I'm Retired USAF, went back to school and became an RN, and now am on ful disalbility!
Degenerative Disc (affecting mostly the thorasic disc but all levels involved), C6/7 laminectomy/diskectomy& fusion, Osteoarthritis, Ulcerative colitis, Chronic Pain, Fibromyalgia, Complex Sleep Apnea, and host of other things to spice up my life!(NOT!)
Medications: Oxycontin, Percocet, Baclofen, Sulfasalazine, Metoprolol, Folic Acid, Supplemental O2 at 3lpm with VPAP Adapt SV
Post Edited (White Beard) : 4/8/2009 2:36:24 PM (GMT-6)
If I could cook dinner for all of you on your birthday I would in a heart beat.
I wish I could sent my 20 yr old to the store but he has mental disabilities and doesn't have a driver license. (hes another story in itself) It would sure come in handy if he did though. My daughter will be home in 40 minutes she is 16 she can drive me.
So far I've gotten the rack of ribs and chicken done. I'm taking a break then I will start the potato salad. I ran out of BBQ fuel so there won't be any grilled pineapple.
I have noticed the pain backin up alot. This morning sucked after going to the store. I've only had CP for a few years now. I can't believe so many of you have had it so much longer. I would think insanity would be setting in by now!!!
Well back to the kitchen. It should be well worth the pain eating outside with my family and the dogs. Thats if I can keep the birthday boy off of XBOX live for an hour.
Post Edited (PAlady) : 4/8/2009 2:56:19 PM (GMT-6)
Pete I read the thread on your trip. How great it is for you to spend some time with your son. I love my kids almost to a fault. But I'm like you I would suffer the fires of hell for them.
Oh man I couldn't imagine not being able to cook! I cook all holidays for everyone. No one else in my family will cook I guess that if I do this good of a job that they don't have to try. Sometimes it would be nice if someone took it over but I would probaly be on the sideline in the kitchen driving them NUTS.
You have a great idea about medication before doing an event I don't have that privilage I'm new to my pain clinic and can only take a certain amount.
I love my heating pad though!!!! I guess almost everyone on this board would kill someone who tried to take their heating pad away
I have to say that it sounds as if your meds need to be changed to something more long acting so you can pull more then a few hours of relief,thus the problems with short acting meds,the ups and downs and high and lows and getting no more then a few hours out of them before your in dire pain again and not time for more yet! I say talk to your Doc and find out why you cant be moved to a 12 or 24 hour med maybe with a BT med for the low times?
I went thru the entire 1st 3 years of CP much like you,having to plan my entire day and night around the few hours of relief I was getting and most of the time it just wasnt worth the effort or the pain I had to deal with afterwards so like many I just didnt do much of anything.
I was eventually blessed with methadone and my whole life changed seriously I became more normal in my can and cant do's and actually felt like I had been reborn. Sounds weird huh? Not really since I had avoided so much for so long and had actually withdrawn from family and friends since I couldnt ever go here or there or take part in much of anything,family reunions,girls night outs,school plays,afterschool activities,barbecues,yard sales,taking my kids pretty much nowehere and relying on my adult kids to shop and take the younger ones anywhere, I was a mess and rarely even cooked a meal if it required more then popping it into the microwave,no this isnt an ad for the makers of methadone as I have many many friends who found the same return to the living on oxy-c or even morphine as long it is time released and long acting and generates the relief needed for you.
Still I do alot of corner cutting like cooking,when I make say stuffed peppers and I hate preparing these but sure do love them, I make double and freeze the other half leaving me a whole other meal for another day. Same with chilli,soups,about anything can be frozen and making double when you do make something of this caliber gives you one day of stretching yourself tot he limit versus 2.
I do my shopping during my best times of the day or night and since my meds are taken on a once a day timeline if that means shopping at 6 a.m. when I have just taken them then that is what I do,Walmarts open 24 hours a day! I also like shopping at that time as the crowds are far less and the check out lanes are empty with no waiting in line!
I use online bill pay as well as banking and my cell phone services are all online. These days ao much can be done online that this cuts out alot of running here and there and standing in line. Phone is the same versus going in somehwere to search for something or ask questions. I have to say that over 10 plus years of this I have gotten real good at cutting corners and still getting the job done.
If I forget something I always ask a friend or neighbor to let me know if they go out to the store as I need them to pick up something for more if they dont mind and no one ever has yet. I also noticed you have adult kids like me and I use them like they have used me! If they want to drive my car to the mall? Dont forget to stop at Krogers and get my cupcake foils along the way honey! Utilize what you have and make use of todays technology and gadgets.
Hey there...My Birthday is on April 19th....and I love cheesecake!!!
Hint Hint Hint
We are all in the same boat...unfortunatley it seems like it's sinking...
Post Lamenectomy Syndrome
Hemi Lamenectomy/Spinal Fusion(Lumbar)
120 mg. Methadone daily /15 mg. Oxycodone as needed
Type 2Diabetes : (March 16, 2009)
Metformin 500 mg. twice daily