Non - stop Pain...and tears

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Miss. Suzie
New Member


Date Joined Apr 2009
Total Posts : 7
   Posted 4/10/2009 5:41 PM (GMT -7)   
I just completed a long post and lost it and cannot retrieve it because I am a computer novice.

I'll make this shorter as my pain is getting worse anyway. My meds are not giving me relief. I'm off oxycontin and taking a small

dosage of dilaudid - 4 mg. tablets once a day. It isn"t adequate and my pain is severe. I took three tablets - 12 mg. a few hours ago
and now I'm thinking of going to the E.R. I'm also on suboxone and klonipin. My pain is across my lower back, under my shoulder
blade, my hip and leg are throbbing and I have shooting pain in those areas.

Any opinions? Any advice? I would appreciate any feedback. I said in my "lost" post that I've been reading almost every post and
thread and it truly does feel like a family with all of you and that makes me feel so warm and HAPPY HAPPY! And I havn't felt happy
in a long time. Palady, I want to thank you for your reply. You are so compassionate. And I've read about all the difficulty you've
been going through - it was so kind of you to write to me. And I do feel for you.

Blue Beard, thanks for your compassionate reply. And yes. I'll be with you in misery loves company or however you phrased
that idea. And I'll join the pain boat that Palady talked about so we can cry together instead of alone.

I appreciate everyone who responded to me. I'm new and only posted twice. That was on the day I joined, a few days ago.

Hope to hear from you.

Miss Suzie

mrsm123
Veteran Member


Date Joined Dec 2007
Total Posts : 1228
   Posted 4/10/2009 7:16 PM (GMT -7)   
Miss Suzie,
First, you are not going to get pain relief with the suboxone. It blocks the receptors for opiates as well as blocks any opiate medications effects if you take it along with the suboxone for up to 72 hours in some people, even longer.
You are in danger however of overdosing. 12 mg of dilaudid is a lot of dilaudid, especially when your body is not used to it.
You probably need to go the ER. From Drugs and treatments.com
What happens if I overdose on Dilaudid (Hydr Omorphone)?
Hydromorphone (Oral)
Seek emergency medical attention if you think you have used too much of this medicine. An overdose of hydromorphone can be fatal.

Overdose symptoms may include extreme drowsiness, pinpoint pupils, confusion, cold and clammy skin, weak pulse, shallow breathing, fainting, or breathing that stops.
PLIF/TLIF Fusion w/Instrumentation L4-5 Spondololysthesis L4-5.Laminectomies L4-5, foraminal stenosis L3-4, L4-5, L5-S1, herniations L3-4, L4-5, L5-S1, central canal stenosis L3-4, L4-5 and L5-S1
POST OP CES 3/30-06
Neurogenic Bladder and Bowel, bilateral numbness legs and feet
Revision for failed Back surgery, pseudoarthrosis L4-5, hemilaminectomies L3-4, L4-5, L5-S1, bmp added to revision fusion, replaced two bent screws that were reversing out of vertebrae - August 2, 2007
On going back pain and neuropathic pain, failed back surgery, consult for scs, decided not to do that at this point.
Adhesive Arachnoiditis also......just what I didn't need..9/08- adding bilateral ulnar neuropathy with severe compression to the mix. They want me to see a surgeon for ulnar nerve surgery, but I'm not biting.
I've seen enough surgeons over the last few years.


Tony McGuire
Regular Member


Date Joined Feb 2009
Total Posts : 483
   Posted 4/10/2009 7:39 PM (GMT -7)   
Blue Beard was a pirate. Do we have one here, too? :-)

I feel for you, and your pain.

It sounds like you need to get to the ER, and with the long pause in posting I hope that is where you are.
Wife: Liz, the choice of a lifetime
Dogs: Koshka & Chomp


Pamela Neckpain
Veteran Member


Date Joined May 2008
Total Posts : 1821
   Posted 4/10/2009 7:58 PM (GMT -7)   
I echo mrsm123 and Tony,

I hope you went to ER and will report back and tell us how things went.

How long have you been off Oxycontin? I took myself off way too fast
and got very sick. This was about three years ago. Could this have
happened to you?

I am not suggesting that you take any more medication before you've
spoken to a doctor. Not at all!

Pamela
MEDICAL CONDITIONS

Osteoarthritis all levels of spine right down to Coccyx,Spondilytis,Myofascial Pain
Fibromyalgia,Bulging Discs,Spinal Stenosis,Scoliosis,Osteopenia,Chronic Constipation
Carpel Tunel Syndrome, Attention Deficit Disorder,
Depression & Anxiety

Methadone for Pain, Xanax for Anxiety, and more, of course.


anice
Veteran Member


Date Joined Apr 2009
Total Posts : 536
   Posted 4/10/2009 8:47 PM (GMT -7)   
Miss Suzie,
I am late reading your post. I too am not the greatest at this computer thing. And I lose stuff pretty often myself. But the more we do it the better we'll become. It is aggravating.

I hope that you went to the ER. It is dangerous to take more meds than you need to. The risk of overdosing. Do you have a pain management doctor? If your current meds aren't helping to control your pain, they may need to be adjusted. I am sorry that you are having a hard time.

Please post again and let us all know how you are doing. I too, am concerned about you.
Anice

White Beard
Forum Moderator


Date Joined Feb 2009
Total Posts : 3611
   Posted 4/10/2009 10:34 PM (GMT -7)   
Miss Suzie
This is White Beard, but your post is turning my Beard Blue, I am sorry for all the pain you are having, I went back an reread your original post, why did you tell your pain Doctor you wanted off the Oxycontin? When you were on it was it working for you?
 
 I would suggest like all the others have that you go to the ER for your pain, it is way to dangerous to try and take care of the pain your self! You also need to see your Pain Doctor as soon as you can, because obviously the set up he has you on now, is not working for you, and you should not be in so much pain.! Please! Please! do not try and take care of your pain by yourself, go to the ER let them handle it. They have the knowledge and expertise to take care of you!
 
Yes Miss Suzie misery does love company, and when your in misery  I am here as company for you, but when I am in misery I want to know that you are also going to be around for me! and if you try taking care of your pain yourself I am afraind you just might not be there for me! So Please go to the ER if you need to!

I wish you all the Best
White Beard turning Blue!


  I'm Retired USAF, went back to school and became an RN, and now am on full disalbility!--Degenerative Disc (affecting mostly the thorasic disc but all levels involved), C6/7 laminectomy/diskectomy& fusion, Osteoarthritis, Ulcerative colitis, Chronic Pain, Fibromyalgia, Complex Sleep Apnea, and host of other things to spice up my life!(NOT!) Medications: Oxycontin, Percocet, Baclofen, Sulfasalazine, Metoprolol, Folic Acid, Supplemental O2 at 3lpm with VPAP Adapt SV

Post Edited (White Beard) : 4/10/2009 11:37:45 PM (GMT-6)


Pamela Neckpain
Veteran Member


Date Joined May 2008
Total Posts : 1821
   Posted 4/10/2009 10:42 PM (GMT -7)   
"Yes Miss Suzie misery does love company
and I am here as company for you, but ...
when I am in misery I want to know
that your are also going to be around for me!
and if you try taking care of your pain yourself
I am afraid you just might not be there for me!"

White Beard

LLPLUV
Veteran Member


Date Joined Mar 2009
Total Posts : 1158
   Posted 4/10/2009 10:44 PM (GMT -7)   
Miss Suzie

I can feel for you, most of us can. The pain does get to us physically as well as emotionally. I'm up tonight feeling the pain wanting to just go to sleep.

My advice is don't take so much pain medication if it doesn't work with your regular dose it time to go to a doctor. Take my word for it right not this minute I would love to open my bottle and take another pill. But I choose not to and try and bare it.

Taking to much of the medication you stated is dangerous.

Best wishes and please continue to post with us...

Laurie
Chronic Kidney Stones, PKD (Polycystic Kidney Disease), Chronic Kidney Failure, Severe Hypertension, Urological RSD


PAlady
Veteran Member


Date Joined Nov 2007
Total Posts : 6795
   Posted 4/10/2009 11:31 PM (GMT -7)   
Hi, Miss Suzie,
I wasn't on earlier this evening so am just now reading through the posts. I hope you did as mrsm123 & White Beard have suggested. My brain's too foggy now to give decent advice, but I know they both know their stuff about meds. I can't recall your original post (please don't take that personally - my memory about what I ate for dinner is lousy!) but as White Beard indicated I thought I recalled you were trying to get off some pain meds. Maybe this is telling you it's not the right move to do. For now, please don't take more of your meds. than prescribed and go to the E.R. if that doesn't work. And call your PM to get in as soon as possible.

It's lousy to have pain any time, but especially over a holiday weekend. Sometimes it seems to go that way, and then it's tough to get our doctors on the phone. But your doctor may have someone on call that you can reach by using the emergency number.

I think I'm talking in circles, so rely on the posts from the others for direction, ok? But know I'm thinking of you, and please let us know how it works out.

((((((Suzie)))))))))

PaLady

uniquelyme
Veteran Member


Date Joined Nov 2008
Total Posts : 1037
   Posted 4/11/2009 4:08 PM (GMT -7)   
Miss Suzie, I didn't think that taking pain medication with Suboxone worked... I know that it blocks the pain receptors so that yu don't "feel" the pain meds so why is your Dr. giving you both? I just can't figure out (and I have posted this before) why Dr.'s write Suboxone for CP Patients...it does Nothing for pain!!! I guess I'll have to make a big sign and stand in front of every PM office and chant "Suboxone doesn't help" "Give me something that Does"!!!! or "I am not an addict, just say NO to Suboxone"!!

What do you all think?

Me.
 
We are all in the same boat...unfortunatley it seems like it's sinking...
Post Lamenectomy Syndrome
Hemi Lamenectomy/Spinal Fusion(Lumbar)
120 mg. Methadone daily /15 mg. Oxycodone as needed
High Blood Pressure: Lisinopril HCTZ 10 mg. daily
Type 2Diabetes: (March 16, 2009)
Metformin 850 mg. twice daily (so far)
ME. (Rhonda)                                                                    

 


mrsm123
Veteran Member


Date Joined Dec 2007
Total Posts : 1228
   Posted 4/12/2009 2:04 PM (GMT -7)   
Uniqelyme,,
It's my understanding that suboxone only works for some pain in minute doses 1 or 2 mg tops. The doses that are used to get addicts off their drug of choice are too high for pain management. But that is only my understanding after doing my own research into suboxone and talking to others who have been on it.

Sandi


PLIF/TLIF Fusion w/Instrumentation L4-5 Spondololysthesis L4-5.Laminectomies L4-5, foraminal stenosis L3-4, L4-5, L5-S1, herniations L3-4, L4-5, L5-S1, central canal stenosis L3-4, L4-5 and L5-S1
POST OP CES 3/30-06
Neurogenic Bladder and Bowel, bilateral numbness legs and feet
Revision for failed Back surgery, pseudoarthrosis L4-5, hemilaminectomies L3-4, L4-5, L5-S1, bmp added to revision fusion, replaced two bent screws that were reversing out of vertebrae - August 2, 2007
On going back pain and neuropathic pain, failed back surgery, consult for scs, decided not to do that at this point.
Adhesive Arachnoiditis also......just what I didn't need..9/08- adding bilateral ulnar neuropathy with severe compression to the mix. They want me to see a surgeon for ulnar nerve surgery, but I'm not biting.
I've seen enough surgeons over the last few years.

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