P.S. Kitty, the goal would be to be able to get OFF pain meds, BUT that may not happen, LDN is successful if the pain level is reduced, pain med dose can be cut down OR if pain level is reduced and current PM dosage does not need to be increased! There are people who are able to discontinue pain meds, wouldn't that be a MIRACLE....however, my personal goal is to reduce both pain level/PM.
Yes, my PT thought I have Foot Drop, they truly never made an official dx....also considered was RSD....Dx is Peripheral Neuropathy undetermined etiology, the Peroneal Nerve is permanently damaged both legs, its been 5 years since the diagnosis. While working I reached for a patients foot and felt an electric shock go up the spine, immediately felt a quarter size area of numbness in the buttock.....over the next few months it was in both legs but I feel the left is worse, on the EMG it shows the right leg nerve is worse? Go figure. MRI shows disc bulges but no evidence of Spinal cord compression. Sooooo they say etiology undetermined. Several NS and Neurologists said when the CS ruptures occured there was permanent spinal cord injury that doesn't show sometimes for years. The severe unbearable pain, snake like creepy crawly feeling stopped after about 3.5 yrs. The tingling is there and pain, if I over do (don't know exactly what I do) it flares to an unbearable level. Since LDN, haven't had it reach that unbearable level, but I am very aware of how numb they are!
I do some PT exercises in front of the mirror, while looking at the feet, it connects the brain to the limb.....sounds wierd but it works. Even though I do these, if I walk too much I start to drag the left leg.
Chronic Pain is a reason to try LDN, from all the research and questions I have asked there are NO side effects except MAYBE nausea when first starting the LDN. I did NOT experience any at all. I did have severe fatigue every day around 2 but that stopped last week.
As I said they told me you know within 2-3 weeks if LDN will work for you. With that in mind, I truly think this is worth the try!
Great that your cousin is a Pharmacist, if she needs more info I posted Irmat's number, I'm sure she can call them if she needs to! They are very available any time I call and open 9-5 EST.
Yesterday, I went to a BBQ (can you believe this 2 events in one week) anyway, I met a woman who is in CP from a horrible motorcycle accident 8 yrs ago! She has disc bulges and nerve damage, suffered many broken bones. We were chatting and guess what? Yup, she is on LDN for the last 3 months. It is working for her too, I was so excited to hear this news! I felt euphoric while talking to her...what are the chances of this happening? I also told her about HW....she said like me she had changes within the first week! I am even more hopeful now!
When you read the research, it is recommended to D/C Pain Meds....when I questioned this my Dr. and the Pharmacist told me no, stay on your regular dose of PM...as you begin to feel better then you start to cut back! I am working with my PM Dr., he told me even if I stay at this dosage and it controls the pain, it is successful. I did not find out about LDN from my PM Dr., but made an appt. when I was told of this, I take the pain contract very seriously (if I was going to be changing the dosage I had to have him involved). He had never heard of using LDN, while I was in his office, he pulled up the data on Google and said GO FOR IT! He and my other Dr. are documenting my progress, there are thousands of people with CP currently taking LDN. The statistics so far are promising. Like all other meds everything doesn't work for everybody, but, it is will worth a trial in my opinion! My sister from PA is visiting and is an ER Nurse, when I told her yesterday I was on LDN, she said they have seen several people taking it and she's heard positive feedback!
You can call Irmat Pharmacy in NY, they are more than willing to answer questions!
Hope this helps!
I'm with you on everything you said! The Dr. that told me about LDN is my old employer and family M.D. he is also a Homeopath. He is always hunting for an answer for me, I worked with him for 21 years...it was a sad day when I couldn't do my job any longer His and my dream is to get me feeling well enough to return to work.....THAT would be a miracle, I never give up hope!