Methadone...again

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uniquelyme
Veteran Member


Date Joined Nov 2008
Total Posts : 1037
   Posted 4/11/2009 10:47 PM (GMT -7)   

 

I have been taking Methadone for several years.  It used to work pretty well, but now? Not so much... I want to switch pain meds, but I don't know what I could change to.  What other meds will work as well as the Methadone used to?  I know that there is a lot of knowledge in this group, that is why I am asking... also, will I go through withdrawls during a crossover?

I take 120 mg. of methadone daily and 15 mg. Oxycodone 4 x daily for the BT pain.

Me.


 
We are all in the same boat...unfortunatley it seems like it's sinking...
Post Lamenectomy Syndrome
Hemi Lamenectomy/Spinal Fusion(Lumbar)
120 mg. Methadone daily /15 mg. Oxycodone as needed
High Blood Pressure: Lisinopril HCTZ 10 mg. daily
Type 2Diabetes: (March 16, 2009)
Metformin 850 mg. twice daily (so far)
ME. (Rhonda)                                                                    

 

Post Edited (uniquelyme) : 4/11/2009 11:51:24 PM (GMT-6)


Pamela Neckpain
Veteran Member


Date Joined May 2008
Total Posts : 1821
   Posted 4/11/2009 11:51 PM (GMT -7)   
Hi Rhonda,

I haven't come to answer your question.

I am here to tell you I have EXACTLY the same question.

Mine is even a bit more far reaching. I'm thinking about getting the pain
pump. Methadone doesn't act like any other opiod. How will it be with
the pump. Will I go through withdrawels?

You know how people always say, "Talk to your doctor." My doctor doesn't
talk. What about yours? I take it the answer is no.

I wish us luck in our search. You can e-mail with tedious stuff on the
subject if you like.

Pamela
MEDICAL CONDITIONS

Osteoarthritis all levels of spine right down to Coccyx,Spondilytis,Myofascial Pain
Fibromyalgia,Bulging Discs,Spinal Stenosis,Scoliosis,Osteopenia,Chronic Constipation
Carpel Tunel Syndrome, Attention Deficit Disorder,
Depression & Anxiety

Methadone for Pain, Xanax for Anxiety, and more, of course.


skeye
Veteran Member


Date Joined Mar 2008
Total Posts : 2976
   Posted 4/12/2009 1:15 AM (GMT -7)   
Hi Rhonda,

Unfortunately, I can't really give you any advise on the subject. Everyone'e biochemistry is so different that there is really no way to predict how one person will react to a given med over another med, or why one person will react differently to the same med than another person. Take me for example, I've been on oxycontin, oxycodone, and dilaudid. None of them have helped me. The only thing that we have discovered is that I have an abnormally high tolerance to pain medication. I'm about to taper off of my dilaudid because it isn't helping, and it may actually be causing some concerning side effects. Most people would not be functional, to say the least, if they were to take the amount of medication that I take, and I hardly feel any effects from it, negative or otherwise. My doctor actually doesn't think that we are ever going to find an oral pain medication that works with my body chemistry. I just recently asked him about the possibility of switching to another medication. He said that with anyone else, another medication would almost certainly be more effective, but with me, he doubts it. We're now looking into all sorts of other options (all of which are somewhat drastic & really terrify me, but realistically, may be quite necessary), like ketamine infusions. So, all that I can tell you, is that your question is a lot more complicated than it might seem, and that you should really talk to your doctor. I would, however, be careful not to ask for a specific medication, as this is often viewed as drug seeking behavior, even if you truly have been researching something which you think might be best for you. Good luck!

Skeye

Tony McGuire
Regular Member


Date Joined Feb 2009
Total Posts : 483
   Posted 4/12/2009 5:04 AM (GMT -7)   
Rhonda,

I think that Pamela's point is very valid - methadone is the black sheep of opioids.

I have a VERY high tolerance to opioids, as with Skeye.

However, while my pain doctor was putting me at or near the maximum dosages for most of the stuff he tried, I started at 10mg x3/Day with Methadone. He tried to explain it to me, but my brain was so befuddled at the time that I haven't even the tiniest understanding of what he said. I can always ask again though, and my curiosity is peaked. Now I just have to remember it between now and next appointment. Recently he moved me to 20/10/20 for a total of 50mg /day. And that change wasn't at my request for pain breakthrough or anything; I don't know why he made the change.

Why the low dose of Methadone? No idea; but I also think Methadone is somehow different.

Pamela, Rhonda, All

"My doctor doesn't talk." Whoaaaa! Then change your doctor, not your medication.

I TRUST my pain doctor and his plan for my treatment. If I thought I was running the show and knew more than, or even as much as, my doctor I'd be changing real quicklike. I have to agree with that plan, but he comes up with it, explains it and asks for my input. I'm beginning to believe I have really lucked out with my doctors.
I also TRUST my Podiatrist and Gastroenterologist as well. I've changed from a different GE who I never met but whose office staff I couldn't tolerate and I've change a PCP because of how he acted.

Is part of the problem that the doctors aren't as UP on the medications as they should be?

I know I'll not change medications without the suggestion coming from the doctor unless I'm totally convinced that I should be changing doctors, first. And be on my way towards remedying that.

(Edit: added sentences on methadone being 'different'])
Wife: Liz, the choice of a lifetime
Dogs: Koshka & Chomp

Post Edited (TonyMcGuire) : 4/12/2009 10:19:54 AM (GMT-6)


uniquelyme
Veteran Member


Date Joined Nov 2008
Total Posts : 1037
   Posted 4/12/2009 1:02 PM (GMT -7)   
I wish that 50 mg. daily of methadone would help me...I currently take 120 mg. a day and it's not helping anymore...I am lost. I wish that there was something....anything that I could take and totally get rid of all of my pain...but I know that's not ever going to happen. So, I take the pills he gives me and hope that one magic day they will actually work...Wishful thinking? I know, but what else have I got?
Pamela, I am thinking about the pain pump as well. I know you have to jump through tremendous hoops to get it, but what else do I have to do during the day? Not much. So? Would it be worht it? I'm not sure... The psych eval scares the bejeesies out of me, I mean, OMG!!! A Dr. would have a field day with me..I won't go into any details...
What can we do? Pamela, we are about on the same page with this mess...darned if we do and darned if we don't

Me.
 
We are all in the same boat...unfortunatley it seems like it's sinking...
Post Lamenectomy Syndrome
Hemi Lamenectomy/Spinal Fusion(Lumbar)
120 mg. Methadone daily /15 mg. Oxycodone as needed
High Blood Pressure: Lisinopril HCTZ 10 mg. daily
Type 2Diabetes: (March 16, 2009)
Metformin 850 mg. twice daily (so far)
ME. (Rhonda)                                                                    

 


Tony McGuire
Regular Member


Date Joined Feb 2009
Total Posts : 483
   Posted 4/12/2009 1:24 PM (GMT -7)   
I'll check with my doctor again, but I think he said something about a lower dose in conjunction with a fairly low dose of morphine having a different kind of effect. (30mg x 3/day)

THAT IS ME TALKING, NOT MY DOCTOR.

Please let me confirm it my next trip there before you attribute it to him.

Anyway, I know I'm on a low dose of methadone. And that is why I said something. My PM said I am highly tolerant to opioids, that's why the low dosage of methadone.

Anyway, as always and regardless, may you find the shortest path possible to a pain-free life.
Wife: Liz, the choice of a lifetime
Dogs: Koshka & Chomp


Tony McGuire
Regular Member


Date Joined Feb 2009
Total Posts : 483
   Posted 4/12/2009 2:08 PM (GMT -7)   
Has your doctor ever talked about Lyrica?

I take it for the pain, as well. But I think it is specifically for neuropathy - not sure.

If Lyrica is an option in your situation, then there is also the potential for Cymbalta to strengthen it. Well, probably Cymbalta - or a cheaper one maybe if insurance/cost is a major concern. My insurance forced me into using Amitriptylin first and failing on it. For me that was one nasty anti-depressant so beware that it has bad side effects for some if you wind up being forced in that direction.

The above above are the route through failures I took to get where I am. With a few other failures before success.

I wish you the best, and hope you don't have to fail on the same things I did before you have success. Although you likely don't care as long as you get to success soon.

Anyway, all the best. Prayers in my signature, below.
Wife: Liz, the choice of a lifetime
Dogs: Koshka & Chomp
Koshka Prayer
Chomp Prayer


Chartreux
Veteran Member


Date Joined Aug 2006
Total Posts : 9622
   Posted 4/12/2009 3:11 PM (GMT -7)   
Wish I knew how to help you, but I agree with the other's in that we are all different and
what works for me might not for you. Best place to start is just to ask your doctor or at
least let him/her know that your current pain meds are not working...
I tried Lyrica which made me throw up, tried celebrex which made me throw up every hour on the hour
for over 12 hours and almost ended up in ER, and Cymbalta can give ya crazy night sweats for
which I could not sleep...MS Coitin made me sleep and sleep and almost ended up in Er again
as I could not wake up from it..currently I take 2 Vicodin HP at night and cyclobenzaprene 10 mg, twice
a day as I need to be able to drive. I also take other meds for different ailments, but I would not wish my problems on anyone
Sure Hope you can find something that'll help..
Lots of soft Hugz.............
**********************************************
* Asthma, Allergies, Osteoarthritis, Spinal Stenosis, Degenative Disc, Fibromyalgia, Gerd,
Enlarged Pituitary Gland, Sjogren's and Ocular Migraines

********>^..^<********>^..^<********>^..^<********


uniquelyme
Veteran Member


Date Joined Nov 2008
Total Posts : 1037
   Posted 4/13/2009 8:16 AM (GMT -7)   
I have tried Lyrica, Neurontin, and Flexeril for spasms...All of the above had side effects that I did not like.. I go to the Dr. this afternoon for an EMG so I guess I'll talk to him then.. I might ask about Oxycontin...I know many people that swear by it...Methadone for me is ending up being a dud... Wish me luck fellow CPer's..

Me.)
 
We are all in the same boat...unfortunatley it seems like it's sinking...
Post Lamenectomy Syndrome
Hemi Lamenectomy/Spinal Fusion(Lumbar)
120 mg. Methadone daily /15 mg. Oxycodone as needed
High Blood Pressure: Lisinopril HCTZ 10 mg. daily
Type 2Diabetes: (March 16, 2009)
Metformin 850 mg. twice daily (so far)
ME. (Rhonda)                                                                    

 


Pamela Neckpain
Veteran Member


Date Joined May 2008
Total Posts : 1821
   Posted 4/13/2009 11:44 AM (GMT -7)   
Tony,

I suspect that Methadone is kinda of a secret thing - A black sheep locked in a
closet.

I have always heard the actions are different with methadone. medics have
explained it different ways. I knows it's difficult to go off of. I have questions
about it.

It's not helping me enough. I'm afraid it won't help with the pump. I'm worried
that my doctor doesn't know.

At the very least, I do like my pain doctor very much:

He laugh
He sing
He don't know
one dam n thing!

I agree with you, Tony. A pain doctor should talk to you. Mine doesn't. A
psychiatrist should talk also ... or listen. Mine doesn't. The psychiatrist prescribes
the 3 xanax a day and 3 celexa a day. I say a couple of sentences and that
is absolutely that. Same with the pain doctor. I can't find a decent primary care
doctor. I'm in a newish town.

I'm kinda just out in the world fumbling, looking for a pathway, and, of course
preparing to change residences.

OMG ... whata whata ...

Rhonda aka Me will let us know how things went.

Good luck Rhonda girl and good luck Tony.

Pamela
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