You are definitley not alone...and among friends here. We have all had our own type of pain issues, I have had 2 surgeries on my lower back, and have had problems with my back giving out and having to hold on to something so I won't just fold over...I was just on Morphine, started out at 120mg a day, went up to 240 and finally had to go back to Methadone...It didn't work for me. I take 120 mg. Methadone a day and up to 4 of the Oxycodone 15 mg. a day for BT Pain. I'm not sure why you are falling, but you should call your Dr. immediatley. It could be something as simple as muscle spasms...or it could be neurological...So, find out..
Good Luck, Welcome to our family, and I hope to see you here often...But not in pain
We are all in the same boat...unfortunatley it seems like it's sinking...
Post Lamenectomy Syndrome
Hemi Lamenectomy/Spinal Fusion(Lumbar)
60 mg. MS Contin 2Xdaily/15 mg. Oxycodone as needed
High Blood Pressure: Lisinopril HCTZ 10 mg. daily
Type 2Diabetes: (March 16, 2009)
Metformin 1000mg. twice daily (so far)
Welcome to our FAMILY! So glad you found us!
I had to give up my job I loved 6 yrs ago, it was devastating to say the least. I had triple cervical fusion kept working after the surgery and did damage to the low spine as well. There is nerve damage in both legs and I fall frequently....my family jokes and says if theres a thread or stone I'll find it! Not really funny but you have to maintain a sense of humor when you live with CP etc. I never know when it will happen but do usually feel either of the legs gave out. I have had many tests done, MRI's, EMG's and consults with Neurologists and Neurosurgeons. They found disc bulges but nothing to account for the severity of the numbness/nerve damage. They all say that when the initial ruptures occured in the neck that the spinal cord was injured and symptoms sometimes don't surface for years. So, I am left with numbness that no real diagnosis can explain which happens in some cases! Please get testing done ASAP, I agree with what Me says!!!
You ask what we do with our days.....there are days I can't move, there are days that the pain is so unbearable that time seems like it stands still. I have learned a new respect for my body, I've learned how to manage the pain with meds, exercise and most important I maintain a positive outlook (which is hard on alot of days) and am always grateful for everything good that I do have. Finally, after many years my family has arrived at a place of respect for what I deal with everyday. It was frustrating for them because they can't fix me. Now that they understand its not their job to fix me, to just be there when I need their support, it has helped!
Somehow after years of living in CP, you live your life the best that you can depending on your personal situation. I also read the posts on this site most everyday, there is support, love and friendship here and a family bond that keeps me going especially on days when I think I can't make it! I live my life the best way I can and that fills my days!!
Welcome to the forum, you have come to the right place for support and I think you will find that this place does have people that do understand what you are going through! People here don't sympathize they actually Empathize with you, and there is a world of difference between the two! It is to bad that you have to come here at all, but with that said, again I welcome You!
Have you asked your Doctor about your leg giving out on you? Has you Doctor discussed with you any thing about nerve damage that you might have? This is definitely a problem that you need to talk with your Doctors about!
It is rough having to give-up a job, especially one that you love! I had to do just that! I had retired from the USAF and I had started a new promising career that "I" choose and one that had very deep meaning, and significance to me! I really hadn't even worked in my new choosen field very many years and I did have to give it all up! It was a very difficult and painful decision, but it was necessary! Life does go on though! But ones life is definitely different, and it will never be the same as it was! If you find yourself in this position, at least know that you are not alone! There are many of us here that went before you, so we do have at least some understanding of what you are experiencing!
We can't give you any professional medical advice here ( we are not doctors) but we can give you good solid compassionate support! I think over time you might even consider the folks here at this forum part of an extended family of sorts!
I do wish you well! Good Luck to You!