New Topic Post Reply Printable Version
[ << Previous Thread | Next Thread >> ]

The Reverend
Regular Member


Date Joined Apr 2009
Total Posts : 66
   Posted 4/20/2009 8:45 AM (GMT -7)   
Hi I am new here and I have Ankylosing Spondalitis, I have used all the TNF blockers. Has anyone gained diabieties from using TNF blockers? I was diagnosed about 5 years ago after seeing many doctors and after taking a lot of different pills which i am sure were just different types of asprin and even being told the pain was just in my head Finaly I found a doctor by accident as I was going to see another doctor in that surgery and when he thought I was putting it on he sent me to see an indian doctor, this guy told me the best news every even though it was not good, that I was not going mad an infact have a disease. I was almost at the point of giving in as I could not live with the pain I was feeling through my whole body, hips, middle back, neck, through my chest and stumack.  I was a wreck.  I was driving a taxi and when i would get home after my night shift I would not be able to pull myself up stairs as the pain in my hips was very bad and eventualy I had a mild Heart attack as the fluid was building around my heart and plurisy from fluid around my lungs.  So I gave our lease back for the taxi and went on government handout It distroyed my life.  After I found my new doctor he sent me to a ruematolagist and he after many tests placed me on embrel What a wonder drug after the first month my pain went from a ten to a three it was fantastic and after I had completed the test course my fluid and pain levels started to rise again so  the RT placed me on Remicade this made me feel very ill after four weeks the doctor ordered a stop on Remicade as my body was rejecting the protien my hair was falling out my skin was grey I felt like I was going to die but I recovered so then they placed me on Humira initialy it worked but after six months it also stopped working now I am on Salazapirin 3000mg, Naprosyn 1000mg, and PLaquinel for cramping Morphine 40mg morning and many othersNow I have a camicaly induced type 2 diabeties and high blood pressure and a form of epilepsy I am now wearing a neck brace.

bluejet2
Regular Member


Date Joined Feb 2009
Total Posts : 487
   Posted 4/20/2009 9:24 PM (GMT -7)   
I don't know the answer to your question, but I know that there are others that post on this forum that have the same condition you mentioned. I'm sure someone more knowledgable will be along and they may be able to give you the answers your looking for, or at least some advice on what has worked for them.


I just wanted to say hi and welcome as I have not seen your previous posts. I'm sorry that you are having to deal with so many health issues.

PAlady
Veteran Member


Date Joined Nov 2007
Total Posts : 6795
   Posted 4/20/2009 9:42 PM (GMT -7)   
Hello, Reverend,
I also wanted to welcome you to the Chronic Pain forum of Healing Well. I see that you do have several responses on your other thread, some who know more than bluejet2 and myself!

We're always sorry for a new person to appear here with pain, but this is a great support group and there's lots of experience to share, although we aren't doctors and can't offer medical advice.

Again, welcome!

PaLady

fatherjohn
Veteran Member


Date Joined Feb 2009
Total Posts : 999
   Posted 4/20/2009 10:38 PM (GMT -7)   
The Rev., I also want to welcome you to the forum. We are all here for the same reason, to find encouragement and someone who understands the pain and the feelings that go with it. Sorry that you find yourself here but it is a great place.

alok
New Member


Date Joined Apr 2009
Total Posts : 3
   Posted 4/22/2009 2:04 AM (GMT -7)   
NSAIDs (nonsteroidal anti-inflammatory drugs) are still the cornerstone of treatment and the first stage of medication in treating the pain and stiffness associated with AS. However, NSAIDs can cause significant side effects, in particular, damage to the gastrointestinal tract.

When NSAIDs are not enough, the next stage of medications, (also known as second line medications), are sometimes called disease modifying anti-rheumatic drugs. This group of medications include: Sulfasalazine, Methotrexate and Corticosteroids.

Pamela Neckpain
Veteran Member


Date Joined May 2008
Total Posts : 1821
   Posted 4/22/2009 3:48 PM (GMT -7)   
Oh my, Hello today Reverend & alok,

I have been diagnosed with Anklyosing Spondylitis. None of the doctors I've been
to have told me much about anything. For a long time they thought I had Lupus ...
but not now. Then they thought Cervical Dystonia ... but that one just petered out.

I don't go to an arthritis specialist and I think I should. I have such inflammation.
I feel it. Terrible! I tried to cure it with 15-year-old Tylenol and it almost kilt me.
Once I took Methotrexate and felt good. So one day I felt good. The rest of the days
of these seven years I have had #8,#7,#9 pain. This is how I live.

Surely the medicine men should be able to do me better. Dontcha think?

I don't know enough about Anklyosking Spondylitis yet. Can you tell me more or
can you direct me to a place where it is explained low and slow. My discs at C3 &
C4 have gone bad. That's soooo high. It scares me.

I thank you.

Pamela
MEDICAL CONDITIONS

Osteoarthritis all levels of spine right down to Coccyx,Spondilytis,Myofascial Pain
Fibromyalgia,Bulging Discs,Spinal Stenosis,Scoliosis,Osteopenia,Chronic Constipation
Carpel Tunel Syndrome, Attention Deficit Disorder,
Depression & Anxiety

Methadone for Pain, Xanax for Anxiety, and more, of course.


The Reverend
Regular Member


Date Joined Apr 2009
Total Posts : 66
   Posted 4/22/2009 7:09 PM (GMT -7)   
Hi Pamela Neckpain, there is a very informative site called www.spondylitis.org that has a lot of easy to understand info on AS try it out and let us know how you go.
You need a referal from your doc to see a rheumatoligist he should of done this as soon as you were diagnosed with AS they will set you up with the proper medication, most of the time you can receive great releif from the pain. Good luck

Pamela Neckpain
Veteran Member


Date Joined May 2008
Total Posts : 1821
   Posted 4/22/2009 10:32 PM (GMT -7)   
Reverend,

I will go to the site tomorrow if I'm feeling better. It's a struggle today to use
the computer and I don't want to force the issue with my body. : )

I did go to a rheumatologist that first seven months or so. There was a problem
with my opiods and his temper flared and he blew me outta his office like the
north wind. Absolute fury. (Of course, I understand NOW)

He was prescribing Vicodin for me those seven years ago. He was the one who told
me my pain would be chronic. He was the one who explained opiods to me.

At the same time I was seeing him, I went to a neurologist - he was a kindly
older man and he told me to stop taking the Vicodin immediately. He said that
it would destroy my liver. I stopped taken the Vicodin and started using the
Norco he prescribed. Of course, THAT didn't help matters and to make matters
worse I had broken the law!

I went back to my rheumatologist all excited and told him about my
informative visit to ANOTHER doctor. I was in a new town.
My new primary care doctor had only seen me a couple of times. I had absolutely
no records of previous doctor visits.

I huddled in the primary care doctor's office for years. Nothing he gave me helped
(He tried them all) Finally, he gave up and I went to a pain clinic and started
getting some help. Accupuncture (useless for me) and Methadone (Of some help)

I don't have a rheumatolgist AGAIN. I see a pain doctor who doesn't
speak. My visits can be about five minutes. At that time he writes my prescription
for Methadone. (It's not a totally wrong thing to do BUT I'm not getting much
help from the medication. ) He always suggests the pain pump but I don't want
it until I understand just a bit more about my condition. I'm terrified of yet more
pain with the pump. (I know others are afraid too.) There are other health
problems too.

It seems I fell through the cracks. Nobody knew what to do with me. There was only
the one Rheumatologist around. I knew NOTHING. I am going to a new primary
care doctor Friday. At that time I will ask for an appoitment with a rheumatologist.
After my cervical spine MRI, my pain doctor told me there was nothing that can
be done. There just about HAS to be some little thing that can be done - and not
the pump. Not just yet. I have quite a distance to go. (Hopefully)

Thank you. I will return when I have informed myself a bit.

Pamela :-)

The Reverend
Regular Member


Date Joined Apr 2009
Total Posts : 66
   Posted 4/23/2009 7:24 AM (GMT -7)   
Hi all feeling sick tonight, have a fever.  Not a good one look forward to hearing back from pamela neckpain catch you all another time.  God Bless

Becoming undone
Veteran Member


Date Joined Jul 2007
Total Posts : 927
   Posted 4/23/2009 9:14 AM (GMT -7)   
Reverend: How often do you get your fevers? How high are they? Me, I get daily fevers and they make me feel worse (the pain is worse, the fatigue is worse, the tummy rumbles worse, the emotions go down)...these fevers HAVE improved with the biologics...I know the dose is wearing off and I need another when the fevers become more persistent.

Pam: Are we just channeling each other...or did our mothers have twins and got misplaced at birth? wink (oh, BTW, it's mostly the Tylenol in the Vicodin that will damage the liver...I have a failing liver as well...another gift from my Dear Disease).

I know how seeing the right doc is important...I have nothing but praise for my current docs...I sincerely hope you find one that is right for you...Autoimmune diseases are tricksters...they pop up in the most unexpected places...
"The earth laughs in flowers"


The Reverend
Regular Member


Date Joined Apr 2009
Total Posts : 66
   Posted 4/23/2009 4:38 PM (GMT -7)   

You read me like a book i go through these in stages through the day since my last hospital visit about a month ago my health has gone down the gerglar, the fever comes on and off all the time and they average only a few degrees for a short time but not when I see the doctor this is the problem that he does not see this.  I am going to see my rheumy this evening so I will see If he has answers for me yet or just more tests.  The salazopyrin does not help with these things.

Catch ya when I get back as I travel 300 kilometres to see the rheumy (pain over rough roads)

New Topic Post Reply Printable Version
Forum Information
Currently it is Saturday, December 03, 2016 10:58 AM (GMT -7)
There are a total of 2,732,122 posts in 300,996 threads.
View Active Threads


Who's Online
This forum has 151159 registered members. Please welcome our newest member, webers.
251 Guest(s), 11 Registered Member(s) are currently online.  Details
Krimpet 🍔, Wdan, Michael_T, sararectenwald1, ChickNorris, rockyfords, Jingles1234, Kmuth, joee, MollieMae, minnietoty


Follow HealingWell.com on Facebook  Follow HealingWell.com on Twitter  Follow HealingWell.com on Pinterest
Advertisement
Advertisement

©1996-2016 HealingWell.com LLC  All rights reserved.

Advertise | Privacy Policy & Disclaimer