My Dr. mentioned the stimulator to me today... He just switched me from taking 120 mg. Methadone a day to 60 mg. MS Contin 2X day... I've been taking Methadone for many years and I guess it just stopped working for me. So, he said if this new medicine didn't work well he doesn't want me to worry...He won't give up on me, he will find a combo that will work..If not, we can always try the Stimulator... That kinda freaked me out!! I thought he'd say a "Pain Pump" not a stimulator...
How do you like yours? Does it work pretty well? You do still take pain meds don't you? Sorry about all of the ???, but I know that knowing about it is better than "NOT" knowing about it.
We are all in the same boat...unfortunatley it seems like it's sinking...
Post Lamenectomy Syndrome
Hemi Lamenectomy/Spinal Fusion(Lumbar)
120 mg. Methadone daily /15 mg. Oxycodone as needed
High Blood Pressure: Lisinopril HCTZ 10 mg. daily
Type 2Diabetes: (March 16, 2009)
Metformin 850 mg. twice daily (so far)
Check your email girl, and get back to me..
The spinal headache was bad, but for me, the pain pump was totally worth the temporary headache, plus not everyone gets one. Whether or not you get a Spinal headache has something to do with the size of the needle they use to insert the catheter, and if you lay flat (no pillow) for several hours after the procedure, they say you decrease your chance of getting one tremendously. I did not know ahead of time that the procedure could cause one, or I would have told my PM that I was prone to them, and we would have opted to place the catheter in the hospital with me lying down and I would have remained flat to decrease my risks, but because I didn't know, I had the procedure done in his office and then walked accross the street to the hospital to get admitted. By the time I got through the admission process, I already had the headache.
Even with the experience of the spinal headache, if I had to do it over again, there is no question that I would. If it were me, I would not give up on the probability of getting some decent pain relief from the pump on the chance that you may get a temporary headache.
I do understand your reasoning that you are in so much pain now, that you are afraid that if you do get the headache, that it may put you over the edge, but what got me through it was knowing that it was temporary - I knew that it would go away, and I hung on to that. It wasn't easy, I'm not going to lie or sugar coat it, but in the end, for me, it was worth it.
After some lengthy posts back and forth with Susie (Straydog), I believe that I my doctor is not using my pump to it's full advantage, and that I could and should be getting more relief from it than I am, and that is something I am going to have to research and discuss with him, or maybe find a new PM, but even with that in mind, without the relief I do get from the pump and the Spinal Cord Stimulator I do not see how I could have gone on in the state I was in previous to them being implanted.
Obviously, this is a decision only you can make, and I don't mean to push you one way or another, you have to do what is best for you. I just wanted you to know what my experience has been, and I hope that it clarifies things for you rather than makes your decision more difficult. If you have any more questions or concerns, feel free to ask, and please let me know what you decide.
Happy housewarming! I wish you many happy years filled with wonderful memories! A new grandbaby too? How wonderful.
I am sorry that you are having problems with your stomach. I have a condition called gastroparesis which was a result of my narcotic pain meds. Basically, my stomach would shut down and when I ate, the food would sit in my stomach for hours or even days and would rot and then I would start vommiting uncontrollably. No amount of anti-nausea meds would do a thing, even the ones that they give chemo patients.
I was in the hospital more than I was home for 11 months and every time I did go home I had a different diagnosis. I had my gallbladder moved and it turned out it was not the cause of my problem, I underwent every test anyone could think of, some of them I had done multiple times. I saw many different doctors and each one had there own opinions, and none of them were right. In the end, a friend recommended a new GI doctor who had just joined a practice in our town, so I called her and asked her to give me her opinion. She was pretty sure after listening to my story that she knew what it was and ordered a simple test called a stomach emptying scan. I had to eat a bowl of oatmeal that had a radioactive material in it, and they took x-rays of my stomach every 15 minutes for several hours, and as soon as it was done I had an answer.
There was only 2 medications used to help with this condition, and I was allergic to one of them and the other one didn't do much of anything for me, but this doctor did extensive research and found that the same company that made the Spinal Cord Stimulator (which I have), used the same device implanted in the stomach to stimulate the stomach to open and close and function. I quickly found a doctor who dedicated his life to this disorder, and did this type of surgery, and even though he had never had a patient that had this condition because of narcotic medications (it is usually a disorder that affects diabetics), and his colleagues were against it, he agreed to do the surgery, and I got instant relief of 95% of my symptoms.
It has been 5 1/2 years since that surgery, and I am due to have the internal battery changed, but the doctor I had left the country to practice medicine in Africa where there is a great need that he wanted to fullfill. So I am presently looking for a new doctor that does this type of surgery and so far the nearest one I can find is 5 hours away one way.
I hope that eventually you will be able to do the pain pump trial, and that you will get tremendous relief from it. If I can be of any further help, feel free to ask.