Post Edited (PAlady) : 4/24/2009 12:47:40 PM (GMT-6)
Post Edited (TonyMcGuire) : 4/24/2009 1:20:43 PM (GMT-6)
Post Edited (White Beard) : 4/24/2009 4:15:50 PM (GMT-6)
Post Edited (Pamela Neckpain) : 4/25/2009 3:19:45 AM (GMT-6)
Hi Tony and sorry for the delay in getting here as I didnt get on at all yesterday.
Pain versus neuropathy? My gosh lets see I have sciatica that flares only at this point and I CANNOT imagine having that kind of pain 24/7 my friends. When it hits it does so with a vengence and there isnt awhole lot of anything I can do to slow it down,speed it up,or darn even give it a break.
I like Pamela "look" very normal and all my limps and drags from the numerous knee ops are now long gone(except during sciatica flare) so when we dont look like a CPer for some dumb reason we have a much more difficult battle with all things from convincing ourselves we havent lost out mind to convincing the Doc we really are in pain to warrant this much meds.
I can darn sure wear a brave face when I have to doesnt mean if you were to take look into my dental scope you wont find bit cheecks,ground teeth etc. Lol
I am sanely watching you on the lyrica and cymbalta as they have been suggested and one even tried by me and my Doc but the lyrica had some strange effects on my sanity and it isnt much to brag about to begin with. The other I am still hoping for.
I cant only tell you a story here that makes my blood run cold even after all these years. My Dad one day out of nowhere has this shoulder problem come upon him. NOw he is 60 years old and still working so I am thinking maybe he did something,doesnt recall it. It gets worse as far as the pain,they cant find nothing wrong anywhere in the are at this point. Send him to PT. It doesnt help and he still is freakin after 11 months of this. I am at his house one day and he is outside when I walk up the drive and I see him banging his shoulder on the brick wall of the house! I am like OMG what is he doing? I ask him in a not so nice voice just what is going on down here and simply states that the physical pain much outweighs whatever that burning pain is in his shoulder! That about sums up how I feel sometimes during one of those flares.
Turns out Dad had a tumor high up in the cervical region that had been secondary to lung cancer and he was gone from me in 45 short days later. Never know do we? He had been to numerous Docs of every kind noted and yes even a Neuro and spiny and it was not once seen or found until it was far too late. He never got sick,didnt take off work till the day before he did and he left a few hours early,lay down that next night and went gently into a coma and was gone within 12 hours. Had it not been for the pain of those long months in his shoulder and oh by the way no one treated that pain cause they couldnt find a cause and that was the most difficult part of the entire thing for me,knowing he suffered all those months without so much as a glorified tylenol,and he was well into the last stages of lung cancer it would have been a perfect exit. So it irritates me when I see Docs who wont write nothing until they find something. You whats going thru their minds when somehting like this happens? Doesnt it both them to know that because they were terrifed of the DEA or afraid to give out a few pills a man spent the last months of his life hitting banging his shoulder against a brick wall?
Well thats enough on that soap box but I wish you the best of luck and sure hope this thread helps as I see alot of good info here and I am going to read it all again.
Thanks Pamela, I was pretty irate myself to think someone I loved suffered such for no reason,made me a nasty advocate for pain management though.LOl
The DEA has wrecked havoc here in KY this month making arrests and busting Docs and knocking down doors and all this hype ends up hurting who? The legit folks trying to have some kind of life!
The greedy have been driving to Florida and hauling back thousands of ocy,methadone,zanax,you name it and in numbers that are astounding and putting them on the street. Evidently FL has no kind of tracking for narcotics in place that is working and the money was more then the risk of getting caught to these guys. They have made somewhere around 60 arrests netting more then 2.4 million dollars in cash for themselves as well as all the cars,houses,whatever else they get when they take you down,to coiffers of KY and many of these are small towns and thats alot of money!
The street value alone for these drugs they confiscated were nears a billion!
Now what they did to the Docs I havent got wind of yet as they were all based in lower FL,one of the kids busted said he was told by someone else he could get whatever he wanted in that state and to go there and find one of those weekly free papers I think all states print and open to the middles pages and he would find a list of Docs and clinics that prescribed narcotics He did and was written 120 oxy-40's 180 zanax bars,and oxy ir 15mgs right on the 1st visit no MRI's,x-rays,nothing other then his word of what was wrong with him! 19 years old and a college athlete no less. Cost him $240 for the visit,gas to get there and he was raking in somewhere close to $5000 for his trouble each month,next month he took 2 friends and they got their preferred meds as well!
I get sick reading this kind of thing as I know so so many CPers that cant get nothing more then tramadol! What folks dont do is read the stories in their entiriety and all they see is "drug busts" Oxy-c,methadone, Docs raided" These are NOT professional folks and CPers here these are folks diverting these things to the street for money.
Still scares alot of good Docs and makes them leery of anyone seeking meds.
I know I have seen posts here from pain folks that cant get relief that live in FL and that really irks me to no end. How can these Docs do this kind of thing for profit and allow the real folks needing the stuff to flail around in misery? I fear now after all the hype it will get worse for them living in that state.
I cant begin to know how to fix it other then FL needs to get a better tracking system in place and do a little better job of finding out why someone drives 20 hours from their home to get pain management as I dont know too many folks on the up andup that can afford to do that. I couldnt.
Post Edited (TonyMcGuire) : 4/25/2009 11:56:52 AM (GMT-6)