What do you do?

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LLPLUV
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Date Joined Mar 2009
Total Posts : 1158
   Posted 4/8/2009 11:49 AM (GMT -7)   
Ok I woke up this morning in pain.  Took my perc 10/325 at 8 am.  Dulled the pain a tad.  Its my day off and I wanted to go grocery shopping.  I always take one of my teenagers with to help.  My 20 yr old offered.  So I went shopping about 10 am.  When I for back a noon my pain was screaming at me.
 
So my question to all of you is "What do you do to prepare to do something that can end up hurting?"
 
If we all add alittle some of us might find some relied when we have to go out and do our errands.  Boy it would be a great world if we didn't have to worry about getting ready to do something most people take for granted.
 
I also forgot cupcake liners.  Meaning I have to go back to the store so I can make my sons cupcakes for his 15th birthday.  I know it sounds childish but I always cook a great meal on all my kids birthdays.  If I usually feel bad I will let them pick some place to eat. 
 
Today is BBQ pork ribs, BBQ chicken, potato salad and shrimp scampi.  He loves shrimp.
 
Laurie
Chronic Kidney Stones, PKD (Polycystic Kidney Disease), Chronic Kidney Failure, Severe Hypertension, Urological RSD


LLPLUV
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Date Joined Mar 2009
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   Posted 4/8/2009 11:51 AM (GMT -7)   
I also forgot he loves Fresh Grilled Pineapple........ Thats on the menu and I will be suffering around 8 pm tonight. One thing I do that is a NO NO is I will have a mixed drink on occasion with my last pain med of the night. Usually reserved for after work which is a 12 hour heavy labor job.
Chronic Kidney Stones, PKD (Polycystic Kidney Disease), Chronic Kidney Failure, Severe Hypertension, Urological RSD


Chartreux
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   Posted 4/8/2009 1:18 PM (GMT -7)   
Laurie, you spoil those kids eh.. come and cook me something then, just joking
Well try sitting on your heating pad before doing any actual cooking, take frequent breaks
when getting everything prepared and make sure to take it slowly...
Other than that, it's still gonna hurt sure wish I knew magic words. Your a terriffic mom for going
to all this trouble for them and one of these days they'll recongize that..I take mine out to dinner on
her birthday, as I only have the one child...
I sure hope you don't get too worked out and that the pain stays in control for you today..
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* Asthma, Allergies, Osteoarthritis, Spinal Stenosis, Degenative Disc, Fibromyalgia, Gerd,
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LLPLUV
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Date Joined Mar 2009
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   Posted 4/8/2009 1:24 PM (GMT -7)   
I love to cookl!!!!! Yes I spoil my kids they are only kids once in their life. I have had some people who think its an outrage (my sister). Only one acts spoiled its the one who turns 15 today. But then hes the baby maybe thats why...

Chartreux I live for my heating pad! I don't know what I'd do without it..

Thank you for responding and I will take breaks throughout this day. He has a baseball game that I will miss so that I can have everything ready for him when he comes home. He even gets a chocolate cake and Fudge Ocerboard. If you've ever been to the Red Lobster its one of their deserts I make at home now. Hot brownie with ice cream chocolate sauce and whip cream its GREAT!!!!!
Chronic Kidney Stones, PKD (Polycystic Kidney Disease), Chronic Kidney Failure, Severe Hypertension, Urological RSD


White Beard
Forum Moderator


Date Joined Feb 2009
Total Posts : 3611
   Posted 4/8/2009 1:28 PM (GMT -7)   
LLPLUV
First off can I have my birthday at your house? :-)    Huh? Huh? Can I? Can I? Can I? turn   PLEASE? smilewinkgrin
 
Birthday dinner sure sounds good!   Usually when I know that I am going to do something that either I know I shouldn't do or I know will probably cause me to be in more pain, I will sometimes take a pain med a half hour or so before I do it. On Doctors orders we would often to that for Cancer patients before they would go to Physical Therapy or go down for a procedure, MRI, xray, or even Radiation treatment. It was so much better for the patient, and it is so much easier to treat pain if it is not allowed to get out of control in the first place. So from my experience on working on Onco I also try to follow that  type of rule. And it does work great to keep the pain away while doing what ever I am doing! The draw back to it is, since I am in no pain I won't stop when I should and I will often over do it! Then I royally pay the piper!!,  I will be in extreme pain for days, and I can't take enough pain meds (Percocet) to get rid of the pain, to get a handle on it! So then it is "suffer time" and of course the pain always seems worse at night when your awake and alone! As they say Pay back is B****! And CP always gets its pay!
 
White Beard


 

I'm Retired USAF, went back to school and became an RN, and now am on ful disalbility!

Degenerative Disc (affecting mostly the thorasic disc but all levels involved), C6/7 laminectomy/diskectomy& fusion, Osteoarthritis, Ulcerative colitis, Chronic Pain, Fibromyalgia, Complex Sleep Apnea, and host of other things to spice up my life!(NOT!)

Medications: Oxycontin, Percocet, Baclofen, Sulfasalazine, Metoprolol, Folic Acid, Supplemental O2 at 3lpm with VPAP Adapt SV

Post Edited (White Beard) : 4/8/2009 2:36:24 PM (GMT-6)


PAlady
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Date Joined Nov 2007
Total Posts : 6795
   Posted 4/8/2009 1:40 PM (GMT -7)   
LL,
I'm in line right after White Beard. My birthday is in December so you have lots of time to prepare! LOL

Seriously, first thing today is send your 20 year old back to the store!

Secondly, pace yourself. Like Char was saying - take a lot of breaks.

Put on your favorite music so you can sing or at least hum while you cook (or listen to your favorite tv show or anything to help you distract).

And go out for dessert!!!

Your sons do have it good!

Hugs,

PaLady

White Beard
Forum Moderator


Date Joined Feb 2009
Total Posts : 3611
   Posted 4/8/2009 1:46 PM (GMT -7)   
PALady
But what do you do? To prepare to do something that could end up causing YOU pain? That is the question!

White Beard
 

I'm Retired USAF, went back to school and became an RN, and now am on ful disalbility!

Degenerative Disc (affecting mostly the thorasic disc but all levels involved), C6/7 laminectomy/diskectomy& fusion, Osteoarthritis, Ulcerative colitis, Chronic Pain, Fibromyalgia, Complex Sleep Apnea, and host of other things to spice up my life!(NOT!)

Medications: Oxycontin, Percocet, Baclofen, Sulfasalazine, Metoprolol, Folic Acid, Supplemental O2 at 3lpm with VPAP Adapt SV


LLPLUV
Veteran Member


Date Joined Mar 2009
Total Posts : 1158
   Posted 4/8/2009 1:51 PM (GMT -7)   

If I could cook dinner for all of you on your birthday I would in a heart beat.  yeah

I wish I could sent my 20 yr old to the store but he has mental disabilities and doesn't have a driver license.  (hes another story in itself) It would sure come in handy if he did though.  My daughter will be home in 40 minutes she is 16 she can drive me.

So far I've gotten the rack of ribs and chicken done.  I'm taking a break then I will start the potato salad.  I ran out of BBQ fuel so there won't be any grilled pineapple. smhair

I have noticed the pain backin up alot.  This morning sucked after going to the store.  I've only had CP for a few years now.  I can't believe so many of you have had it so much longer.  I would think insanity would be setting in by now!!! shocked

Well back to the kitchen.  It should be well worth the pain eating outside with my family and the dogs.  Thats if I can keep the birthday boy off of XBOX live for an hour. skull


Chronic Kidney Stones, PKD (Polycystic Kidney Disease), Chronic Kidney Failure, Severe Hypertension, Urological RSD


PAlady
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Date Joined Nov 2007
Total Posts : 6795
   Posted 4/8/2009 1:53 PM (GMT -7)   
Ok, I'll get serious.

My first thought was I avoid most of those things. Which leads, of course, to lots of isolation and inactivity.

I don't know that I DO anything other than time my meds as best as possible, and know that I've made a clear decision to do it because (hopefully) I really WANT to, like go to my goddaughter's to visit her and her family. Telling myself all the reasons I DON'T want to isolate from her, and that I'll pay the pain price.

The tougher things are the ones we have to do, and living alone there are lots of those. I suppose I push them way in the back of my head. Knowing I don't have a choice. If I don't go shopping, it doesn't get done. I do try not to overdo and usually manage that -- but at the price of isolation.

This does make me think though about those things I WANT to do - like visit the cats at the Humane Society more often - but know if I do it too frequenly I won't be able to do it at all. So I guess another thing is placing some limits on certain activities, without avoiding them altogether.

Does that answer some of it White Beard? It is a very relevant question, LL.

PaLady
p.s. LL - we must have been writing at the same time. I didn't know about your 20 year old. So sorry to have been an ignorance wise a** with my off the cuff suggestion. But your 16 year old is a great substitute.
How about the going out for dessert idea now that the grill is out? Would that make it easier on you?

Post Edited (PAlady) : 4/8/2009 2:56:19 PM (GMT-6)


LLPLUV
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Date Joined Mar 2009
Total Posts : 1158
   Posted 4/8/2009 1:53 PM (GMT -7)   
White Beard you caught that too, she didn't answer what she does to prepare....LOL Always thinking of other and not paying attention to the question. Same as another post about what good 3 qualities you have...lol
Chronic Kidney Stones, PKD (Polycystic Kidney Disease), Chronic Kidney Failure, Severe Hypertension, Urological RSD


White Beard
Forum Moderator


Date Joined Feb 2009
Total Posts : 3611
   Posted 4/8/2009 1:58 PM (GMT -7)   
Oh! How I love ribs! MMMM!
 

I'm Retired USAF, went back to school and became an RN, and now am on ful disalbility!

Degenerative Disc (affecting mostly the thorasic disc but all levels involved), C6/7 laminectomy/diskectomy& fusion, Osteoarthritis, Ulcerative colitis, Chronic Pain, Fibromyalgia, Complex Sleep Apnea, and host of other things to spice up my life!(NOT!)

Medications: Oxycontin, Percocet, Baclofen, Sulfasalazine, Metoprolol, Folic Acid, Supplemental O2 at 3lpm with VPAP Adapt SV


PAlady
Veteran Member


Date Joined Nov 2007
Total Posts : 6795
   Posted 4/8/2009 2:03 PM (GMT -7)   
Trust me a saint I am not!! LOL

I really think the most important thing I do is time my medication, and restrict other activities so that all you have in that day is the activity you want or need to do. Other stuff waits (as it so often does).

W.B. & LL - you two are cute! LOL

PaLady
Ok, LL, White Beard and I are on our way, so set two extra plates and we'll bring the pineapples! tongue

White Beard
Forum Moderator


Date Joined Feb 2009
Total Posts : 3611
   Posted 4/8/2009 2:05 PM (GMT -7)   
Your right LLPLUV PALady is always thinking about others, butI want to know more about her and her answers because I know her answers will be of value! And I know your reading this PALady smilewinkgrin
 
{{{{{{{{{{{{{{{{{PALady}}}}}}}}}}}}}}}}}
 
White Beard
 

I'm Retired USAF, went back to school and became an RN, and now am on ful disalbility!

Degenerative Disc (affecting mostly the thorasic disc but all levels involved), C6/7 laminectomy/diskectomy& fusion, Osteoarthritis, Ulcerative colitis, Chronic Pain, Fibromyalgia, Complex Sleep Apnea, and host of other things to spice up my life!(NOT!)

Medications: Oxycontin, Percocet, Baclofen, Sulfasalazine, Metoprolol, Folic Acid, Supplemental O2 at 3lpm with VPAP Adapt SV


PAlady
Veteran Member


Date Joined Nov 2007
Total Posts : 6795
   Posted 4/8/2009 2:07 PM (GMT -7)   

pieceOfCRPS
Regular Member


Date Joined Jan 2008
Total Posts : 66
   Posted 4/8/2009 2:16 PM (GMT -7)   
nono

I too avoid things that cause me great pain, which is almost everything, however, when duties that much be done come into play as they always do. I rest up a bit prior to, get through it, come home and hurt ,, and then try to rest some more. The resting part is always hard to find the time cause lets face it, none of us have time to just sit around, so I have to say that the way I deal with the pain the most is to, ,,,, accept it. I know its coming, I know its going to be bad, or worse depending on how far I push myself. But the bottom line is,, it is a part of my life,, I have accepted it as a part of me. It is no freakin surprise when it comes on,, nor when it doesnt go away when I would like. Or when I want to do something I want to do and cannot. I just dont let it get me down, and then I just keep on keepin on.

There is no doubt that when I am down and depressed my pain is more pronounced,, so when I say to myself " Screw you pain,, I am gonna do it anyway" I swear to you its a little bit easier.

By accepting it and going on,, then you have more time to focus on the few positive things in life,, and the pain can stop controlling you if only for just a minute.


Good luck to you.

Su
CRPS what a piece.
 
Permanent severe nerve damage from crushing injury.
CRPS, unwillingness to take meds.  Doomed to a life of misery but with a positive outlook.
 


PAlady
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Date Joined Nov 2007
Total Posts : 6795
   Posted 4/8/2009 2:23 PM (GMT -7)   
Su,
I think you're raising a very good point that I and maybe others who tend to avoid too many things need to do - and that is accept our lives as they are. We don't have to like it, but if we're going to have the pain anyway, there are some things we might as well do and maybe for brief times we won't be focused on the pain. And we'll have some nice memories to help us out later on when we're hurting. I know the mental aspect is a crucial part for me - something I'm still working on. Just becoming aware of it, aware of our choices each day, helps. And that it's also ok to say no because we don't want to hurt or over do it.

I got an invite to our class reunion (which I hate going to anyway) and an e-mail from an out of town former classmate asking if I was going. And I felt guilty and toyed with it before I responded. But I finally acknowledged to myself this was something I didn't want to do BEFORE CP entered my life, and the last thing I feel like doing now is sitting around and hearing about everyone's great lives! And their vacations and get away homes and retirement incomes! So I e-mailed her back that no, I wasn't going. And that's that.

I'm rambling a bit now!

PaLady

Pete trips again!
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Date Joined Nov 2006
Total Posts : 1899
   Posted 4/8/2009 4:07 PM (GMT -7)   
You are making me VERY HUNGRY Laurie!
I think it's great that you make a special meal for the Kid's B-D's! It brings back memories when I used to do the same. Oh how I love to cook for family & friends! Now, I can't stand and cook in the kitchen for more than 15 minutes or my lower back goes into spazms! I hate it! I don't know what it is about cooking but it happens every time and I end up hunting for the heating pad while burning something! I used to take pride in my timing and everything being perfectly done at the same time, now I just never can because of this #*)(*@!%%$# lower back of mine!
As to your question, yes I too always try to take my meds just prior to doing something I just know is going to come back and get me. I took my son out fishing last Sunday and I just knew what was going to happen! Well, even though I took 2 perc's & a methadone right before we left and my neck held up just fine as I wore my neck brace the whole time, my back was a mess out on the water and when we got back and my hands were like two balloons! Way to many casts and the aurthritis & carpol tunnel set in w/ a vengance! In the boat, I kept putting them in the ice water and shaking them like mad to try to bring some life back into them! But it was worth every bit of the pain to be out there on the Gulf w/ my son fishing again! I would do it again tomorrow if I could! Going fishing w/ my son who I haven't seen since Christmas and will not see again till next Christmas is a different story than going out food shopping which I would put off when in pain just like PA does!
Later Folks> Luv Y'all! Big Hugz>>>
Pete
56 years old, Surgury, Radical Prostatectomy 8/20/03, PSA 6.6, Gleason 3 + 3 = 6, Adenocarcinoma extent (moderate) Stage & Margin:T2NOMX, No Metastases, Organ Confined, bone scan: Neg. 3 1/2 years of depression after surgery prior to Hypogonadizm DX, Testosterone Theropy> new 2/6/09> 400mg injections every 2weeks . 56 and so glad to still be here to see my two sons grow up to be fine young men. They are both serving in the US Navy, one on the aircraft carrier USS John Stennis in port in Japan and the other on a Gator Freighter USS Bataan stationed in Norfolk, Va. I am one proud PaPa! 


LLPLUV
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Date Joined Mar 2009
Total Posts : 1158
   Posted 4/8/2009 4:15 PM (GMT -7)   

Pete I  read the thread on your trip.  How great it is for you to spend some time with your son.  I love my kids almost to a fault.  But I'm like you I would suffer the fires of hell for them. 

Oh man I couldn't imagine not being able to cook! shocked    I cook all holidays for everyone.  No one else in my family will cook I guess that if I do this good of a job that they don't have to try.  Sometimes it would be nice if someone took it over but I would probaly be on the sideline in the kitchen driving them NUTS.

You have a great idea about medication before doing an event I don't have that privilage I'm new to my pain clinic and can only take a certain amount. shakehead

I love my heating pad though!!!! yeah   I guess almost everyone on this board would kill someone who tried to take their heating pad away  yeah


Chronic Kidney Stones, PKD (Polycystic Kidney Disease), Chronic Kidney Failure, Severe Hypertension, Urological RSD


PAlady
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Date Joined Nov 2007
Total Posts : 6795
   Posted 4/8/2009 9:31 PM (GMT -7)   
LL,
Do you have anything for BT pain? I don't know (or can't remember!) what meds you're on, but if it's longer term med then maybe your pm doc would give you something for BT pain, especially if you explained family events, etc. I wouldn't ask for a specific drug, just explain when your current medicaiton regime isn't holding you and you'd like to enjoy certain events.

PaLay

angel8
Regular Member


Date Joined Apr 2009
Total Posts : 109
   Posted 4/9/2009 4:43 AM (GMT -7)   

I have to say that it sounds as if your meds need to be changed to something more long acting so you can pull more then a few hours of relief,thus the problems with short acting meds,the ups and downs and high and lows and getting no more then a few hours out of them before your in dire pain again and not time for more yet! I say talk to  your Doc and find out why you cant be moved to a 12 or 24 hour med maybe with a BT med for the low times?

I went thru the entire 1st 3 years of CP much like you,having to plan my entire day and night around the few hours of relief I was getting and most of the time it just wasnt worth the effort or the pain I had to deal with afterwards so like many I just didnt do much of anything.

I was eventually blessed with methadone and my whole life changed seriously I became more normal in my can and cant do's and actually felt like I had been reborn. Sounds weird huh? Not really since I had avoided so much for so long and had actually withdrawn from family and friends since I couldnt ever go here or there or take part in much of anything,family reunions,girls night outs,school plays,afterschool activities,barbecues,yard sales,taking my kids pretty much nowehere and relying on my adult kids to shop and take the younger ones anywhere, I was a mess and rarely even cooked a meal if it required more then popping it into the microwave,no this isnt an ad for the makers of methadone as I have many many friends who found the same return to the living on oxy-c or even morphine as long it is time released and long acting and generates the relief needed for you.

Still I do alot of corner cutting like cooking,when I make say stuffed peppers and I hate preparing these but sure do love them, I make double and freeze the other half leaving me a whole other meal for another day. Same with chilli,soups,about anything can be frozen and making double when you do make something of this caliber gives you one day of stretching yourself tot he limit versus 2.

I do my shopping during my best times of the day or night and since my meds are taken on a once a day timeline if that means shopping at 6 a.m. when I have just taken them then that is what I do,Walmarts open 24 hours a day! I also like shopping at that time as the crowds are far less and the check out lanes are empty with no waiting in line!

I use online bill pay as well as banking and my cell phone services are all online. These days ao much can be done online that this cuts out alot of running here and there and standing in line. Phone is the same versus going in somehwere to search for something or ask questions. I have to say that over 10 plus years of this I have gotten real good at cutting corners and still getting the job done.

If I forget something I always ask a friend or neighbor to let me know if they go out to the store as I need them to pick up something for more if they dont mind and no one ever has yet. I also noticed you have adult kids like me and I use them like they have used me! If they want to drive my car to the mall? Dont forget to stop at Krogers and get my cupcake foils along the way honey! Utilize what you have and make use of todays technology and gadgets.

 


uniquelyme
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Date Joined Nov 2008
Total Posts : 1037
   Posted 4/9/2009 7:39 AM (GMT -7)   

Hey there...My Birthday is on April 19th....and I love cheesecake!!!

Hint Hint Hint

Me.


 
We are all in the same boat...unfortunatley it seems like it's sinking...
Post Lamenectomy Syndrome
Hemi Lamenectomy/Spinal Fusion(Lumbar)
120 mg. Methadone daily /15 mg. Oxycodone as needed
Type 2Diabetes : (March 16, 2009)
Metformin 500 mg. twice daily
ME. (Rhonda)                                                                    

 


Scarred_for_life
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Date Joined Jul 2008
Total Posts : 1559
   Posted 4/9/2009 8:02 AM (GMT -7)   
Oh this question I have to answer to, cause I actually AM paying for doing a little much yesterday. Out in front of my porch there is a huge empty spot where I think a garden once existed. There grows no grass and I thought (since I'd never had a REAL flower garden at my old home because of our dogs) it would be a perfect spot for a flower bed. Well, hubby dug up the dirt for me and got the garden all prepared for my flowers. I went and bought a ton of flowers that I thought would be absolutely beautiful there and yesterday the weather was absolutely beautiful!! 70 degrees....no wind....absolutely fab for a little planting. So I started putting my bulbs in the ground and I had gotten some Popsicle sticks that I thought would serve good to mark the plants as to where they were at.

Well......instead of stopping when I was beginning to get sore I kept going and when I had finished 2 rows I realized that there was no way I could do anymore. My back was in total fits! I was cramping, shooting pains down my legs and could hardly move. So I quit. I too have a tendency to go over the top when it comes to doing things. Once I get started I have a tendency of not stopping until the task is complete. Unfortunately this is where I goof up. My feelings are I'm going to be in pain no matter what I do and I can't exactly just quit and stop living right? So I usually pace myself. I take my meds before the task starts and usually stop when it gets to hurt a little bit. Taking frequent breaks is a must when it comes to dealing with the pain so even when I am cleaning the house it takes 2 days because I pace myself.

Anyway....wanted to put in my two cents.

Hugs

Scarred
What doesn't kill us only makes us fight back harder! :P


LLPLUV
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Date Joined Mar 2009
Total Posts : 1158
   Posted 4/9/2009 8:16 AM (GMT -7)   
PALady....
p.s. LL - we must have been writing at the same time. I didn't know about your 20 year old. So sorry to have been an ignorance wise a** with my off the cuff suggestion. But your 16 year old is a great substitute.
Its ok I didn't mind the comment at all. You didn't realize or know about his handicaps. I usually don't talk about him much so your are just fine.....

PALady..
Nothing for break through pain. I'm so new to this pm clinic that they are starting out so mild and working their way up. Its so painful but I see the doc on monday for the nerve block and a med eval. Hopefully he will adjust it. I feel like a addict asking for more. I guess all the docs I've been through some office staff lecturing on be a drug seeker that its sometimes hard for me to ask. But I will cuz it hurts way to much.

Angel8...
My husband pays the bills and he uses online to do it...lol He is so great a few years ago my cardiologist told him everyday is a borrowed day for me in regards to my heart. SInce that day he has helped above and beyond and man I'm blessed with him. I only shop once a week he does all the other shopping. I have learned if one of my sons games drop on a day I work I can't go. When I get home after a 12 hour day of physical labor I just can't do it I would be in tears. But if its a day off I'm there with bells on.
I try and make all doctors appointments on the same day. My teenager do most the chores around the house. If I do too many my husband is right there giving me that look!!!! I can't freeze my dinners cuz I feed 2 teenagers, 1 20 yr old, myself, hubby and my 70 yr old father. So that makes 6 people. Most of them are very big eaters I would have to cook like a ARMY COOK to get enough to freeze..lol

CP I feel can be the most unruly mates you can ever encounter. I call it a mate cuz its a lifelong commitment. 10 yrs ago I would never of thought my adult softball days would come to an end.

Uniquelyme....
My o My I love cheesecake!!!!
Chronic Kidney Stones, PKD (Polycystic Kidney Disease), Chronic Kidney Failure, Severe Hypertension, Urological RSD


PAlady
Veteran Member


Date Joined Nov 2007
Total Posts : 6795
   Posted 4/9/2009 11:46 AM (GMT -7)   
LL,
Wow, you sure have your hands full! And you work 12 hr. days to boot? I don't know how you're still standing!

One thing I forgot about - our moderator, Chutz, has a link to a pain journal, but you can keep an informal one. Listing your pain level, what you've done (activity wise), how long before your meds are wearing off, etc. and taking that to your doctor gives him/her some documentation, and they can see a pattern and help prescribe more accurately. Just a thought.

And this CP mate - I want a divorce!!

PaLady

LLPLUV
Veteran Member


Date Joined Mar 2009
Total Posts : 1158
   Posted 4/9/2009 12:26 PM (GMT -7)   
My life is a circus!!! I would have to write a novel about what goes on in my life. Sometimes I don't want to stand up. Each day in my life I have to tell myself this is the hand I've been dealt so I deal with it the best way I can.

I'm so thrilled I found this forum. I can't even find the words for it. Before I found all of you I was so alone. Yes I have my husband and kids but I don't seem to have the time or energy for real life friendships. I make a really really bad friend.

I started a pain journal yesterday, for my appointment is Monday afternoon. I will look at her link I like to be nice and neat. If I can put graphs in it I would..lol
Chronic Kidney Stones, PKD (Polycystic Kidney Disease), Chronic Kidney Failure, Severe Hypertension, Urological RSD

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