is norco with kidney cancer bad
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dolemite
New Member


Date Joined Apr 2009
Total Posts : 17
   Posted 4/19/2009 8:10 AM (GMT -7)   
hello everyone. i need advice. after suffering for 5 yrs., i have been seeing pain dr. and have been on morphine then norco for about a year now. what a difference to be pain free. the problem is i have been dionoised with cancer in r/kidney. results of CT scan still waiting. problem is i  am very protective of pain relief. cant function w/o. should i tell pain dr? am afraid of him cutting me off and then start all over again. if you know what a hassel it is to get started on pain managment, you know what i mean. am i endangering my condition by not telling him? before we settled on norco 10/325 he wanted me to try other( epdoral) or implants. any advice?

uniquelyme
Veteran Member


Date Joined Nov 2008
Total Posts : 1037
   Posted 4/19/2009 10:11 AM (GMT -7)   
Hello dolemite, and Welcome to our close Knit group...First of all, I can't see ANY Pain Dr. in their right mind cutting you off because of you having Cancer... He will want to work with your other Dr.'s and keep you pain free. Most of us here have other Medical issues other then just Chronic Pain, so I'm sure that someone here will have some good advice for you.

I am so sorry about you having cancer...I hope you come back to our group, it helps to have people to talk to that understand...

Me.
 
We are all in the same boat...unfortunatley it seems like it's sinking...
Post Lamenectomy Syndrome
Hemi Lamenectomy/Spinal Fusion(Lumbar)
60 mg. MS Contin 2Xdaily/15 mg. Oxycodone as needed
High Blood Pressure: Lisinopril HCTZ 10 mg. daily
Type 2Diabetes: (March 16, 2009)
Metformin 1000mg. twice daily (so far)
ME. (Rhonda)                                                                    

 


White Beard
Forum Moderator


Date Joined Feb 2009
Total Posts : 3611
   Posted 4/19/2009 10:19 AM (GMT -7)   
doemite
First off Welcome to Healing Well Chronic Pain Forum! I am sorry that you had to come here with pain but I am glad you found us, and I think after to get to know everyone here you will be glad you found us too!

I am having a little difficulity understanding why you wouldn't want to tell you pain Doctor about your cancer in your right Kidney? He is your Doctor and he definitely needs to know about this, if he is expected to adequately treat you for pain, how do you expect him to do that without knowing your complete condition?. Not just that, but some medications can adveserely affect your kidneys, and with having cancer in one of them, it is of the up most importance, that he knows about this ASAP!, He might need to change or modify your pain meds. I don't understand why you would think he would cut you off of your treatment, if anything I would suggest to you that he would probably want to enhance your treatrment even more, as Cancer in its self can be extremely painfull!. In any event your normal doctor will probably notify your pain doctor anyway or at least he should! To answer your question, YES you most DEFINITELY would be endangering your condition by not telling him ( your pain doctor) of your condition! So Please do so ASAP! Again I welcome you to the forum, !
Good Luck to You

White Beard


  I'm Retired USAF, went back to school and became an RN, and now am on full disalbility!--Degenerative Disc (affecting mostly the thorasic disc but all levels involved), C6/7 laminectomy/diskectomy& fusion, Osteoarthritis, Ulcerative colitis, Chronic Pain, Fibromyalgia, Complex Sleep Apnea, and host of other things to spice up my life!(NOT!) Medications: Oxycontin, Percocet, Baclofen, Sulfasalazine, Metoprolol, Folic Acid, Supplemental O2 at 3lpm with VPAP Adapt SV


dolemite
New Member


Date Joined Apr 2009
Total Posts : 17
   Posted 4/19/2009 12:01 PM (GMT -7)   
thanks for the advice. I was just worried because we had a hard time finding this norco 10/325. it was opana that didn't work,then norco 5 tablets a day, then it seem to not work, then morphin 30,5 x a day but it started swelling of tongue.perc did'nt work then was told about alt. forms like implant. too expensive. i'm self pay. so we settled with the norco again. you are right .i will set appt. for mon. and be truthfull with him. i'll let you know how it turns out...again, thanks

PAlady
Veteran Member


Date Joined Nov 2007
Total Posts : 6795
   Posted 4/19/2009 1:57 PM (GMT -7)   
Hi, Dolemite,
I just want to add my welcome to the other voices. It sounds like you've made the right choice. I'm so sorry for all you're dealing with, but White Beard is absolutely right your doctors can't treat you without knowing all that's going on in your body. Plus, I would think with cancer you'd actually get more help with pain - just maybe different help, although I don't know enough to suggest anything.

Your doctors would likely find out about it anyway. But I think it's fine to tell your doctor that you're afraid of losing the pain control you've established. I would be, too. So that you can still ask that your pain be controlled in the way that's in your best interest.

Please feel free to join in with us anytime.

Again, welcome.

PaLady

dolemite
New Member


Date Joined Apr 2009
Total Posts : 17
   Posted 4/19/2009 2:12 PM (GMT -7)   
thanks, PaLady, its really a blessing to talk with people who understand

White Beard
Forum Moderator


Date Joined Feb 2009
Total Posts : 3611
   Posted 4/19/2009 2:49 PM (GMT -7)   
dolemite
This place is a blessing, and people do understand, an they do care! I do hope you continue posting and let us know how you are doing!
Please take care of yourself!

White Beard
  I'm Retired USAF, went back to school and became an RN, and now am on full disalbility!--Degenerative Disc (affecting mostly the thorasic disc but all levels involved), C6/7 laminectomy/diskectomy& fusion, Osteoarthritis, Ulcerative colitis, Chronic Pain, Fibromyalgia, Complex Sleep Apnea, and host of other things to spice up my life!(NOT!) Medications: Oxycontin, Percocet, Baclofen, Sulfasalazine, Metoprolol, Folic Acid, Supplemental O2 at 3lpm with VPAP Adapt SV


Aedammir
New Member


Date Joined Mar 2009
Total Posts : 6
   Posted 4/19/2009 3:37 PM (GMT -7)   
You absolutely MUST tell your doctor. I cannot see any reason he would cut you off, but if he did, immediately find another doctor. I know saying find another doctor and actually doing it are two different things. I know it isn't easy to find a good doctor. I am so sorry for you finding out about the cancer. But try to keep your spirits up - I know that isn't an easy thing to do alot of times, but they can do so many things nowadays... 
 
I tried the Norco once and it helped me for a good while. The good thing about Norco is that it doesn't have as much acetaminophen (or Tylenol) that the other drugs in that category has. I believe the acetaminophen in Lorcet and others similiar to Norco hurt my stomach when I tried those.  
 
Welcome to this group. I am fairly new to this group also. Let me tell you, the people in this group are so helpful, kind and understanding, when I joined, I found that it is one of the best things I have ever done. Oh, and I am happy the Norco is working so well for you. I hope all goes good for you. I wouldn't worry too much about your doctor taking you off the Norco; if he is any kind of decent doctor, he will be understanding and help you more. I cannot dare believe he would take you off the Norco.
 
Good luck to you. You are in my prayers.
 
Aedammir
 
Post Herpetic Neuralgia; peripheral neuropathy; sciatica; herniated disks, L3, L4, L5; possibilty of Complex Regional Pain Syndrome.
Meds: Lyrica 150 mgs in morning and 150 mgs at night; Adderall 20 mgs daily; Celexa 40 mgs daily; Ambien 10 mgs - one at night

Tirzah
Veteran Member


Date Joined Jul 2008
Total Posts : 2284
   Posted 4/19/2009 3:43 PM (GMT -7)   
D-
First off, Welcome to HW! Like the others, I think it is critical that you tell your PM about your cancer. It's possible he could pull you off the Norco if it's not safe for people with kidney problems, but I imagine that would be in line with your goals as well since the wrong drug could cause a complete failure of the kidneys in patients with certain conditions. I don't know whether or not Norco fits into that category, but I would imagine it would be better to know ahead of time than to find out when it's too late.

There definitely are pain meds for people with kidney problems. I've had some probs with my kidneys & I have a friend who has kidney cancer. My friend & I are on fentanyl which is safe for kidneys, even in compromised patients. I've heard there are other pain meds that are also safe for kidneys, so it's at least worth discussing with your PM. Be sure to let him know which ones haven't worked for you in the past so he doesn't try those again.

I wanted to let you know that there are a lot of assistance programs out there to help cancer patients pay for their meds (including pain meds). If you google "prescription assistance cancer patients" you will find several programs to help you pay for part or all of certain meds. Each program is different about what meds they will cover (some cover only cancer meds, some cover pain meds, some cover meds for secondary illnesses, etc. so just be patient & read through each one until you find one to help). If you don't have the energy to do that, you could try asking your oncologist if s/he knows how you can get a patient advocate. If the oncologist can't help you locate one in your area, you can call the American Cancer Society & they can try to locate an advocate for you. Some advocates charge a fee, but there are many who work for free if you are unable to pay.

I do want to wish you all the best for your fight! Hopefully you will be able to post back here soon that you are cancer-free or in remission. :) If you need additional resources to find funding for pain meds, please let me know & I can try to check with my friend about what organizations are helping her (fentanyl is very expensive, so she has 2 different organizations that each put in part & then she pays like $10 a month out of her own pocket towards the medication). You definitely shouldn't have to worry about being able to afford your medication so I will help you in whatever way I can.

bluejet2
Regular Member


Date Joined Feb 2009
Total Posts : 487
   Posted 4/19/2009 6:03 PM (GMT -7)   
Hi dolemite:

I just wanted to say hi and welcome! I'm sorry you are having to deal with so much, but you have come to the right place for advice, support, or just a gentle "hug".

Please let us know how things are going and you will be in our thoughts and prayers.

Lorie

dolemite
New Member


Date Joined Apr 2009
Total Posts : 17
   Posted 4/19/2009 6:21 PM (GMT -7)   
thanks,bluejet2 I'll be on here tomorrow to let all you kind people know how things went. already got some good advice and more importantly, don't feel so alone! god bless you all
dealing with pain in both knees, legs, and lowerback.I feel I haven't been able to locate cause of pain untill recently dianoised with r/kidney cancer. Don't know if it has spread or if, to where. I am self-pay, so have been dealing with different Dr.s


dolemite
New Member


Date Joined Apr 2009
Total Posts : 17
   Posted 4/20/2009 12:56 PM (GMT -7)   
well, I called urologist this morn. to ask about CT scan report,was told the DR. was too busy to talk to me! still waiting on PM. should be soon. I am so stressed, pain is a 9. It is so easy to get ugly and rude, I'm glad I'm not that way
dealing with pain in both knees, legs, and lowerback.I feel I haven't been able to locate cause of pain untill recently dianoised with r/kidney cancer. Don't know if it has spread or if, to where. I am self-pay, so have been dealing with different Dr.s


dolemite
New Member


Date Joined Apr 2009
Total Posts : 17
   Posted 4/20/2009 2:58 PM (GMT -7)   
PM office is now closed. he never even called. what a guy.!
dealing with pain in both knees, legs, and lowerback.I feel I haven't been able to locate cause of pain untill recently dianoised with r/kidney cancer. Don't know if it has spread or if, to where. I am self-pay, so have been dealing with different Dr.s


Pete trips again!
Veteran Member


Date Joined Nov 2006
Total Posts : 1899
   Posted 4/20/2009 5:11 PM (GMT -7)   
So sorry to hear you're getting screwed over by your docs! Also sorry I haven't wecomed you to our little group yet! I understand how crappy it can be, there is no love lost between me and many of the so called doctors I've seen over the years! There are some compassionet ones out there but in my opinion, there are few and far inbetween! I once had a quacker tell me I had cancer in a hallway full of people! Not only my wife and I but all the people there couldn't believe that this jerk would do something like that! But enough about me, I think you are doing the right thing trying to get them both involed and having them communicate w/ each other. If after you get a hold of them and you get your info, if you are still upset, find someone different! These jerks often forget who is paying them!!! I fired 4 urologists before going up to Johns Hopkins for my prostate cancer surgery! Now when something is seriously wrong, I get the best doc I can find! These are of course just my opinions! I pray it all works out for you soon and they start getting that pain under control and you put on your war paint for whats ahead w/ this cancer thing!!!
Your new friend,
Pete
56 years old, Surgury, Radical Prostatectomy 8/20/03, PSA 6.6, Gleason 3 + 3 = 6, Adenocarcinoma extent (moderate) Stage & Margin:T2NOMX, No Metastases, Organ Confined, bone scan: Neg. 3 1/2 years of depression after surgery prior to Hypogonadizm DX, Testosterone Theropy> new 2/6/09> 400mg injections once a month. 56 and so glad to still be here to see my two sons grow up to be fine young men. They are both serving in the US Navy, one on the aircraft carrier USS John Stennis in port in Thailand and the other on a Gator Freighter USS Bataan stationed in Norfolk, Va. to be deployed to the Middle East in early May. I am one very proud (what they call me)> Big Pops! 


dolemite
New Member


Date Joined Apr 2009
Total Posts : 17
   Posted 4/22/2009 3:39 PM (GMT -7)   
well, for all the kind people who offered their love and support to me i would like to report that PM did contact me and was truely sorry about my condition and he helped me with pain. I had thought i had 1 of the few compassionate dr.s out there, and he really is. My urologist called and will see me tomorrow morn. to discuss CT scan. The kind people(you know who you are) who offered advice, I now feel you are with me, going in to office. thanks again. I got so much from just hearing from ya'll, that I told my mother about this place. She suffers from Parkinsons, and really needs to talk to people going thru the same problems, such as different meds and resources. I'm sure she will find some comfort too. As for me, I'll let ya'll know what happens.  Love and peace to all!

dealing with pain in both knees, legs, and lowerback.I feel I haven't been able to locate cause of pain untill recently dianoised with r/kidney cancer. Don't know if it has spread or if, to where. I am self-pay, so have been dealing with different Dr.s


PAlady
Veteran Member


Date Joined Nov 2007
Total Posts : 6795
   Posted 4/22/2009 3:55 PM (GMT -7)   
Dolemite,
I'm glad to hear your PM really is being a good doctor in the best sense of the word. Stay in touch. Let us know how things go.

And by all means tell your Mother to join HW. There is a Parkinson's section of the forum I hope she finds helpful.

PaLady

dolemite
New Member


Date Joined Apr 2009
Total Posts : 17
   Posted 4/23/2009 5:02 PM (GMT -7)   
to all my new friends, I would like to tell my experience just in case you know someone with similar problems.5 yrs ago it started. Pain in both knees, then tired sore legs that hurt even to the touch. The last 2 yrs. developed lower back pain. Morn., noon, and nite. Fatique to the max. Sought out PM.tried different pain meds. Still tired all the time. couldn't work anymore, then couldn't even do yardwork w/o pain meds. Went to chiropractor. he did X-ray, he found back and both knees with arthritus. it showed up like a bunch of fog on the film. set me up with MRI then neuro dr. who set me up with ultra-sound,then sent me to urologist who sent me for CT scan. I had 2 masses on R/kidney with blood in urine.this was the problem----I had cancerous tumor on top of kidney, and a bigger cyst on the bottom of kidney which was pushing the tumor into and cutting off the blood flow to the in and out vessels, while at same time producing chemicals that are likely to cause arthritus and pain. Urologist said that was very strange that it happened like that but everything was just lined-up like that. So he recomended removal of kidney, L/kidney was fine and should be able to function. He couldn't be sure but said I should be back to norm and maybe pain-free. also no signs that cancer had spread. I'll start setting up surgery may 4th. I do feel blessed,but sad at same time, for all people who still suffer and still have to fight the good fight. The power of prayer helped me, but just as importantly, finding this site and my new friends also. I hope someone can be helped by my exp. GOD BLESS EVERYONE
dealing with pain in both knees, legs, and lowerback.I feel I haven't been able to locate cause of pain untill recently dianoised with r/kidney cancer. Don't know if it has spread or if, to where. I am self-pay, so have been dealing with different Dr.s


PAlady
Veteran Member


Date Joined Nov 2007
Total Posts : 6795
   Posted 4/23/2009 6:00 PM (GMT -7)   
Thank you, Dolemite, for sharing that. I know hearing about others on this forum has kept me from feeling alone with CP.

So is the surgery to remove the kidney May 4th? I wasn't quite sure. That's not very far away. But you 'll have a whole family here sending you healing thoughts and blessings!

PaLady

dolemite
New Member


Date Joined Apr 2009
Total Posts : 17
   Posted 4/23/2009 7:17 PM (GMT -7)   
yes PAlady, on the 4th of may I will meet with dr.s to discuss the procedure and then I guess to set date, which will be soon after the 4th and I will also be thinking of you and everyone else here, wishing the best for ya'll. they will be removing the right kidney and hopefully not find anything else.
dealing with pain in both knees, legs, and lowerback.I feel I haven't been able to locate cause of pain untill recently dianoised with r/kidney cancer. Don't know if it has spread or if, to where. I am self-pay, so have been dealing with different Dr.s


PAlady
Veteran Member


Date Joined Nov 2007
Total Posts : 6795
   Posted 4/23/2009 9:56 PM (GMT -7)   
Dolemite,
Be sure to let us know the date of your surgery so we can send special wishes your way.

Hugs,

PaLady

dolemite
New Member


Date Joined Apr 2009
Total Posts : 17
   Posted 5/5/2009 4:18 AM (GMT -7)   
good morning everyone, good news to report, so far. r/kidney to be removed 06/16. does'nt look like cancer has spread. the down side is it's highly doubtful that the constant pain of arthritis in spine and knees,along with disc in lower back will be gone too. no matter, I still feel very blessed!
dealing with pain in both knees, legs, and lowerback.I feel I haven't been able to locate cause of pain untill recently dianoised with r/kidney cancer. Don't know if it has spread or if, to where. I am self-pay, so have been dealing with different Dr.s


Lindaloo
Veteran Member


Date Joined Sep 2006
Total Posts : 1713
   Posted 5/5/2009 5:24 AM (GMT -7)   
Dolemite,

Sorry it's taken me so long to welcome you. Please know that I am very happy you have posted and decided to join us. I have read every post in this thread and am very proud of my friends here and their support of you. Well done, all.

I am very happy that you are looking forward to being cancer free soon. I will pray for you that you have a great outcome and that all goes well from here on out.

You have gotten such wonderful advice and support. I hope you take advantage of the money saving suggestions regarding your medication too.

God bless and keep posting.

Lindaloo
Moderator Chronic Pain
 
Believe in yourself.  Be kind to fellow humans and animals.  Take time to smell the flowers and the coffee.
And by all means, when you are down, ask me for help.  I will be there.
 
Linda


Tony McGuire
Regular Member


Date Joined Feb 2009
Total Posts : 483
   Posted 5/5/2009 5:49 AM (GMT -7)   
Dolomite,

Our thoughts and prayers are with you as you go through getting your right kidney removed. A poor ordeal with at least 2 great benefits.

1. It brought you to us
2. It brought us to you

Our prayers your way, with prayers in our signature below.
Wife: Liz, the choice of a lifetime
Dogs: Koshka Prayer & Chomp Prayer


edt
Veteran Member


Date Joined Dec 2008
Total Posts : 773
   Posted 5/5/2009 6:11 AM (GMT -7)   

Dolomite,

Welcome to our FAMILY, I am so sorry for all you are going through!  I am very happy to hear that your prognosis sounds very promising!

As you can see, we are always here with our love and prayers!

Patti


PAlady
Veteran Member


Date Joined Nov 2007
Total Posts : 6795
   Posted 5/5/2009 12:03 PM (GMT -7)   
Dolemite,
Yes, that is great news that the cancer hasn't spread. As far as the pain, well, you're definitely not alone in that (as you now know!) and we hope you'll continue to be a member of the family here.

Surgery is no fun, but at least this is headed in a positive direction!

PaLady
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