5 years of chronic pain and I cant get a perscription that works!!!

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Lookin4 PM in Ocala
New Member


Date Joined Apr 2009
Total Posts : 6
   Posted 4/23/2009 1:44 AM (GMT -7)   
sad  Hello, this is my first post but i have been reading for a few months now. I have spent hundreds of thousands of dollars over the past 5 years and I still cant get a strong enough medication that will allow me to go back to work and get me out of bed because of the chronic pain i have endured.
 
Basically i can not stand for more than 2 to 3 hours before the pain in the joints of my legs and my lower back become so intense that it has destroyed my life and has made me miserable.
 
The money that i have spent went to everything from Dr. appointments, 2 Reumys, 2 phsychiatrist, a chiropractor, a neurologist, and my GP. Also spent it on the many trials and errors of SSRIs, SNRIs. I really think i have tried them all, Zoloft, Paxil, Wellbutrin, Effexor....you get the point. I have had some relief with diazapam, Zanaflex, and Hydrocodone 10s. But when it comes to being productive 5 days a week the Hydrocodone is like throwing a glass of water on a bonfire. Money has also been spent on anything and everything over the counter that looked legitament.  Expensive shoes, insoles, many supplements such as Gluclosamine, Chondroitin, Ginseng, 5-HTP, complete amino acid supplements, and again I could go on and on. Many test were also done. My chiropractor diagnosed me with scoliosis and said i sprained the cervical, thoracic, and lumbar vertebrae. Other docs diagnosed with fibromyalgia. Oh and they found some arthritis in many joints where the leg meets the foot. In fact it was the tibiotalar joints and the proximal ankles.
 
3 years ago my GP, of all Docs, tried me with Oxycontin 40s, and 5mg Percocets as needed, and I thought i finally thought I had found a normal life. Back to work 5 days a week, I was eager to experience life and actually socialize again. I climbed out of my depression. And then my GP retired and he was the one to refer me to the Neurologist/Phychiatrist. AND now i was back to square 1. 
 
This all started around the age of 24 and I am now 29 soon to be 30.  I am still in the process of getting many test done. Have a nerve test in the morning because my leg went completely numb for 4 days.  But I do not understand why I am being left miserable. Why cant i be managed for my chronic pain?  Is it because i live in FL?  I hear there is a lot of narcotic abuse here, but why do I have to suffer for that?         sad  WHAT CAN I DO?!?!?!?!?!?! sad

Post Edited (Lookin4 PM in Ocala) : 4/23/2009 3:02:53 AM (GMT-6)


Becoming undone
Veteran Member


Date Joined Jul 2007
Total Posts : 927
   Posted 4/23/2009 9:34 AM (GMT -7)   
Lookin: I want to welcome you...I can empathize greatly what you are going through...

You are about the age when I was first dx'd with my DD. I was accepted to Med school...life looked grand...but, WHAM!...in the hospital 4 days...got back on my feet...WHAM! 2 months later again doing a 4 day hospital stint...started to get a bit nervous and scared...no DX yet...then it was every week...I had bleeding ulcers from mouth to anus...they gave me a dx...It seemed a lot worse...wanted to come home...I needed my family...So my dream had to change...

I went into remission...I met my husband...maybe that made everything worth it...my husband is worth more to me now than any of those other dreams...I just had to change my expectations...but now I too cannot work...I have to change my expectations...I have enjoyed so many of the little things in life and all around me...

But to I stop searching, yearning for better...HE@@ NO! I scream and rile at my fate. I hate being in pain...I want to be normal!...I want to run again!...I want to work again!!...I want the pain to go away!!!!

So...never stop searching...look for a doc that is right for you...(again, those autoimmune guys can be tricky, and present much as you have described, look into that, raised SED rates, High CRP, high WBC's can be done with simple inexpensive blood tests)...Lastly, welcome
"The earth laughs in flowers"


Lookin4 PM in Ocala
New Member


Date Joined Apr 2009
Total Posts : 6
   Posted 4/23/2009 5:39 PM (GMT -7)   
Becoming: Thank you very much for reading and understanding. The blood test is a good idea....its been 2 years since my last, and my symptoms are much worse since then.

I feel if i go to a PM doc, that I would almost be "cheating" on my nuerologist and current ruematologist. They have been doing my current pain management, which to say the least is minimal. I have been told that is something i should do. Does anyone have an opinion if its something i should do?

onthecan
Regular Member


Date Joined Mar 2009
Total Posts : 318
   Posted 4/23/2009 10:23 PM (GMT -7)   
smilewinkgrin  Welcome Lookin seems your suffering reaaly bad sorry to here that i hope you get some answers soon rather than later it doesn't seem like you can manage at all any more mentally or physically,by the way do you also have Crohns disease.As you said in your post that you have bad pain in your lower back and legs i think thats what you said now and one of your doctors thought it could be Fibro it does sound like that tome i also have it the apin is awfull like a steady all over the body apin and extreme tiredness that doesn't go away even after taking differant sleep MEDS i take 3 differant sleeping pills plus a Lorazepam,10mg and for pain have your doctors ever tried a slow release pain med in the morning than in the evening (Hydromorphone-Contin,35mg) than a break though pill in between like (Hydromorphome,16mg) thats what i take now at first i didn't think the slow release one was doing anything till i stopped it and didn't take long starting it again,i take that at 8:00am and 2 (8mg=16mg) and don't have to take anything for pain again till the afternoon sometimes sooner depending on what i'm doing that day if i'm going to be baking alot or feeding 12 people and i'm on my feet alot than i would need to take something for pain sooner. Don't feel bad about asking your other doctor for something for pain your in pain and you should not have to suffer cause ther is enough DRUGS in this world we live in to help us so ther no excuse for the doctors not helping you,if they don't help you after all your tests are all back and they know whats going on and still won't help you with the pain you should find a doctor who will i went through alot of doctors to them telling me there is no way your in that much pain and in the end i thought it was all in my head but i found a great RA Doc and a great GI doc who are both understanding about the pain they told me to join the gym use the bikes to strenthen my legs and bones and i also joined aqua fit class its great for fibro really low impact on your joints and i feel great when i leave there in the evenings and some nights that i'm really sore i'll go in the steam room it works miracles for me i hope some of this info helps you keep us posted on your results and feel better soon. Your Friend Jenn AKA onthecan smilewinkgrin
Had Crohns 17 years had numerous bowel resections,fistulas,fissures,hemmies,kidney problems,fibro,arthritis,dignosed at 13 had GI feeding tube,nasal feeding tube,cental lines,ports,4 ruptured bowel emergency surgeries,TMJ,depression,current meds are Hydromorphone,30 ,Hydromophome,8 ,Ketoprofen,100 ,Trazadone,50 ,Lorazepam,10 ,Zopliclone,5 ,atriplyine,75 ,Losac,50 Tylenol Athritis ,B-12 injections ,Iron injections ,Gravol,75 Predisone,5mg ,Humira,40mg once a week.Still looking for the doctor with all the answers if you find him forward him to me please.P.S my bathroom is the nicest room in my house cause i spend so much time there,i am thinking about installing the computer and maybe a hot-dog stand.


uniquelyme
Veteran Member


Date Joined Nov 2008
Total Posts : 1037
   Posted 4/23/2009 10:29 PM (GMT -7)   
Hello Lookin, You are in the right place...Now, about yu feeling bad about seeing a PM Doc....No way!!! If your other Docs get offended because you want some relief then they aren't the right Docs in the first place!! They should be more concerned about YOU...not themselves. So, my advice is to find a PM in your area, tell him/her what has and has not worked for you in the past, and go from there. But try to find one soon, they often make you wait for an appt... Keep us posted, and Good Luck!!

Me.
 
We are all in the same boat...unfortunatley it seems like it's sinking...
Post Lamenectomy Syndrome
Hemi Lamenectomy/Spinal Fusion(Lumbar)
60 mg. MS Contin 2Xdaily/15 mg. Oxycodone as needed
High Blood Pressure: Lisinopril HCTZ 10 mg. daily
Type 2Diabetes: (March 16, 2009)
Metformin 1000mg. twice daily (so far)
ME. (Rhonda)                                                                    

 


Becoming undone
Veteran Member


Date Joined Jul 2007
Total Posts : 927
   Posted 4/24/2009 9:27 AM (GMT -7)   
Yup, what Unique said. You can look into causes too, but you gotta have a life...Oh, my PM is also my Neurologist (some PM docs are this...not all, but it wouldn't hurt to look). PM docs keep up on their specialty and know of better treatments for Pain, that would a Rheumatologist who is look at the best and better treatments for inflammation of the joints...

And you're NOT "cheating" if you are upfront with them, disclose and keep all your medical professionals up to date. It works better for you, the patient, as well, if all your docs know what treatments you have had or are undergoing.

Take care
"The earth laughs in flowers"


angel8
Regular Member


Date Joined Apr 2009
Total Posts : 109
   Posted 4/25/2009 4:44 AM (GMT -7)   

Hello Lookin and welcome to HW.

I just posted in another thread about just this thing as I live in KY and it seems that folks from here were coming there and getting the hook-up and bringing them dumping into the streets here and this just gets me madder when someone who has pain cant get treated!

I was astounded by the amounts of meds being handed out to these folks who had nothing wrong with them.

I have to say your in that age range they tend to doubt when you say your in pain and with age comes some kind of belief of all things,like only folks over 50 feel pain!

I have known folks over the years who actually have moved to other states to find relief and that in itself is crazy.

Fl is one of the states that has a high rate of abuse so PM is going to be hard for you there and I dont know if moving is an option but I bet one state up into GA would make all the difference. I dont know if you are close to the state lines and as long as you follow the rules and guidelines and dont get meds from more then one Doc you shouldnt encounter crossing into that state to get better pain management. Just a option to consider.

Having a PM Doc on board isnt cheating in the least and most of us have several Docs in our corner and as long as you dont have more then one Doc prescribing narcotics there isnt a problem and most Neuro's and rheumy's prefer someone else take on the PM part of treatment and if you can get them to all work together it is the better for you.

I am sorry that your Doc passed away leaving you out in the cold and why the transferring Doc felt they have to change things that worked is beyond me.

It is good you have had the funds to get the treatment you have gotten as so many have to rely on state funding and the lmits to what they can and cant get is pitiful,right down to not being able to get the med that works for them because medicaid wont pay for it. I cant imagine that your limitless in your spending though and certainly find treatment before you go broke trying since then you really will be up that proverbial creek!

Glad to see you here and this is a great place for support and filled to overflowing with folks that unfortunately understand your pain.


Lookin4 PM in Ocala
New Member


Date Joined Apr 2009
Total Posts : 6
   Posted 4/28/2009 12:41 AM (GMT -7)   
Thank you to everyone for the responses and info. I see my Ruemy on 4/30, and if something doesnt get done for the pain, so I can go back to work and live a life that is so depressing I am going in search of a PM doctor that will understand what i am going though. Thank you again, and ill give an update on the 30th to what my Ruemy pain management plan is. Talk with you soon :)

shannon1
Regular Member


Date Joined Feb 2005
Total Posts : 369
   Posted 4/28/2009 8:02 AM (GMT -7)   
Where in FL are you? Im in Miami, and have a good PM, and know a second that is also in the area, both GOOD, by the book doctors, not pill mills
Jan. 2009, complete hysterectomy, diagnosed stage 4 endometriosis & adenomyosis (age 36)
2003, dx moderate UC
2000, dx selective IGA deficiency w/ anti IGA antibodies
2000, dx Antipholipid Antibody Syndrome
1999-2009, chronic hemmoragic ovarian cysts, w/ partial ovary removal
1977, complete reconstruction of foot after lawnmower accident (chronic pain)
 
Meds
6mp 75mg, prednisone 40mg (just starting meds again)
percocet 5mg 3x day
potassium 3x day
 


shannon1
Regular Member


Date Joined Feb 2005
Total Posts : 369
   Posted 4/28/2009 8:03 AM (GMT -7)   
stupid me, i see ur in Ocala, sorry
Jan. 2009, complete hysterectomy, diagnosed stage 4 endometriosis & adenomyosis (age 36)
2003, dx moderate UC
2000, dx selective IGA deficiency w/ anti IGA antibodies
2000, dx Antipholipid Antibody Syndrome
1999-2009, chronic hemmoragic ovarian cysts, w/ partial ovary removal
1977, complete reconstruction of foot after lawnmower accident (chronic pain)
 
Meds
6mp 75mg, prednisone 40mg (just starting meds again)
percocet 5mg 3x day
potassium 3x day
 


Lookin4 PM in Ocala
New Member


Date Joined Apr 2009
Total Posts : 6
   Posted 4/29/2009 8:32 AM (GMT -7)   
lol....it's understandable
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