Welcome TB, I also am new to this forum but not forums in general and I picked this one after lurking for awhile and seeing all the great insight and info generated here not to mention that amount of hugs and compassion here. Sometimes it is all that we need isnt it?
It is a great day to have someone and somewhere to go where you know others have been exactly where you are in this CP life. Understanding all it entails to be a survivor of CP is the most required point I think.
Sorry you have had such a time of it with the pain but hopefully you can take away from here knowledge of others experience that may help you in some way and may actually leave something of yourself that helps someone else along the way.
Thanks Skeye! Yep, I'm one of the lucky few. I've done so much research on my ankle OCD and it is mostly common in the knee. Only 4% get it in the ankle and it is very painful.
Got to the point where I could barely even walk for the first hour every day due to pain and stiffness.
So glad to hear from someone who actually knows of the OCD and can sympathize.
The last ortho, even though he attempted to fix it and couldn't, at least sympathized with the pain. It's at the medial talar dome so difficult place to get to.
The new ortho seemed to sympathize on my first visit and spent over an hour going over my MRI's and CT's with me but threw me for a loop when he said I need to get a pain clinic involved 2 minutes prior to my surgery. I can't say I disagree really as I've been comtemplating it for the last 2 months anyway but I kinda took it that after only 2 months with him my pain has become a burden to him. I would think he if no one else, he would truly understand the chronic pain aspect of this condition. I just don't know, one time seems sympathetic, next time not so much. Maybe they just see too many people.
Just going to be really upset if they refuse to provide me one last script for pain relief tomorrow until I can have more time to get to a pain clinic. How long does it usually take as a new patient to get the first visit? I called one today and left a message but they didn't bother to call me back. And I know I'm in for yet more pain tomorrow trying to walk on it again after 2 weeks. Then what am I supposed to do if they don't provide me anything a) suffer the pain or b) go to an ER? Beats me. Like I said, I haven't been down this road before and have been able to manage it up til now.
Thing that really sucks is I can't do nsaids cause I have GERD. Heartburn every day. I still think it's an ulcer but the gastro just said GERD and take prilosec daily without doing any tests. I really would have preferred an endoscopy to confirm or deny but who am I to argue (just the patient who knows his body better than anyone else, that's who ;) )
Have a good night all!
Went well at first post op follow today. Told her (it was his PA I saw) I was going to see a PM doctor just in case and if they could refill my prescription one last time and no problems there.
Thank god too cause I've just entered a new level of pain with the comfort zone of a splint off now. Feels like walking on a broken ankle right now. Using the boot and crutches so not putting full weight on it yet. Also need to make an appt for a month of PT again.
I really like this doctor too and his PA. They spend the time to go over everything, even gave me the scope photos and surgery report. Lesion is 11 mm x 5 mm deep. They removed a flap of scar tissue and a good size chunk of loose bone that was sitting in the crater.
With the last doctor I was on my own to figure out what to do after surgery and he never informed me of anything. Amazing how they can differ so.
Was always hoping I wouldn't need to see a PM doctor but guess I should just to get in the door for now. I'm still in the unkown zone as to whether this scope will diminish the pain or not and I need to have a plan if it doesn't. Only time will tell now.
There is still hope for me but after being in constant pain for a year now, I can't even imagine those of you that have been in pain much longer and those with pain of unknown cause.
I will forever feel for all of you and pray for you and support you!
Thanks for listening!
Post Edited (tb48) : 4/16/2009 9:01:14 PM (GMT-6)
Welcome to Healing Well. Hate to always see another new face pop on here, so sad so many suffer. I can't fathom your surgery on the ankle, its truly a delicate area as far as I am concerned. I won't bore you by repeating what the others have already said. But, one thing I will mention too, most pain mgt want a dr to refer you to them. I don't think you will have any luck getting in the door without one. If your ortho did not make a referral, then I would call and ask for one. He may very well know several good ones and thats much better than trying to just pick one out of a phone book.
You may not know this but, some pain mgt drs do not give medications. Instead they like to do procedures and different kinds of blocks, all mostly done by injections. So, you don't want to go there to that kind of dr.. Now, other pain drs will do procedures if they feel its necessary, but they also give medications. Not sure if you knew this. Granted no one wants to take medication but sometimes there is just no other option other than suffering.
Since its so soon since this last surgery who knows it may be the one that works and gives you the relief you need. Keep us posted in your quest for a pain mgt dr.....Susie