Hi, all. Thanks so much for your prayers and support. I got to thinking later that I shouldn't have went into the awful details because I don't want anyone to be scared off and not accept
any of these pain treatments because of the terrible time my daughter has had, all are you are individuals and what works for one may not work for another..it is so easy for me to vent
because I am not suffering 1/10th of what you all are going through and I feel very privileged that you are listening to me at all! One thing else my daughter has a name and I need to call
her by it and I feel safe enough here to do so. My daughter's name is Dana and she has been a fighter all her life, from the very start actually-she has a twin brother, they were premature
and she only weighed 4lbs 4oz when she was born and had to be medivac to KU Med Ctr rightaway-growing up with 2 brothers she competed against them and if they said she didn't
need to do something just because "your a girl" reasoning, you better believe it was the first thing she did!!!
Hey Pete, it is the workers compensation insurance carrier and their doctors that want Dana to go on this suboxone treatment. Suboxone is a detox drug with a lower grade pain killer in
it that supposely does not attach to the brain receptors like other opioids do. The concept for using it for pain management is that strong opioids make you more sensitive to your pain-
its called opioid induced hyperalgesia-problem is the manufacturer states: "Patients with a clinical need for analgesia should not be transferred to a SUBOXONE regimen".
SUBOXONE is not indicated for pain management, therefore the FDA has not endorsed it either(but is not illegal for doctors to go off label and prescribe it). In real life it has several
adverse side affects just like any other opioid (with all Dana has gone through-it just scares me and her both) And if it doesn't help the pain, you cannot take any other of opioid
painkillers along with it because it has naloxone in it that will put you back in severe withdrawals. In Kansas the workers compensation insurance carrier can send you to any doctor
they choose and if you don't go they can cut off your monetary benefits until the judge decides one way or another (this would be okay if you are independently wealthy otherwise it is
just plain blackmail!) It usually takes about 2 mos to get a hearing so you go further in debt until then. I am a retired government employee worked for the Army for 25 years-I learned
rightaway in my job keeping my mouth shut didn't get me anywhere-I supervised soldiers that really resented this female civilian telling them what to do-but after a while they knew they
couldn't sweet talk me out of anything, but if they did their job, I was fair, I knew my job and I may be a "B"- but they could count on me. (I don't think they ever knew how much I adored
most of them and the job they do and how proud I am of them.) So,there is no way I'm a SAINT--you definitely can not be a Saint-and think some of the thoughts I have about these
doctors and lawyers!!
I pray a lot that the Lord will keep one hand on my shoulder and one hand over my mouth, but sometimes it might be better if HE covers both HIS ears! But to be
honest it saddens me that I let my anger get in the way of my relationship with HIM. One thing more-you bet you should be proud of your sons
not enough of that going on-give them a
big OOAH! for me! (whoops, that's Army, oh, well you know what I mean!)
Hi, Lori. I showed Dana all of you guys post -it meant a lot because all during her infection they were trying to prove that she somehow got the infection on her own, we knew
differently but it always leaves the impression that you did something wrong. The very good infectious disease doctor(hired by workers comp), when I ask whether or not Dana could
have caused this infection, asked Dana jokingly whether she had gone out and rolled in the mud right after surgery-then he said he didn't even think that if she had it would have caused
it! His opinion that it was infected at implant and when they sent her to plastic surgeon to debried the incision it just kept the infection in longer. What you have described sounds so
much like Dana's infection -firely red, seeping, swelling and hot pain-and what I thought was a stitch in the hole in her back was the anchor of the catheder! You don't have to spare me
the details-I know exactly what you're talking about! I know how terrible it was for you-and still is, but you have never given up-the laminectomy implantation surgeries are terrible, so
very painful -but if people knew how much pain you all go through daily and how much you are willing to go through just to feel a little normal they would understand it better. And not
being the Saint, Pete thinks I am-I have wished that pain on several doctors, lawyers and other narrowed minded people more times than I want to admit too.
(Sorry, Pete-your a good
guy & I appreciate it-but it just ain't so!) Workers compensation fraud by injured workers is kind of like if you take prescription opioids for pain management you are a drug addict,
your not and you don't get rich by filing a claim, but you have to do both! Private health insurance carriers rarely take care of injuries caused at work-I told a lawyer that if I got injured
on the job I'd lie and tell my insurance company it happened at home--he told me clearly that that would be flat out fraud punished by a felony conviction-another time my mouth got
me in trouble-but I still think I would have taken the chance!! You are not a drug addict for taking very much needed pain medication, you don't "love" the surgeries you need to manage
your pain and there are more workers compensation frauds conducted by the employers and insurance carriers in Kansas than there are injured worker fraud. According to the Kansas
Division of Workers Compensation, in FY 2008 there was only one report of a worker receiving temporary total or permanent disability benefits to which they were not entitled. But
there were 499 reports of cases relating to the employer’s duty to report accidents; 213 reports of failing to maintain the required workers compensation coverage; 6 reports of
refusing to pay an order awarding compensation; 5 reports of collecting premiums from employees for workers compensation coverage in violation of the act; 6 reports of failure to
confirm medical compensation benefits; and 6 reports of refusing to pay compensation as and when due. There were a total of 55 reports where the fraudulent or abusive practice was
not specified or it wasn’t clear from the Division’s report whether the wrongdoer was a worker, insurance company, or employer. If I could find the same stats on how many chronic
pain patients are drug addicts I would post it in every ER in the U.S.!! Sorry just venting I NEED A SOAP BOX DON'T I?? Thanks for asking about my grandson, he's a good kid and
tries so much to help his mom-you can't hide too much from him(not that I think you should) he's a pretty smart kid-what he doesn't know he'll find out. He has been the only one that
has kept his mom going at times and I'm so very proud of him. Your sons sound great Lori so I know you have been a great Mom-I remember when my oldest went to college, I cried
like he was in the first grade again.
Thanks for your response too. I hate it that you have had to go through so much at such a young age-I sneaked a look at your blog-and I am so proud of you for all of your
accomplishments, I know your Mom is too! I gave the address to Dana and I am sure she will get some benefit from it. Its very hard for me or your Mom to see their kids in any type of
pain but it is the hardest when you just can't fix it and being there is just not enough at times-everything you do or say just seems so empty! Dana's leads broke because as the doc
explained to me, he had to put them in a very active part of her body. Just a little higher and centered between her shoulders, your arms are aways moving, you hold your head up and turn
it side to side, etc. Of course, they(workers comp) sent her back to work as soon as she was healed from the surgery-just as the did with the dorsal leads that never had the chance to
scar in so they migrated. They just don't have a clue.
Gee this is another long one-please know that I am very privileged to be accepted in this forum-but if I get to be a "pain" (no pun intended) or I say anything wrong, please let me know!