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anna100
New Member


Date Joined Apr 2009
Total Posts : 3
   Posted 4/19/2009 7:24 AM (GMT -7)   
I just joined this website because I needed someone to talk to regarding chronic pain. I think my daughter is tired of hearing about it. I have spinal arthritis, degenerative disc disease and several herniated discs. I've had arthritis for 10yrs  and in 2007 I had a laminectomy. about 6 weeks after the surgery I began to have severe lower pain and was unable to sit down for more than five minutes. Doctor couldn't find  specific reason and sent me to physical therapy for nine months and I consulted a doctor who would do spinal injections To date I've had about 17 total with little lasting effect. Went back to Neurosurgeon who couldn't see any significant change in my spine but he saw a suspicious mass on my kidney. Within a week I'd seen an oncologist and had my kidney removed a month later. Pathology showed that it was cancerous. I was very sick after the surgery burst my wound and developed an abdominal hernia. It took six months to heal the wound. Meanwhile I decided to have my yearly physical and discovered that I was in stage 3 kidney failure  with my remaining kidney. It was apparently caused by the anti inflammatory medicines I took for the spinal arthritis. Then I had an abdominal  hernia repair in Dec 08. According to the surgeon, one of the biggest repairs he's ever done. I had complete kidney failure after surgery which they resolved back to my normal kidney function of 30%.I'm still in severe pain and last week I was referred back to my neurosurgeon for evaluation. He says that I need a multilevel spinal fusion but won't do it because of my kidney status. I asked about implanting an artificial disc but he won't do that because it requires an abdominal approach and I have too much mesh in my abdomen for that. He suggested a pain pump but he's not sure that the pain service will accept me as a patient because they deal with cancer patients and I am now cancer free. A spine stimulator has been suggested but I'm not sure that it would be effective. Need some feedback

White Beard
Forum Moderator


Date Joined Feb 2009
Total Posts : 3611
   Posted 4/19/2009 9:57 AM (GMT -7)   
anna100
 
I welcome you to this forum, it sure sounds like you have been through allot! I think you will find this forum is a nice place to come to, we might not be albe to fix your pain! But we will be able to give you allot of caring, compassionate support! There are several people on this forum that have spinal stimulators and also a few with implanted pain pumps, and I think there are a few with both! So I am sure you will get plenty of good solid advice about them. I am sorry that you are having so much pain, but I am glad that you found us here at this site! Again I welcome YOU,
I wish you only the best! Good Luck to You!
White Beard


  I'm Retired USAF, went back to school and became an RN, and now am on full disalbility!--Degenerative Disc (affecting mostly the thorasic disc but all levels involved), C6/7 laminectomy/diskectomy& fusion, Osteoarthritis, Ulcerative colitis, Chronic Pain, Fibromyalgia, Complex Sleep Apnea, and host of other things to spice up my life!(NOT!) Medications: Oxycontin, Percocet, Baclofen, Sulfasalazine, Metoprolol, Folic Acid, Supplemental O2 at 3lpm with VPAP Adapt SV

Post Edited (White Beard) : 4/19/2009 12:11:38 PM (GMT-6)


uniquelyme
Veteran Member


Date Joined Nov 2008
Total Posts : 1037
   Posted 4/19/2009 10:26 AM (GMT -7)   
 
 
Anna100,
As much as I hate to see anyone in pain, I know you have come to the right place.  Day or Night, we are always here.. We are a family and we take care of our own..and now that includes YOU... So, Welcome.
 
I am sorry about all that you are going through.  It seems like you have too much to deal with...I have had back trouble for 20 years +, and I have had 2 surgeries...one lamenectomy and one spinal fusion...so I know about pain..and I was just diagnosed with Type 2 Diabetes last month....Still...not as much as you have going on but enough for me!!
 
So, I hope to see you here again...
 
Me. turn

 
We are all in the same boat...unfortunatley it seems like it's sinking...
Post Lamenectomy Syndrome
Hemi Lamenectomy/Spinal Fusion(Lumbar)
60 mg. MS Contin 2Xdaily/15 mg. Oxycodone as needed
High Blood Pressure: Lisinopril HCTZ 10 mg. daily
Type 2Diabetes: (March 16, 2009)
Metformin 1000mg. twice daily (so far)
ME. (Rhonda)                                                                    

 


PAlady
Veteran Member


Date Joined Nov 2007
Total Posts : 6795
   Posted 4/19/2009 1:39 PM (GMT -7)   
Anna,
I want to add my welcome to you to the chronic pain forum of Healing Well. You have gone through so much...I can't imagine all you've faced, yet you seem to keep going on and that shows your spirit and courage.

This is a great group for support, although we aren't doctors. I also wanted to add in case you hadn't noticed there are a lot of different forums and you can post to as many as you want. This is great for chronic pain, and we have pain from a lot of sources, but feel free to post anywhere.

And like White Beard said there are several members here with stimulators and/or pumps. You can also search the Healing Well site and get old threads that have a lot of info. on these treatments, but I know others will come along who currently have or are in the process of getting these treatments.

Again, welcome!

PaLady

bluejet2
Regular Member


Date Joined Feb 2009
Total Posts : 487
   Posted 4/19/2009 5:45 PM (GMT -7)   
Hi Anna:

I wanted to say hi and welcome! I am one of those that the others spoke of that has a Spinal Cord Stimulator and an intrathecal pain pump. If you have any questions about my experience with them, please feel free to ask away.
I just had my 23rd back related surgery 2 weeks ago, and have other health problems as well.

I'm glad you found us, and I look forward to "talking" to you in the future.

Lorie

anna100
New Member


Date Joined Apr 2009
Total Posts : 3
   Posted 4/20/2009 5:28 AM (GMT -7)   
Thanks for all of your responses its good to know that there are people out there who understand.

Pete trips again!
Veteran Member


Date Joined Nov 2006
Total Posts : 1899
   Posted 4/20/2009 8:42 AM (GMT -7)   
Hi Anna, Sorry I haven't welcomed you sooner! I'm so sorry to hear about all of your health problems! Sometimes I start feeling sorry for myself and then someone like you comes along and I realize, I haven't got it so bad! You sound like you belong here with these good people, they are the most caring compassionet people I've ever met! They know what it's like to have pain constantly unlike most of our doctors and families! They listen when no one else wants to! I'm so glad you found us!
Your new friend,
Pete
56 years old, Surgury, Radical Prostatectomy 8/20/03, PSA 6.6, Gleason 3 + 3 = 6, Adenocarcinoma extent (moderate) Stage & Margin:T2NOMX, No Metastases, Organ Confined, bone scan: Neg. 3 1/2 years of depression after surgery prior to Hypogonadizm DX, Testosterone Theropy> new 2/6/09> 400mg injections every 2weeks . 56 and so glad to still be here to see my two sons grow up to be fine young men. They are both serving in the US Navy, one on the aircraft carrier USS John Stennis in port in Thailand and the other on a Gator Freighter USS Bataan stationed in Norfolk, Va. I am one very proud (what they call me)> Big Pops! 


anna100
New Member


Date Joined Apr 2009
Total Posts : 3
   Posted 4/20/2009 9:28 AM (GMT -7)   
Bluejet2,
I'm interested in finding out about the spinal stimulator and the pain pump. Do you have both of these at the same time. I'm leaning towards a pain pump because I have had a tens machine in the past for a year and it wasn't helpful. I take Neurontin 600mgs up to 4 times a day and Ultram 50mg every 12 hrs. I figure a pain pump would deliver less medication overall and it would help my kidney situation. Was it difficult to deal with when you first had the pump implant? I've read that you have to be very careful post op. I'd just like your opinion on the pros and cons of both of these
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