Where do I post about Endometriosis? Here?

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hopeisreal
Regular Member


Date Joined Sep 2007
Total Posts : 345
   Posted 4/22/2009 5:52 AM (GMT -7)   
Hi all.
 
Haven't posted in a while...I've been experiencing chronic pain for almost 2 years!
 
Anyway---anyone here been diagnosed with Endometriosis?
 
 
I am having a laparascopy(sp) on May 8th--b/c I am experiencing:
 
* low back pain (all of the time)
* pelvic pain
* dysfunctional menstruation (all of the time--very light, old, spotting, heavy, etc...)
 
 
and all of the 'other symptoms' that go along with it!
 
 
I'm just looking for some light that may explain this stinkin' pain I have been experiencing for a while!
 
 
Also, just wondering if anyone has unexplained herniated discs that can be caused by something else (like endo).  I have two herniated L4/L5 and bulging discs nearby.    I don't have any 'situation' that I can say herniated my discs (like a car accident, fall, etc...).  It just happened.
 
I am so frustrated, have three little kids, and don't have time to just lay around, take meds and WANT to be the 'old me'!
 
Help? 
 
Also, if this is not the right forum to post this..........where do I post? Maybe have  a forum for these "female issues" (fibroids, endo, ovarian cancers, etc.....)

hopeisreal
Regular Member


Date Joined Sep 2007
Total Posts : 345
   Posted 4/22/2009 5:53 AM (GMT -7)   
I forgot to add my name:

Laurel

Tony McGuire
Regular Member


Date Joined Feb 2009
Total Posts : 483
   Posted 4/22/2009 6:32 AM (GMT -7)   
Laurel said...

I am so frustrated, have three little kids, and don't have time to just lay around, take meds and WANT to be the 'old me'!


I would bet that somewhere between 99% and 105% of the people on this forum would be out working within 2 minutes of a cure for their cronic pain or other debilitating issue being found and made available.

I myself certainly would, and I can't believe anyone presented with an option would take it in a heartbeat.

To describe it so is detrimental to your cause.
Wife: Liz, the choice of a lifetime
Dogs: Koshka Prayer & Chomp Prayer


hopeisreal
Regular Member


Date Joined Sep 2007
Total Posts : 345
   Posted 4/22/2009 6:42 AM (GMT -7)   
well of course none of us choose to have these pains.......

if we can't vent our frustrations about the pain--then, what good is it? And, alot of people not experiencing the pain on a daily basis have a tendency to think it's 'exaggerated'.

I WANT the old me.

I am guessing you haven't experience Endometriosis Tony? ;) (tongue-in-cheek)

shannon1
Regular Member


Date Joined Feb 2005
Total Posts : 369
   Posted 4/22/2009 6:44 AM (GMT -7)   
Laurel, scroll down and find the post about adneomyosis. There are a ton of posts about endo there. It is a really old post that was just brought back that i responded to yesterday.
Jan. 2009, complete hysterectomy, diagnosed stage 4 endometriosis & adenomyosis (age 36)
2003, dx moderate UC
2000, dx selective IGA deficiency w/ anti IGA antibodies
2000, dx Antipholipid Antibody Syndrome
1999-2009, chronic hemmoragic ovarian cysts, w/ partial ovary removal
1977, complete reconstruction of foot after lawnmower accident (chronic pain)
 
Meds
6mp 75mg, prednisone 40mg (just starting meds again)
percocet 5mg 3x day
potassium 3x day
 


hopeisreal
Regular Member


Date Joined Sep 2007
Total Posts : 345
   Posted 4/22/2009 6:46 AM (GMT -7)   
thanks Shannon! Off to check it out!

White Beard
Forum Moderator


Date Joined Feb 2009
Total Posts : 3610
   Posted 4/22/2009 7:15 AM (GMT -7)   
Hopeisreal

It doesn't make any difference what causes your pain Endometrioses or herniated disc, noody wants to have CP! And we all want the "Old ME" back! So..... Hopeisreal "vent" "rant and rave" all you want about your Chronic Pain! This is the place to do that!
 
 As for your bad disc in your back, you don't have to have been in an accedent to herniate your disc! Age plays a large part in it, and of course it might just be in your genes! Anyway, for what ever, your reasons, are for being here, I am sorry that your having CP! But you do know, you have come to the right placewith it!    And although I have never had Endometrioses and never will! smilewinkgrin I do wish you well!
 
 Good Luck to You
White Beard


  I'm Retired USAF, went back to school and became an RN, and now am on full disalbility!--Degenerative Disc (affecting mostly the thorasic disc but all levels involved), C6/7 laminectomy/diskectomy& fusion, Osteoarthritis, Ulcerative colitis, Chronic Pain, Fibromyalgia, Complex Sleep Apnea, and host of other things to spice up my life!(NOT!) Medications: Oxycontin, Percocet, Baclofen, Sulfasalazine, Metoprolol, Folic Acid, Supplemental O2 at 3lpm with VPAP Adapt SV

Post Edited (White Beard) : 4/22/2009 8:19:17 AM (GMT-6)


PAlady
Veteran Member


Date Joined Nov 2007
Total Posts : 6795
   Posted 4/22/2009 12:47 PM (GMT -7)   
Hi, Laurel,
I see you're not new so you probably know how the forum works. You sure can post here about any kind of pain! I'm glad Shannon pulled that old post up. I was just scanning the list of conditions, though, and realized the kind of isn't anything else to more directly address the endo here, is there? Or am I missing something?

I found a group years ago when I was dealing with fibroids but I can't remember what it was. Hystersisters deals a lot with, of course, hysterectomies, which I fortuantely avoided (by the skin of my teeth). So I do understand pelvic pain.

I don't think (although I'm not a doc) that the herniated disks and the endo are related directly, although maybe from pain you are moving certain ways, especially with children. Still, it's just layers of more pain, right? And you need to have both conditions checked out.

Please feel free to post here, but I also hope you find something dealing more directly with endo. in addition to us.

PaLady

golitho
Veteran Member


Date Joined Sep 2008
Total Posts : 1670
   Posted 4/22/2009 4:24 PM (GMT -7)   
Hi Laurel, I have endometriosis, along with polycystic ovaries, had an ectopic pregnancy and at least 3 surgeries to remove endometriotic cysts, had it for 22 years now and I know its the absolute cyclic nightmare, so I can really feel for you. Luckily for me its sort of settled into old familiar pain now and I manage to just keep going with pain meds, but in the early days I remember being in so much pain I couldn't get up to get my pain meds. I didn't even realise I had an ectopic pregnancy the pain was just like that every month, it was the missing period that tipped me off something else was going on!!! Three children later it has settled into something much more manageable but my heart goes out to you, especially with herniated discs as well. My endo tied up my ovaries, abdominal muscles and bladder, at least with the surgery you'll know just where it is growing. They usually laser off all they can reach and then you have issues with scar tissue for a few months! Let us know how you go, I can't believe 22 years later that there is still no real treatment for it!!!

hopeisreal
Regular Member


Date Joined Sep 2007
Total Posts : 345
   Posted 4/22/2009 4:52 PM (GMT -7)   
thanks Golitho and PA and Whitebeard! I just read some info. on a another site about 'after' the surgery---and I am scared of that pain on top of the pain I am currently having (b/c of the gas build up, etc.) Oy oy oy! Laurel

golitho
Veteran Member


Date Joined Sep 2008
Total Posts : 1670
   Posted 4/22/2009 5:01 PM (GMT -7)   
They were pretty good in hospital with pain medication for me. Hopefully they will be for you too.

skeye
Veteran Member


Date Joined Mar 2008
Total Posts : 2976
   Posted 4/22/2009 6:05 PM (GMT -7)   
Hi Hope,

Welcome back to the forum! I don't have endometriosis, I can only imagine how horrible it must be & I am quite sympathetic! Like the others said, feel free to vent all you want, you are amongst others who understand. Even if we have different types of pain, we all have pain, and we all have to live with it & the consequences of it daily.

Skeye

golitho
Veteran Member


Date Joined Sep 2008
Total Posts : 1670
   Posted 4/22/2009 6:22 PM (GMT -7)   
I was just thinking some times the thought of surgery is really stressful especially if you've been through it before, I know once I am dealing with it you sort of go into the "here and now state" in your brain, I remain amazingly calm (maybe its the drugs) and deal with the issues one by one. I never had any problem from the gas they use to inflate your abdomen. I really hope you'll be fine, keep posting and let us know your worries. I remember after my ectopic surgery the worst thing was I was in bed next to this women who was a hilarious story teller, oh did it hurt to laugh. I'm thinking of you, golitho

Tony McGuire
Regular Member


Date Joined Feb 2009
Total Posts : 483
   Posted 4/22/2009 7:39 PM (GMT -7)   
Laurel,

Your first post seem to be taking some people to task for venting about their condition and lamenting the fact that they are helpless to do anything about their condition. Meanwhile, 'laying around' and not doing anything.

That didn't seem a fair or needed comment. Many of us have no option other than to sit or lay around and wait for a discovery, the meanwhile taking pills. I am in that exact condition myself. And I have enough guilt on my shoulders that I myself create; I don't need any extra help.

If that wasn't your comment, I apologize.
Wife: Liz, the choice of a lifetime
Dogs: Koshka Prayer & Chomp Prayer


Dagger
Veteran Member


Date Joined Apr 2008
Total Posts : 1522
   Posted 4/22/2009 8:16 PM (GMT -7)   
Laurel,
I know quite a few women that have had endo surgery - I've had it myself. It is not so bad. The gas pain can be uncomfortable but it probably won't be any worse than the pain you have now. It only lasts a few days and walking around will help it go away. For about two days after the surgery, I felt like I had done about 800 sit ups, sore but manageable.

Make sure you have a great surgeon, it makes a big difference. Don't have diagnostic surgery, make sure the surgeon plans to remove (NOT burn off) any endo. Having surgery just to diagnose endo then having another surgery to remove it is a waste of time, money, and pain.

Research any treatment, especially Lupron, and make sure it is right for you.

I got a lot of great information from the Endometriosis Research Center; you can research treatment options and doctors.
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