roxycodone withdrawal

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Aedammir
New Member


Date Joined Mar 2009
Total Posts : 6
   Posted 4/7/2009 11:10 PM (GMT -7)   
Hi all, I just wanted to tell anyone that had been taking Roxycodone and decided to stop - don't do it on your own. I did and I cannot tell you how bad it was. I had been taking 90 to 120 mgs a day for two years for chronic nerve pain in my back, feet and legs. I have the pain there from the three bad disks in my back; L3, L4 and L5. We had tried everything at that time there was and Roxycodone was the only thing that worked. Even Oxycontin didn't help.
 
I also have postherpetic neuralgia (advanced shingle pain). Before two years ago I had been very athletic all my life, can still do one and a halfs off a diving board. In short, had never ever been sick or had anything wrong for most of my life until two years ago, when I kept picking up concrete to build another rock garden and was already too tired to keep working on it. But I was stubborn and wanted to finish it and it got me.
 
I also work on computers for a living so sitting long periods of time and having to climb around customers' furniture to get the tower unplugged has had its' help to my nerve deterioration. 
 
Anyways, I stopped taking Roxycodone because I accidentally threw out my prescription cleaning up one week after getting it and could not get anymore. The withdrawal symptoms I have had (and are still having) were awful. Throwing up, diarrhrea, insomnia, shaking, nervous, etc., on and on. You can imagine. I would go to a clinic but now I am on my 13th day so I am going to try to tough it out. I am better, but I did end up at the emergency room on the tenth day because my electrolytes were out of wack from alll the nausea, etc. I live alone, too, so I had no help. My son did come and help me a couple of days but he is 18, so you know how much help I got there, tongue .
 
The good thing here - fortunately, I tried Lyrica the day I lost my prescription and it worked for the pain! Now I have none or little pain (thank God). I am guessing that it is the Lyrica working, has to be or I would be in screaming pain.
 
I will go to my doctor tomorrow, so maybe he can help with the symtoms.
 
So please - if anyone thinks about it - do not go off of it on your own. I promise you, it is awful. I have been bedridden for 13 days now but am finally able to get up today. I am still very weak, though.
 
I feel for everyone of you that has terrible pain - it is so bad when you can't get anything to help; only we that has it know how bad it is. From what I have read, I am in much better shape than most here.
So - to each and all with chronic pain - my best and my prayers to you.
 
Aedammir
 
 
 
 
 

straydog
Forum Moderator


Date Joined Feb 2003
Total Posts : 13470
   Posted 4/8/2009 3:33 AM (GMT -7)   

Hello,

I just read your post and I am just absolutely floored by it. You are one lucky person to say the least. Going off of a medication such as yours cold turkey is just not recommended or even advisable. It can be so dangerous going off a medication like you did. My gosh. I have to ask, did you notify your dr what happened with the script and did he say no, I will not give you another script? Did he not offer you any medication to help with the withdrawals. If the answer is no to these questions, I would have to find myself another dr immediately. I am assuming you were seeing a pain mgt dr and I am not surprised one bit him/her declining another script for the Roxy, but you should have been given something for the withdrawal. Good grief, this is just awful, I do not know how you made it, very glad you did though. This just really sickens me.

On the bright side you say the Lyrica is helping you and thats awesome and I am really happy for you that is seems to be working. Lyrica is widely used for nerve pain with alot of success. But, you should not have, had to find out the way you did on whether or not you needed to continue taking the Roxy.

Would you mind clarifying whether or not your dr was aware of your situation and offered any help? I would also like to know if this was a pain mgt dr or what. There is a medicine over the countercalled Emitrol and it works pretty good foor nausea.Once again, I am so glad you made it thru, but if the symptoms gets worse or something, go to your family dr and get something for the nausea, you just don't need anymore suffering......Susie



angel8
Regular Member


Date Joined Apr 2009
Total Posts : 109
   Posted 4/8/2009 3:47 AM (GMT -7)   

OMG! Stradog was right that could have turned into a bad bad situation going cold turkey after that much for that long. Did the hospital know when you went in why your lytes were out of whack? If they did and didnt offer anything more then IV fluids and hydtrating you shame on them as well.

I have the same questions Stray had regarding your Doc and why he didnt offer any help either.

Too bad we didnt know here as there are many ways to help get past the horrid of some of it but yet still your Doc could have helped more then us and the hospital certainly could have helped.

I am glad to see the lyrica working for you and hope it continues to do so.

W/Ds of that magnitude can be long and dangerous even though alot of Docs make light of it and wont help using the age old adage that it wont kill you but might make you wish you were dead. That is not correct either as I know of many deaths after 25 years in the field associated with withdrawls. The lytes out of balance in and of itself could have been fatal!! Especially with you living alone.

So glad to see the worst of it is over for you and hoping you pain free days in the future.


LLPLUV
Veteran Member


Date Joined Mar 2009
Total Posts : 1158
   Posted 4/8/2009 11:01 AM (GMT -7)   
Oh my Oh my I could not imagine. I do know at my PM its clearly stated everywhere you turn that lost or stolen medications will not be replaced. Once again thats a rule for the abuses and us who might acually have them lost or stolen have to suffer.

To make a funny.. I bet you will pay attention to what pill bottles you throw out from now on...lol I have a problem with throwing out my bottles. I'm so scared I will lose track of when they were filled and which ones I was on PRN to call in for refills.

Bless you heart I can't believe you have done this on your own for this length of time...

Laurie
Chronic Kidney Stones, PKD (Polycystic Kidney Disease), Chronic Kidney Failure, Severe Hypertension, Urological RSD


White Beard
Forum Moderator


Date Joined Feb 2009
Total Posts : 3611
   Posted 4/8/2009 11:18 AM (GMT -7)   
Aedammir I am confused as to why you didn't you call or go back to your doctor and explain the situation and what happened, if he/she wouldn't have replaced your meds, they surelly would have given you something to make it easier for the withdrawal. Usually withdrawal from narcotic meds will not kill you but will just make you wish you were dead, not like withdrawal from alcohol which can be deadly! But I can not understand why you would want to put your self through all that?? I am glad that you are OK though!
Best of Luck

White Beard
 

I'm Retired USAF, went back to school and became an RN, and now am on ful disalbility!

Degenerative Disc (affecting mostly the thorasic disc but all levels involved), C6/7 laminectomy/diskectomy& fusion, Osteoarthritis, Ulcerative colitis, Chronic Pain, Fibromyalgia, Complex Sleep Apnea, and host of other things to spice up my life!(NOT!)

Medications: Oxycontin, Percocet, Baclofen, Sulfasalazine, Metoprolol, Folic Acid, Supplemental O2 at 3lpm with VPAP Adapt SV


Aedammir
New Member


Date Joined Mar 2009
Total Posts : 6
   Posted 4/12/2009 7:46 PM (GMT -7)   

Hi, sorry to be late in replying, but I had to go way out of town to get a nerve conduction study and had to stay a couple of days (I live in a little bitty town away from everything. Not born here and still getting used to it, but it is quite, hehe).

But to answer your questions - yes, I am going to a pain management doctor and of all things, he was on vacation for two weeks. I could not have had worse luck that week.

I *did* call a neurosurgeon that I had just seen a week before for the first time and told their answering service to please call, and told them of my predicament. I told them I was out and my condition and they did not call me back until the next week! And then they did *not* offer me anything. I had continously called them and left messages about the shape I was in. When they did finally call back, all they told was to drink plenty of fluids. They said even though they had another doctor there in his place, that he would not prescribe me anything to get through it. They said I would have to wait on the other neurosurgeon to come back in, that he was out of the office for a week!

But guess what else? I discovered that I had not thrown them out cleaning up but that when I went to that neurologist I was sent to - my first appointment - (right before I "ran out") - he had asked me what I took for pain and had a fit. He was so hateful about it, I decided to go to the bathroom because I was about to cry from his outburst and and while I was gone, the person that went with me *gave* them to him - (out of my pocketbook) - she said just so he could write them down while I had gone to to the bathroom - and she never got them back. It was my ex mother - in - law (she was the only one I had to take me that day). After I got ahold of them the next week and asked for them back, his head nurse said that he had wanted me off Roxycodone and on something else and that he may not want to give them back. I am sooooo mad. I don't think that is legal for him to do that. Am investigating it now that I am home and can.

Needless to say, I'm not going back to him. In fact, I am going to write him and you all can imagine the content of the letter I will write.

I should have never let her take me, much less hold my pocketbook to keep for that five minutes. I did so many dumb things that week. I am usually not that braindead, but was in alot of pain that day.

I *did* tell the emergency room doctor that I had gone cold turkey and not on purpose either - and he gave me something in a bottle (liquid) called phenobarbital and belladonna (also says it is generic for Donnatal) that tastes terrible but will knock you out (1 teaspoonful). Also he gave me Zantac - I think it is prescription Zantac, it is 150 mgs; he gave me a bottle of Potassium (pills), Sulindac (for pain and it is pretty good for pain, too) and Toreadol. But this was like 8 - 9, amybe 10 days into the withdrawal period. Oh, I was on an IV for the dehydration for a while at the hospital. I came home and three days later my regular doctor was in so I went to him.

 Listen, I know I should have tried to go to another doctor, but I was in such bad shape, I could only crawl if I wanted to go anywhere besides the bed. I was an idiot not to call a friend to take me to the emergency room before I did, but I just hate to bother anybody. To tell the truth, the phone would get lost in my bed comforter and I would be too weak to find it. In fact, I told someone I went to Davy Jones Locker and back about three times that week, hehe.

I finally got back to my regular pain management doctor (he is a good man, he hates to see anyone suffer) and told him of my time in hell and he just shook his head. He said it *is* illegal for that other doc to take my medicine away from me that way. In fact, I think he is going to raise cain at the neurologist and make him give them back. Oh yeah, I told him since I was as far as I am with the Lyrica that I would hold off on the Roxys, but he gave me 50 15 mgs just in case. Ya'll will be proud to know I haven't had to take any yet and don't plan to unless I go back to that excruciating pain.

What makes me so mad is that some others - like that neurologist - think you take the pain medication for fun and the thing is, after about 4 days first taking the Roxys, I couldn't even tell I was taking them. All I knew was when I started hurting (about every four hours) that I took the recommended dose and then 30 minutes later I was out of pain and could work. At least I was part of the US workforce, for crying out loud. If I hadn't took them, I would have not been able to work but laid on the floor and gone crazy with the pain. I don't have to tell ya'll how bad nerve pain is.

I appreciate all of ya'll being glad for me with the Lyrica and making it through what I did and I *will* tell you I will never let myself go through that again. I don't know how I made it but it wasn't easy. I told my 17 year old son after it was over and he said the same as you-all - Mama, you could have died! I knew that but I just had very bad luck that week. I am doing so well right now with the Lyrica that I actually was able to go dancing last night - (after four years of working and coming home and falling in bed) - I went to celebrate me feeling so much better and my birthday - today.

I am still in disbelief that the Lyrica is doing so well after I had tried everything else in the past. What is you-all's opinion on this? I am worried my sustem is going to get used to it afterwhile and it is going to stop working. I guess we will see.

Thank you for all your good wishes, I mean it, it really helps me feel better. Although I know ya'll have to think - "what a big dummy"!

Aedammir


PAlady
Veteran Member


Date Joined Nov 2007
Total Posts : 6795
   Posted 4/12/2009 11:07 PM (GMT -7)   
Aedammir,
I don't know if I've welcomed you yet to the forum, but let me do so now. You've been through a lot lately, but I'm thrilled to hear the lyrica is working for you. I wouldn't worry about others' opinions if it's working; that's a relatively new medication and not the same as the opiods, but it is primarily meant for nerve pain. Relax and enjoy your good fortune in finding something that works - and Happy Birthday!

PaLady

White Beard
Forum Moderator


Date Joined Feb 2009
Total Posts : 3611
   Posted 4/13/2009 6:58 AM (GMT -7)   
Aedammir
I am glad you are Ok, and I am glad that you filled us in on the rest of the story! I will second everything that PALady said!

Happy Birthday and Good Luck to You

White Beard
  I'm Retired USAF, went back to school and became an RN, and now am on full disalbility!--Degenerative Disc (affecting mostly the thorasic disc but all levels involved), C6/7 laminectomy/diskectomy& fusion, Osteoarthritis, Ulcerative colitis, Chronic Pain, Fibromyalgia, Complex Sleep Apnea, and host of other things to spice up my life!(NOT!) Medications: Oxycontin, Percocet, Baclofen, Sulfasalazine, Metoprolol, Folic Acid, Supplemental O2 at 3lpm with VPAP Adapt SV


straydog
Forum Moderator


Date Joined Feb 2003
Total Posts : 13470
   Posted 4/13/2009 7:31 PM (GMT -7)   
WOW what a story and the hell you went thru. Oh, and the neurologist from hell on top of it. As far as the ex MIL goes, what she did almost sounds like she gave those pills to the dr intentionally and had no intent on getting the bottle back from him. Shame on her.
 
I am so happy to hear what Lyrica is doing for you. People can have a great result with it. It does wonders for the neuropathy in my feet and hands. I personally know other people taking it for nerve pain and they are doing very well too. Thats pretty awesome you went out and celebrated your b-day and did some dancing, bet you thought those days were over. Honestly, I would not care what others take is on Lyrica because you are going to get everything from it works all the way down to probably the worst drug on the market. Its really a loaded question asking about a medication because everyone reacts so differently to medication. We all just metabolize medications so differently. Enjoy your pain free time, don't worry about how long will it last or anything along those lines. Concentrate on where you are now, feeling good. No  one can predict if you will need an increase or not, so I wouldn't go there.
 
I cannot remember if I welcomed you to HW, if not welcome aboard. So glad you found us but sorry you have to live in the world of CP. Just know you are not alone and there are plenty of us out there. Keep on dancing.....Susie
 
 
 


Aedammir
New Member


Date Joined Mar 2009
Total Posts : 6
   Posted 4/19/2009 1:55 PM (GMT -7)   
I wanted to tell you all how much I appreciate your support. I have read many posts in this group and all of you are so sweet and supportive of each other. Thank you so much for all your support. This group has helped me so much. I am so glad to be a part of it.
 
By the way, I finally got to the right doctor - I have been sent to this one and that one - my first regular PCP would not help me with my pain - he would not give me anything and so I changed doctors (about maybe 2 years ago). My PCP now is the one that sent me to the right doctors; he first sent me to a neurosurgeon that sent me to another neurologist, which in turn sent me to a podiatrist. The nerve conduction study and the test that the podiatrist did showed that I had major damage to nerves in my legs and feet and he said since it had been so long, that when he operates on me in two weeks, that he can only help me 20 to 30% with the pain. He said it had just been too long. I hate it because I have been to doctor after doctor trying to get help (the first regular PCP I had sent me to a neurologist that didn't even look at my mileogram or MRI) so I didn't mess with him anymore. I think that was about 2 and a half years ago - it took my first PCP that long to finally send me to someone - and you all know you have to be referred to neurolgists, etc. But that is when I changed my PCP to the pain management doctor. He is the one that has helped me the most. The podiatrist will operate on me, he says that the major nerves in my feet and legs (I cannot remember the names of the nerves but am going to call him on Monday and find out more info) are being "squished" - that is how he put it - and said that that is what is causing my pain. Oh, and he says it is originating from the three herniated disks in my back. He told me he was going to open eight places on my legs and feet (mainly below my ankles and the backs of my knees) and fix them. I guess he is going to "unsquish" them, haha. So wish the best for me, I will be on crutches for 2 weeks to a month (I'm saying a week, hehe), so there goes my income for that period of time. I do not need to lose work for that long but it has to be done. Maybe he is wrong and I will have less pain than what he thinks. That is how I am going to think about it, anyways. My neurosurgeon says he does not want to operate on the disks in my back because I am not having severe pain there. I do have back pain there but it is not the mind numbing screaming pain that I have in my feet and legs. He says he is surprised I don't have bad pain in that area of my back because the herniated disks are laying on my spine, which is nothing but nerves, so he says. Anyways, again, thanks so much for all your support. You are all just a bunch of wonderful, helpful people and I wish the best for all of you. You all are in my prayers and I do believe prayer works. Bless you all.
 
Aedammir
 
 

Aedammir
New Member


Date Joined Mar 2009
Total Posts : 6
   Posted 4/19/2009 2:00 PM (GMT -7)   

Oh, one more thing - thanks for wishing me a happy birthday, that is very sweet of you all to do that. As for my surgery - I am going to have such positive thoughts about the surgery that I *will* go dancing again, he, he.

Thanks once again.

Aedammir


PAlady
Veteran Member


Date Joined Nov 2007
Total Posts : 6795
   Posted 4/19/2009 2:05 PM (GMT -7)   
Aedammir,
I wish you all the best with your surgery. Please come back and let us know how it goes. One thing - please don't push yourself to return to work or other activities too soon. If anything, err on the side of caution. Now I know the income hit is hard, but the recovery time - and your following strictly your doctor's orders and not trying to push things - may make or break the success. It's really not worth it in the long run, is it?

I know the recovery from my spinal fusion took twice as long as the doctor told me. His nurse told me 3 months, though, and she was right. He told me 4-6 weeks! Surgeons like to give you the quickest time before the surgery. But you need to keep your eyes on the long view, ok?

Wishiing you all the best!

PaLady
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