Post Edited (TonyMcGuire) : 4/7/2009 9:18:41 PM (GMT-6)
Post Edited (ryand) : 4/7/2009 7:55:17 PM (GMT-6)
I'm Retired USAF, went back to school and became an RN, and now am on ful disalbility!
Degenerative Disc (affecting mostly the thorasic disc but all levels involved), C6/7 laminectomy/diskectomy& fusion, Osteoarthritis, Ulcerative colitis, Chronic Pain, Fibromyalgia, Complex Sleep Apnea, and host of other things to spice up my life!(NOT!)
Medications: Oxycontin, Percocet, Baclofen, Sulfasalazine, Metoprolol, Folic Acid, Supplemental O2 at 3lpm with VPAP Adapt SV
PAlady I remember chatting with you often when I was here before and I remember the quiet strength you carried to this forum.
I too have been one of those that fell through the many cracks in our systems workings and even after almost 10 years on SSD I still do not qualify for most anything statewise.
There are so many that work the system and are good at it and the money that goes to those scammers each month make me ill when I cant get one dime of medicaid,pay out of pocket deductables for meds and office visits of over $200 amonth when drawing no more then $800 in SSD. I get little more then SSI folks but the do NOT have to count one dime as qualifying income to get food stamps,welfare,housing subsidies,food stamps,or any other state level assistance. My entire amount is counted and and disqualifies me from all programs with the exception of a few food stamps for me and my daughter.
I have been trying to research the new Presidents changes in the medicaid system and food stamp program and there have been changes but not real clear yet how that is going to help any of us crack dwellers!
I know that some of those changes were to the help those uninsured so I guess what I am asking is when was the last time you checked to see if you qulaified for medical assistance in your state? Also you may have more luck then I seeking the actual changes that took or will take place in the health care programs.
I also kept thinking when you were talking about your 401 and trying to get it down under the qualifying amount for public assistance that possibly finding a inurance company that you can pay for say a year premium? That would bring it down a significant amount and give you some kind of coverage for at least year and with that comes some peace of mind?
I cant recall if you have applied for SSD but this might be a good time to start the ball rolling since that is another hurdle for us that can take lots of time to get.
I am going to do some more research re the changes as soon as I can.
At this point all I can say is try to hang in there and not panic since it seems when we go there we accomplish anything else.
YOu have tons of friends here that are giving you loads of suuport and when everyone gets past the initial shock that this happens to someone undeserving I am sure they will start coming up with ways to guide you in the right direction.
Good luck to you.
I can't think that someone like you will have to worry for too long. You are the one that is there for all of us..even though you have your own issues. Like Tony said..something will happen that will be great for you..So, even though I can't tell you 'Not to worry'...please don't let it overwhelm you.
We need you here in our little group of dysfunctional Cper's...So, be positive, and we are all here for you..
We are all in the same boat...unfortunatley it seems like it's sinking...
Post Lamenectomy Syndrome
Hemi Lamenectomy/Spinal Fusion(Lumbar)
120 mg. Methadone daily /15 mg. Oxycodone as needed
Type 2Diabetes : (March 16, 2009)
Metformin 500 mg. twice daily
OMG ... I'm crying sitting here at my desk. LOL... Don't walk by now bossman LOL. Pa, Every thing I've ever read from you has always, always came from your heart, you can really tell it. I had to go with out insurance for 13 1/2 years, my job did not offer it when I started here (and then it wasnt as bad and was managable pain then). Then in 2005 when it started up for me I was able to go the the "clinic" at our hospital and got on the clinic card for a while, but was kicked off in May of 2008. But it got me through the surgery and we found out mostly what was wrong. Please dont give up, take a deep breath, feel all the hugs and smoochies being sent from here and you will get through it. Call around to your local hospital and see if they have a program that might help til you can get on SSI, I know it might be a long shot but dont let them get you down. Also, say strong on the social securtity, you might get turned down but keep going back. My husband was turned down twice before we were able to get him on it. Took me about 2 1/2 years to 3 years. I know that sounds like a long time, but you can make it I have faith in you.
Hugs and smoochies from Georgia!!!!!!!!!!!!
PS.. Long shot here, but call your local Mayor, Senator, Gov. see if they can give you any advise on where you can go til the SSI starts.