Wish I Had a SCS today

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modelmaker
Regular Member


Date Joined Feb 2009
Total Posts : 168
   Posted 5/1/2009 7:56 AM (GMT -7)   
I am in agony. After two days of decreasing baro pressure and rain my spine feels like it's on FIRE. After four spinal surgeries my spine seems to be overly sensitive to fluctuations in pressure. More so with rapidly decreasing pressures like before a storm. Now I get to enjoy two storms: outside and inside. Oxycodone doesn't touch it. No meds I have taken so far can touch it. I'm hoping a SCS will help. In the meantime I am pretty much brought to a standstill. Or should I say sitstill in my recliner. This pain is about as bad as anything I have experienced recently. An icepack is about the only relief I can find and that is minimal. Does anyone have any ideas?

Modelmaker is hurtin'

bluejet2
Regular Member


Date Joined Feb 2009
Total Posts : 487
   Posted 5/2/2009 9:10 AM (GMT -7)   
Modelmaker:

I am sorry you are hurting so badly. I, too, am very sensative to weather changes. I wish there was something I could say or do to make the pain go away, I try to hang on to the thought that it will get a little better once the bad weather moves on out.

I hope that you are feeling better soon.

Lorie

Tirzah
Veteran Member


Date Joined Jul 2008
Total Posts : 2280
   Posted 5/2/2009 1:59 PM (GMT -7)   
Maybe caffeine? Also, be sure to drink plenty of water. Those will increase the pressure of your cerebral-spinal fluid & increase blood pressure which should help if the problem is either vascular (like a migraine) or low CSF fluid in your spine.

Hope that helps!
frances

PAlady
Veteran Member


Date Joined Nov 2007
Total Posts : 6795
   Posted 5/2/2009 2:03 PM (GMT -7)   
Model,
I've only realized this past year how bad weather affects me. It never did before. But I'm still trying to figure it all out. The cold nights we're still getting cause major flares and for me it's getting out all the hardware - TENS unit, heating pack, and sometimes a couple of advil (which I don't normally take) can take an edge off. Otherwise, it's just suffer through it. Percocets and neurontin don't seem to help that aspect.

Wish I could help more!

PaLady

anice
Veteran Member


Date Joined Apr 2009
Total Posts : 536
   Posted 5/2/2009 2:05 PM (GMT -7)   
I am so sorry to hear that you are hurting so badly and unable to get any relief. I agree that maybe when the weather moves out of your area you might get some relief. Are you able to take a hot,soaking,relaxing bath. That may help a little...
I will keep you in my thoughts.
Anice

modelmaker
Regular Member


Date Joined Feb 2009
Total Posts : 168
   Posted 5/2/2009 3:08 PM (GMT -7)   
Hi all,

Thanks for all your kind posts and thoughts. They really help.

I once had it explained to me that when the weather (baro pressure) is high and stable (good, clear, dry air) the spinal fluid increases its pressure to match the outside high pressure. Then when the outside pressure drops, the spinal cord expands or swells because it is still at the higher pressure. This swelling can put pressure on the nerves in the spinal cord. And since my spine has had so many pieces removed for laminectomies, the spinal cord has less bony containment and is somewhat free to swell in areas that would otherwise be contained. When the pressure in the spinal cord reduces to match the outside pressure, the swelling goes down and we start all over again. It's a roller coaster ride for me. This explanation sort of makes sense to me. But it still doesn't fix the problem. The ice packs must reduce the swelling and offer some relief. Fortunately, the weather has turned and the pain seems to have reduced to manageable (pain meds) levels. People suffering with arthiritic joints can feel the same pain related to pressure changes. I also have arthritic facet joints. How lucky is that!

I really appreciate your thoughtful posts and concerns.

Best to all my CP friends.
Modelmaker

Danimal
Regular Member


Date Joined Mar 2009
Total Posts : 80
   Posted 5/2/2009 4:54 PM (GMT -7)   
hey modelmaker:

I also feel the weather changes. I write about this on my blog...how I get very cranky when it rains because I end up being so sore.

You know what actually helps me? Alleve! I know that seems weird since so many of us take morphine and other strong pain meds. but the Alleve in combination with those on weather-changing days really does help. I take the prescription dose...2 tablets twice a day. If you can take it, you may want to consider it (not for long term use....just here and there).

Also..can you get massage? I get therapeutic massage on parts of my back (minus where my stimulator cables are and where my old incisions are) and also on my legs and arms. It actually really, really helps. I found someone to work with thru my pain center.

Finally, moist heat helps me.

Hang in there....I know how it is. shocked

Danimal

http://chronicstimulation.blogspot.com/

BionicWoman
Regular Member


Date Joined Jul 2008
Total Posts : 243
   Posted 5/2/2009 8:58 PM (GMT -7)   
Those are the days I seriously consider amputation - at the NECK. smhair

Pamela Neckpain
Veteran Member


Date Joined May 2008
Total Posts : 1821
   Posted 5/2/2009 9:04 PM (GMT -7)   
Jinx ... You owe me a coke, Bionic ........

Me toooooooooooooooooooooooooooo.

I hope that isn't just a California thing to say.

It sounded better than "ditto"
MEDICAL CONDITIONS

Osteoarthritis all levels of spine right down to Coccyx,Spondilytis,Myofascial Pain
Fibromyalgia,Bulging Discs,Spinal Stenosis,Scoliosis,Osteopenia,Chronic Constipation
Carpel Tunel Syndrome, Attention Deficit Disorder,
Depression & Anxiety

Methadone for Pain, Xanax for Anxiety, and more, of course.


straydog
Forum Moderator


Date Joined Feb 2003
Total Posts : 13451
   Posted 5/4/2009 12:58 AM (GMT -7)   
I always know before the weather changes. Both knees are arthritic as well as the back & neck. Its just miserable. Last week when I had my pump refilled and an increase my PM dr sid all of her patients are suffering more because of the crazy weather we are having....Susie


Scarred_for_life
Veteran Member


Date Joined Jul 2008
Total Posts : 1559
   Posted 5/4/2009 2:15 PM (GMT -7)   
Ahhh I see I am not alone in this problem!! I too have found that the weather has a direct affect on my increase in pain. I've had four surgeries on my knees and they too have been in a lot of pain as of late. My husband who broke his ankle years ago and had to have a plate put into his foot at the ankle too has been experiencing a lot of pain in his foot when the weather changes. He's never had a problem with it before until he started getting older. Sign of old age? Maybe not but the old bones (45 years) are starting to creak here and there LOL.

Hugs

Scarred
What doesn't kill us only makes us fight back harder! :P

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