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uniquelyme
Veteran Member


Date Joined Nov 2008
Total Posts : 1037
   Posted 4/18/2009 7:10 PM (GMT -7)   

 

Do any of us remember what it was like Before we were in pain?  Being able to walk for miles without a break?  Playing with our kids for hours?  Being able to sit through an entire movie without getting up?  It has been soooo long. 

What would you do if you weren't in pain all the time?  I would go on a Cruise to Alaska..go rock climbing, swim with the dolphins... the list is endless...

To Dare to Dream......Tell me yours.

Me.

consider it my birthday present from you all..


 
We are all in the same boat...unfortunatley it seems like it's sinking...
Post Lamenectomy Syndrome
Hemi Lamenectomy/Spinal Fusion(Lumbar)
60 mg. MS Contin 2Xdaily/15 mg. Oxycodone as needed
High Blood Pressure: Lisinopril HCTZ 10 mg. daily
Type 2Diabetes: (March 16, 2009)
Metformin 1000mg. twice daily (so far)
ME. (Rhonda)                                                                    

 


Danimal
Regular Member


Date Joined Mar 2009
Total Posts : 80
   Posted 4/18/2009 8:03 PM (GMT -7)   
Gosh...no, I can't remember what it was like to not be in pain. I was 16...and very carefree!!

Hmm....I would go for a run outside, try downhill skiing, go horseback riding on the beach and work a full time job! I can think of many other things too!!

Danimal

Author of Chronic Stimulation- a blog about being young and living with chronic pain and a neurostimulator

http://www.chronicstimulation.blogspot.com/

Tirzah
Veteran Member


Date Joined Jul 2008
Total Posts : 2281
   Posted 4/18/2009 9:13 PM (GMT -7)   
I'm just starting to be able to do a few things that I used to be able to do, thanks to an RF procedure 8 weeks ago. I walked the 3 blocks roundtrip to the library today! WHOO HOO! Not much compared to the 7 miles a day I used to run, but I have to celebrate small victories, I guess. :)

If I could have everything back, it would be a toss up between going hiking up in Canada around the boundary waters or being able to run the half-marathon race along the lakefront next fall. I think both of those are probably out for good, but I am hoping that maybe I can at least participate in some of the park district dance lessons this summer. We'll have to see.

Great idea, Rhonda! Thanks for the suggestion! :)

White Beard
Forum Moderator


Date Joined Feb 2009
Total Posts : 3610
   Posted 4/18/2009 9:13 PM (GMT -7)   
uniquelyme

I would go back to work on an Ocology unit or work for Hospice, Full time! I would also stand up straight and stretch my arms up to the sky, and stretch out flat on my back on a flat bed and just lay there looking up at the ceiling! And walk up right standing straight without a cain! And kneel on the kneelers in the pews at mass on Sunday! All these things I have mentioned I can not do now, and haven't been able to do for many years, because of the pain it causes me!

White Beard

I also wanted to add I would play Horse Shoes, I love pitching shoes and haven't been able to do that in a very long time!


  I'm Retired USAF, went back to school and became an RN, and now am on full disalbility!--Degenerative Disc (affecting mostly the thorasic disc but all levels involved), C6/7 laminectomy/diskectomy& fusion, Osteoarthritis, Ulcerative colitis, Chronic Pain, Fibromyalgia, Complex Sleep Apnea, and host of other things to spice up my life!(NOT!) Medications: Oxycontin, Percocet, Baclofen, Sulfasalazine, Metoprolol, Folic Acid, Supplemental O2 at 3lpm with VPAP Adapt SV

Post Edited (White Beard) : 4/18/2009 10:19:56 PM (GMT-6)


Ms Kitty
Regular Member


Date Joined Apr 2009
Total Posts : 37
   Posted 4/18/2009 9:26 PM (GMT -7)   
I would still have my Antiquarian Bookstore, walk for just the fun of it, dance, clean house without sitting down every 8 minutes - among other things.
But I would not want to be without pain for just a couple days - I do not think I could go back to having this much pain without losing my mind.
Ms Kitty
Severe diabetic neuropathy, 3 stents, arthritis, R/BK amputee
 
Duragesic pain patches, Vicodin ES, Elevil, insulin and lots of other meds


PAlady
Veteran Member


Date Joined Nov 2007
Total Posts : 6795
   Posted 4/18/2009 10:27 PM (GMT -7)   
I would also look for a full time job that I might love. And I would go for a long walk on my rocky beach without worrying about my knees, SI joint, leg or foot pain.

I'd love to once again have a bounce in my step. Alas....

PaLady

Pamela Neckpain
Veteran Member


Date Joined May 2008
Total Posts : 1821
   Posted 4/18/2009 11:03 PM (GMT -7)   
Let's see ... Oooooh

I'd take my painting seriously and try to sell it.
I'd clean house -- all the little corners.
I'd cook. Not quick things but complicated dishes with LOTS of ingredients.
I'd move back to the ocean and live in a tiny hut.
I'd walk on the beach every morning and every evening.
I'd volunteer to work with little kids who had disabilities.
I'd think about writing a column.
I'd climb in the hills around Montana De Oro.
I'd buy stilletos and just go somewhere and sit a spell.
I'd go to Las Vegas and see the Beatles LOVE
I'd spend two weeks in San Francisco - maybe longer.(I'd walk all over)
I'd get a good camera and shoot all the old valley buildings and ancient churches.
I'd dance and dance and dance.
I'd give my daughter time off and watch her little kids a lot morel.
I'd study interior decorating more and realllllly go to town.
I'd rent a motor home and see if it was fun.
I'd go to Oregon where it's green and rains all the time.
I'd travel to the most boring town in the United States. (I'd walk the streets
and pretend I was in Mayberry. Maybe Mayberry exists?)
I'd live in a different town every year.
I'd dust the base boards.
I'd dance some more.
I'd go to almost every concert.
I plant a flower garden.
I'd plant a vegetable garden.
I'd buy a golden retriever.
Maybe I'd try to write a column again.
I'd take a class in computer graphics.
I'd go out to a good Mexican dinner and have a REAL Marguerita. (None of those
virgin kinds, for me)
I'd go back to Yoga.
I'd entertain and have guests over at least once a week.
I'd always ask people "How are You? And I'd listen.
I'd look even more for the angels in my life. You don't have to look far. You can
find them right here on the forum.
I'd volunteer at the library and read stories to children and do projects with them.
Every morning I'd go out and pick a bouquet. Every room would have flowers.
I'd rent a bus and take all the pain-free people on a cross country trip - all expenses
pay. I'd make sure no one would have to have any pain EVER. We would have no
reason for a forum.We'd all be well.
I'd give money to people if they needed it. I'd just scatter money all over the
place. .
and I'd dance and plant a Lilac bush. ]]]]]]]]]]]]]]]]]]]]]]]]]]]]]]]]]]]]]]]]]]
I'd toss out all my medicine.... and run a complete marathon. : )
I'd make Rhonda a big birthday cake. Everyone would bring her a wonderful
gift. I'd give her a Lilac bush.
Ms Kitty ... Don't worry, we'd NEVER go back to having pain.
What do you want for your birthday, Rhonda? tongue :-)

Pete trips again!
Veteran Member


Date Joined Nov 2006
Total Posts : 1899
   Posted 4/19/2009 7:48 AM (GMT -7)   
Happy Birthday Rhonda!!!!
Wow, I couldn't top Pam's list! One thing I've always wanted to do is ride our horses with my wife! After getting used to riding I'd love to go stay at one of those Dude Ranches out west in the Rockies! Ride the horses way up on the Continental Divide and flyfish tjhe alpine lakes and streams while camping out! That would be heaven to me!
Pete
56 years old, Surgury, Radical Prostatectomy 8/20/03, PSA 6.6, Gleason 3 + 3 = 6, Adenocarcinoma extent (moderate) Stage & Margin:T2NOMX, No Metastases, Organ Confined, bone scan: Neg. 3 1/2 years of depression after surgery prior to Hypogonadizm DX, Testosterone Theropy> new 2/6/09> 400mg injections every 2weeks . 56 and so glad to still be here to see my two sons grow up to be fine young men. They are both serving in the US Navy, one on the aircraft carrier USS John Stennis in port in Thailand and the other on a Gator Freighter USS Bataan stationed in Norfolk, Va. I am one very proud (what they call me)> Big Pops! 


Scarred_for_life
Veteran Member


Date Joined Jul 2008
Total Posts : 1559
   Posted 4/19/2009 8:01 AM (GMT -7)   
Ok here is what I would do without my pain.

I would....climb the Big Horns in search of that elusive bull elk.
I would...volunteer to sit with the residents of a nursing home and keep them company for hours.
I would...sit on the banks of a calm lake and catch lots of fish.
I would...go camping with my hubby and not have to worry about the pain.
I would....paint a gorgeous landscape while sitting in a park.
I would....capture many pictures of animals, people and settings with my digital camera.
I would...go back to work as a Legal Secretary.
I would...dance.
I would...fly to WI to see my son.
I would...drive in my car for hours.
I would...shop till I drop.
I would...go antiquing or to garage sales and get those cool bargains.

There is my mini list. I have tons more I would like to do but gee too much to mention. I love going rock hunting and arrowhead hunting but these things take much walking and I can't do that.

My last time I had no pain and could do things......July, 2000.
What doesn't kill us only makes us fight back harder! :P


uniquelyme
Veteran Member


Date Joined Nov 2008
Total Posts : 1037
   Posted 4/19/2009 10:29 AM (GMT -7)   
Wow! Everybody has such great lists...I'm glad I asked that question...and Pam, I already got y Birthday Wish...I have a bunch of new and great Friends right here...

Thanks everyone...

Me.
 
We are all in the same boat...unfortunatley it seems like it's sinking...
Post Lamenectomy Syndrome
Hemi Lamenectomy/Spinal Fusion(Lumbar)
60 mg. MS Contin 2Xdaily/15 mg. Oxycodone as needed
High Blood Pressure: Lisinopril HCTZ 10 mg. daily
Type 2Diabetes: (March 16, 2009)
Metformin 1000mg. twice daily (so far)
ME. (Rhonda)                                                                    

 


Becoming undone
Veteran Member


Date Joined Jul 2007
Total Posts : 927
   Posted 4/19/2009 12:42 PM (GMT -7)   
RUN smilewinkgrin
Run until my chest burst. Run and feel all my muscles. Run until I was tired. Run and let the problems of the world float away. Run and feel like i'm 2 again. Run into my husbands arms. Run in the forest. Run in the desert. Run in the fields. Run on the beach. Run in my neighborhood. Run and feel free. Run and feel joy. RUN!...
"The earth laughs in flowers"


PAlady
Veteran Member


Date Joined Nov 2007
Total Posts : 6795
   Posted 4/19/2009 12:54 PM (GMT -7)   
First, Rhonda,
HAPPY BIRTHDAY!! I was trying to figure out a way to combine the Beach Boys song and The Beatle's Birthday song but it kinda got all screwed up in my head!! LOL

Second,
Reading all your lists has brought tears and smiles to my eyes. I'm gonna have to re-do my list. But one thing I know I'd add is that I'd do each of these activities with each and every one of you in person!

Hugs and Birthday Wishes!

PaLady

skeye
Veteran Member


Date Joined Mar 2008
Total Posts : 2976
   Posted 4/19/2009 7:08 PM (GMT -7)   
I would read, read, read, just for FUN!
I would actually have a social life at college and not come home every weekend, or sometimes more often for doctor's appointments.
I would be able to drive easily, for as long as I want, wherever I want.
I would get through a whole day without having to take a nap because I am so exhausted from lack of sleep and/or my eyes aren't functioning properly anymore.
I would spend less time sweating the small stuff, and less time worrying.
I would be able to swim competitively again.
I would stop having to worry so much about the future & whether or not I can still have the profession I want.
I would enjoy my family more.

Skeye

Happy birthday Rhonda!

Chartreux
Veteran Member


Date Joined Aug 2006
Total Posts : 9622
   Posted 4/19/2009 9:45 PM (GMT -7)   
I'd take Horse riding lessens, and maybe archery lessens again, I did archery in High School
it was fun..........
Happy Birthday Rhonda!!!
(((((((((((((((((((Rhonda))))))))))))))))))))))))))
**********************************************
* Asthma, Allergies, Osteoarthritis, Spinal Stenosis, Degenative Disc, Fibromyalgia, Gerd,
Enlarged Pituitary Gland, Sjogren's and Ocular Migraines

********>^..^<********>^..^<********>^..^<********


PAlady
Veteran Member


Date Joined Nov 2007
Total Posts : 6795
   Posted 4/19/2009 9:48 PM (GMT -7)   
I'm going to add another one...

I'd dump all my pills and pill bottles into a big garbage can and then toss them into a big bonfire and have no more pain bottles within site anywhere!!!

PaLady

Pamela Neckpain
Veteran Member


Date Joined May 2008
Total Posts : 1821
   Posted 4/19/2009 11:47 PM (GMT -7)   
run run run,

I loved your poem. I cried. And then I cried some more.

I used to run at the beautiful track down the street from my home. It was orange
and bouncy. Everybody was there and happy. I lived where the weather was
almost always BEAUTIFUL.

Then one day I hurt my knee and had to crawl home. I cried and felt like my
life was over but ...

I took up DANCE.

Uh, did I say I'd dance?

and RUN ...

Pamela Neckpain
Veteran Member


Date Joined May 2008
Total Posts : 1821
   Posted 4/19/2009 11:50 PM (GMT -7)   
Rhonda,

Would you please e-mail me. My e-mail won't SEND.

Pamela

I know it's your birthday!
It's my birthday too!
I know it's your birthday,
Happy birthday to you oo oo.

Palady, are those the Beatle lyrics that got lost in your brain.

angel8
Regular Member


Date Joined Apr 2009
Total Posts : 109
   Posted 4/20/2009 2:44 AM (GMT -7)   
Set fire to my recliner? Go to bed? A real bed and sleep til I wanted to get up.

mom9mom
Regular Member


Date Joined Sep 2008
Total Posts : 489
   Posted 4/20/2009 11:13 PM (GMT -7)   
I used to walk 6 to 12 miles wish I could do that again.My husband and I would take are kids hiking in grand teton mountains.Some times we would go fly fishing.We would go fishing with worms all the time(there are at lest 20 places within a 5 to 20 min. ride from are house).
Lost half of my small intestineJan.2008.Ilieostomy for 5 months then reverst in June 2008,Nerve damage to right leg,part of my right hip bone removed Jan. 2008,Cronic pain,hernia,infection in my back called discites,and depression.Gallbladder removed Nov,2008.Surgery to fuse L3 and L4 vertabra Dec. 31,2008.Mother to 9 kids 7 boys 2 girls and 1 stepson.4 grandsons,9 grandaughters.4 of my grandkids I inherited from my twin sister who passed away 6 1/2 years ago from a blood clot after surgery.God has given me my life back after I almost lost it.Even though its a painful and sometimes hard road to walk I take it one step at a time and give thanks to god for every step I take.

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