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Veteran Member

Date Joined Oct 2008
Total Posts : 2022
   Posted 4/10/2009 2:38 AM (GMT -6)   
I am fairly new to this board. Have not posted much (but plan too) but read it every day to give me strength. I know we are all going trying times with our chronic pain.
I would like to get to know everyone a bit better. I'll start by sharing myself with you. This is a good news thread, so we won't talk about our pain.
I live in Ottawa, Ont. I am 51 years old. Married for almost 23 years to my soulmate. I am truly blessed to have such a wonderful and caring husband. I have two boys, 18 and 20. I am a nurse who works part time at a paediatric hospital. Love my job. Currently I am on long term disability. My hobbies and interests include knitting, crocheting, beading, scrapbooking, cardmaking, reading, biking, kayaking, camping, fishing, boating and I am a hockey fan of the Ottawa Senators. No playoffs for us this year!!!! WAAAAAA!! LOL!!!
Now I would love to hear all about you.

Veteran Member

Date Joined Sep 2006
Total Posts : 1713
   Posted 4/10/2009 9:19 AM (GMT -6)   
Hi Suzane and welcome to the chronic pain forum of Healing Well. I am so glad you posted.

I am Linda 57, married 40 years this July to wonderful man who is my life line too. He takes really good care of me as well. I have two grown chirlden both girls and two grandchildren that I take care of everyday while my daughter works. The kids are Anna, 4 months (almost 5 months) and Kelly will be five years old on April 19th. I love taking care of them although it poses a challenge on some days.

I have fibromyalgia that interrupts my life everyday. I would be in constant pain if I didn't take my percocet every four hours. They say narcotics don't help fibro. That's a bunch of hooey. But the meds get me through the day.

I had a laminectomy some thirty years ago so I have low back pain too at times and can't stand or walk too far.

Well I have to go the kids are here. Keep posting and thanks for joining us.

Moderator Chronic Pain
Believe in yourself.  Be kind to fellow humans and animals.  Take time to smell the flowers and the coffee.
And by all means, when you are down, ask me for help.  I will be there.

Veteran Member

Date Joined Nov 2008
Total Posts : 1037
   Posted 4/10/2009 9:47 AM (GMT -6)   
Hey TMJPAIN, we have something in common...I love beading too.  I have been doing it for several years now and I hope to sell my creations one day... I'd love to see some of your creations...
I am a 41 (42 on April 19th) single mom living in Mt. Juliet, Tn.  I have a 15 yr. old son named Tyler..He's a handful!! I haven't worked in a long time because of back a diabetic! I am in the process of trying for disability...not fun! I love beading, reading JD Robb books...James Patterson.. The weather in Nashville sux today...we had a Tornado early this morning about 30 miles away...
I hope you and the rest of my friends here have a great day..

We are all in the same boat...unfortunatley it seems like it's sinking...
Post Lamenectomy Syndrome
Hemi Lamenectomy/Spinal Fusion(Lumbar)
120 mg. Methadone daily /15 mg. Oxycodone as needed
High Blood Pressure: Lisinopril HCTZ 10 mg. daily
Type 2Diabetes: (March 16, 2009)
Metformin 850 mg. twice daily (so far)
ME. (Rhonda)                                                                    


Veteran Member

Date Joined Jan 2005
Total Posts : 9090
   Posted 4/10/2009 1:02 PM (GMT -6)   
Hey TMJ!

Thank you soooo much for starting this thread. What a great idea! idea

I'm a wife, mom, grandma to many besides my biological grandkids. I used to teach at a community college for many years but have had to give it up per doc orders. OK, no bad stuff. rolleyes lol...

I'm 58 smhair whoa, how did that happen?? Hubby and I have been married 15 years...took me 2 tries to find the best man on the planet. Can you believe I found and married a 43 year old bachelor? What a deal! We love camping/trailering, we both quilt (he's recently started and loves it), enjoy photography and Geocaching. For those who are interested here's some information... .

to ME...I too am currently applying for disability. Care to do it together? I sure could use ideas. What a nightmare answering those written questions in 500 characters!

Anyway, back to this I grew up and still live in Western Washington about an hour or so SW of Seattle. We live in a very rural area buried in the middle of 15 acres of forest land. I am not a city person, never was. We love our animals although we are down to 1 dog and 1 cat now which is OK. Hubby is an import from PA via AZ but is now acclimated to this climate. I raised 3 kids, partly with currently hubby's help...but only 2 are living now. This week is the remembrance of the passing of my oldest son when he was 23. He was such a delight and joy in my life.

But life goes on I do love this family I have met on Healing Well. Those who say that online friends are 'real' just don't get The folks here have literally saved my life and enhanced it beyond words.

OK, enough babbling. Gotta save room for others to share!
Co-Moderator Fibromyalgia & Chronic Pain Forums
Fibromyalgia, Ulcerative Colitis, Insulin dependent diabetic, PTSD, dermatitis herpetiformus, osteoarthritis and a few other side dishes.
Happiness is something to do, someone to love, and something to hope for."

White Beard
Forum Moderator

Date Joined Feb 2009
Total Posts : 3602
   Posted 4/10/2009 1:47 PM (GMT -6)   
My Name is White Beard, because I have a White Beard, it is a full Santa Beard and it is white as the snow, I am 57years old (58 in June) I have been married over 34 years, but am currently in the process of getting a divorce, ( long story and no pain in this post!) Anyway I have two daughters, one 32, and one 29 both are married the oldest one is a High school teacher and the youngest a nurse up at Mayo Clinic. I currently reside in East Central Illinois. I am retired from the US Air Force (22 1/2 years) After I retired I went back to school and became a registered nurse and worked on an Oncology Unit and Med Surg! Along with my military retirement I am on SSD because of my back. My hobbies include Photography, I love drawing and sculpture, but I have had to give most of it up because of limited use of my arms and hands! You might say I am in the process right now of transitioning from one life into another, what ever that might be!

Welcome to the Forum TMJ it is a really Great Place to come to!

White Beard

I'm Retired USAF, went back to school and became an RN, and now am on full disalbility!

Degenerative Disc (affecting mostly the thorasic disc but all levels involved), C6/7 laminectomy/diskectomy& fusion, Osteoarthritis, Ulcerative colitis, Chronic Pain, Fibromyalgia, Complex Sleep Apnea, and host of other things to spice up my life!(NOT!)

Medications: Oxycontin, Percocet, Baclofen, Sulfasalazine, Metoprolol, Folic Acid, Supplemental O2 at 3lpm with VPAP Adapt SV

Regular Member

Date Joined Feb 2009
Total Posts : 487
   Posted 4/10/2009 2:31 PM (GMT -6)   
Hi TMJ and everyone:

It is amazing to me how much we all have in common and they say opposites attrack - or maybe it's more misery loves company (HaHa).

My name is Lorie, I am 40 years old (ouch, that stings), I, too have been married for 23 years to my first and only love (we started dating when I was 14 and he was 22 - my parents didn't know a thing until we'd been together for 2 years, but we dated for three years and both saved ourselves for our wedding night, OK, TMI). We have three boys, a 21 year old who just graduated from our local community college and it getting ready to go on to Cortland University in Upstate, NY about 3 hours from where we live. I have a 15 year old who is almost 6'6" and eats me out of house and home, and I have an 11 year old, but you'd never know he was 11 - everyone that has a conversation with him says they feel like they are talking to an adult, and not because he is a know-it-all, he is just wise beyond his years. Maybe because he has had to grow up too fast with a Mom who has "limitations" and who is in the hospital a lot.

I, too, love to do beading, I would love to see some of your work too TMJ & Uniquelyme. I have not done anything in a while, but I really want to get back into it. I have about 200 bracelets made which I was going to and put on EBAY or something and I've given at least that many away to family, friends, and anyone who liked what they saw.

I was a legal secretary, and then an adult education teacher at a Vo-tech school and in our local county jail for 12 1/2 years and was on my dinner break with another teacher when we got hit by a guy that ran a stop sign and he drove us right into on-coming traffic and I got hit in my door (I was the passenger) by a 2nd car doing 45 mph. I struggled to work another 4 years after the accident because I, too, loved my job more than I could put into words. I always told people that I could see myself doing that job for the next 30 years with no problem!

I am also a hockey fan, go NY Islanders!!! (we aren't doing to well either), we used to go to games a couple of times a month, but it's gotten way too expensive. I haven't kept up with them as much since we stopped going to see them in person, but my husband keeps me informed.

All 3 of my boys were big into playing baseball, I think my oldest might have had a career in it, but a girl stole his heart and she didn't support him in it, so he stopped playing and after dating her for 2 years, during her 1st week away at college, she dumped him (I never liked her anyway). It was so interesting to me because they were all good at the same game but in totally different areas - I LOVED watching them play!! My 15 year old got Mono and as a result, chronic fatigue that he is still battling, but he's trying to get back in to it, and my 11 year old lost interest for the time being, but I have hopes that he'll rediscover it some day.

It's nice to have gotten to know you all a little better and welcome TMJ, I hope I didn't ramble on too much.


Veteran Member

Date Joined Jan 2005
Total Posts : 9090
   Posted 4/10/2009 2:52 PM (GMT -6)   
Oh ya...the playoffs start on Sat...Rooting for the Penguins and the Canucks!! Too bad the Av's didn't get that far. Oh well...still have lots to cheer on. Hubby was born in Pittsburgh so the Penguins are a natural. And the Canucks are the closest NHL team so gotta cheer them on too! As many teams that are in the leagues now it extends the hockey season to July!

Co-Moderator Fibromyalgia & Chronic Pain Forums
Fibromyalgia, Ulcerative Colitis, Insulin dependent diabetic, PTSD, dermatitis herpetiformus, osteoarthritis and a few other side dishes.
Happiness is something to do, someone to love, and something to hope for."

Veteran Member

Date Joined Oct 2008
Total Posts : 2022
   Posted 4/10/2009 3:27 PM (GMT -6)   

Oh it's so much fun reading about everyone and really getting to know you. We often get caught up in talking about our pain and forget about the great person that is underneath that pain. We may think that we are worthless and what can we do with all the pain that we carry. But when we start thinking about it and saying it we may realize that there is a great person under that pain who still has interests, hobbies and dreams!!

Hope to hear from more of you!!


Pamela Neckpain
Veteran Member

Date Joined May 2008
Total Posts : 1821
   Posted 4/10/2009 3:43 PM (GMT -6)   
Hi Suzane,

I've had Chronic Pain for Seven years. Since that time, my life has changed
100 %. Nothing is the same but love for my husband. That has grown.
Unfortunately, I don't think both my children understand what it is. How
could they?

I have had so much help on this forum. Laughs too. There's nothing like
just bopping along at 3AM and running into a funny post. Kinda shakes
me out of some of the pitying that has been keeping me awake.

I believe that each of us has a responsibility to get our message out to others-
a letter to the editor, a congressman/woman, the president!, the mayor.
I keep saying it, but I don't work very hard to accomplish my goals. Right
now I'm working on a short article for My Turn in Newsweek. It should
be easy. (ain't!)

These are the "real people" I speak of, Chutz. The people, the publications
that might really take action to make life better for us now ... or for the
future people who carry pain on a daily, hourly basis.

Breast Cancer with it's pink ribbons and all the publicity has really come
along way. I suppose it's a more serious issue because people die. But...
people die of CP because of the stress (and other darker reasons) Ok ...
Off to do Paragraph 3. I'm trying to do a paragraph a day. I think it's
800 words like a newspaper column.


"The time to hesitate is through. No longer time to wallow in the mire."
Jim Morrison yeah

Veteran Member

Date Joined Oct 2008
Total Posts : 2022
   Posted 4/10/2009 4:02 PM (GMT -6)   

Hi Pamela

You forgot to tell us all about yourself.

Congrats on doing that article!!!! Good for you!!! We need to get our word out there!!! Chronic Pain is important and it can define us in our daily struggles.

I've written to Oprah to see if she can help.



Veteran Member

Date Joined Mar 2009
Total Posts : 1158
   Posted 4/10/2009 4:38 PM (GMT -6)   

My name is Laurie I grew up in Washington state, now I live in Smyrna Tn right outside of Nashville.

I have three wonderful children 15, 16 and 20. I'm only 39 and getting younger by the day. I have the most supportive and loving soulmate of 18 yrs. He is my life line. Since I was 18 I've had kidney issues which progressed to the point I'm at now. I love my job, I'm in inventory. When you go to Wal-mart and buy a movie I'm the one who counts and keeps all the 1000 and 1000's of numbers straight. I count, take for example single DVD, the paper slipsheets that slip into the plastic case also those annoying inserts that ask you to mail back. Can you believe I failed Math all the way through school and now thats all I do is count.

I love to quilt and crochet!!! Plus I read ALOT!!!

Today I got lucky and was able to come home because of all the tornados that set down here in middle tennessee. I pray for all the people a few miles away.

anyways I love this forum the people are so wonderful I don't believe I could ever find another group of people that are so loving and understanding.

Well thats alittle about me whos next?
Chronic Kidney Stones, PKD (Polycystic Kidney Disease), Chronic Kidney Failure, Severe Hypertension, Urological RSD

Forum Moderator

Date Joined Jun 2008
Total Posts : 1469
   Posted 4/10/2009 6:04 PM (GMT -6)   
Hey everyone! This is a great post. I am usually in the lupus forum but I always come and read all your posts! It is great getting to know everyone better. I will probably start posting here too! :-)! My name is Amy and I am 21 and live right outside of Charlotte NC. I am not married and have a german shepard! Right now I work full time at AAA Carolinas as an accountant and in the process of looking into becoming a R.N! I would like to be able to start this fall if my health allows me to. An interesting fact about me is over Christmas break when I was in 2nd grade I was adopted and changed my name. I used to be Chelsea Elise and now I am Amy Elise. How many people do you know that can say they named themselves? When health allows, I love to play basketball. I played middle and high school and had hopes of playing in college but my body had different plans for me.
I will say, I also am around in the wee hours of the morning and it is great reading some of yalls posts. Some of them can be so funny! Thanks for the laughs :-)



21 years old...Systemic Lupus 11/07, lupus nephritis 01/09, raynoids 03/08, Carpal Tunnel 03/08

Ultram, Prednisone, Cell-Cept, Lisinopril, Imuran, Ambien, Flexeril, Darvocet, Ferrious Sulfade, Calcium, Vitamin B12, Chantex, Aspirin 81 mg, Vitamin C

Veteran Member

Date Joined Jun 2005
Total Posts : 610
   Posted 4/10/2009 6:25 PM (GMT -6)   
Hello, I am a 26 year old single mother of a 9 year old boy with adhd and a 7 year old girl with severe asthma and allergies. I have never been married, and I love being single for the time being. I'm on disability for chronic pancreatitas, migraines, and depression, and back pain from 2 really bad car accidents. I have been on pain medication since I was 19 years old and this last summer I decided I couldnt take how bad my tolerence was so I decided to come off of all pain medications so I can reasses my pain, and tapering never worked, so I decided to try suboxone and found out that it works wonderfully for my pain. So please dont think because I take Suboxone I must be an addict, cause I'm not, I never abused my medication, but I just couldnt stand that I was having more and more pain as my medication went up and up. I also have Fibro due to the fact that when I was 14 I got gallstones and nobody beleived me for a year, and the pain was so terrible, that I dont have a tolerence for pain at all. lso after I had my gallbladder removed at 15, I had my son at 16 with no drugs, so that was terrible on my body and made my fibro worse and thats when I started feeling back pain. I love playing computer games from BigFish websight, and I love doing hair, especailly putting in extensions, I do my own almost everyday, and sometimes I do other peoples. I also love painting and doing designs on finger nails, it's fun drawing small things and coming up with diffrent paterns. I am planning on going to college this fall to get my nursing license. I wanna work either in the ER or Labor and delivery, but also I would love to work in an inpatient rehab, so hope to get a chance to do all that stuff, it seems so exciting to me. But right now I spend all my time just taking care of my children and trying to get my health back up to a point where I can go out in the world and survive. Thats about it in a short story, but I love to get to know all of you guys more.

26 year old Female , single mother of 2 kids, on SSI for migraines, pain, pancreas issues
All the things broken with me: Migraines, Fibromyalgia, Chronic lower back pain that causes severe pain/numbness/tingling especially to my left leg,Arthiritis in my back, Genetic Pancreatic Divisum that causes chronic pancreatitas, Asthma, Depression w/Anxiety/panic attacks, Bipolar
Prescription Meds:Suboxone 24mgs daily, Cymbalta 60mg nightly, Lyrica 50mgs nightly, Imitrex as needed, Ibprofen 800 twice daily, Zanaflex as needed, Ventolin as needed for asthma attacks, Advair twice daily
Over the counter meds: Benadryl nightly for itching due to meds (not sure which one yet), and Biofreeze  
Surgeries: Gallbladder removed at 15 years old, 2 ERCPs, stent put in pancreas, countless upper GI scopes, marsupilized bartholin gland cyst
"Never go to a doctor's office whose plants has died."

New Member

Date Joined Apr 2009
Total Posts : 6
   Posted 4/10/2009 8:42 PM (GMT -6)   
Hi my name is Renee I have Depression, hypothyroidism, Fibromyalgia and chronic fatigue look forward to reading and posting ,any tips or new findings are always good to hear .

Veteran Member

Date Joined Aug 2006
Total Posts : 9607
   Posted 4/11/2009 3:57 AM (GMT -6)   
Hello! I'm called Chartreux here because I love cats and Chartreux is a cat breed. I'll be 44 later this year, been
married to a good man for the last 24 years this July and we have one beautiful daughter and only one as she
had open heart surgery at just ten days of life and I collapsed at the hospital with an infection and we we're
both in icu at the same time..However she's 18 yrs old now and doing good and accepted at two Colleges she
want's Northwestern in Chicago, but we'd need a good scholarship for them, and University of Northern Texas is
at least in the same state we live in now...Yep we live in Texas, but I grew up in Michigan, so I know the cold and snow
and yep we have two cats both of which will be one this year, they have claws and yet I bathe them every other month
as Texas the fleas don't die, would be nice if they did. Only major compliant about Texas is the fleas and
stupid fire ants and that if summer could end one month sooner, but we do have nice winters...
Y'All take care.......
I do like to needlework such as counted cross-stitch and needlepoint would love to paint just can't afford the oils...
* Asthma, Allergies, Osteoarthritis, Spinal Stenosis, Degenative Disc, Fibromyalgia, Gerd,
Enlarged Pituitary Gland, Sjogren's and Ocular Migraines


Regular Member

Date Joined Mar 2009
Total Posts : 25
   Posted 4/11/2009 2:08 PM (GMT -6)   
Hello all! My name is Sarah and I live in Oregon. I have been married for almost 4 years. We have one beautiful 2 year old daughter named Harlee. We lost our first baby to miscarriage in 2005. The due date for that baby was Jan 9, 2006 and I had my daughter January 9, 2007. Isn’t that crazy?! I have a puggle pup named Molli, she is a very hyper crazy dog. I also have a horse. I love animals. I am a full time student right now going to school for Psychology at the moment. I am thinking about becoming a Speech Pathologist. I love kids and I would like to have two more. I wish I wasn’t in so much pain so I could enjoy life more and do more with my daughter.

I am 24 years old and I have had pain for years. The pain has now gotten worse. It comes and goes but I am in pain most of the time. Right now I am in so much pain it brings tears to my eyes. Most of my pain is in my shoulders, neck and through out my back. Sometimes I also have pain in knees, wrists, hands, hips, legs and ankles. I get tingling sensations in my arms and hands, which drives me nuts. I had some blood tests done for different things (Lupus and thyroid) and everything they tested for came back normal. I think I may have fibromyalgia. I do not sleep great and I NEVER have energy. I cannot afford to go to the doctor right now so I just have to put up with the pain. My dad has fibro and he was just diagnosed with ankylosing spondylitis. I must get my problems from him. Poor guy, the other day he was so bad he could barely even walk.

Going though Chronic Pain

I love my life as a
mommy and a wife!

Veteran Member

Date Joined Apr 2009
Total Posts : 536
   Posted 4/11/2009 2:46 PM (GMT -6)   
I think this is a great idea to tell a little about ourselves. It is hard to keep up with everyone,maybe this will help us.

I am 39. I have been married for 5 years(1st husband passed away after 10 years of marriage from a brain anureysm). I have a son, Connor, age 11 and a daughter,Kendalyn,age 4. My husband also has 13 year old twins, a girl and a boy. The twins are here most weekends, so it's quite a busy house.

I work as a nurse in a busy pediatric office. I love my job. It truly is a great place to work. The doctors are all super and I have some great co-workers, with a few exceptions.

I enjoy reading,although I haven't been much lately. I enjoy spending time with my children. I just wish I could take a more active part of their lives. We talk plenty. I just can't run around playing with them like I want to due to the pain.

I am having an laminectomy in 11 days-April 22nd. I have herniated discs L4L5S1. I have been working fulltime. I don't take any meds at work. I wait until I get home, and by then I am in agony. I am trying to be hopeful that the surgery will be a sucess.

I have enjoyed this forum so much. It has helped me just knowing that people do care.
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