I will keep everyone informed when I get back.
I guess we both are having a bad night
I hope you get some relief and find a bed
Ok I just typed out a whole statement and it disappeared...
The doctor came into the room after studying my chart with all my records including blood work and scans going back 10 years. He asked me what my pain felt like so I told him. That is hurt to breath, move, sleep and eat.
He looked at me and said he has only seen this one other time. Its called Urological Reflex Sympathy Dysfunction. He pulled my scan out and showed me over the years the damage my kidneys, bladder and uterers have been through. All the inflammation, scarring and swelling. I guess it never healed properly and caused nerve damage. So know if I do anything pain receptors go on high alert even if they theres nothing wrong with them.
So he put me on Percocet 10/325 4 times a day, increased my Trazadone and told me to continue taking my celexa. In two weeks I have my first of 3 Lumbar Nerve Blocks. He doesn't know if they will even work with having this pain for over a year and a half. But hes hoping for some relief. He says this is permanent??? He told me I should of complained alot earlier. I DID!!!! But I guess I didn't have the right doctors.
So does anyone know anything about this syndrome????? I still haven't even googled it yet...
I'm Retired USAF, went back to school and became an RN, and now am on ful disalbility!
Degenerative Disc (affecting mostly the thorasic disc but all levels involved), C6/7 laminectomy/diskectomy& fusion, Osteoarthritis, Ulcerative colitis, Chronic Pain, Fibromyalgia, Complex Sleep Apnea, and host of other things to spice up my life!(NOT!)
Medications: Oxycontin, Percocet, Baclofen, Sulfasalazine, Metoprolol, Folic Acid, Supplemental O2 at 3lpm with VPAP Adapt SV
Wow, so glad you got into the PM dr and I think its wonderful he is interested enough in you as a patient to try and help you. That alone has to give you some relief. As I was reading about the appt and all the first thing that hit my mind was RSD. I remember when RSD first hit the medical community back in the late 70's. No one knew what it was, no one knew how to treat it. Some drs said it did not exist and I remember ins companies not wanting to pay for any treatment because it was so new and known. It ws something usually a physical medicine dr attempted to treat. It was as complex then as it is now. I worked for attys that handled worker's comp cases. The RSD that showed up in our clients was after a surgery, or some type of trauma generally to a limb, hand or leg. One gal had knee surgery, no big deal, developed RSD in her leg and lost use of the leg. Saw many get it after having carpal tunnel surgery. The patients skin had changes in temperature that was documented, the skin would be very shiny and sometimes really red and they always had incredible pain. Drs,. used xrays called thermograms in dxing some of this. I cannot imagine the type of pain you are having.
Lets hope the the ESI help with your problem. They have been used alot in RSD and CP. Some people have results from them and some don't. There really is no way of knowing if it will help or not unless you try them. Another ting he may consider is the R/F of the nerve, I had it both on my neck and back. It worked on me very well. They usually say maybe they work 6 months to a year, but some have had longer results. But, again like PA said, they have to idnetify the nrve causing so much problems. I do know you like working and do not like to miss-please talk to the dr or nurse on when you can return to work after having the ESI. You need to give your body a brake sometimes.
Ok, now that you have the pain dr on your side you can next work on finding you a good PCP and thumb your nose to that other dr....Susie