, Oscal w/Vit D, xanex .5 nightly, Gabapentin 600 mg 3x daily, Soma 350 mg nightly & Tramadol/apap 37.5/325 mg 3-4x daily
 
         
 
 


White Beard
Forum Moderator


Date Joined Feb 2009
Total Posts : 3611
   Posted 3/31/2009 11:00 AM (GMT -7)   
keeping the faith

I hope it is healing up well, I also had the anterior approach done, and I lost my voice for over 3 months they damaged the Vagus nerve doing the surgery. But I had mine in 1985 and the anterior approach was new back then! They also took the bone gragh from my pelvis and that hurt more than the disc fusion!
Hope You get all Good News Friday!

White Beard
 

I'm Retired USAF, went back to school and became an RN, and now am on ful disalbility!

Degenerative Disc (affecting mostly the thorasic disc but all levels involved), C6/7 laminectomy/diskectomy& fusion, Osteoarthritis, Ulcerative colitis, Chronic Pain, Fibromyalgia, Complex Sleep Apnea, and host of other things to spice up my life!(NOT!)

Medications: Oxycontin, Percocet, Baclofen, Sulfasalazine, Metoprolol, Folic Acid, Supplemental O2 at 3lpm with VPAP Adapt SV


nurse2
Regular Member


Date Joined Jul 2005
Total Posts : 229
   Posted 4/4/2009 5:51 PM (GMT -7)   
Dear Keepingthefaith,
I've now had 4 cervical disc surgeries from C2 down toC6. My first surgery was done with a cadavor disc and fusion which went well. Then I herniated another disd and they put a plate in. Then another disc herniated and they removed the plate and did another fusion. This last time they had to put in another plate. All of my surgeries were done by the anterior approach and I got along great. I didn't even take Tylenol for pain post op for the first 3 surgeries. Each time I build up scar tissue that has to be dealth with during the next surgery. I lost my voice for 3 mon. the first time but it wasn't that bad the last three times. Of course, with each surgery I have more physical restrictions. After the second surgery I was not allowed to work as a nurse anymore so I went to the from office and worked. After this last surgery I was told told that I solcn't work anymore. I just filed for disability and I'm jumping through hoops for them. I If you have gone this long without having to go into the office with some sore to complaint, the I bet thingsa are going along just fine. It is terribly scary to have the surgery, I know. Our daughters were small and I was aftaid that I would end up paralyzed or something. Good luck to you....keep me posted!
Nurse2
Degenerative disc disease,osteoarthritis, status post 4 cervical spinal surgeries with plate insertions and fusion, Lupus, Sjogren's Disease, Fibromyalgia, chronic heacaches and chronic pain.


White Beard
Forum Moderator


Date Joined Feb 2009
Total Posts : 3611
   Posted 4/4/2009 9:05 PM (GMT -7)   
nurse2
WOW You really have been through allot! I know well the hassle your having with getting disability, it is frustrating to say the least, but but hang in there! ( I know what else can you do?)
Anyway I wish you well!
White Beard
 

I'm Retired USAF, went back to school and became an RN, and now am on ful disalbility!

Degenerative Disc (affecting mostly the thorasic disc but all levels involved), C6/7 laminectomy/diskectomy& fusion, Osteoarthritis, Ulcerative colitis, Chronic Pain, Fibromyalgia, Complex Sleep Apnea, and host of other things to spice up my life!(NOT!)

Medications: Oxycontin, Percocet, Baclofen, Sulfasalazine, Metoprolol, Folic Acid, Supplemental O2 at 3lpm with VPAP Adapt SV


nurse2
Regular Member


Date Joined Jul 2005
Total Posts : 229
   Posted 4/5/2009 2:44 AM (GMT -7)   

wow, no one would believe that I used to be such a great speller! I read these things back, obviously too  late to correct them and then I see this jibberish. I hope people can read between the lines. I uses to work Neonatal Intensive Care....would you want to read this and then let me care for your child? It's terrible what fibro and chronic pain can do to wreck havic on your mind!

Nurse2


Degenerative disc disease,osteoarthritis, status post 4 cervical spinal surgeries with plate insertions and fusion, Lupus, Sjogren's Disease, Fibromyalgia, chronic heacaches and chronic pain.


White Beard
Forum Moderator


Date Joined Feb 2009
Total Posts : 3611
   Posted 4/5/2009 2:18 PM (GMT -7)   
Nurse2

Is it your spelling or your typing, I know I have problems using my hands and I will often hit the wrong keys or I will type hte (the) I of course go back and reread before I hit (submit) but afterwards I often see I missed something.

You really worked with the tiny ones didn't you?

White Beard
 

I'm Retired USAF, went back to school and became an RN, and now am on ful disalbility!

Degenerative Disc (affecting mostly the thorasic disc but all levels involved), C6/7 laminectomy/diskectomy& fusion, Osteoarthritis, Ulcerative colitis, Chronic Pain, Fibromyalgia, Complex Sleep Apnea, and host of other things to spice up my life!(NOT!)

Medications: Oxycontin, Percocet, Baclofen, Sulfasalazine, Metoprolol, Folic Acid, Supplemental O2 at 3lpm with VPAP Adapt SV


straydog
Forum Moderator


Date Joined Feb 2003
Total Posts : 13479
   Posted 4/5/2009 2:49 PM (GMT -7)   
WOW nurse 2, honey you have really had the neck surgeries, Is your neck like a broom stick now?

Stick it out with SS and if you get turned down don't be surprised r take it personal,ok They figure if you are breathing to are capable of doing some kind of work. Its a joke what they do to people with some of their decisions.Bombard them with medical records, thats what I did. I filed for it because of my crohns disease at my drs recommendation. I was awarded benefits w/o any problems and no atty was involved. If you get turned down hire an atty that handles nothing but SS cases.

Susie


nurse2
Regular Member


Date Joined Jul 2005
Total Posts : 229
   Posted 4/5/2009 10:20 PM (GMT -7)   

Dear Whitebeard,

Yes, i worked with some very critical and tiny little sweeties. I absolutely loved my job.....I was sorry that the baby's had those awful things wrong with them but if they were sick I wanted to be the one who got to take care of them. Besides being the mother of three wonderful daughters, it has been the most rewarding thing I have ever done. Some of those little stinkers only weighed about a pound and a half....would be on ventilators and have lines coming out of everywhere but I was in my element! I was so fortunate to get to do exactly the job that I wanted to do in my life as many people can't say that. The hospital started working us short of nurses and I had to attend every delivery to check out the baby and resusitate them if necessary and sometimes there might be three wormen deliveriing at the same time. I could run between two deliveries at a time but this old gal couldn't do three......no one could or should have to. If a baby didn't get the oxygen it needed when it needed it the poor thing could have brain damage and all because the nurse wasn't there when she was needed. My surgeries kept adding up and my restrictions kept getting stricter so it was time for me to get away from the hospital scene. I went to work in my husbands pediatric office and worked as a nurse there until after surgery number three and then no more nursing for me. Now I'm not allowed to work at all.  I am very fortunate thought because there are  a lot of people worse off than me. Right now though, I feel like one of those Easter Peeps....fat and swollen from the increase in the Neurontin. I'm going to have to call the doc tomorrow about this pitting edema in my legs.

Nurse2


Degenerative disc disease,osteoarthritis, status post 4 cervical spinal surgeries with plate insertions and fusion, Lupus, Sjogren's Disease, Fibromyalgia, chronic heacaches and chronic pain.


White Beard
Forum Moderator


Date Joined Feb 2009
Total Posts : 3611
   Posted 4/5/2009 10:54 PM (GMT -7)   
Nurse2
I can see the passion in your writing that loved your job and you miss it allot! I do understand! It really does take a special kind of person to do the job you were doing! This might sound strange but I loved working on the Onco unit, dieing cancer patients, have such special needs it was an honor to me to be able to take careof them! And I miss that so much!
 
 But with that said I just could never do what you did, not in a million years, I hated it when I had to float to Maternity or Peds! I think every nurse has there calling, and if they are lucky they get to actually work in it! You believe much the same as I do, you said (" I am very fortunate thought because there are a lot of people worse off than me.") I always say that, when ever I start feeling sorry for my self I think about all those Cancer patients that I have taken care of, and I think about Snowflake that post here, and you know what? I don't have it bad at all! and with that I just want to help others here if I can!
 
 I did not know that Neurontin caused swelling or edema, I know I was on it and and it messed up my vision, and I got off of it real quick! I do wish you well Nurse2, I would really love to here more about your adventures with the little ones, I bet you have some stories to tell!
 
You said you have three daughters, I have two daughterd, both are grown up and married now, I am even a GrandPa! My oldest is a school teacher and my youngest is a Nurse up at Mayo Clinic, I am very proud of both of them and of my Granddaughter, who is one and a half now! I will see her the end of this week!

I hope You have a good night, and the doc can do something about your edema!
I wish you the Best

White Beard


 

I'm Retired USAF, went back to school and became an RN, and now am on ful disalbility!

Degenerative Disc (affecting mostly the thorasic disc but all levels involved), C6/7 laminectomy/diskectomy& fusion, Osteoarthritis, Ulcerative colitis, Chronic Pain, Fibromyalgia, Complex Sleep Apnea, and host of other things to spice up my life!(NOT!)

Medications: Oxycontin, Percocet, Baclofen, Sulfasalazine, Metoprolol, Folic Acid, Supplemental O2 at 3lpm with VPAP Adapt SV

Post Edited (White Beard) : 4/5/2009 11:57:57 PM (GMT-6)


kttn251977
Veteran Member


Date Joined Jul 2007
Total Posts : 554
   Posted 4/6/2009 6:58 PM (GMT -7)   
nurse2 i am on lyrica 100mg 2xs and i swell up in my legs alot, my dr gave me furosemide 40mg 2xs (water pills) and klor-con m20 tabs (potassium) and it helps the swelling a lot. i hear ya, i look like the stay-puff marshmallow gal and can only wear crocs or ballet flats and its so noticeable. my PCP walked in with one look at my leg and "what in the world" with his cute cuban accent. (i adore my pcp, he's wonderful and his wife is the nurse there, too) and of course he sends me to check for blood clots, which thankfully are always negative (i can tell by the ultrasound now. thats when you know its bad. lol.) hope it helps, but being a nurse i am sure you are a lot more knowledgeable than i am. hope you feel better soon, and can lift up your leg. lol.
RX's: Oxycontin 80mg 2x's daily; Oxycodone 30mg 5xs daily; Zanaflex 4mg 3x's daily; Restoril 15mg 1x; Soma 3x's daily; Lyrica 100mg 3x's daily (pain & fibro.); Phenergan 25mg (as needed); Amitriptyline 25mg 1x (chronic pain); Cymbalta 60mg 2x's daily (pain from fibro); Abilify 5mgs at bedtime (depression); Metoclopram (as needed) & Senokot (as needed).
"The most critical choice you'll ever make is the one you make about what you're going to do with this. The past is over. The future hasn't happened yet. The only time is now."
- Dr. Phil


nurse2
Regular Member


Date Joined Jul 2005
Total Posts : 229
   Posted 4/8/2009 5:57 PM (GMT -7)   
kttn251977,
Thanks for writing. Today I don't feel so much like and Easter peep since I reduced my Neurontin back to my old dose. the 6 lb. that I put on is STILL on me. Today I babysat my 1 yr. grandson and I didn't even get out of my pajamas. It was too cold to really do anything outside so I figured what the heck.
I really wanted to be a greeter at Walmart last week, slap people as they came in the door and tell them to hurry up and get what they needed and get out!!! This behavior is so unlike me. All I do is cry. My husband and I made an appt. with my PCP for Friday and hopefully we can get something straighted out there. My hands hurt so bad! I think that this problem needs to be addressed as I have not had this problem before and it is extreamly painful. I'm sure that things will work out....they always seem to. I hope you have a good day tomorrow!
Nurse2
Degenerative disc disease,osteoarthritis, status post 4 cervical spinal surgeries with plate insertions and fusion, Lupus, Sjogren's Disease, Fibromyalgia, chronic heacaches and chronic pain.


White Beard
Forum Moderator


Date Joined Feb 2009
Total Posts : 3611
   Posted 4/8/2009 6:28 PM (GMT -7)   
nurse2 have you always had problems with pain in your hands? I do hope your PCP can help you!
I wish you the best and I do hope you feel better soon!

White Beard
 

I'm Retired USAF, went back to school and became an RN, and now am on ful disalbility!

Degenerative Disc (affecting mostly the thorasic disc but all levels involved), C6/7 laminectomy/diskectomy& fusion, Osteoarthritis, Ulcerative colitis, Chronic Pain, Fibromyalgia, Complex Sleep Apnea, and host of other things to spice up my life!(NOT!)

Medications: Oxycontin, Percocet, Baclofen, Sulfasalazine, Metoprolol, Folic Acid, Supplemental O2 at 3lpm with VPAP Adapt SV


nurse2
Regular Member


Date Joined Jul 2005
Total Posts : 229
   Posted 4/8/2009 11:32 PM (GMT -7)   
Dear Whitebeard,
No, I havent' always had problems with my handsl Actually they just really became very painful in the last month or so. Ther aren't even greatly swollen but feel as if they have been run over by a truck. My Mom's doc just gave her samples of Voltarin cream and she gave me one to try. So Far, so good. It doesn't sting or smell like Benjay or the other stuff. Seems to last longer too. Rick and I have an appt. with Dr. Hanzel on Friday afternoon. It was at my suggestion that I had began coming off of that expensive Cymbalta ($75.00 my cost for 3mon.) and trying the Prozac ($10.00 my cost for 3 mon.) DUMB IDEA ON MY PART! I wanted to go be a Walmart greeter, slap those patrons comip g in and tell them to hurry up and shop and I'd catch them on their way out! I'm usually very mild mannered and get along easily with ofhthers........well, no so true this week. I've been a beast to say the least. Right now I hurt all over and can't get comfortable so I'm sitting in this chair. I have PT at 8 a.m. in the morning so things are't looking good. I would love to world (volunteer) at the Hospice center just a few bloocks from my house. I have no problem with people leaving this wourld when they are old and very sick. I know how cold that must sound but I believe that there are worse things in this life than dying. You'll have to tell me some of your encounters working. I'd love to hear them. People are so interesting, don't you think?
Nurse 2
Degenerative disc disease,osteoarthritis, status post 4 cervical spinal surgeries with plate insertions and fusion, Lupus, Sjogren's Disease, Fibromyalgia, chronic heacaches and chronic pain.


PAlady
Veteran Member


Date Joined Nov 2007
Total Posts : 6795
   Posted 4/9/2009 12:56 AM (GMT -7)   
Nurse2,
If you're looking for a less expensive alternative to cymbalta, talk with your doctor about effexor. I loved the cymbalta, but had one side effect I couldn't tolerate, so was switched to effexorER. It's not as good for the neuropathic symptoms, but it has helped my mood with no side effects. It's more similar biochemically to cymbalta than prozac. I'll be losing my insurance shortly, so I'll probably have to go to the regular effexor as opposed to the ER, which is more expensive.

The cymbalta and effexor are SNRI, slightly different from the SSRI's like prozac.

I hope you find some relief.

PaLady

White Beard
Forum Moderator


Date Joined Feb 2009
Total Posts : 3611
   Posted 4/9/2009 7:20 AM (GMT -7)   
nurse2

I hope your PT went well this morning! I don't envy you on that one, especially if your already really hurting! I agree with you about dieing thing, I don't think you sound cold at all! Your just realistic. I have always thought that dieing is just as much a part of life as birth is. I will admit it is very difficult when it involves a younger person though. I always have thought of dieing as a transition, where a person leaves their physical body, that is here, and goes to another place, what ever, or where ever, that might be! This might sound morbid, but allot of times when a cancer patient passed away on the Onco unit, I would wish them well on their journey! Some of them had such a rough time with their cancer, and was in so much pain, that I would like to think, or at least hope, that they were going to a much better place!

Maybe if you can get your pain under better control, some day you could be a Hospice Volunteer! I have thought about doing it, but I live out in the country and am a pretty good way from just about anything, it is just to long of a drive right now. Of course after my divorce is all settled we get the house sold, and once I deside where I am going to live and settle down at, I just might try and do some Hospice volunteering! There is such a need, and I would really love to help!

Anyway nurse2 I  Hope today is a better day for YOU!

White Beard


 

I'm Retired USAF, went back to school and became an RN, and now am on ful disalbility!

Degenerative Disc (affecting mostly the thorasic disc but all levels involved), C6/7 laminectomy/diskectomy& fusion, Osteoarthritis, Ulcerative colitis, Chronic Pain, Fibromyalgia, Complex Sleep Apnea, and host of other things to spice up my life!(NOT!)

Medications: Oxycontin, Percocet, Baclofen, Sulfasalazine, Metoprolol, Folic Acid, Supplemental O2 at 3lpm with VPAP Adapt SV

Post Edited (White Beard) : 4/9/2009 8:23:47 AM (GMT-6)


LLPLUV
Veteran Member


Date Joined Mar 2009
Total Posts : 1158
   Posted 4/9/2009 9:19 AM (GMT -7)   
White Beard that is such a wonderful idea. I took care of my father in law during his time of passing. All I felt like doing was making him become more comfortable throughout the process. Yesterday I found out our neighbor is dying of cancer. I knew something was going on they had visiting nurses over there everyday plus an occasional ambulance. Whenever I see her husband outside I'm going to offer to help in anyway I can. I lived through the tough times with my father in law its the hardest thing on a family to ever go through.

Kudos to you White Beard you would make such an impact on the families you would work with....

Laurie
Chronic Kidney Stones, PKD (Polycystic Kidney Disease), Chronic Kidney Failure, Severe Hypertension, Urological RSD


nurse2
Regular Member


Date Joined Jul 2005
Total Posts : 229
   Posted 4/9/2009 7:14 PM (GMT -7)   
PAIN, PAIN, PAIN......that describes the day today. Physical therapy has my fibro screaming! It would be easier to tell you the parts of my body that don't hurt than try to list all of them that do. The swelling is coming back in my legs and I feel like a bloated fish that is about to pop. I started getting one of those killer headaches this afternoon and I took one of those Treximate pills. It only took one this time to get it under control. Thank God, because my insurance only approved 9 pills for a month and my copay was $40. I haven't had much to eat today and what I did eat didn't stay down. My hands are still killing me. At therapy today I told them that I was only going to do half the number of exercises and spend the rest of the time walking in the water. They were cool with that since they know I've been through this so many times before. If I don't write again for a few days I will pray that each of you have a blessed Easter. I love church at Easter....even more so than at Christmas time. I'll miss the service again this year but hopefully there will be next year. I refuse to vomit on someone right in the middle of church service! God knows where I am and why I'm not there and that is what is important. I sure hope the doctor can help me with the "happy situation" tomorrow. Right now I feel so sorry for my family. I'm never like this and it is painful for them to see....especially my parents who have lived away for so long. May each of you find the golden egg that will help you in which ever way you need it. Happy Easter.
Nurse 2
Degenerative disc disease,osteoarthritis, status post 4 cervical spinal surgeries with plate insertions and fusion, Lupus, Sjogren's Disease, Fibromyalgia, chronic heacaches and chronic pain.


White Beard
Forum Moderator


Date Joined Feb 2009
Total Posts : 3611
   Posted 4/9/2009 7:57 PM (GMT -7)   
And also a Happy Easter to you nurse2! I do hope you start feeling better soon! You will be in my prayers, and I will say an extra special one for you on Easter Sunday along with saying one for everyone on this forum! Every little bit helps and I think we can all agree we all need all the help we can get!
I hope your Doctors appointment goes well for you tomorrow and your Doctor will make things better for you!

I wish you all the Best! May Good Friday be a Good Friday for You!
Happy Easter
White Beard
 

I'm Retired USAF, went back to school and became an RN, and now am on ful disalbility!

Degenerative Disc (affecting mostly the thorasic disc but all levels involved), C6/7 laminectomy/diskectomy& fusion, Osteoarthritis, Ulcerative colitis, Chronic Pain, Fibromyalgia, Complex Sleep Apnea, and host of other things to spice up my life!(NOT!)

Medications: Oxycontin, Percocet, Baclofen, Sulfasalazine, Metoprolol, Folic Acid, Supplemental O2 at 3lpm with VPAP Adapt SV


nurse2
Regular Member


Date Joined Jul 2005
Total Posts : 229
   Posted 4/12/2009 12:39 AM (GMT -7)   
My appt. with my PCP went well. I'm boing back on Cymbalta so I won't be such a menace to my family and the rest of society. We backed down the dose of Neurontin ane some of the edema is goIng down. I can certainly breath easier. Just wanted to wish everyone a blessed Easter. Eat lots of chocolate and enjoy the day with your family.
Nurse2
Degenerative disc disease,osteoarthritis, status post 4 cervical spinal surgeries with plate insertions and fusion, Lupus, Sjogren's Disease, Fibromyalgia, chronic heacaches and chronic pain.


Pamela Neckpain
Veteran Member


Date Joined May 2008
Total Posts : 1821
   Posted 4/12/2009 1:07 AM (GMT -7)   
nurse2:

Your problems in the cervical area are the same as mine. I haven't had
any surgery.

Can you tell me what led to you having surgery on your neck? At what
point did it get bad enough for you to accept surgery?

I take Neurontin and I don't think it does ANYTHING. Maybe I should take
less and see. What does Neurontin do for us anyway. I've taken it for
seven years.

Pamela
MEDICAL CONDITIONS

Osteoarthritis all levels of spine right down to Coccyx,Spondilytis,Myofascial Pain
Fibromyalgia,Bulging Discs,Spinal Stenosis,Scoliosis,Osteopenia,Chronic Constipation
Carpel Tunel Syndrome, Attention Deficit Disorder,
Depression & Anxiety

Methadone for Pain, Xanax for Anxiety, and more, of course.

New Topic Post Reply Printable Version
Forum Information
Currently it is Saturday, December 10, 2016 7:43 AM (GMT -7)
There are a total of 2,735,828 posts in 301,337 threads.
View Active Threads


Who's Online
This forum has 151440 registered members. Please welcome our newest member, stevclemon.
271 Guest(s), 5 Registered Member(s) are currently online.  Details
fibrocushie, ChickenArise, trumpet123, iPoop, LanieG


Follow HealingWell.com on Facebook  Follow HealingWell.com on Twitter  Follow HealingWell.com on Pinterest
Advertisement
Advertisement

©1996-2016 HealingWell.com LLC  All rights reserved.

Advertise | Privacy Policy & Disclaimer